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NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Eating Disorder Symptom Impact Scale

0 Shared Subjects

The aim of this measure is to assess the specific caregiving burden of both anorexia nervosa and bulimia nervosa. doi:10.1186/1477-7525-6-28
Clinical Assessments
Eating Disorder
04/14/2021
edsis01
09/13/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Recommended Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Recommended Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Recommended Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
edsis_1s Integer Recommended During the past month, how often have you thought about how your friends/relatives have stopped visiting? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_2s Integer Recommended During the past month, how often have you thought about losing your friends? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_3s Integer Recommended During the past month, how often have you thought about feeling unable to go out for evenings, weekends or on vacation? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_4s Integer Recommended During the past month, how often have you thought about cancelling or refusing plans to see friends or relatives? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_5g Integer Recommended During the past month, how often have you thought about feeling that I should have noticed it before it became so bad? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_6g Integer Recommended During the past month, how often have you thought about feeling that I have let her/him down? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_7g Integer Recommended During the past month, how often have you thought about feeling that there could have been something that I should have done? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_8g Integer Recommended During the past month, how often have you thought about thinking that perhaps I wasn't strict enough? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_9g Integer Recommended During the past month, how often have you thought about thinking about where I went wrong? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_10db Integer Recommended During the past month, how often did your child have physically and/or verbally aggressive behaviors? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_11db Integer Recommended During the past month, how often did your child have controlling/manipulative behaviors? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_12db Integer Recommended During the past month, how often did your child have lying/stealing behaviors? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_13db Integer Recommended During the past month, how often did your child have an out of control temper? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_14n Integer Recommended During the past month, how often did you experience difficulties preparing meals (i.e., making separate meals for family members, not having correct ingredients?) 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_15n Integer Recommended During the past month, how often were there arguments with other family members about how to handle mealtimes? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_16n Integer Recommended During the past month, how often were there arguments or tension during mealtimes? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_17db Integer Recommended During the past month, how often did food disappear from the cupboards? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_18n Integer Recommended During the past month, how often did you spend long periods of time shopping for food? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_19db Integer Recommended During the past month, how often did you have difficulties with blocked drains, plumbing? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_20db Integer Recommended During the past month, how often were there bad smells and hygiene in the bathroom? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_21n Integer Recommended During the past month, how often did you have to turn up the heat due to her/him feeling cold? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_22n Integer Recommended During the past month, how often did you check on her/him to ensure that she/he was "okay"? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_23n Integer Recommended During the past month, how often did you notice or think about how the illness was affecting her/him physically (i.e., see her/him fall, faint, struggle up the stairs?) 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_24n Integer Recommended During the past month, how often did you notice or think about how the illness was affecting him/her mentally? 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Nearly Always
edsis_n_score Integer Recommended Eating Disorder Symptom Impact Scale: Nutrition Average the scores of items 14, 15, 16, 18, 21, 22, 23, and 24. Lower scores mean a lower tolerability.
edsis_db_score Integer Recommended Eating Disorder Symptom Impact Scale: Dysregulated Behavior Average the scores of items 10, 11, 12, 13, 17, 19, and 20. Lower scores mean a higher absorption.
edsis_g_score Integer Recommended Eating Disorder Symptom Impact Scale: Guilt Average the scores of items 5, 6, 7, 8, and 9. Higher scores mean a lower acceptance of distress and perceived ability to cope.
edsis_s_score Integer Recommended Eating Disorder Symptom Impact Scale: Social Impact Average the scores of items 1, 2, 3, and 4. Lower scores mean a lower tolerability.
edsis_total_score Integer Recommended Eating Disorder Symptom Impact Scale: Total Score Average the scores of the edsis_n_score, edsis_db_score, edsis_g_score, and edsis_s_score. Higher scores mean a higher distress tolerance.
time__point01 Integer Recommended Timepoint 1::6 1 = Screening; 2 = Baseline; 3 = Mid-way; 4 = One Month; 5 = Three Months; 6 = Final
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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