|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
medhx_guidid, nimhid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
ptid, record_id |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
medhx_age_months, scsdate, testdate |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
age, eating_disorders_examination_questionnaire_60_edeq_timestamp |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
equest1 |
Integer |
|
Recommended |
Have you been deliberately trying to limit the amount of food you eat to influence your shape or weight (whether or not you have succeeded)? |
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999=missing
|
ede_1, ede_q_6_1, edeq01, edeq1, edeq6_1, edeq_01, edeq_1, edeq_q_1 |
|
equest2 |
Integer |
|
Recommended |
Have you gone for long periods of time (8 waking hours or more) without eating anything at all in order to influence your shape or weight? |
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999=missing
|
ede_2, ede_q_6_2, edeq02, edeq2, edeq6_2, edeq_02, edeq_2, edeq_q_2 |
|
edeq03 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you tried to avoid eating any foods which you like in order to influence your shape or weight? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_3, edeq3, edeq6_3, edeq_3, edeq_q_3 |
|
equest4 |
Integer |
|
Recommended |
Have you tried to follow definite rules regarding your eating (for example, a calorie limit) in order to influence your shape or weight (whether or not you have succeeded)? |
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999=missing
|
ede_q_6_4, edeq04, edeq4, edeq6_4, edeq_04, edeq_4, edeq_q_4 |
|
edeq05 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you wanted your stomach to be empty? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_5, edeq5, edeq_5, edeq_q_5 |
|
edeq06 |
Integer |
|
Recommended |
On how many days of the past 28 days, has thinking about eating, food, calories, or calorie content made it much more difficult or very difficult to concentrate on things you are interested in; for example, work, read, watch TV or follow a conversation? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_7, edeq6, edeq6_7, edeq_7, edeq_q_7 |
|
edeq07 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you been afraid or had a definite fear of losing control over eating? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_9, edeq6_9, edeq7, edeq_9, edeq_q_9 |
|
rmq1 |
Integer |
|
Recommended |
On how many days of the past 28 days have you eaten an objectively large amount of food which most people would agree was too much to have at one time, (i.e. bingeing), accommpanied by a loss of control (i.e. you couldn't resist eating, or once you started you felt that you couldn't stop)? |
0::6; 9999
|
0 = None; 1 = 1-5 days; 2 = 6-12 days; 3 = 13-15 days; 4 = 16-22 days; 5 = 23-27 days; 6 = 28 days; 9999=missing
|
edeq08, edeq8 |
|
equest19 |
Integer |
|
Recommended |
Over the past 28 days, on how many days have you eaten in secret (ie, furtively)? Do not count episodes of binge eating |
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999=missing
|
ede_q_6_19, edeq09, edeq6_19, edeq9, edeq_19, edeq_q_19 |
|
edeq10 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you definitely wanted your stomach to be flat or had a definite desire to have a totally flat stomach? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_6, edeq6_6, edeq_6, edeq_q_6 |
|
edeq11 |
Integer |
|
Recommended |
On how many days of the past 28 days, has thinking about shape or weight made it more difficult or very difficult to concentrate on things you are interested in; for example, work, read, watch TV or follow a conversation? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_8, edeq6_8, edeq_8, edeq_q_8 |
|
edeq12 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you had a definite fear that you might gain weight or become fat? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_10, edeq6_10, edeq_10, edeq_q_10 |
|
edeq13 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you felt fat? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_11, edeq6_11, edeq_11, edeq_q_11 |
|
edeq14 |
Integer |
|
Recommended |
On how many days of the past 28 days, have you had a strong desire to lose weight? |
|
0=no days; 1=1-5 days; 2=6-12 days; 3=13-15 days; 4=16-22 days; 5=23-27 days; 6=every day; 9999=Missing
|
ede_q_6_12, edeq6_12, edeq_12, edeq_q_12 |
|
edeq15 |
Integer |
|
Recommended |
Over the past four weeks (28 days), on what proportion of times that you have eaten have you felt guilty because of the effect on your shape or weight? (Do not count binges.) (Circle the number which applies.) |
|
0=none of the time; 1=a few of the times; 2=less than half of the times; 3=half of the times; 4=more than half of the times; 5=most of the times; 6=every time; 9999=missing
|
ede_q_6_20, edeq_q_20 |
