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Expert-rated Diagnoses: Tic Disorders

127 Shared Subjects

Clinical Assessments
View Change History
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project demo_study_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY visit_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, sex
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data expert_diagnosis_rater
Query expert_diagnosis_tourette Integer Recommended Tourette Syndrome 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_chronic_tics Integer Recommended Chronic Motor Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_transient Integer Recommended Transient Tic Disorder 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_simple_motor Integer Recommended Simple Motor Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_simple_vocal Integer Recommended Simple Vocal Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_complex_motor Integer Recommended Complex Motor Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_complex_vocal Integer Recommended Complex Vocal Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_impairment_distress Integer Recommended Impairment or Marked Distress (ever) 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank expert_diagnosis_impairment_distress
Query a1d31 Integer Recommended OCD 1::3 Positive Diagnosis = 3; Intermediate Diagnosis = 2; Negative Diagnosis = 1 expert_diagnosis_ocd
Query expert_diagnosis_adhd Integer Recommended ADHD 1::3 1 = present ; 2 = subthreshhold ; 3 = not present
epert_diagnosis_tsp String 300 Recommended Tics observed on Tic Suppression Paradigm (TSP):
expert_diagnosis_onset String 100 Recommended Date of tic onset
expert_diagnosis_onset_confid String 300 Recommended Confidence in date of tic onset
expert_diagnosis_onset_reas String 300 Recommended Reason for choosing date of tic onset
expert_diagnosis_onset_strat String 300 Recommended Strategies used to pin down that date of tic onset (checklist: check calendar, ask teacher, medical records, watch home video, ask re memories of holidays, ask re memories of school term start or end, ask re memories of birthdays, other: ____________)
expert_diagnosis_onset_notes String 20 Recommended Are there notes on defining the date of tic onset on another page (e.g. medical hx, exam, K SADS)? If so, what page?
expert_diagnosis_md_visit String 100 Recommended Would the caregiver bring the child in to see a doctor at this time if it were not for this research study? If yes, describe:
expert_diagnosis_awareness String 100 Recommended Describe Tic Awareness: Does the child know s/he has tics?
expert_diagnosis_supress String 300 Recommended Does the child make any effort to suppress any tic? If yes, describe:
expert_diagnosis_comments String 1,000 Recommended Comments about diagnostic procedure
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data expert_diag_comments
Query visit String 60 Recommended Visit name
expert_diagnosis_ocd Integer Recommended OCD 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.