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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Eating Disorder Demographics

319 Shared Subjects

N/A
Clinical Assessments
Demographics
02/24/2017
eatdisdemo01
09/26/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age, edds23
sex String 20 Required Sex of the subject
M;F
M = Male; F = Female edds22, gender
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query visit String 50 Recommended Visit name assessment
Query rhanded Integer Recommended Are you right handed? 0;1 0=No; 1=Yes
fspgod String 35 Recommended Subject's gender OTHER describe
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
Query ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown
ethnic_group String 255 Recommended Ethnic group
Query edutot Float Recommended Total years of education
Query medication1_name String 500 Recommended Name first medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication1_dosage String 100 Recommended First medication dosage 0 = No medication; 999 = Missing
Query months1 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
Query medication2_name String 200 Recommended Name second medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication2_dosage String 100 Recommended Second medication dosage 0 = No medication; 999 = Missing
Query months2 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
Query medication3_name String 150 Recommended Name third medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication3_dosage String 100 Recommended Third medication dosage 0 = No medication; 999 = Missing
Query months3 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
Query medication4_name String 100 Recommended Name fourth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication4_dosage String 100 Recommended Fourth medication dosage 0 = No medication; 999 = Missing
Query months4 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
Query medication5_name String 500 Recommended Name fifth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication5_dosage String 100 Recommended Fifth medication dosage 0 = No medication; 999 = Missing
Query months5 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
Query visualacuity Integer Recommended Visual acuity (both eyes)
Query edi3_99 Integer Recommended Lowest weight as an adult (or lowest weight as an adolescent if not yet age 18): pounds
Query height_lowest_weight Float Recommended Height at time of lowest weight as an adult (or as an adolescent if under 18) in inches inches
Query bmi_lowest_weight Float Recommended BMI at time of lowest weight as an adult (or as an adolescent if under 18)
Query sum2_glass String 50 Recommended Does the examinee have glasses or corrective lenses? Yes;No; NA
Query edi3_96 Float Recommended Highest past weight (excluding pregnancy): pounds
Query height_highest_weight Float Recommended Height at time of highest weight as an adult (or as an adolescent if under 18) in inches inches
Query bmi_highest_weight Float Recommended BMI at time of highest weight as an adult (or as an adolescent if under 18)
Query pre004 Integer Recommended Pregnancy Test Result 1;2;9;-9 1=Positive; 2=Negative; 9=Equivocal; -9=Unknown
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Query weight_std Float Recommended Weight - Standard Unit -1 = Not known
baseline_a_002 String 100 Recommended Interview Start Time:
Query height Float Recommended Medical history and physical development - Height (inches) inches
Query meal_number Float Recommended Number of/how many meals on interview day?
v1_lab_mealtime String 15 Recommended Time of last meal (24hr clock) hh:mm
Query ftnd_7 Integer Recommended Do you currently smoke any cigarettes? Y/N 0::2; -99; 77; 88 0=No; 1=Yes; 2=No, but used to; -99=NA; 77=refused; 88=missing
Query eeg_s_05 Float Recommended In the past 24 hours, how many drinks containing alcohol (i.e. beer, wine, mixed drinks) did you have?
photo_rating String 100 Recommended Photo Ratings
treatment_name String 200 Recommended treatment name
Query otherpasttreatmentintervent1_1 String 100 Recommended Other Past Treatment 1 Intervention
cmstrtdt Date Recommended Start Date
Query txenddt Integer Recommended Psychotherapy treatment end date
Query scid5_dis1_type_anorexia Integer Recommended Anorexia Nervosa Subtype 1;2 1=Bingeeating/purging type; 2=Restricting type
Query ameno_duration Integer Recommended Duration of Amenorrhea (months) in months
Query bmi Float Recommended body mass index of subject
diagnosis_other_specify String 500 Recommended What other diagnoses has the participant had?