|
edeq16 |
Integer |
|
Recommended |
Over the past four weeks (28 days), have there been any times when you have felt that you have eaten what other people would regard as an unusually large amount of food given the circumstances? |
0::1
|
0=No; 1=Yes
|
ede_q_6_13 |
|
equest13 |
Integer |
|
Recommended |
Over the past 28 days, how many times have you eaten what other people would regard as an unusually large amount of food (given the circumstances)? |
|
|
edeq17, edeq6_13, edeq_13, edeq_q_13 |
|
equest14 |
Integer |
|
Recommended |
On how many of these times did you have a sense of having lost control over your eating (at the time that you were eating)? |
|
|
ede_q_6_14, edeq18, edeq6_14, edeq_14, edeq_q_14 |
|
edeq19 |
Integer |
|
Recommended |
Over the past four weeks (28 days), have you had other episodes of eating in which you have had a sense of having lost control and eaten too much, but have not eaten an unusually large amount of food given the circumstances? |
0::1
|
0=No; 1=Yes
|
|
|
equest15 |
Integer |
|
Recommended |
Over the past 28 days, on how many days have such episodes of overeating occurred (i.e., you have eaten an unusually large amount of food and have had a sense of loss of control at the time)? |
|
|
ede_q_6_15, edeq6_15, edeq_15, edeq_q_15 |
|
edeq21 |
Integer |
|
Recommended |
Over the past four weeks (28 days), have you made yourself sick (vomit) as a means of controlling your shape or weight? |
0::1
|
0=No; 1=Yes
|
|
|
equest16 |
Integer |
|
Recommended |
Over the past 28 days, how many times have you made yourself sick (vomit) as a means of controlling your shape or weight? |
|
|
ede_q_6_16, edeq22, edeq6_16, edeq_16, edeq_q_16 |
|
edeq23 |
Integer |
|
Recommended |
Over the past four weeks (28 days), have you taken laxatives as a means of controlling your shape or weight? |
0::1
|
0=No; 1=Yes
|
|
|
equest17 |
Integer |
|
Recommended |
Over the past 28 days, how many times have you taken laxatives as a means of controlling your shape or weight? |
|
|
ede_q_6_17, edeq24, edeq6_17, edeq_17, edeq_q_17 |
|
edeq25 |
Integer |
|
Recommended |
Over the past four weeks (28 days), have you taken diuretics (water tablets) as a means of controlling your shape or weight? |
0::1
|
0=No; 1=Yes
|
|
|
diurday |
Integer |
|
Recommended |
Over the past month, how many days have you taken diuretics as a means of controlling your shape or weight? |
0::31
|
|
edeq26 |
|
edeq27 |
Integer |
|
Recommended |
Over the past four weeks (28 days), have you exercised hard as a means of controlling your shape or weight? |
0::1
|
0=No; 1=Yes
|
|
|
equest18 |
Integer |
|
Recommended |
Over the past 28 days, how many times have you exercised in a "driven" or "compulsive" way as a means of controlling your weight, shape or amount of fat, or to burn off calories? |
|
|
ede_q_6_18, edeq28, edeq6_18, edeq_18, edeq_q_18 |
|
edeq29 |
Integer |
|
Recommended |
Over the past four weeks (28 days), has your weight influenced how you think about (judge) yourself as a person? |
|
0=not at all; 1=1; 2=Slightly; 3=3; 4=Moderately; 5=5; 6=Markedly; 9999=missing
|
ede_q_6_22, edeq6_22, edeq_22, edeq_q_22 |
|
edds3 |
Integer |
|
Recommended |
Over the past TWO WEEKS has your weight or shape influenced how you judge yourself as a person? |
0::6; 999
|
0 = Not at all; 2 = Slightly; 4 = Moderately; 6 = Extremely; 999 = Missing
|
edeq30 |
|
equest24 |
Integer |
|
Recommended |
How much would it have upset you if you had been asked to weigh yourself once a week (no more, or less, often) for the next four weeks? |
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 9=Participant reports a positive reaction to question; 9999 =missing
|
ede_q_6_24, edeq31, edeq6_24, edeq_24, edeq_q_24 |
|
edeq32 |
Integer |
|
Recommended |
Over the past four weeks (28 days), how dissatisfied have you felt about your weight? |
|
0=not at all; 1=1; 2=Slightly; 3=3; 4=Moderately; 5=5; 6=Markedly; 9999=missing
|
ede_q_6_25, edeq6_25, edeq_25, edeq_q_25 |
|
edeq33 |
Integer |
|
Recommended |
Over the past four weeks (28 days), how dissatisfied have you felt about your shape? |
|
0=not at all; 1=1; 2=Slightly; 3=3; 4=Moderately; 5=5; 6=Markedly; 9999=missing
|
ede_q_6_26, edeq6_26, edeq_26, edeq_q_26 |
|
equest21 |
Integer |
|
Recommended |
Over the past 28 days, how concerned have you been about other people seeing you eat? Do not count episodes of binge eating |
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 9999=missing
|
ede_q_6_21, edeq34, edeq6_21, edeq_21, edeq_q_21 |
|
equest27 |
Integer |
|
Recommended |
How uncomfortable have you felt seeing your body (for example, seeing your shape in the mirror, in a shop window reflection, while undressing or taking a bath or shower)? |
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 9999=missing
|
ede_q_6_27, edeq35, edeq6_27, edeq_27, edeq_q_27 |
|
equest28 |
Integer |
