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Eating Disorder Outside Treatment Form

69 Shared Subjects

N/A
Clinical Assessments
Treatment
01/10/2018
edotf01
06/14/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query otf01 Integer Recommended Since the last interview, have you been involved with or participatedd in: Individual Therapy 0::2 0= No; 1= Yes; 2= Current
Query otf01a Integer Recommended Individual Therapy type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf01b String 100 Recommended Specify: Individual Therapy
Query otf02 Integer Recommended Since the last interview, have you been involved with or participated in: Group Therapy 0::2 0= No; 1= Yes; 2= Current
Query otf02a Integer Recommended Group Therapy type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf02b String 100 Recommended Specify: Group Therapy
Query otf03 Integer Recommended Since the last interview, have you been involved with or participated in: Support Group 0::2 0= No; 1= Yes; 2= Current
Query otf03a Integer Recommended Support Group type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf03b String 100 Recommended Specify: Support Therapy
Query otf04 Integer Recommended Since the last interview, have you been involved with or participated in: Weight Loss Program 0::2 0= No; 1= Yes; 2= Current
Query otf04a Integer Recommended Weight Loss Program type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf04b String 100 Recommended Specify: Weight Loss Program
Query otf05 Integer Recommended Since the last interview, have you been involved with or participated in: Family and Couples Therapy 0::2 0= No; 1= Yes; 2= Current
Query otf05a Integer Recommended Family and Couples Therapy type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
scap3_1aspecify String 250 Recommended Family Therapy Session Problem Specify otf05b
Query otf06 Integer Recommended Since the last interview, have you been involved with or participated in: Nutritional Counseling 0::2 0= No; 1= Yes; 2= Current
Query otf06a Integer Recommended Nutritional Counseling type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf06b String 100 Recommended Specify: Nutritional Counseling
Query otf07 Integer Recommended Since the last interview, have you been involved with or participated in: Medication Management 0::2 0= No; 1= Yes; 2= Current
Query otf07a Integer Recommended Medication Management type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf07b String 100 Recommended Specify: Medication Management
Query otf08 Integer Recommended Since the last interview, have you been involved with or participated in: Medical Management 0::2 0= No; 1= Yes; 2= Current
Query otf08a Integer Recommended Medical Management type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf08b String 100 Recommended Specify: Medical Management
Query otf09 Integer Recommended Since the last interview, have you been involved with or participated in: Emergency Room Visits 0::2 0= No; 1= Yes; 2= Current
Query otf09a Integer Recommended Emergency Room Visits type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf09b String 100 Recommended Specify: Emergency Room Visits
Query otf10 Integer Recommended Since the last interview, have you been involved with or participated in: Hospitalization/Partial Hospitalization 0::2 0= No; 1= Yes; 2= Current
Query otf10a Integer Recommended Hospitalization/Partial Hospitalization type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
otf10b String 100 Recommended Specify: Hospitalization/Partial Hospitalization
Query otf11 Integer Recommended Since the last interview, have you been involved with or participated in: Other Treatment 0::2 0= No; 1= Yes; 2= Current
Query otf11a Integer Recommended Other Treatment type 1::3 1= Eating Disorder related; 2= Weight Related; 3=Both
txothsp String 800 Recommended treatment other specify otf11b
timepoint_label String 50 Recommended Timepoint/visit label
treatment_nature_01 Integer Recommended What was the nature of the treatment you received for your eating disorder? Inpatient treatment (general hospital) 0;1 0= No; 1= Yes
impact22 String 2,000 Recommended If you indicated that you saw an other health professional or a non-health professional for your eating disorder, please specify.
impact23 Integer Recommended Consider the last year you had an eating disorder (if you curently have an eating disorder, consider the past year). During this time, how many times did you see a health professional about your condition? 1 :: 7 1= 1 to 2 times; 2= 3 to 5 times; 3= 6 to 10 times; 4= 11 to 20 times; 5= 21 to 35 times; 6= 36 to 50 times; 7= More than 50 times
impact24 Integer Recommended Have you and/or your family ever had health insurance that covers treatment for your eating disorder while you were experiencing the eating disorder? 0;1 0= No; 1= Yes
impact25_1 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for general practitioner/primary care physician/family physician 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_2 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for pediatrician/adolescent medicine physician 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_3 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for counselor/social worker 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_4 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for psychologist 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_5 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for psychiatrist 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_6 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for dietitian/ nutritionist 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_7 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for eating disorder specialist 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
treatment_nature_02 Integer Recommended What was the nature of the treatment you received for your eating disorder? Inpatient treatment (general psychiatric unit) 0;1 0= No; 1= Yes
impact25_8 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for hospitalization 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_9 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for other health professional 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact25_10 Integer Recommended Please indicate the percentage that your insurance covers/covered in the following categories while you were experiencing the eating disorder: Insurance cover for non-health professional 1 :: 6; -9 1= less than 20 percent; 2= 21-40 percent; 3= 41-60 percent; 4= 61-80 percent; 5= 81-100 percent; 6= Do/did not have private insurance; -9= Not covered
impact26 String 2,000 Recommended If you have or have had private insurance whie experiencing an eating disorder, is there anything you would like to say about how helpful (or otherwise) having private health insurance was/is?