Query bmi_restored Integer Recommended Weight restored greater than or equal to 18.5 corrected BMI 0;1 0 = No; 1 = Yes
Query restored_months Integer Recommended Months weight restored
Query underweight_duration Integer Recommended If weight restored, duration at a weight less than 85% of ideal body weight (months) in months
weight_loss_rate String 300 Recommended Rate of weight loss
Query lti_doi Float Recommended Duration of Illness, years
future_intervention String 100 Recommended Plan to continue following interventions
Query mri_screen Integer Recommended MRI screened 0;1 0 = No; 1 = Yes
Query sesscore Float Recommended Hollingshead SES Score 8.0 :: 66.0
testgrp String 50 Recommended Laboratory Test Group
behavior String 250 Recommended Behavior Observations
behavobs_referralreason String 255 Recommended Reason for Referral/Presenting Complaint(s)
Query historyrec String 4,000 Recommended Brief Medical History
psyhxdsc String 250 Recommended Psychiatric History Item Description
strtxreceivedpsycdis String 255 Recommended What treatment was/is received?
namepsycmed String 150 Recommended Name-psychotropic med
personal_notes String 255 Recommended Comments
Query family_history String 500 Recommended Notes/Comments on family history
bkgrnd_diag String 255 Recommended Diagnosis. Provided by parent
Query surm046a Integer Recommended individual sessions with a mental health provider. Number of outpatient visits of this type
Query medication6_name String 500 Recommended Name sixth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication6_dosage String 100 Recommended Sixth medication dosage 0 = No medication; 999 = Missing
Query months6 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
Query medication7_name String 100 Recommended Name seventh medication that the participant has taken 0 = No medication; 999= Legitimately skipped
Query medication7_dosage String 100 Recommended Seventh medication dosage 0 = No medication; 999 = Missing
Query months7 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
medication8_name String 100 Recommended Name eighth medication that the participant has taken 0 = No medication; 999= Legitimately skipped
medication8_dosage String 100 Recommended Eighth medication dosage 0 = No medication; 999 = Missing
Query months8 Float Recommended Number of months on this medication 0 = No medication; 9999=NK
medication9_name String 100 Recommended Name ninth medication that the participant has taken
medication9_dosage String 100 Recommended Ninth medication dosage
Query months9 Integer Recommended Number of months on this medication 9999=NK
medication_10_name String 100 Recommended specify med 10
medication10_dosage String 50 Recommended Tenth medication dosage
Query months10 Integer Recommended Number of months on this medication 9999=NK
Query fsprels Integer Recommended Which category best describes your current relationship status? 1::9 1= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Other
marital_status_specify String 255 Recommended Other marital status - Please describe:
Query edi3_101 Float Recommended How long did you weigh this weight? months
dawba_p2_d String 10 Recommended Diet/Weight/Body - What was your highest weight ever?
past_wt String 50 Recommended How long ago were you at your highest weight?
current_wt String 50 Recommended How long have you been at your current weight?
phcm String 30 Recommended Module B: Miscellaneous Disorders - Eating Disorders (EAT). Height in centimeters edds20, eddsheight
weight String 50 Recommended weight edds19, eddsweight
Query binge_lifetime Integer Recommended Lifetime occurrence of binge episodes 0;1 0 = No; 1 = Yes binge
binge_recent String 30 Recommended Date of the most recent binge episode
Query binge_pastweek Integer Recommended Number of binge episodes in the past week
Query purge Integer Recommended Lifetime use of purging 0;1 0 = No; 1 = Yes
Query purge_recent String 30 Recommended Date of the most recent purge episode
Query purge_pastweek Integer Recommended number of purge episodes in the past week
Query laxative Integer Recommended lifetime use of laxatives 0 :: 1 1 = yes, 0 = no
Query lax_pastweek Integer Recommended number of times participant used laxatives in the past week
Query diuretic Integer Recommended lifetime use of diuretics 0 :: 1 1 = yes, 0 = no
Query diur_pastweek Integer Recommended number of times participant used diuretics in the past week
Query bodyfat Float Recommended Participant's percentage body fat
date_menst_psychhx String 30 Recommended First date of the last menstrual cycle (females only) menstrual
Query fast Integer Recommended lifetime use of fasting (8+ hours) 0 :: 1 1 = yes; 0 = no
Query fast_pastweek Integer Recommended number of times participant fasted in the past week
Query mealpattern Integer Recommended have your meal patterns been stable? 0 :: 1 1 = yes, stable, 0 = no, unstable mealpattern_stable
Query meals_describe String 300 Recommended if your meal patterns have not been stable, describe
meals_yesterday String 300 Recommended what was your meal pattern yesterday?
