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Expert-rated Diagnoses: Tic Disorders

127 Shared Subjects

N/A
Clinical Assessments
Diagnostic
10/22/2018
erd_tics01
07/05/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project demo_study_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY visit_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, sex
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data expert_diagnosis_rater
Query expert_diagnosis_tourette Integer Recommended Tourette Syndrome 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_chronic_tics Integer Recommended Chronic Motor Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_transient Integer Recommended Transient Tic Disorder 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_simple_motor Integer Recommended Simple Motor Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_simple_vocal Integer Recommended Simple Vocal Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_complex_motor Integer Recommended Complex Motor Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_diagnosis_complex_vocal Integer Recommended Complex Vocal Tics 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Query expert_impairment_distress Integer Recommended Impairment or Marked Distress (ever) 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank expert_diagnosis_impairment_distress
Query a1d31 Integer Recommended OCD 1::3 Positive Diagnosis = 3; Intermediate Diagnosis = 2; Negative Diagnosis = 1 expert_diagnosis_ocd
Query expert_diagnosis_adhd Integer Recommended ADHD 1::3 1 = present ; 2 = subthreshhold ; 3 = not present
epert_diagnosis_tsp String 300 Recommended Tics observed on Tic Suppression Paradigm (TSP):
expert_diagnosis_onset String 100 Recommended Date of tic onset
expert_diagnosis_onset_confid String 300 Recommended Confidence in date of tic onset
expert_diagnosis_onset_reas String 300 Recommended Reason for choosing date of tic onset
expert_diagnosis_onset_strat String 300 Recommended Strategies used to pin down that date of tic onset (checklist: check calendar, ask teacher, medical records, watch home video, ask re memories of holidays, ask re memories of school term start or end, ask re memories of birthdays, other: ____________)
expert_diagnosis_onset_notes String 20 Recommended Are there notes on defining the date of tic onset on another page (e.g. medical hx, exam, K SADS)? If so, what page?
expert_diagnosis_md_visit String 100 Recommended Would the caregiver bring the child in to see a doctor at this time if it were not for this research study? If yes, describe:
expert_diagnosis_awareness String 100 Recommended Describe Tic Awareness: Does the child know s/he has tics?
expert_diagnosis_supress String 300 Recommended Does the child make any effort to suppress any tic? If yes, describe:
expert_diagnosis_comments String 1,000 Recommended Comments about diagnostic procedure
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data expert_diag_comments
Query visit String 60 Recommended Visit name
expert_diagnosis_ocd Integer Recommended OCD 1 :: 4 1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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