impact27 Integer Recommended How much money, in total, have you and/or your family spent on the eating disorder treatment by health professionals out of your own pocket, i.e., not publicly funded or reimbursed by a health insurance company? 0 :: 6 0= None; 1= Up to 250(USD); 2= 251-500(USD); 3= 501 to 1000(USD); 4= 1001 to 1500(USD); 5 = 1501 to 2000(USD); 6 = Over 2000(USD)
impact27_6 String 15 Recommended If over (USD)2000 (spent on the eating disorder treatment by health professionals out of your own pocket), please indicate to the nearest (USD)1000 and describe the nature of the costs of treatement:
impact28 Integer Recommended How much money, in total, have you and/or your family spent on medications prescribed for your eating disorder out of your own pocket, i.e., not publicly funded (Medicare/Medicaid) or reimbursed by private health insurance? 0 :: 6 0= None; 1= Up to 250(USD); 2= 251-500(USD); 3= 501 to 1000(USD); 4= 1001 to 1500(USD); 5 = 1501 to 2000(USD); 6 = Over 2000(USD)
impact29 String 15 Recommended If over (USD)2000 (spent on medications prescribed for your eating disorder out of your own pocket), please indicate to the nearest (USD)1000 and describe the nature of the costs of medication:
impact30 Integer Recommended Consider the last year you had an eating disorder (if you currently have an eating disorder, consider the past year). During this time, how many times were you hospitalized for treatment related to your condition? Number of Times
impact31 Integer Recommended What was the total number of days for all hospital admissions, if any, during this year-long period? Number of Days
treatment_nature_03 Integer Recommended What was the nature of the treatment you received for your eating disorder? Inpatient treatment (specialist eating disorder unit) 0;1 0= No; 1= Yes
impact32 Integer Recommended If hospitalized, were all of your admissions during this year-long period classified as being due to your eating disorder? 0; 1; -9 0= No; 1= Yes; -9 = Do not know
impact33 String 2,000 Recommended If no or not at all, please indiciate what the records said the admission(s) was/were for:
impact34 Integer Recommended For any of the admissions during this year-long period, did you and/or your family have to pay for any hospital costs out of your own pocket, i.e., not paid by Medicaid or Medicare or reimbursed by an insurance company? If so, how much? 0 :: 7 0= No; 1= Up to 250(USD); 2= 251-500(USD); 3= 501 to 1000(USD); 4= 1001 to 1500(USD); 5 = 1501 to 2000(USD); 6 = 2001 to 2500(USD); 7= Over 2500(USD)
impact35 Integer Recommended As a result of any of the admissions during this year-long period, did you and/or your family incur any travel, accomdation, or relocation expenses when accessing treatment? 0 :: 6 0= None; 1= Up to 250(USD); 2= 251-500(USD); 3= 501 to 1000(USD); 4= 1001 to 1500(USD); 5 = 1501 to 2000(USD); 6 = Over 2000(USD)
impact36 String 15 Recommended If over (USD)2000 (incur any travel, accomdation, or relocation expenses when accessing treatment), please specify to the nearest (USD)1000 and describe the nature of the costs:
impact37 Integer Recommended Consider the last year you had an eating disorder (if you currently have an eating disorder, consider the past year). If regularly binge eating during this time, how much do you think your food bill increased over this year-long period? 1 :: 6; -9 0= None; 1= Up to 250(USD); 2= 251-500(USD); 3= 501 to 1000(USD); 4= 1001 to 1500(USD); 5 = 1501 to 2000(USD); 6 = Over 2000(USD); -9 = Not applicable
impact38 Integer Recommended If over (USD)2000 (food bill over this year-long period), please specify to the nearest (USD)1000:
impact39 Integer Recommended Have you and/or your family had to access financing, mortage property, or sell assets to pay for the eating disorder? 0 :: 4 0 = No; 1= Yes, less than 1000; 2= Yes, 1001 - 5000; 3= Yes, 5001 - 10,000; 4= Yes, over 10,000
impact40 String 2,000 Recommended Any other comments? (On Finances)
impact41_01 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Osteoporosis 0;1 0= No; 1= Yes
treatment_nature_04 Integer Recommended What was the nature of the treatment you received for your eating disorder? Residential treatment 0;1 0= No; 1= Yes
impact41_02 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Infertility 0;1 0= No; 1= Yes
impact41_03 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Digestive disorders- stomach, esophagus, intestinal damage 0;1 0= No; 1= Yes
impact41_04 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Dental erosion 0;1 0= No; 1= Yes
impact41_05 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Obesity and obesity related disorders including diabetes 0;1 0= No; 1= Yes
impact41_06 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Heart disease and cardiac abnormalities 0;1 0= No; 1= Yes
impact41_07 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Kidney problems 0;1 0= No; 1= Yes
impact41_08 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Anxiety 0;1 0= No; 1= Yes
impact41_09 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Depression 0;1 0= No; 1= Yes
impact41_10 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? Other mental health condition 0;1 0= No; 1= Yes
impact41_11 Integer Recommended Do you currently experience any of the following health consequences as a result of the eating disorder? None of the above 0;1 0= No; 1= Yes
treatment_nature_05 Integer Recommended What was the nature of the treatment you received for your eating disorder? Partial hospitalization 0;1 0= No; 1= Yes
impact42 String 2,000 Recommended If you indicated other mental health condition, please specify
impact43 String 2,000 Recommended Any other comments? (On health consequences as a result of the eating disorder)
impact44 Integer Recommended Have you ever experienced any other mental conditions as a results of an eating disorder? 0; 1 0= No; 1= Yes
impact45 String 2,000 Recommended If yes to other medical conditions, please specify
reason1_1 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I was bullied or teased about my weight or appearance 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_2 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I was bullied or teased about other things 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_3 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I had low self-esteem 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_4 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. It is a biological or genetic illness 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_5 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I felt pressure to be thin 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_5b Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I was dissatisfied with my weight and/or body shape 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
treatment_nature_06 Integer Recommended What was the nature of the treatment you received for your eating disorder? Intensive outpatient treatment 0;1 0= No; 1= Yes
reason1_6 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. Certain issues that happened to me as a child 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_7 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. Life was stressful 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_8 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I was having difficulty with major life changes 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_9 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. There was conflict with key people in my life 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_10 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. There was no one to share my innermost thoughts and feelings with 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_11 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I could not achieve what I wanted to 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_12 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I felt pressure to succeed 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_13 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. I wanted to get control of my life 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1_14 Integer Recommended Below are possible reasons why people might develop an eating disorder. Please rate the extent which each reason applies to you. Other reasons (please describe below) 0 :: 3 0 = Not a reason; 1= Probably not a reason; 2= To some extent a reason; 3= Definitely a major reason
reason1a String 2,000 Recommended If other reasons, for developed eating disorder, please comment:
treatment_nature_07 Integer Recommended What was the nature of the treatment you received for your eating disorder? Outpatient treatment 0;1 0= No; 1= Yes
reason1b String 2,000 Recommended Any other comments? Other reasons why you think you developed an eating disorder?
