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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Early Intervention Services Interview

0 Shared Subjects

Early Intervention Services Interview
Clinical Assessments
Questionnaire
01/16/2013
eisi01
01/16/2013
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query eisi_cogn_aeps Integer Recommended Child Development - Cognition - AEPS score
Query eisi_cogn_ss Integer Recommended Child Development - Cognition - Specialized services are needed 0; 1 0 = No; 1 = Yes
Query eisi_phys_aeps_fine Integer Recommended Child Development - Physical Development - Fine AEPS score
Query eisi_phys_aeps_gross Integer Recommended Child Development - Physical Development - Gross AEPS score
Query eisi_phys_ss Integer Recommended Child Development - Physical Development - Specialized services are needed 0; 1 0 = No; 1 = Yes
Query eisi_comm_aeps Integer Recommended Child Development - Communication - AEPS score
Query eisi_comm_ss Integer Recommended Child Development - Communication - Specialized services are needed 0; 1 0 = No; 1 = Yes
Query eisi_social_aeps Integer Recommended Child Development - Social - AEPS score
Query eisi_social_ss Integer Recommended Child Development - Social - Specialized services are needed 0; 1 0 = No; 1 = Yes
Query eisi_adapt_aeps Integer Recommended Child Development - Adaptive - AEPS score
Query eisi_adapt_ss Integer Recommended Child Development - Adaptive - Specialized services are needed 0; 1 0 = No; 1 = Yes
Query eisi01 Integer Recommended 1. How well do you understand your child's development? 1; 2; 3; 4; 5; 6; 7 1 = We are just beginning to understand our child's development; 2 = Between 1 and 3; 3 = We have a basic understanding of our child's development, but still have a lot to learn; 4 = Between 3 and 5; 5 = We have a pretty good understanding of our child's development; 6 = Between 5 and 7; 7 = We understand our child's development very well
Query eisi01_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi02 Integer Recommended 2. How much do you know about your child's special needs? 1; 2; 3; 4; 5; 6; 7 1 = Right now we do not know very much; 2 = Between 1 and 3; 3 = We have learned some things, but still have a lot of unanswered questions; 4 = Between 3 and 5; 5 = We know a lot, but still need or want to know more; 6 = Between 5 and 7; 7 = We are confident that we know most of what we need to know right now
Query eisi02_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi03 Integer Recommended 3. Do you know what is available for your child and family? 1; 2; 3; 4; 5; 6; 7 1 = We are just beginning to learn about the programs and service that are available; 2 = Between 1 and 3; 3 = We know abuot some programs and services, but still have a lot to learn; 4 = Between 3 and 5; 5 = We think we are aware of most available programs and services; 6 = Between 5 and 7; 7 = We are very aware of the programs and services that are available
Query eisi03_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi04 Integer Recommended 4. How comfortable are you participating in these meetings? 1; 2; 3; 4; 5; 6; 7 1 = Right now we are very uncomfortable participating in meetings; 2 = Between 1 and 3; 3 = We are not very comfortable participating in meetings, but we do it anyway; 4 = Between 3 and 5; 5 = We are pretty comfortable participating in meetings; 6 = Between 5 and 7; 7 = We are very comfortable participating in meetings.
Query eisi04_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi05 Integer Recommended 5. How well do you feel you can share your child's needs with professionals? 1; 2; 3; 4; 5; 6; 7 1 = We need to feel a lot more comfortable before sharing our child's needs, including asking questions or asking them for help; 2 = Between 1 and 3; 3 = We are beginning to feel more comfortable sharing our child's needs and requesting help from professionals; 4 = Between 3 and 5; 5 = We can usually share our child's needs and ask our providers for help to meet his or her needs; 6 = Between 5 and 7; 7 = We feel very comfortable sharing our child's needs and requesting help from professionals
Query eisi05_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi06 Integer Recommended 6. How well do you know your rights and what to do if you are not satisfied? 1; 2; 3; 4; 5; 6; 7 1 = We are not sure about our rights or what to do if we are not satisfied; 2 = Between 1 and 3; 3 = We understand our basic rights but are not sure about all of our options if we are not satisfied; 4 = Between 3 and 5; 5 = We think we know most of our rights and what to do if we are not satisfied; 6 = Between 5 and 7; 7 = We are very aware of our rights and know exactly what to do if we are not satisfied
Query eisi06_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi07 Integer Recommended 7. How would you describe your ability to help your child develop and learn 1; 2; 3; 4; 5; 6; 7 1 = We need to know a lot more about how to help our child develop and learn; 2 = Between 1 and 3; 3 = We know the basics ofhelping our child develop and learn, but still have many questions; 4 = Between 3 and 5; 5 = We feel pretty sure that we know how to help our child develop and learn; 6 = Between 5 and 7; 7 = We are very sure that we know how to help our child develop and learn
Query eisi07_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi08 Integer Recommended 8. How would you describe your ability to help your child learn to behave the way you would like? 1; 2; 3; 4; 5; 6; 7 1 = We need to know a lot more about how to help our child behave like we want; 2 = Between 1 and 3; 3 = We know the basics of helping our child behave, but still have many questions; 4 = Between 3 and 5; 5 = We feel pretty sure that we know how to help our child behave; 6 = Between 5 and 7; 7 = We are very sure that we know how to help our child behave
