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Enrollment Information

604 Shared Subjects

N/A
Clinical Assessments
Enrollment
02/02/2017
enrollment01
02/02/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query site String 101 Recommended Site Study Site
Query study String 100 Recommended Study; The code for each individual study
Query visit String 60 Recommended Visit name
Query version_form String 121 Recommended Form used/assessment name
Query consent_num Integer Recommended Consecutive Number of Consents Signed
Query consent_tot Integer Recommended Total Number of Consents Signed
Query db_code Integer Recommended Double-Blind Code
Query status_descrip String 250 Recommended Description of subjects course in study
cnsntdt Date Recommended Consent Date - consent for the next Phase was obtained at the last visit of the previous Phase
hbst_refsp String 150 Recommended Who referred you to this program. Specify
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query pre_5 Integer Recommended Has the child lived with the primary caregiver for the last 6 months? 0;1;-7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query ec13 Integer Recommended Exclusion criteria EC13: Is the primary caretaker non-English speaking? 0::2; -7; -9 0 = No; 1 = Yes; 2 = Not Assessed;-7=refused;-9=unknown pre_6
Query pre_7 Integer Recommended Is the child currently attending school or organized group daycare? 0;1;-7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query pre_8 Integer Recommended How many days a week does the child attend school/organized daycare?
Query pre_9 Float Recommended How many hours a day does that child after school/organizeddaycare?
Query csi3 Integer Recommended How many children are in this class?
Query currgradelevel String 50 Recommended Current grade level
Query pre_12 Integer Recommended How many teachers are in the child's current class? -8=No school
Query p45a2a Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often fidgets with hands or feet or squirms in seat 1;2; -7;-9 1=no;2=yes;-7=refused;-9=unknown
Query p45a2b Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often leaves seat in classroom or in other situations in which remaining seated is expected 1;2; -7; -9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2c Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often runs about or climbs excessively in situations in which it is inappropriate 1;2; -7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2d Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often has difficulty playing or engaging in leisure activities quietly 1;2; -7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2e Integer Recommended Attention-Deficit/Hyperactivity Disorder - Is often "on the go" or often acts as if "driven by a motor 1;2; -7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2f Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often talks excessively 1;2; -7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2g Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often blurts out answers before questions have been completed 1;2;-7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2h Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often has difficulty awaiting turn 1;2;-7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query p45a2i Integer Recommended Attention-Deficit/Hyperactivity Disorder - Often interrupts or intrudes on others 1;2;-7;-9 1=no;2=yes; -7=Refused; -9=Unknown
Query strconheartdis String 5 Recommended Does the child/patient have heart disease? Yes; No;999;Ref Ref=refused; 999=NA/NK/missing
Query lhq_hyp Integer Recommended Hypertension 0;1; -7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query pre_14c Integer Recommended Does the child have any of the following medical conditions? Glaucoma 0;1;-7;-9 0=no; 1=Yes; -7=Refused; -9=Unknown
Query baseline_k_005 Integer Recommended Has she/he ever been to a doctor for any of these things…Diabetes /Diabetes 0;1; -888; -999;-7 0=No; 1=Yes; -888=Not Applicable; -999=Missing/NK; -7=Refused //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.
Query cfmh_chd_thyroiddis Integer Recommended Does the Child have Thyroid Disease? 1;0;999; -7 0 = No; 1 = Yes; -7=Refused; 999=NA/NK
Query cfmh_chd_seizure Integer Recommended Does (did) the Child have Seizure Disorder/Epilepsy? 1;0;999; -7 0 = No; 1 = Yes; ; -7=Refused; 999=NA/NK
Query cfmh_chd_othpsydis Integer Recommended Does (did) the Child have a Psychiatric Disorder? 1;0; -7;-9 0 = No; 1 = Yes; -7=Refused; -9=Unknown
Query cfmh_chd_othpsydis_cmt String 255 Recommended Specify Child's Psychiatric Disorder
Query dph00a1 Integer Recommended Does the individual have a developmental disorder? 0;1; -7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
hup2ddx String 250 Recommended Other developmental disorder - problem siteid
Query demo_chronic String 5 Recommended Does the child have any chronic medical conditions? Yes;No;NK; Ref Ref=refused
tts_13 String 60 Recommended Do you have any current chronic medical problems? If yes, please describe:
Query hi_24 Integer Recommended Have you ever taken ADHD medication? 1;2; -7;-9 1=No; 2=Yes; -7=Refused; -9=Unknown
Query medinfo_adhd String 300 Recommended Child currently taking ADHD medication, specify Record dosage, time of day the medicine is taken, and reason for medication.