reason2_01 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Family-based treatment 0;1 0= No; 1= Yes
reason2_02 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Cognitive Behavior Therapy (CBT) 0;1 0= No; 1= Yes
reason2_03 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Dialectical Behavior Therapy (DBT) 0;1 0= No; 1= Yes
reason2_04 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Specialist Supportive Clinical Management (SSCM) 0;1 0= No; 1= Yes
reason2_05 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Psychodynamic 0;1 0= No; 1= Yes
reason2_06 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Interpersonal 0;1 0= No; 1= Yes
reason2_07 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Psychotherapy 0;1 0= No; 1= Yes
reason2_08 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Cognitive remediation 0;1 0= No; 1= Yes
reason2_09 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Metacognitive therapy 0;1 0= No; 1= Yes
treatment_nature_08 Integer Recommended What was the nature of the treatment you received for your eating disorder? Emergency room visits 0;1 0= No; 1= Yes
reason2_10 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Group therapy 0;1 0= No; 1= Yes
reason2_11 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? Other therapy type (please describe) 0;1 0= No; 1= Yes
reason2_12 Integer Recommended Have you ever received any of the following therapies/treatments for the eating disorder? I do not know the name of the therapy 0;1 0= No; 1= Yes
reason2_other String 2,000 Recommended If other therapy type, please describe:
reason2a String 2,000 Recommended Any other comments? (On Therapy)
reason3 Integer Recommended Tertiary reason for exit 1::16 01 = Refused new treatment due to lack of efficacy;02 = Unnacceptable side effects;03 = Committed suicide/suicide attempt;04 = Developed general medical or surgical condition that required protocol to be stopped;05 = Developed symptoms requiring non-protocol treatment (e.g. psychosis, mania, etc.);06 = Moved from the area;07 = Found research too burdensome;08 = Patient withdrew from study with no reason given;09 = Hamilton score <20 at week 0;10 = Patient became pregnant and continuation of treatment is contraindicated (enter due date);11 = Failed to return to clinic/lost contact (enter date of last contact);12 = Completed Follow-up; 9 = Non-Compliance: a. Non-adherence; 10 = Non-Compliance: b. Refused; 11 = Intolerance: a. Mood; 12 = Intolerance: b. Antipsychotic Medication; 13 = Intolerance: c. Medical; 14 = Lack of Efficacy: a. Depression; 15 = Lack of Efficacy: b. Mania; 16 = Administrative: a. Administrative Reasons
reason4 String 2,000 Recommended Please describe any negative or unhelpful things about the treatment you received:
reason5 String 2,000 Recommended Is there a different kind of treatment or therapy that you think could have worked better (or been a better fit) for you?
reason6 Integer Recommended Do you think that the eating disorder treatment had any impact on other family members, e.g., your siblings? 0;1 0= No; 1= Yes
reason6a String 2,000 Recommended If yes, to impact on family, please comment.
treatment_nature_09 Integer Recommended What was the nature of the treatment you received for your eating disorder? Another form of treatment or support 0;1 0= No; 1= Yes
reason7 String 2,000 Recommended Any other comments on treatment/therapy?
recovery1_1 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Own motivation 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_2 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Family/ Partner involvement in treatment 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_3 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Family/ Partner support 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_4 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Support of friends 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_5 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Support groups/organizations 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_6 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: specific type of therapy received 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_7 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: relationship with treatment team 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_8 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: New relationship 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_9 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: New direction in education or new job 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
treat_nature_other String 2,000 Recommended If another form of treatment or support, please specify:
recovery1_10 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Having a child 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_11 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Changing another important aspect of life 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1_12 Integer Recommended If you have recovered from an eating disorder or improved, please indicate the extent to which the following factors assisted the recovery process: Other (please specify) 0 :: 3 0= Not a factor; 1= Probably not a factor; 2= To some extent a factor; 3= Definitely an important factor
recovery1a String 2,000 Recommended If other factors, please comment:
recovery2 String 2,000 Recommended Any other comments on helpful factors for recovery?
data_language Integer Recommended In what language did you collect the data? 1;2 1= English; 2= Spanish for the United States
inpatient_hosp Integer Recommended How many inpatient hospitalizations for eating disorders have you had (all types of inpatient treatment)?
treatment_duration String 15 Recommended What was the longest duration of inpatient treatment related to an eating disorder that you have had?
er_visits Integer Recommended Number of ER Visits (past month)
part_hosp Integer Recommended How many partial hospitalizations related to an eating disorder have you had?
difficult_access Integer Recommended How difficult was it for you to access appropriate tretament- including both finding the right professional(s) for you and then obtaining appointments? 0 :: 4 0= Not difficult at all; 1= Easier than for other conditions; 2= About the same as for treatment for other conditions; 3= More difficult than for treatment for other conditions; 4= Much more difficult than for treatment for other conditions
med_binge_01 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Fluoxetine (Prozac) 0;1 0= No; 1= Yes
med_binge_02 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Fluvoxamine (Luvox) 0;1 0= No; 1= Yes
med_binge_03 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Sertraline (Zoloft) 0;1 0= No; 1= Yes
med_binge_04 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Citalopram (Celexa) 0;1 0= No; 1= Yes
med_binge_05 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Escitalopram (Lexapro) 0;1 0= No; 1= Yes
treat_path Integer Recommended What, if any of the following patterns, would best describe your treatment pathway? 1 :: 6 1= High frequency at first, then gradually tapering off; 2= Low frequency at first, followed by a peak and then a general tapering off; 3= Reasonably constant during the eating disorder; 4= Intensive treatment when problems were severe or during relapses, but less frequent when eating disorder was manageable or in recovery; 5= Other; 6= No treatment
med_binge_06 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Paroxetine (Paxil, Pexeva) 0;1 0= No; 1= Yes
med_binge_07 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Vilazodone (Viibryd) 0;1 0= No; 1= Yes
med_binge_08 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Phentermine (Adipex, Lomaira) 0;1 0= No; 1= Yes
med_binge_09 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Orlistat (Alli, Xenical) 0;1 0= No; 1= Yes
med_binge_10 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Phentermine/topiramate (Qsymia) 0;1 0= No; 1= Yes
med_binge_11 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Natrexone/bupropion (Contrave) 0;1 0= No; 1= Yes
med_binge_12 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Lorcaserin (Belviq) 0;1 0= No; 1= Yes
med_binge_13 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Lisdexamfetamine (Vyvnase) 0;1 0= No; 1= Yes
med_binge_14 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Topiramate (Topamax) 0;1 0= No; 1= Yes
med_binge_15 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Bupropion (Wellbutrin) 0;1 0= No; 1= Yes
treat_path_other String 2,000 Recommended Please describe other treatment pathway
med_binge_16 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Duloxetine (Cymbalta, Irenka) 0;1 0= No; 1= Yes
med_binge_17 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Other medication 0;1 0= No; 1= Yes
med_binge_18 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? I have never taken any medication for an eating disorder or weight control 0;1 0= No; 1= Yes
med_binge_19 Integer Recommended Have you ever taken any of the following medications for your eating disorder or weight control? Prefer not to answer 0;1 0= No; 1= Yes
impact1_1 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your social life 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_2 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your overall wellbeing and quality of life 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_3 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your participation and productivity at work 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_4 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your engagement and attainment in your education 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_5 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your family in general 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_6 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your relationship with your parents 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
other_comments String 2,000 Recommended Any other comments on your treatment pathway?
