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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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Family Demographics

fam_dem

01

Family Demographics, defined by Dr. Tilford's group, University of Arkansas for Medical Sciences

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*GUID, probandguid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectprobandid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldcg_interview_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.probandgender
sexString20RequiredSex of the subjectM;FM = Male; F = Femalecg_gender, chi_gen, gender, t_gender
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datacg_finalcomments_misc
cg1_genderString10RecommendedCaregiver/Parent 1's GenderMale;Femalep_gender, q4
cg1_raceString100RecommendedRace of the Caregiver/Parent 1American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reportedcg_race, dmg_mthrrace, p_ethni, q5
cg_relationshipIntegerRecommendedRelationship with Child1::161 = Biological parent; 2 = Stepparent; 3 = Foster parent; 4 = Adoptive parent; 5 = Guardian; 6 = Other; 8=Grandparent; 9= Child alone; 10= Natural mother; 11= Natural father; 12= Uncle/ Aunt; 13= Girlfriend/ Boyfriend/ Husband/ Wife/ Partner; 14= Children; 15= Friend; 16= Other family relativehi_10_y, p_relation, q6
cg_relationship_cmtString255RecommendedRelationship with Child CommentIf 6 above, then what is caregiver's relationship?hi_10a_y, other1
cg_educationIntegerRecommendedLevel of School Completed1; 2; 3; 4; 5; 6; 71 = Less than 9th grade; 2 = Some of high school; 3 = GED or high school graduate; 4 = Some college or trade school; 5 = College graduate; 6 = Some professional or graduate training; 7 = Completed professional or graduate trainingdmg_q60a, q7
cg1_relation_statusString100RecommendedCaregiver/Parent 1's Relationship Status
Married;Never married;Widowed;Divorced and remarried;Separated;Divorced;Widowed and remarried;Other; Living with Partner
cg_rstatus, dmg_q56a, p_marriage, q8
household_number_in_houseIntegerRecommendedNumber of people living in primary residence for subject (proband)hi_8_y, household_number, p_fammemb, q9
num_in_house_adultsIntegerRecommendedNumber of Individuals in Household Adultsq10
household_18adlIntegerRecommendedNumber of Residents over 18 who require ADL Assistance0::99 = 9 or morehousehold_18_over, q11
household_0_5IntegerRecommendedResidents between 0 and 50::5q12_a
household_6_17IntegerRecommendedResidents between 6 and 170::7q12_b
household_cadlIntegerRecommendedChildren in household who require ADL Assistance0::99 = 9 or moreq13
household_cneedsIntegerRecommendedChildren in household with special healthcare needs0::99 = 9 or moreq14
cg_sleepIntegerRecommendedCaregiver's Hours of Sleep per Night0::90 = 4 or less hours, 1 = 5 hours; 2 = 6 hours; 3 = 7 hours; 4 = 8 hours; 5 = 9 hours; 6 = 10 or more hoursq15
cg_srbIntegerRecommendedmark on scale how burdensome you feel caring is at the moment0; 5; 10; 15; 20; 25; 30; 35; 40; 45; 50; 55; 60; 65; 70; 75; 80; 85; 90; 95; 100Scale from 0 to 100: 0 = Not at all straining; 100 = Much too strainingself_1
cg_nohelpIntegerRecommendedIdentify those who help you care for children - no help0; 10 = No; 1 = Yesq90_a
cg_spousehelpIntegerRecommendedIdentify those who help you care for children - spouse0; 10 = No; 1 = Yesq90_b
cg_otherfamhelpIntegerRecommendedIdentify those who help you care for children - other fam0; 10 = No; 1 = Yesq90_c
cg_homehealthhelpIntegerRecommendedIdentify those who help you care for children - home health0; 10 = No; 1 = Yesq90_d
cg_friendshelpIntegerRecommendedIdentify those who help you care for children - Friends0; 10 = No; 1 = Yesq90_e
cg_workIntegerRecommendedPart or Full Time work for pay in the last year0; 10 = No; 1 = Yesq91
cg_work_weeksIntegerRecommendedWeeks of work for pay in last year1; 21 = The whole year (52 weeks); 2 = Less than 52 weeksq92