Query childmeds Integer Recommended Is your child currently taking any medications? 0;1;-99;88;77 0= No ; 1= Yes ; -99= N/A ; 88= Missing ; 77= Refused
medinfo_other1 String 300 Recommended Child currently taking Other medication, specify Record dosage, time of day the medicine is taken, and reason for medication.
Query primary Integer Recommended Primary Care Doctor 0;1; -7;-9 0=Not checked; 1=Checked; -7=Refused; -9=Unknown
Query pre_18a String 200 Recommended How long ago was the child's last routine physical/check-up
Query iq_test String 10 Recommended This individual has had an IQ test TRUE;FALSE;UNKNOWN; REFUSED
Query pre_20 Integer Recommended Are the parent/guardian(s) willing to attend a meeting with a member of the research team to learn more about the study? 0;1;-7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query appointment_s Integer Recommended Appointment scheduled 0;1;-9 0=No;1=Yes;-9=Unknown
pre_21b String 200 Recommended Appointment scheduled; Date and Time
Query pcc001 Integer Recommended Was follow-up phone call conducted 0;1;-9 0=No; 1=Yes; -9=Unknown
flwup1 String 250 Recommended Followup 1
Query pre_23 Integer Recommended Are the parent/guardian(s) willing to have their child participate in other pharmacological studies? 0::2;-7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query pre_24 Integer Recommended Are the parent/guardian(s) willing to have their child participate in other non-pharmacological studies? 0::2;-7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query pre_25 Integer Recommended Has the child passed prescreen and eligible for a screening visit? 0::2;-7;-9 0=No; 1=Yes; -7=Refused; -9=Unknown
Query pre_25a Integer Recommended If No, Child is too old for the study 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25b Integer Recommended If No, Child is too young for the study 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25c Integer Recommended If No, Child has not lived with the primary caregiver for the last 6 months 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25d Integer Recommended If No, Child is not currently attending school or organized group daycare 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25e Integer Recommended If No, Child does not attend school/organized daycare a sufficient number of days a week 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25f Integer Recommended If No, Child does not attend school/organized daycare a sufficient number of hours a day 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25g Integer Recommended If No, Not enough children are in the child's current class 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25h Integer Recommended If No, Child not experiencing a sufficient number of ADHD symptoms 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25i Integer Recommended If No, Child has medical diagnosis that precludes inclusion 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25j Integer Recommended If No, Child has psychiatric diagnosis that precludes inclusion 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25k Integer Recommended If No, Child's caretaker does not speak and read English, or, Spanish. 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25l Integer Recommended If No, Prior History of Stimulant Medication in excess of level allowed 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25m Integer Recommended If No, Child currently taking an excluded medication 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25n Integer Recommended If No, Medical reason unrelated to study medication 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25o Integer Recommended If No, Lost to follow-up 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25p Integer Recommended If No, Declined study participation 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25q Integer Recommended If No, Moved from area (current or pending) 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
Query pre_25r Integer Recommended If No, School unable or not willing to participate 1;2;-9 1=Apply; 2=Does Not Apply; -9=Unknown
pte_q1 Date Recommended Date of first class
Query enr_d1 Integer Recommended Did Subj. meet Inclu./Exclu.? 0;1 0=No; 1=Yes
Query age_group Integer Recommended Age Group 0 :: 5 0=Infants; 1=Toddlers; 2=Preschool; 3=School Age; 4=Young; 5=Old
lie_q03 Date Recommended Date of first dose of Open Lead in Medication
Query lie_q04 Integer Recommended Is this subject being enrolled as a result of ASAP rules 0;1 0=No; 1=Yes
lie_q05 Date Recommended Date of ASAP Panel
Query cre_q03 Integer Recommended Is the subject on a modified crossover dosing schedule? 0;1 0=No; 1=Yes
cre_q04 Date Recommended Date of first dose of Crossover Medication
enrldt Date Recommended Date of first dose of Parallel medication
smd005 Date Recommended Date of first dose of study medication (mm/dd/yyyy)
Query enroll_notes String 200 Recommended Notes about enrollment status
Query scrflinc String 1,250 Recommended Failed these inclusion criteria:
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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