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Data Structures with shared data
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Experience of Caregiving Inventory

25 Shared Subjects

N/A
Clinical Assessments
Social Support
12/16/2019
exper_ci01
12/17/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eci01 Integer Recommended During the past month how often have you thought about: Your covering up his/her illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci02 Integer Recommended During the past month how often have you thought about: Feeling unable to tell anyone about his/her illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci03 Integer Recommended During the past month how often have you thought about: His/her difficulty looking after money 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci04 Integer Recommended During the past month how often have you thought about: Having to support him/her 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci05 Integer Recommended During the past month how often have you thought about: What sort of life might he/she have had 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci06 Integer Recommended During the past month how often have you thought about: His/her risk of committing suicide 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci07 Integer Recommended During the past month how often have you thought about: I have learnt more about myself 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci08 Integer Recommended During the past month how often have you thought about: I have contributed to others' understanding of the illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci09 Integer Recommended During the past month how often have you thought about: Being unable to do the things you want 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci10 Integer Recommended During the past month how often have you thought about: How mental health professionals do not take you seriously 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci11 Integer Recommended During the past month how often have you thought about: His/her dependence on you 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci12 Integer Recommended During the past month how often have you thought about: Helping him/her to fill in the day 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci13 Integer Recommended During the past month how often have you thought about: I have contributed to his/her well-being 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci14 Integer Recommended During the past month how often have you thought about: He/she makes a valuable contribution to the household 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci15 Integer Recommended During the past month how often have you thought about: The effect on your finances 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci16 Integer Recommended During the past month how often have you thought about: Dealing with psychiatrists 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci17 Integer Recommended During the past month how often have you thought about: His/her always being at the back of your mind 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci18 Integer Recommended During the past month how often have you thought about: Whether you have done something to make him/her ill 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci19 Integer Recommended During the past month how often have you thought about: He has shown strengths coping with his illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci20 Integer Recommended During the past month how often have you thought about: I have become more confident dealing with others 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci21 Integer Recommended During the past month how often have you thought about: How family members do not understand your situation 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci22 Integer Recommended During the past month how often have you thought about: He is good company 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci23 Integer Recommended During the past month how often have you thought about: I have become more understanding of others with problems 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci24 Integer Recommended During the past month how often have you thought about: He thinks a lot about death 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci25 Integer Recommended During the past month how often have you thought about: His lost opportunities 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci26 Integer Recommended During the past month how often have you thought about: How to deal with mental health professionals 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci27 Integer Recommended During the past month how often have you thought about: Feeling unable to have visitors at home 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci28 Integer Recommended During the past month how often have you thought about: How he gets on with other family members 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci29 Integer Recommended During the past month how often have you thought about: Backing him up when he runs out of money 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci30 Integer Recommended During the past month how often have you thought about: How family members do not understand the illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci31 Integer Recommended During the past month how often have you thought about: How he attempts to harm himself 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci32 Integer Recommended During the past month how often have you thought about: I have become closer to some of my family 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci33 Integer Recommended During the past month how often have you thought about: I have become closer to friends 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci34 Integer Recommended During the past month how often have you thought about: I share some of his interests 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci35 Integer Recommended During the past month how often have you thought about: I feel useful in my relationship with him 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci36 Integer Recommended During the past month how often have you thought about: How health professionals do not understand your situation 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci37 Integer Recommended During the past month how often have you thought about: Whether he will ever get well 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci38 Integer Recommended During the past month how often have you thought about: The stigma of having a mentally ill relative 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci39 Integer Recommended During the past month how often have you thought about: How to explain his illness to others 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci40 Integer Recommended During the past month how often have you thought about: Others leaving home because of the effects of the illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci41 Integer Recommended During the past month how often have you thought about: Setting him up in accommodation 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci42 Integer Recommended During the past month how often have you thought about: How to make complaints about his care 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci43 Integer Recommended During the past month how often have you thought about: I have met helpful people 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci44 Integer Recommended During the past month how often have you thought about: I have discovered strengths in myself 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci45 Integer Recommended During the past month how often have you thought about: Feel unable to leave him home alone 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci46 Integer Recommended During the past month how often have you thought about: The effects of the illness on children in the family 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci47 Integer Recommended During the past month how often have you thought about: The illness causing a family breakup 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci48 Integer Recommended During the past month how often have you thought about: Him keeping bad company 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci49 Integer Recommended During the past month how often have you thought about: How his illness affects special family events 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci50 Integer Recommended During the past month how often have you thought about: Finding out how hospitals or mental health services work 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci51 Integer Recommended During the past month how often have you thought about: Doctor's knowledge of services available 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci52 Integer Recommended During the past month how often have you thought about: Difficulty getting information about his illness 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci53 Integer Recommended During the past month how often have you thought about: Him/her being Moody 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci54 Integer Recommended During the past month how often have you thought about: Him/her being Unpredictable 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci55 Integer Recommended During the past month how often have you thought about: Him/her being Withdrawn 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci56 Integer Recommended During the past month how often have you thought about: Him/her being Uncommunicative 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci57 Integer Recommended During the past month how often have you thought about: Him/her being Not interested 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci58 Integer Recommended During the past month how often have you thought about: Him/her being Slow at doing things 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci59 Integer Recommended During the past month how often have you thought about: Him/her being Unreliable about doing things 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci60 Integer Recommended During the past month how often have you thought about: Him/her being Indecisive 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci61 Integer Recommended During the past month how often have you thought about: Him/her being Irritable 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci62 Integer Recommended During the past month how often have you thought about: Him/her being Inconsiderate 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci63 Integer Recommended During the past month how often have you thought about: Him/her Behaving in a reckless way 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci64 Integer Recommended During the past month how often have you thought about: Him/her being Suspicious 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci65 Integer Recommended During the past month how often have you thought about: Him/her being Embarrassing in appearance 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci66 Integer Recommended During the past month how often have you thought about: Him/her behaving in a strange way 0::4 0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= Nearly Always
eci_diff Integer Recommended Difficult Behaviors Subscore
eci_neg Integer Recommended Negative Symptoms Subscore
eci_stig Integer Recommended Stigma Subscore
eci_pws Integer Recommended Problems with Service Subscore
eci_eof Integer Recommended Effects on Family Subscore
eci_ntb Integer Recommended Need to Backup Subscore
eci_dep Integer Recommended Dependency Subscore
eci_loss Integer Recommended Loss Subscore
eci_rpe Integer Recommended Rearding Personal Experiences Subscore
eci_good Integer Recommended Good Aspects of Relationship with Patient Subscore
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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