cg_work_weeks_cmtString255Recommendedweeks of work for pay commentIf less than 52 weeks, the number of weeks a cargiver worked in the last yearweeks1
cg_work_hoursString255RecommendedNumber of hours worked per week for Payhours1
cg_occupString255Recommendedq94 - OccupationOccupation of caregiverdmg_q62adesc, occup1
cg_wageString255Recommendedwage/salary amountWage before taxesp_income_1_2_yearly, wage_1
cg_wage_periodIntegerRecommendedactual 1-7 total1; 2; 3; 4; 5; 6; 71 = Per hour; 2 = Per day; 3 = Per week; 4 = Per 2 week period; 5 = Per month; 6 = Per year; 7 = Otherq95
cg_wage_otherString255Recommendedwage/salary other (comment)If paid on other scale, list what it is hereother2, p_income_1_1_monthly
cg_takehomeString255Recommendedtake home pay (after deduction) - if knowntakeh1
cg_totalincomeIntegerRecommendedtotal combined family income1::71 = Less than $20,000; 2 = $20,000 to $35,000; 3 = $35,000 to $60,000; 4 = $60,000 to $100,000; 5 = $100,000 - $130,000; 6 = $130,000-$160,000; 7 = Over $160,000q96
commentsString4,000RecommendedComments about assessmentcg_finalcomment
numchildIntegerRecommendednumber of childrennum_child, num_children
current_caregiverIntegerRecommendedFor how many children are you currently the main caregiver?
child1_genderString10RecommendedOther Child in Household 1 GenderMale;Femalegender1
child2_genderString10RecommendedOther Child in Household 2 GenderMale;Femalegender2
child3_genderString10RecommendedOther Child in Household 3 GenderMale;Femalegender3
child4_genderString10RecommendedOther Child in Household 4 GenderMale;Femalegender4
child5_genderString10RecommendedOther Child in Household 5 GenderMale;Femalegender5
child1_ageString100RecommendedOther Child in Household 1 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage1
child2_ageString100RecommendedOther Child in Household 2 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage2
child3_ageString100RecommendedOther Child in Household 3 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage3
child4_ageString100RecommendedOther Child in Household 4 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage4
child5_ageString100RecommendedOther Child in Household 5 Age0-4 years; 5-8 years; 9-12 years; 13-17 years; 18+ yearsage5
index1IntegerRecommendedChild index 1
index2IntegerRecommendedChild index 2
index3IntegerRecommendedChild index 3
index4IntegerRecommendedChild index 4
index5IntegerRecommendedChild index 5
chi_healthIntegerRecommendedWould you say your child's health is1::51 = Excellent; 2 = Very good; 3 = Good; 4 = Fair; 5 = Poorhealth1
chi_health2IntegerRecommendedChild health 21::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth2
chi_health3IntegerRecommendedChild health 31::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth3
chi_health4IntegerRecommendedChild health 41::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth4
chi_health5IntegerRecommendedChild health 51::51=Excellent; 2= Very good; 3=Good; 4=Fair; 5=Poorhealth5
dmg_fthbthplIntegerRecommendedPlace of birth1::12;991=USA (mainland) 2=Puerto Rico 3=Dominican Republic 4=Spanish speaking Caribbean (Other than Puerto Rico or Dominican Republic) 5=English speaking Caribbean 6=French speaking Caribbean (Haiti) 7=Mexico, Central/South America 8=Asia, South Pacific 9=Africa 10=Europe 11=Canada 12=Other 99=DKdmg_mthbthpl
dmg_othfthbpString80RecommendedOther place of birthdmg_othmthbp
dmg_q62bIntegerRecommendedOccupation category1::9;77;88;991 = Farm Laborers/Menial Service Workers 2 = Unskilled Workers 3 = Machine Operators and Semiskilled Workers 4 = Skilled Manual Workers, Craftsmen, Owner of Small Business or Farm* 5 = Clerical and Sales Workers, Owner of Small Business or Farm* 6 = Technician, Semiprofessional, Owner of Small Business 7 = Manager, Minor Professional, Owner of Independent Business or Farm* 8 = Administrator, Lesser Professional, Owner of Medium-sized Business 9 = Higher executive, Owner of large Business, Major Professional 77 = Other (never employed for six months, homemaker, student, physically disabled) 88 = NA 99 = DKdmg_q62a