impact1_7 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your relationship with your siblings 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_8 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your relationship with your partner/spouse 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_9 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Your relationship with your children 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact1_10 Integer Recommended What degree of impact do you think that having an eating disorder has had on each of the following areas of your life? Other family relationships 0 :: 5 0 = Not applicable; 1= Very little or no impact; 2= Little impact; 3= Some impact; 4= Significant impact; 5= Very significant impact
impact2 String 2,000 Recommended What kind of impact did your eating disorder have on other family members?
impact2a String 2,000 Recommended Any other comments? (On the kind of impact your eating disorder have on other family members)
impact3_01 Integer Recommended What is your current occupational status? Student 0;1 0= No; 1= Yes
impact3_02 Integer Recommended What is your current occupational status? Full time paid worker 0;1 0= No; 1= Yes
impact3_03 Integer Recommended What is your current occupational status? Part time paid worker 0;1 0= No; 1= Yes
impact3_04 Integer Recommended What is your current occupational status? Stay at home parent 0;1 0= No; 1= Yes
seek_help Integer Recommended How long after becoming aware of the symptoms of the eating disorder did you first seek help? 1 :: 5 1= Immediately; 2= Within 1 month; 3= Between 1 month and 6 months; 4= Between 6 months and 1 year; 5= More than 1 year
impact3_05 Integer Recommended What is your current occupational status? Unpaid career 0;1 0= No; 1= Yes
impact3_06 Integer Recommended What is your current occupational status? Retired 0;1 0= No; 1= Yes
impact3_07 Integer Recommended What is your current occupational status? Unemployed 0;1 0= No; 1= Yes
impact3_08 Integer Recommended What is your current occupational status? Other 0;1 0= No; 1= Yes
impact3_other String 2,000 Recommended If other occupation, please specify:
impact4 Integer Recommended What is your approximate annual income? 1 :: 14; -99 1= I have no income; 2= Under 10,000(USD); 3= 10,000-19,999(USD); 4= 20,000- 29,999(USD); 5= 30,000- 39,999(USD); 6= 40,000- 49,999(USD); 7= 50,000- 59,999(USD); 8= 60,000- 69,999(USD); 9= 70,000-79, 999(USD); 10= 80,000- 89,999(USD); 11= 90,000- 99,999(USD); 12= 100,000- 109,999(USD); 13= 110,000- 119,999(USD); 14= 120,000(USD) and above; -99= Prefer not to answer
impact5 Integer Recommended What was your approximate annual income before your eating disorder?
impact6 Integer Recommended What calendar year was that? (annual income before your eating disorder)
impact7 Integer Recommended Consider the last year you experienced the eating disorder (if you currently have the eating disorder, consider the past year). During this time, did your eating disorder cause you to work (or study) fewer hours than you would have wanted to? If so, by how many hours per week on average? 1 :: 6 1= None, i.e., no impact; 2= Up to 10 hours per week, on average, less participation; 3= 11-20 hours less participation; 4= 21-30 hours less participation; 5= 31-40 hours less participation; 6= Prevented any engagment in paid work or regular study.
impact8 Integer Recommended What calendar year was that? (work (or study) fewer hours than you would have wanted to due to your eating disorder)
seek_help_more Integer Recommended How many years, if more than one?
impact9 Integer Recommended Consider the last year you experienced the eating disorder (if you currently have the eating disorder, consider the past year). During this time, approximately how many days were you unable to work or study due to your eating disorder (e.g., sick days off work)?
impact10 Integer Recommended What calendar year was that? (unable to work or study due to your eating disorder)
impact11 Integer Recommended When you were/are at work/studying, did/does your eating disorder cause you to be less productive? 0;1 0= No; 1= Yes
impact12 Integer Recommended Please estimate the percentage reduction in your productivity 0 :: 100
impact13 String 2,000 Recommended Any other comments? (On productivity)
impact14 Integer Recommended Have you had to take extended leave of absences (at least 4 weeks of sick leave) from your work or school due to your eating disorder? 0;1 0= No; 1= Yes
impact15 String 2,000 Recommended If yes, how long were you off work or out of school?