|
Recommended |
How uncomfortable have you felt about others seeing your shape or figure (for example, in communal changing rooms, when swimming, or wearing tight clothes)? |
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 9999=missing
|
ede_q_6_28, edeq36, edeq6_28, edeq_28, edeq_q_28 |
|
resfin |
Float |
|
Recommended |
Final Restraint Score in the Final Questionnnaire |
|
|
edeq_score_restraint |
|
eatcfin |
Float |
|
Recommended |
Final Eating Concerns Score in the Intake Questionnaire |
|
|
edeq_score_eating |
|
shacfin |
Float |
|
Recommended |
Final Shape Concerns Score in the Intake Questionnaire |
|
|
edeq_score_shape |
|
weicfin |
Float |
|
Recommended |
Final Weight Concerns Score in the Intake Questionnaire |
|
|
edeq_score_weight |
|
edeqfin |
Float |
|
Recommended |
Final EDEQ Total Score in the Intake Questionnaire - prorated |
|
|
edeq_score_global |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
equest30 |
String |
15
|
Recommended |
What is your height? (Please give your best estimate.) |
|
|
ede_q_6_height, edeq6_30, edeq_q_30 |
|
equest29 |
String |
15
|
Recommended |
What is your weight at present? (Please give your best estimate.) |
|
|
ede_q_6_weight, edeq6_29, edeq_q_29 |
|
equest32 |
Integer |
|
Recommended |
If so, how many? |
|
|
ede_q_6_mp_number, edeq6_32, edeq_q_31_missed_period_count |
|
equest33 |
Integer |
|
Recommended |
Have you been taking the "pill"? |
0;1;88;999
|
0=No; 1=Yes; 88=Not applicable; 999=Missing
|
ede_q_6_pill, edeq6_33, edeq_q_31_taking_pill |
|
equest31 |
Integer |
|
Recommended |
If female: Over the past three-to-four months have you missed any menstrual periods? |
0;1;88;999
|
0=No; 1=Yes; 88=Not applicable; 999=Missing
|
ede_q_6_missed_periods, edeq6_31, edeq_q_31_missed_period |
|
edeq_q_23 |
Integer |
|
Recommended |
Over the past four weeks (28 days), has your shape influenced how you think about (judge) yourself as a person? |
0::6; 999
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 999=Missing
|
ede_q_6_23, edeq6_23, edeq_23 |
|
edeq_03 |
Integer |
|
Recommended |
Have you tried to exclude from your diet any foods that you like in order to influence your shape or weight (whether or not you have succeeded)? |
0::6
|
0 = No days; 1 = 1-5 days; 2 = 6-12 days; 3 = 12-15 days; 4 = 16-22 days; 5 = 23-27 days; 6 = every day
|
|
|
edeq_05 |
Integer |
|
Recommended |
Have you had a definite desire to have an empty stomach with the aim of influencing your shape or weight? |
0::6
|
0 = No days; 1 = 1-5 days; 2 = 6-12 days; 3 = 12-15 days; 4 = 16-22 days; 5 = 23-27 days; 6 = every day
|
|
|
ede_3 |
Integer |
|
Recommended |
Has thinking about food, eating, calories, shape or weight made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)? |
0 :: 6;999
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999= NA or Prefer Not to Answer
|
|
|
ede_4 |
Integer |
|
Recommended |
Have you had a strong desire to lose weight? |
0 :: 6;999
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999= NA or Prefer Not to Answer
|
|
|
ede_5 |
Integer |
|
Recommended |
Have you eaten what other people would regard as an unusually large amount of food (given the circumstances)? |
0 :: 6;999
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999= NA or Prefer Not to Answer
|
|
|
ede_6 |
Integer |
|
Recommended |
Have you made yourself sick (vomit) or taken laxatives as a means of controlling your shape or weight? |
0 :: 6;999
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999= NA or Prefer Not to Answer
|
|
|
ede_7 |
Integer |
|
Recommended |
Has your weight or shape influenced how you think about (judge) yourself as a person? |
0 :: 6;999
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 999= NA or Prefer Not to Answer
|
|
|
ede_8 |
Integer |
|
Recommended |
How dissatisfied have you been with your shape and weight? |
0 :: 6;999
|
0=Not at all; 2= slightly; 4= Moderately; 6=Markedly; 999= NA or Prefer Not to Answer
|
|
|
edeq20 |
Integer |
|
Recommended |
On what proportion of times that you have eaten have you felt guilty (felt that you have done wrong) because of its effect on your shape or weight? Do not count episodes of binge eating |
0::6; 9999
|
0=None of the times; 1=A few of the times; 2=Less than half; 3=Half of the times; 4=More than half; 5=Most of the time; 6=Every time; 9999=Missing
|
edeq6_20 |
|
ede_q5 |
Integer |
|
Recommended |
On how many of the past 28 days, have you had a definite desire to have an empty stomach with the aim of influencing your shape or weight? |
0::6; 9999
|
0 =No days; 1=1-5 days; 2= 6-12 days; 3=13-15 days; 4= 16-22 days; 5= 23-27 days; 6= Every day; 9999= NA or Prefer Not to Answer
|
edeq6_5 |
|
trtarm |
String |
200
|
Recommended |
Treatment arm |
|
|
treatment |
|
ptpr |
Integer |
|
Recommended |
Please indicate the status of the participant |
1;2
|
1=Patient; 2=Partner
|
|