Query condition_name String 250 Recommended Experimental condition name condition
Query dawba_m1_p_loss_control Integer Recommended Areas of Difficulty - Loss of Control 0::1;999; -999 0 = No; 1 = Yes; 999 = Not Applicable; -999 = Missing edds5
Query ebfl Integer Recommended EB Eat so much uncomfortably full
0::1;999; -999
0 = No; 1 = Yes; 999 = Not Applicable; -999 = Missing edds8
Query ebaln Integer Recommended EB Eat alone because embarrassed
0::1;999; -999
0 = No; 1 = Yes; 999 = Not Applicable; -999 = Missing edds10
Query ebdsg Integer Recommended EB Feel disgusted after overeating
0::1;999; -999
0 = No; 1 = Yes; 999 = Not Applicable; -999 = Missing edds11
Query edds1 Integer Recommended Over the past TWO WEEKS have you felt fat? 0::6; 999 0 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
Query edds2 Integer Recommended Over the past TWO WEEKS have you had a definite fear that you might gain weight or become fat? 0::6; 999 0 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
Query edds3 Integer Recommended Over the past TWO WEEKS has your weight or shape influenced how you judge yourself as a person? 0::6; 999 0 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
Query edds4 Integer Recommended During the past 2 weeks have there been times when you felt you have eaten what other people would regard as an unusually large amount of food (e.g., a pint of ice cream) given the circumstances? 0::1;-999 0 = No; 1 = Yes -999 = Missing
Query edds6 Integer Recommended How many times per week on average over the past 2 weeks have you eaten an unusually large amount of food and experienced a loss of control? 0::16; 888; 999 888 = Behavior has not happened; 999 = Missing
Query edds7 Integer Recommended During episodes of overeating with a loss of control, did you eat much more rapidly than normal?
0;1;999
0=No; 1=Yes; 999 = N/A
Query edds9 Integer Recommended During episodes of overeating with a loss of control, did you eat large amounts of food when you didn't feel physically hungry?
0;1;999
0=No; 1=Yes; 999 = N/A
Query edds12 Integer Recommended If you have episodes of uncontrollable overeating, does it make you very upset?
0;1;999
0=No; 1=Yes; 999 = N/A
Query edds13 Integer Recommended In order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you made yourself vomit? 0::16; 999 999 = Missing
Query edds14 Integer Recommended In order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you used laxatives or diuretics? 0::16; 999 999 = Missing
Query edds15 Integer Recommended In order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you fasted (skipped at least 2 meals in a row)? 0::16; 999 999 = Missing
Query edds16 Integer Recommended In order to prevent weight gain or counteract the effects of eating, how many times per week on average over the past 2 weeks have you engaged in more intense exercise specifically to counteract the effects of overeating? 0::16; 999 999 = Missing
Query edds17 Integer Recommended How many times per week on average over the past 2 weeks have you eaten after awakening from sleep or eaten an unusually large amount of food after your evening meal and felt distressed by the night eating? 0::16; 999 999 = Missing
Query edds18 Integer Recommended How much do eating or body image problems impact your relationships with friends and family, work performance, and school performance? 0::6; 999 0 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
Query edds21 Float Recommended What is your highest weight at your current height? Weight in kg.
who_raised_explain String 50 Recommended If other primary caregiver who raised you, explain
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.