impact16 Integer Recommended Have you had to take a break or permanently leave your education due to your eating disorder? 0 :: 2 0= No; 1= Yes, I have taken a temporary break from a course of education; 2= Yes- I have permanently left a course of education
impact17_01 Integer Recommended What stage were you at when you left or took a break from your education? I was in middle school 0;1 0= No; 1= Yes
impact17_02 Integer Recommended What stage were you at when you left or took a break from your education? I was in high school 0;1 0= No; 1= Yes
who_diagnosed Integer Recommended Who first diagnosed you with an eating disorder? 1 :: 6; -99 1= General practitioner/primary care physician/family medicine physician; 2= Pediatrician/adolescent medicine physician; 3= Psychologist; 4= Psychiatrist; 5= Other health professional; 6= I never received a formal diagnosis; -99= Prefer not to answer
impact17_03 Integer Recommended What stage were you at when you left or took a break from your education? I was in vocational school 0;1 0= No; 1= Yes
impact17_04 Integer Recommended What stage were you at when you left or took a break from your education? I was in college or university 0;1 0= No; 1= Yes
impact17_05 Integer Recommended What stage were you at when you left or took a break from your education? I was in graduate or professional school 0;1 0= No; 1= Yes
impact18 String 2,000 Recommended Any other comments? (On Education)
impact19_1 Integer Recommended Please provide an estimate of the average annual financial costs to you of the factors below related to your eating disorder: Expenditure on private treatment
impact19_2 Integer Recommended Please provide an estimate of the average annual financial costs to you of the factors below related to your eating disorder: Expenditure due to publicly funded treatment (Medicare, Medicaid)
impact19_3 Integer Recommended Please provide an estimate of the average annual financial costs to you of the factors below related to your eating disorder: Travel costs for treatment
impact19_4 Integer Recommended Please provide an estimate of the average annual financial costs to you of the factors below related to your eating disorder: Loss of income due to taking time off work
impact19_5 Integer Recommended Please provide an estimate of the average annual financial costs to you of the factors below related to your eating disorder: Loss of income due to impacted educational or professional development
impact19_6 Integer Recommended Please provide an estimate of the average annual financial costs to you of the factors below related to your eating disorder: Other expenditures
health_prof_other String 2,000 Recommended Please describe Other health professional
impact20 Integer Recommended Consider the last year you had an eating disorder (if you currently have an eating disorder, consider the past year). During this time, did you ever receive professional treatment for the eating disorder? 0;1 0= No; 1= Yes
impact21_01 Integer Recommended What kind of professional help did you receive? General practitioner/primary care physician/family medicine physician 0;1 0= No; 1= Yes
impact21_02 Integer Recommended What kind of professional help did you receive? Counselor/social worker 0;1 0= No; 1= Yes
impact21_03 Integer Recommended What kind of professional help did you receive? Psychologist 0;1 0= No; 1= Yes
impact21_04 Integer Recommended What kind of professional help did you receive? Psychiatrist 0;1 0= No; 1= Yes
impact21_05 Integer Recommended What kind of professional help did you receive? Dietitian/Nutritionist 0;1 0= No; 1= Yes
impact21_06 Integer Recommended What kind of professional help did you receive? Eating disorder specialist 0;1 0= No; 1= Yes
impact21_07 Integer Recommended What kind of professional help did you receive? Other health professional 0;1 0= No; 1= Yes
impact21_08 Integer Recommended What kind of professional help did you receive? Non-health professional 0;1 0= No; 1= Yes
impact21_09 Integer Recommended What kind of professional help did you receive? Pediatrician/adolescent medicine physician 0;1 0= No; 1= Yes
treatmentq_07 Integer Recommended If yes, to any relapse event in the six months, how many? Number of Event
txhist_11b String 200 Recommended What made you think you needed to seek help/treatment?
txhist_11c Integer Recommended At what age did you first seek treatment?
txhist_11d String 100 Recommended What was your first type of treatment? Where did you seek it?
txhist_12 Integer Recommended At what age did a parent think you needed to seek help /treatment for an eating disorder?
txhist_12b Integer Recommended Which parent first thought you needed to seek help/treatment? 1 :: 3 1= Mother; 2= Father; 3= Both at the same time
txhist_12c String 200 Recommended What made your parent think you needed to seek help/treatment for an eating disorder?
txhist_13 Integer Recommended Did anyone else ever think you needed to seek help/treatment for an eating disorder? 0;1 0= No; 1= Yes
txhist_13b String 50 Recommended If yes, to someone else thinking you needed to seek help, Who was that?
txhist_13c Integer Recommended How old were you at that time?
txhist_13d String 200 Recommended What made this person think you needed to seek help/treatment for an eating disorder?
treatmentq_08 String 2,000 Recommended What does recovery from an eating disorder look like for you?
txhist_13e String 50 Recommended If more than one other person, record additional information here:
txhist_14 Integer Recommended Have you ever been hospitalized because of an eating disorder? 0;1 0= No; 1= Yes
txhist_14a1 Integer Recommended (First Time) How old were you the first time you were hospitalized for an eating disorder? Age in Years
txhist_14b1 String 25 Recommended (First Time) How long were you hospitalized for? Length of Time
txhist_14c1 Integer Recommended (First Time) How helpful was that hospitalization? 1 :: 5 1= Not At All Helpful; 5= Extremely Helpful
txhist_14d1 String 1,000 Recommended (First Time) People leave hospitalization for various reasons; what was the reason that you left this hospitalization?
txhist_14a2 Integer Recommended (The Next Time) How old were you when you were hospitalized for an eating disorder? Age in Years
txhist_14b2 String 25 Recommended (The Next Time) How long were you hospitalized for? Length of Time
txhist_14c2 Integer Recommended (The Next Time) How helpful was that hospitalization? 1 :: 5 1= Not At All Helpful; 5= Extremely Helpful
txhist_14d2 String 1,000 Recommended (The Next Time) People leave hospitalization for various reasons; what was the reason that you left this hospitalization?
m6med1 String 100 Recommended Medication #1 - Name
txhist_14e Integer Recommended Were you hospitalized for an eating disorder at any other time? 0;1 0= No; 1= Yes
txhist_14f Integer Recommended If yes: How many more inpatient hospitalizations did you have? Number of Hospitalizations
mfed003 Integer Recommended Have you attended a residential treatment facility? 0::1 0=No; 1=Yes
txhist_15a1 Integer Recommended (First Time) How old were you the first time you were in residential treatment for an eating disorder?
txhist_15b1 String 25 Recommended (First Time) How long were you in residential treatment for?
txhist_15c1 Integer Recommended (First Time) How helpful was that residential treatment? 1 :: 5
txhist_15d1 String 1,000 Recommended (First Time) People leave residential treatment for various reasons; what was the reason that you left this residential treatment?
txhist_15a2 Integer Recommended (The Next Time) How old were you when you were in residential treatment for an eating disorder?
txhist_15b2 String 25 Recommended (The Next Time) How long were you residential treatment for?
txhist_15c2 Integer Recommended (The Next Time) How helpful was that residential treatment? 1 :: 5
m6med1mg Float Recommended Medication #1 - Avg. mg per day
txhist_15d2 String 1,000 Recommended (The Next Time) People leave residential treatment for various reasons; what was the reason that you left this residential treatment?
txhist_15e Integer Recommended Were you in residential treatment for an eating disorder at any other time? 0;1
txhist_15f Integer Recommended If yes: How many more residential treatments did you have?
