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Eating Disorder Quality of Life

20 Shared Subjects

N/A
Clinical Assessments
Eating Disorder
06/02/2020
edqol01
06/02/2020
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
edqol1 Integer Recommended How often has your eating/weight resulted in you feeling embarrassed or "different"? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol2 Integer Recommended How often has your eating/weight made you feel worse about yourself? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol3 Integer Recommended How often has your eating/weight made you not want to be with people? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol4 Integer Recommended How often has your eating/weight resulted in you believing that you will never get better? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol5 Integer Recommended How often has your eating/weight made you feel lonely? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol6 Integer Recommended How often has your eating/weight resulted in less interest or pleasure in activities? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol7 Integer Recommended How often has your eating/weight led you to not care about yourself? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol8 Integer Recommended How often has your eating/weight made you feel odd, weird, or unusual? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol9 Integer Recommended How often has your eating/weight resulted in avoiding eating in front of others? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol10 Integer Recommended How often has your eating/weight cause cold hands or feet? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol11 Integer Recommended How often has your eating/weight caused frequent headaches? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol12 Integer Recommended How often has your eating/weight caused weakness? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol13 Integer Recommended How often has your eating/weight affected your ability to pay attention when you wanted to? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol14 Integer Recommended How often has your eating/weight affected your ability to comprehend some verbal and written information? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol15 Integer Recommended How often has your eating/weight reduced your ability to concentrate? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol16 Integer Recommended How often has your eating/weight led to problems with treatment provider(s) regarding cost of treatment? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol17 Integer Recommended How often has your eating/weight led to you having difficulty paying monthly bills? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol18 Integer Recommended How often has your eating/weight resulted in significant financial debt? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol19 Integer Recommended How often has your eating/weight led to the need to spend money from savings or use your credit card frequently? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol20 Integer Recommended How often has your eating/weight resulted in the need to borrow money? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol21 Integer Recommended How often has your eating/weight led to a leave of absence from work or classes/school obligations? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol22 Integer Recommended How often has your eating/weight led to low grades? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol23 Integer Recommended How often has your eating/weight resulted in reduced hours at work or classes/school obligations? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol24 Integer Recommended How often has your eating/weight resulted in you losing a job or dropping out of school? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol25 Integer Recommended How often has your eating/weight led to failure in a class or classes? 0::4; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; -9=missing
edqol_psy Integer Recommended EDQOL Psychological Subscore
edqol_phys Integer Recommended EDQOL Physical/Cognitive Subscore
edqol_work Integer Recommended EDQOL Work/School Subscore
edqol_fin Integer Recommended EDQOL Financial Subscore
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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