dmg_q63bIntegerRecommendedmother receiving public assistance0;10 = No; 1 = Yes;Between 0 And 1 Or Is Null;Answer must be 0 or 1dmg_q63a
briefscreen_respondent_age_yrsIntegerRecommendedage of Respondent in yearsdmg_mtherage
otherraceString100Recommendedspecify other raceThe following questions are about you or the child's family.dmg_othmrace
dem_13IntegerRecommendedNumber of years married / living togetherdmg_q58a
fh20IntegerRecommended20. Number of marriages0::9dmg_q59a
fi07IntegerRecommended7. Are you currently employed?1::6; 97::991 = Yes - employed full-time; 2 = Yes - employed part-time - or irregular; 3 = Not employed - able but cannot find work; 4 = Not employed - homemaker or caretaker; 5 = Not employed - disabled; 6 = Not employed - retired; 97 = Refused; 98 = Don't know; 99 = NAdmg_q61a
t_lgbtqIntegerRecommended(Child) Do you identify as part of the LGBTQ+ community?0;10=No; 1=Yes
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reporteddemo_race, demo_white, race_dem, t_ethni
usbornIntegerRecommendedUS born0;10=No; 1=Yest_born_us
liveswithString100Recommendedchild lives withBoth biological mother and father;Biological mother only;Biological father only;Biological mother and stepfather;Biological father and stepmother;Adoptive parents;Foster parents;Relatives;Othert_livewith
liveswithotherString50RecommendedChild lives with other, specify
cg1_usbornIntegerRecommendedCaregiver/Parent 1 US born0;10=No; 1=Yesp_born_us
p_siblings_oldbroIntegerRecommendednumber of older brothersoldbro
p_siblings_oldsisIntegerRecommendednumber of older sistersoldsis
p_siblings_youngbroIntegerRecommendednumber of younger brothersyoungbro
p_siblings_youngsisIntegerRecommendednumber of younger sistersyoungsis
siblingsIntegerRecommendedDoes the child have any brothers and sisters with whom she/he does not live with?0;10=No; 1=Yes
birthcountry_momString100RecommendedWhat is the country of birth of the child's mother?
age_immigrate_momIntegerRecommendedIf applicable, age of the child's mother when immigrated to the U.S
birthcountry_dadString100RecommendedWhat is the country of birth of the child's father?
age_immigrate_dadIntegerRecommendedIf applicable, age of the child's father when immigrated to the U.S
dadparentliveusIntegerRecommendedDo the child's father's parents live in the U.S.?0;1;70=No; 1=Yes; 7=Deceased
dadparentliveusdescString250RecommendedIf the child's father's parents live in the U.S., Where do they live?Country
momparentliveusIntegerRecommendedDo the child's mother's parents live in the U.S.?0;1;70=No; 1=Yes; 7=Deceased
momparentliveusdescString250RecommendedIf the child's mother's parents live in the U.S., Where do they live?Country
relationshipIntegerRecommendedRelationship of respondent to individual1::93;-9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parentrel_to_part
bio_mother_marital_statusString50RecommendedBiological Mother Marital Status
Single;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Other
bio_father_marital_statusString50RecommendedBiological Father Marital Status
Single;Married;Divorced;Divorced and Remarried;Widowed;Separated; Never Married; Other
momincomeIntegerRecommendedWhat is the child's mother's income in this job?
momincomeperString25Recommendedper hour, week, bi-weekly, month, or yearhour; week; bi-weekly; month; year
mommaritalIntegerRecommendedWhat is the child's mother's relationship with the child's father?1::61=married; 2=separated; 3=divorced; 4=widowed; 5=never married; 6=other;
mommarital_othString250RecommendedMom Marital Status: Other, Specify
mommarryhowlongIntegerRecommendedHow long has this been the child's mother's marital status?years
mommaritalcurr_othString250RecommendedMom Marital Status: Other, Specify
mommarrycurrhowlongIntegerRecommendedHow long has this been the child's mother's marital status?years
dadincomeIntegerRecommendedWhat is the child's father's income in this job?