txhist_16 Integer Recommended Have you ever been in day treatment because of an eating disorder? 0;1
txhist_16a1 Integer Recommended (First Time) How old were you the first time you were in day treatment for an eating disorder?
txhist_16b1 String 25 Recommended (First Time) How long were you in day treatment for?
txhist_16c1 Integer Recommended (First Time) How helpful was that day treatment? 1 :: 5
txhist_16d1 String 1,000 Recommended (First Time) People leave day treatment for various reasons; what was the reason that you left this day treatment?
txhist_16a2 Integer Recommended (The Next Time) How old were you when you were in day treatment for an eating disorder?
txhist_16b2 String 25 Recommended (The Next Time) How long were you day treatment for?
m6med1r Integer Recommended Medication #1 Reason is ED, Non-ED Psychiatric, or Medical 1::3 1=Mostly ED; 2=Mostly Non-ED; 3=Both Equally
txhist_16c2 Integer Recommended (The Next Time) How helpful was that day treatment? 1 :: 5
txhist_16d2 String 1,000 Recommended (The Next Time) People leave day treatment for various reasons; what was the reason that you left this day treatment?
txhist_16e Integer Recommended Were you in day treatment for an eating disorder at any other time? 0;1
txhist_16f Integer Recommended If yes: How many more day treatments did you have?
txhist_17 Integer Recommended Have you ever been in an intensive outpatient program because of an eating disorder? 0;1
txhist_17a1 Integer Recommended (First Time) How old were you the first time you were in an intensive outpatient program for an eating disorder?
txhist_17b1 String 25 Recommended (First Time) How long were you in an intensive outpatient program for?
txhist_17c1 Integer Recommended (First Time) How helpful was that intensive outpatient program? 1 :: 5
txhist_17d1 String 1,000 Recommended (First Time) People leave an intensive outpatient program for various reasons; what was the reason that you left this intensive outpatient program?
txhist_17a2 Integer Recommended (The Next Time) How old were you when you were in an intensive outpatient program for an eating disorder?
m6med2 String 100 Recommended Medication #2 - Name
txhist_17b2 String 25 Recommended (The Next Time) How long were you in an intensive outpatient program for?
txhist_17c2 Integer Recommended (The Next Time) How helpful was that intensive outpatient program? 1 :: 5
txhist_17d2 String 1,000 Recommended (The Next Time) People leave an intensive outpatient program for various reasons; what was the reason that you left this intensive outpatient program?
txhist_17e Integer Recommended Were you in an intensive outpatient program for an eating disorder at any other time? 0;1
txhist_17f Integer Recommended If yes: How many more an intensive outpatient programs did you have?
txhist_18 Integer Recommended Any other treatment you have received for an eating disorder, whether or not it was led by a health care professional? 0;1
txhist_18a01 String 200 Recommended (Treatment 1 ) What type of treatment were you in for an eating disorder?
txhist_18a02 Integer Recommended (Treatment 1 ) Age when you were in (that) treatment.
txhist_18a03 String 25 Recommended (Treatment 1 ) How long were you in (that) treatment for?
txhist_18a04 String 25 Recommended (Treatment 1 ) How frequently did you receive (that) treatment?
m6med2mg Float Recommended Medication #2 - Avg. mg per day
txhist_18a05 Integer Recommended (Treatment 1 ) How helpful was (that) treatment? 1 :: 5
txhist_18b01 String 200 Recommended (Treatment 2 ) What type of treatment were you in for an eating disorder?
txhist_18b02 Integer Recommended (Treatment 2 ) Age when you were in (that) treatment.
txhist_18b03 String 25 Recommended (Treatment 2 ) How long were you in (that) treatment for?
txhist_18b04 String 25 Recommended (Treatment 2 ) How frequently did you receive (that) treatment?
txhist_18b05 Integer Recommended (Treatment 2 ) How helpful was (that) treatment? 1 :: 5
txhist_18c01 String 200 Recommended (Treatment 3 ) What type of treatment were you in for an eating disorder?
txhist_18c02 Integer Recommended (Treatment 3 ) Age when you were in (that) treatment.
txhist_18c03 String 25 Recommended (Treatment 3 ) How long were you in (that) treatment for?
txhist_18c04 String 25 Recommended (Treatment 3 ) How frequently did you receive (that) treatment?
m6med2r Integer Recommended Medication #2 Reason is ED, Non-ED Psychiatric, or Medical 1::3 1=Mostly ED; 2=Mostly Non-ED; 3=Both Equally
txhist_18c05 Integer Recommended (Treatment 3 ) How helpful was (that) treatment? 1 :: 5
txhist_19a Integer Recommended Based on what you have told me, it sounds like the first time you sought any treatment for an eating disorder was (age recorded). Is that correct? 0;1
txhist_19b Integer Recommended Note Recorded Age (any treatment for eating disorder)
txhist_19c String 100 Recommended Note Recorded Treatment (any treatment for eating disorder)
txhist_19d Integer Recommended Looking back at that first time you sought treatment for an eating disorder, how ready did you feel to get help at that time? 1 :: 5
txhist_20a Integer Recommended Based on what you have told me, it sounds like the first time you sought some type of therapy for an eating disorder was (age recorded). Is that correct? 0;1
txhist_20b Integer Recommended Note Recorded Age (therapy for an eating disorder)
txhist_20c String 100 Recommended Note Recorded Treatment (therapy for an eating disorder)
txhist_20d Integer Recommended Looking back at that first time you sought some form of therapy for an eating disorder, how ready did you feel to get help at that time? 1 :: 5
txhist_21a String 100 Recommended Thinking about your treatment history, which treatment do you think was most helpful? Nature of Treatment
m6med3 String 100 Recommended Medication #3 - Name
txhist_21b Integer Recommended Thinking about your treatment history, which treatment do you think was most helpful? Age at Treatment
txhist_21c String 150 Recommended Thinking about your treatment history, which treatment do you think was most helpful? Length of Treatment and Frequency
txhist_22a String 2,000 Recommended What was it about that treatment that made it the most helpful?
txhist_22b String 2,000 Recommended What was it about your circumstances that made that treatment the most helpful?
