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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Eating Disorder Quality of Life

20 Shared Subjects

N/A
Clinical Assessments
Eating Disorder
06/02/2020
edqol01
02/22/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project record_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
edqol1 Integer Recommended How often has your eating/weight resulted in you feeling embarrassed or "different"? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol2 Integer Recommended How often has your eating/weight made you feel worse about yourself? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol3 Integer Recommended How often has your eating/weight made you not want to be with people? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol4 Integer Recommended How often has your eating/weight resulted in you believing that you will never get better? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol5 Integer Recommended How often has your eating/weight made you feel lonely? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol6 Integer Recommended How often has your eating/weight resulted in less interest or pleasure in activities? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol7 Integer Recommended How often has your eating/weight led you to not care about yourself? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol8 Integer Recommended How often has your eating/weight made you feel odd, weird, or unusual? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol9 Integer Recommended How often has your eating/weight resulted in avoiding eating in front of others? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol10 Integer Recommended How often has your eating/weight cause cold hands or feet? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol11 Integer Recommended How often has your eating/weight caused frequent headaches? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol12 Integer Recommended How often has your eating/weight caused weakness? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol13 Integer Recommended How often has your eating/weight affected your ability to pay attention when you wanted to? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol14 Integer Recommended How often has your eating/weight affected your ability to comprehend some verbal and written information? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol15 Integer Recommended How often has your eating/weight reduced your ability to concentrate? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol16 Integer Recommended How often has your eating/weight led to problems with treatment provider(s) regarding cost of treatment? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol17 Integer Recommended How often has your eating/weight led to you having difficulty paying monthly bills? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol18 Integer Recommended How often has your eating/weight resulted in significant financial debt? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol19 Integer Recommended How often has your eating/weight led to the need to spend money from savings or use your credit card frequently? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol20 Integer Recommended How often has your eating/weight resulted in the need to borrow money? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol21 Integer Recommended How often has your eating/weight led to a leave of absence from work or classes/school obligations? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol22 Integer Recommended How often has your eating/weight led to low grades? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol23 Integer Recommended How often has your eating/weight resulted in reduced hours at work or classes/school obligations? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol24 Integer Recommended How often has your eating/weight resulted in you losing a job or dropping out of school? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol25 Integer Recommended How often has your eating/weight led to failure in a class or classes? 0::5; -9 0=Never; 1=Rarely; 2=Sometimes; 3=Often; 4=Always; 5= Does Not Apply; -9=missing
edqol_psy Integer Recommended EDQOL Psychological Subscore
edqol_phys Integer Recommended EDQOL Physical/Cognitive Subscore
edqol_work Integer Recommended EDQOL Work/School Subscore
edqol_fin Integer Recommended EDQOL Financial Subscore
trtarm String 200 Recommended Treatment arm treatment
ptpr Integer Recommended Please indicate the status of the participant 1;2 1=Patient; 2=Partner
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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