Query eisi08_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi09 Integer Recommended 9. Does your family have someone you trust to listen and talk with you? 1; 2; 3; 4; 5; 6; 7 1 = Right now, we don't have anyone we can talk with about the things that are happening in our lives; 2 = Between 1 and 3; 3 = We can probably find at least one person we could talk with, but are not very satisfied with the situation; 4 = Between 3 and 5; 5 = We usually have other people that we can talk with about thigns; 6 = Between 5 and 7; 7 = There are definitely people in our lives we can talk with whenever we need to
Query eisi09_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi10 Integer Recommended 10. Do you know how to get help if you need or want it? 1; 2; 3; 4; 5; 6; 7 1 = We usually handle things by ourselves, but would like to know more about other resources; 2 = Between 1 and 3; 3 = We know about some community resources we could use, but wouldn't mind more information; 4 = Between 3 and 5; 5 = We usually have resources we can use when we need to; 6 = Between 5 and 7; 7 = We have access to a variety of friends and community resources, and use them whenever we need to
Query eisi10_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi11 Integer Recommended 11. How much is your famiyl able to do the things you enjoy? 1; 2; 3; 4; 5; 6; 7 1 = Right now it is really difficult to do any of the things we enjoy; 2 = Between 1 and 3; 3 = We are able to participate in some of the things we enjoy, but not nearly as much as we would like; 4 = Between 3 and 5; 5 = We are able to participate in many of the activities we enjoy; 6 = Between 5 and 7; 7 = We are able to participate in almost all of the activities we enjoy
Query eisi11_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi12 Integer Recommended 12. Do you have the medical care you want for your child right now? 1; 2; 3; 4; 5; 6; 7 1 = We do not have the medical care we want for our child; 2 = Between 1 and 3; 3 = We have some medical care, but still have a long way to go before it is what we want; 4 = Between 3 and 5; 5 = We have good medical care for our child; 6 = Between 5 and 7; 7 = We have excellent medical care for our child
Query eisi12_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi13 Integer Recommended 13. How safe do you feel your home is for your child? 1; 2; 3; 4; 5; 6; 7 1 = We are just beginning to learn about things like lead paint, safely storing dangerous items, car seats, smoke detectors and safe sleeping that will make our home safe; 2 = Between 1 and 3; 3 = We are making changes in our home to make it safer, but still need information and assistance; 4 = Between 3 and 5; 5 = We fell our home is safe, but we are not sure if we have done all of the things we could do; 6 = Between 5 and 7; 7 = We feel we have done everything to make our home a very safe place for our child
Query eisi13_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi14 Integer Recommended 14. How well do you feel your provide your child with nutritious meals? 1; 2; 3; 4; 5; 6; 7 1 = We're not sure that our child is receiving the healthy, nutritious meals he or she needs; 2 = Between 1 and 3; 3 = We are learning more about healthy and nutritious foods, but still need information; 4 = Between 3 and 5; 5 = We are pretty sure we are providing our child with nutritious meals to keep him/her healthy. 6 = Between 5 and 7; 7 = We feel very comfortable that we know what to feed our child, and that his meals are very nutritious
Query eisi14_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi15 Integer Recommended 15. How well do you feel your child is able to independently participate in these daily routines at home? 1; 2; 3; 4; 5; 6; 7 1 = Our child is an infant and is just learning how to do these things OR our child needs total assistance; 2 = Between 1 and 3; 3 = Our child is becoming more nidependent, but due to his or her age or special needs, still needs a lot of help; 4 = Between 3 and 5; 5 = Our child's independece is growing, but he or she still needs some help with things other children the same age are doing; 6 = Between 5 and 7; 7 = Our child is doing all the things a child his or her age should be doing
Query eisi15_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi16 Integer Recommended 16. How would you describe the childcare you have for your child right now? 1; 2; 3; 4; 5; 6; 7 1 = We don't have the childcare we want OR because of our child's special needs we have decided not to look for it; 2 = Between 1 and 3; 3 = We have adequate childcare, but still have a way to go before it is what we want; 4 = Between 3 and 5; 5 = We are satisfied with our childcare, but would like to explore other possibilities; 6 = Between 5 and 7; 7 = We ahve excellent childcare for our child
Query eisi16_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi17 Integer Recommended 17. How would you describe your child's participation in these activities right now? 1; 2; 3; 4; 5; 6; 7 1 = Right now our child does not participate in activities we want OR because of our child's special needs, we have decided not to look into it; 2 = Between 1 and 3; 3 = Our child participates in some social or community activities, but we have a way to go before it is what we want; 4 = Between 3 and 5; 5 = Our child participates in many social or community activities, but we would like to do more; 6 = Between 5 and 7; 7 = Our child has excellent participation in social or community activities
Query eisi17_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Query eisi18 Integer Recommended 18. How well is your family able to do these things? 1; 2; 3; 4; 5; 6; 7 1 = We would like to be able to take our child with us when we go out, but right now it is difficult; 2 = Between 1 and 3; 3 = We are able to do some things as a family, but we would like to find ways to make it easier for all of us; 4 = Between 3 and 5; 5 = We are able to do most of the things we would like to do, but occasionally find it difficult to take our child with us; 6 = Between 5 and 7; 7 = We take our child with us wherever we need to go
Query eisi18_ifsp Integer Recommended Something you would like written into your IFSP as an outcome for your family 0; 1 0 = No; 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.