m6med3mg Float Recommended Medication #3 - Avg. mg per day
m6med3r Integer Recommended Medication #3 Reason is ED, Non-ED Psychiatric, or Medical 1::3 1=Mostly ED; 2=Mostly Non-ED; 3=Both Equally
m6med4 String 100 Recommended Medication #4 - Name
m6med4mg Float Recommended Medication #4 - Avg. mg per day
m6med4r Integer Recommended Medication #4 Reason is ED, Non-ED Psychiatric, or Medical 1::3 1=Mostly ED; 2=Mostly Non-ED; 3=Both Equally
m6med5 String 100 Recommended Medication #5 - Name
m6med5mg Float Recommended Medication #5 - Avg. mg per day
m6med5r Integer Recommended Medication #5 Reason is ED, Non-ED Psychiatric, or Medical 1::3 1=Mostly ED; 2=Mostly Non-ED; 3=Both Equally
txhist_med1 Integer Recommended Are you taking any medication for psychological reasons? 0;1 0= No; 1= Yes
txhist_timepoint Integer Recommended When were you taking medication for psychological reasons? 1 :: 3 1= Currently; 2= Past 2 Months; 3= Past 6 Months
txhist_therapy Integer Recommended Are you CURRENTLY involved in some form of individual counseling or psychotherapy with a psychologist, psychiatrist, social worker, or other mental health professional? 0;1 0= No; 1= Yes txhist_25
thq_tq_version Integer Recommended Treatment History Time Point 1 :: 3 1= Baseline, 2= Current; 3= 2 Months; 4 = 6 Months
txhist_therapy_type_1 Integer Recommended What type of therapy would you say you are currently receiving? cognitive behavioral therapy (CBT) (e.g., focuses on restructuring thoughts/cognitions; involves self-monitoring and homework) 0;1 0= No; 1= Yes txhist_25a
txhist_therapy_type_2 Integer Recommended What type of therapy would you say you are currently receiving? behavior therapy (BT) (e.g., focuses on changing behavior but WITHOUT cognitive restructuring) 0;1 0= No; 1= Yes txhist_25b
txhist_therapy_type_3 Integer Recommended What type of therapy would you say you are currently receiving? interpersonal psychotherapy (IPT) (e.g., clear focus on interpersonal problems and changing those problems in the present) 0;1 0= No; 1= Yes txhist_25c
txhist_therapy_type_4 Integer Recommended What type of therapy would you say you are currently receiving? dialectical behavior therapy (DBT) 0;1 0= No; 1= Yes txhist_25d
txhist_therapy_type_5 Integer Recommended What type of therapy would you say you are currently receiving? acceptance and commitment therapy (ACT) 0;1 0= No; 1= Yes txhist_25e
txhist_therapy_type_6 Integer Recommended What type of therapy would you say you are currently receiving? non-specific psychotherapy (e.g., talking out problems - no clear theoretical model) 0;1 0= No; 1= Yes txhist_25f
txhist_therapy_type_7 Integer Recommended What type of therapy would you say you are currently receiving? Other 0;1 0= No; 1= Yes txhist_25g
txhist_therapy_type_8 Integer Recommended What type of therapy would you say you are currently receiving? Do Not Know 0;1 0= No; 1= Yes txhist_25h
txhist_therapy_oth String 100 Recommended If other therapy, please describe: txhist_25_oth
txhist_therapy_reason Integer Recommended Does this counseling/therapy focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_25_ed
treatmentq_01 Integer Recommended What age did you first receive treatment for your eating disorder? Age in years
txhist_pastther Integer Recommended In the PAST X MONTHS, were you involved in some form of individual counseling or psychotherapy with a psychologist, psychiatrist, social worker, or other mental health professional? 0;1 0= No; 1= Yes txhist_26
txhist_pastther_type_1 Integer Recommended What type of therapy would you say you received in the past X months? cognitive behavioral therapy (CBT) (e.g., focuses on restructuring thoughts/cognitions; involves self-monitoring and homework) 0;1 0= No; 1= Yes txhist_26a
txhist_pastther_type_2 Integer Recommended What type of therapy would you say you received in the past X months? behavior therapy (BT) (e.g., focuses on changing behavior but WITHOUT cognitive restructuring) 0;1 0= No; 1= Yes txhist_26b
txhist_pastther_type_3 Integer Recommended What type of therapy would you say you received in the past X months? interpersonal psychotherapy (IPT) (e.g., clear focus on interpersonal problems and changing those problems in the present) 0;1 0= No; 1= Yes txhist_26c
txhist_pastther_type_4 Integer Recommended What type of therapy would you say you received in the past X months? dialectical behavior therapy (DBT) 0;1 0= No; 1= Yes txhist_26d
txhist_pastther_type_5 Integer Recommended What type of therapy would you say you received in the past X months? acceptance and commitment therapy (ACT) 0;1 0= No; 1= Yes txhist_26e
txhist_pastther_type_6 Integer Recommended What type of therapy would you say you received in the past X months? non-specific psychotherapy (e.g., talking out problems - no clear theoretical model) 0;1 0= No; 1= Yes txhist_26f
txhist_pastther_type_7 Integer Recommended What type of therapy would you say you received in the past X months? Other 0;1 0= No; 1= Yes txhist_26g
txhist_pastther_type_8 Integer Recommended What type of therapy would you say you received in the past X months? Do Not Know 0;1 0= No; 1= Yes txhist_26h
txhist_pastther_oth String 100 Recommended If other therapy, please describe: txhist_26_oth
treatmentq_02 Integer Recommended How much do you think you are in recovery from an eating disorder? 1 :: 10 1= Not At All Recovered; 10= Completely Recovered
txhist_pastther_reason Integer Recommended Did that counseling/therapy focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_26_ed
txhist_fam Integer Recommended Are you CURRENTLY involved in family or couples counseling or therapy? 0;1 0= No; 1= Yes txhist_27a
txhist_fam_reason Integer Recommended Does this family or couples counseling focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_27b
txhist_pastfam Integer Recommended In the PAST X MONTHS, were you involved family or couples counseling or therapy? 0;1 0= No; 1= Yes txhist_28a
txhist_pastfam_reason Integer Recommended Did that family or couples counseling/therapy focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_28b
txhist_group Integer Recommended Are you CURRENTLY involved in a therapist-led group with other people? 0;1 0= No; 1= Yes txhist_29a
txhist_group_reason Integer Recommended Does this group focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_29b
txhist_pastgroup Integer Recommended In the PAST X MONTHS, were you involved in a therapist-led group with other people? 0;1 0= No; 1= Yes txhist_30a
txhist_pastgroup_r Integer Recommended Did that group therapy focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_30b
txhist_supp Integer Recommended Are you CURRENTLY involved in a support group that is not led by a therapist? 0;1 0= No; 1= Yes txhist_31a
treatmentq_03 Integer Recommended How important to you is recovery from an eating disorder? 1 :: 10 1= Not At All Important; 10= Very Important
txhist_supp_reason Integer Recommended Does this group focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_31b
txhist_pastsupp Integer Recommended In the PAST X MONTHS, were you involved in a support group that is not led by a therapist? 0;1 0= No; 1= Yes txhist_32a
txhist_pastsupp_r Integer Recommended Did that support group focus mostly on your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_32b
txhist_hos Integer Recommended Are you CURRENTLY hospitalized? 0;1 0= No; 1= Yes txhist_39a
txhist_hos_reason Integer Recommended Are you hospitalized mostly for your eating disorder, mostly for other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_39b
txhist_pasthos Integer Recommended In the PAST X MONTHS, were you hospitalized? 0;1 0= No; 1= Yes txhist_40a
txhist_pasthos_r Integer Recommended Were you hospitalized mostly for your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_40b
txhist_res Integer Recommended Are you CURRENTLY in residential treatment? 0;1 0= No; 1= Yes txhist_41a
txhist_res_reason Integer Recommended Are you in residential treatment mostly for your eating disorder, mostly for other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_41b
txhist_pastres Integer Recommended In the PAST X MONTHS, were you in residential treatment? 0;1 0= No; 1= Yes txhist_42a
treatmentq_04 Integer Recommended Have you had any relapse events in the past year? 0;1 0= No; 1= Yes
txhist_pastres_r Integer Recommended Were you in residential treatment mostly for your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_42b
txhist_day Integer Recommended Are you CURRENTLY in day treatment (also known as partial hospitalization)? 0;1 0= No; 1= Yes txhist_43a
txhist_day_reason Integer Recommended Are you in day treatment mostly for your eating disorder, mostly for other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_43b
txhist_pastday Integer Recommended In the PAST X MONTHS, were you in day treatment? 0;1 0= No; 1= Yes txhist_44a
txhist_pastday_r Integer Recommended Were you in day treatment mostly for your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_44b
txhist_iop Integer Recommended Are you CURRENTLY in an intensive outpatient program (also known as IOP)? 0;1 0= No; 1= Yes txhist_45a
txhist_iop_reason Integer Recommended Are you in IOP mostly for your eating disorder, mostly for other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_45b
txhist_pastiop Integer Recommended In the PAST X MONTHS, were you in an intensive outpatient program (IOP)? 0;1 0= No; 1= Yes txhist_46a
txhist_pastiop_r Integer Recommended Were you in IOP mostly for your eating disorder, mostly on other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_46b
txhist_oth Integer Recommended Are you CURRENTLY in any other treatment that we have not yet covered? 0;1 0= No; 1= Yes txhist_47a
treatmentq_05 Integer Recommended If yes, to any relapse event in the past year, how many? Number of Event
txhist_oth_name String 100 Recommended Current Type of treatment: txhist_47b
txhist_oth_reason Integer Recommended Are you in (this treatment) mostly for your eating disorder, mostly for other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_47c
txhist_pastoth Integer Recommended In the PAST X MONTHS, were you in any other treatment that we have not yet covered? 0;1 0= No; 1= Yes txhist_48a
txhist_pastoth_name String 100 Recommended PAST X MONTHS, Type of treatment: txhist_48b
txhist_pastoth_r Integer Recommended Were you in (this treatment) mostly for your eating disorder, mostly for other issues, or on both equally? 1 :: 3 1= Mostly ED (Eating Disorder); 2= Mostly Non-ED; 3= Both ED and Non-ED Equally txhist_48c
txhist_tx Integer Recommended Do you think you should be in treatment for eating disorder issues? 0;1 0= No; 1= Yes txhist_49a
txhist_tx_not String 1,000 Recommended What is preventing you from seeking treatment for eating disorder issues? txhist_49b
txhist_tx_fam Integer Recommended Does a friend or family member think you should be in treatment for eating disorder issues? 0;1 0= No; 1= Yes txhist_50
txhist_recov Integer Recommended How much do you currently believe you are in recovery for your eating disorder? 1 :: 8 1= Not In Recovery At All; 8= Completely Recovered txhist_51
txhist_1 Integer Recommended How old were you when you first experienced eating disorder symptoms?
treatmentq_06 Integer Recommended Have you had any relapse events in the six months? 0;1 0= No; 1= Yes
txhist_2 Integer Recommended How old were you when you first dieted, and by dieting we mean any effort to reduce your food intake for the purpose of losing or maintaining your weight ? for example, eating smaller portions, cutting back on calories, cutting out desserts, etc.?
txhist_3 Integer Recommended How old were you when you first fasted, and by fasting we mean intentionally going without eating for a 24-hour period to lose or maintain your weight or to counteract the effect of food you have eaten?
txhist_4 Integer Recommended How old were you when you first had an episode of eating a large amount of food and having a sense of loss of control over that eating episode?
txhist_5 Integer Recommended How old were you when you first made yourself vomit to lose or maintain your weight or to counteract the effect of food you would eaten?
txhist_6 Integer Recommended How old were you when you first used laxatives to lose or maintain your weight or to counteract the effect of food you would eaten?
txhist_7 Integer Recommended How old were you when you first used diuretics to lose or maintain your weight or to counteract the effect of food you would eaten?
txhist_8 Integer Recommended How old were you when you first exercised hard, in a driven way, to lose or maintain your weight or to counteract the effect of food you would eaten?
txhist_9 Integer Recommended How old were you when you first began to feel dissatisfied with your body?
txhist_10 Integer Recommended How old were you when you first thought you should lose weight?
txhist_11 Integer Recommended At what age did you think you needed to seek help/ treatment for an eating disorder?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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