dadincomeperString25Recommendedper hour, week, bi-weekly, month, or yearhour; week; bi-weekly; month; year
momeduIntegerRecommendedmother's education1::12; 9991=some elementary school; 2=completed elementary school; 3=some junior-high school; 4=completed junior-high school; 5=some high school; 6=high school diploma; 7=trade or vocational school; 8=some college; 9=college degree; 10=some graduate school; 11=graduate school degree;other; 999=missing/NA; 12=less than 8th gradehi_5_y
momhasjobIntegerRecommendedDoes the child's mother have a job right now?0;10=No; 1=Yesmomjob
momjobdescString250RecommendedIf yes, what is the child's mother's job?hi_6_y
dadeduIntegerRecommendedHow far has the child's father ever gone in school?1::12; 9991=some elementary school; 2=completed elementary school; 3=some junior-high school; 4=completed junior-high school; 5=some high school; 6=high school diploma; 7=trade or vocational school; 8=some college; 9=college degree; 10=some graduate school; 11=graduate school degree;other; 999=missing/NA; 12=less than 8th gradehi_2_y
dadhasjobIntegerRecommendedDoes the child's father have a job right now?0;10=No; 1=Yesdadjob
dadjobdescString250RecommendedIf yes, what is the child's father's job?hi_3_y
father_still_livingString5RecommendedFather still living?Yes; No; NKNK = unknownhi_1_y
mother_still_livingString5RecommendedMother still living?Yes; No; NKNK = unknownhi_4_y
hi_7_raIntegerRecommendedIs this a post or follow-up interview?0; 10= No; 1= Yes
hi_9_yIntegerRecommendedWho are you currently living with in your household apart from yourself? We mean only the people that usually eat from the same pot as you.1::131= Myself alone; 2= Natural mother; 3= Natural father; 4= Uncle/ Aunt; 5= Grandparent; 6= Brother/ Sister; 7= Other family relative; 8= Girlfriend/ Boyfriend/ Husband/ Wife/ Partner; 9= Children; 10= Foster parent; 11= Stepfather/ Stepmother; 12= Friend; 13= Other
hi_9a_yString50RecommendedWho are you currently living with in your household apart from yourself? We mean only the people that usually eat from the same pot as you. Exact answer.
hi_9c_yIntegerRecommendedHow long have you been living alone? Number of months living alone:
hi_9d_yIntegerRecommendedHow long have you been living alone? Number of years living alone:
hi_10c_yIntegerRecommendedHow long have you been responsible for yourself? Number of months responsible for self:
hi_10d_yIntegerRecommendedHow long have you been responsible for yourself? Number of years responsible for self:
hi_11_yIntegerRecommendedWho is primarily responsible for your care now in terms of financial support?1::131= Myself alone; 2= Natural mother; 3= Natural father; 4= Uncle/ Aunt; 5= Grandparent; 6= Brother/ Sister; 7= Other family relative; 8= Girlfriend/ Boyfriend/ Husband/ Wife/ Partner; 9= Children; 10= Foster parent; 11= Stepfather/ Stepmother; 12= Friend; 13= Other
hi_11a_yString50RecommendedWho is primarily responsible for your care now in terms of financial support? Other.
hi_11c_yIntegerRecommendedHow long have you been responsible for yourself? Number of months responsible for self:
hi_11d_yIntegerRecommendedHow long have you been responsible for yourself? Number of years responsible for self:
maritalIntegerRecommendedWhat is your current marital status1::91= never married; 2= living with someone; 3= married; 4= separated; 5=divorced; 6=widowed; 7= engaged; 8= lived with, but now single; 9= otherhi_12_y, marital_stat
marital_status_specifyString255RecommendedOther marital status - Please describe:hi_12a_y
hi_13_yIntegerRecommendedIf you are not married and do not have an intimate partner, who is closest to you within your household?1::121= Natural mother; 2= Natural father; 3= Uncle/ Aunt; 4= Grandparent; 5= Brother/ Sister; 6= Other family relative; 7= Girlfriend/ Boyfriend/ Husband/ Wife/ Partner; 8= Children; 9= Foster parent; 10= Stepfather/ Stepmother; 11= Friend; 12= Other
hi_13a_yString50RecommendedIf you are not married and do not have an intimate partner, who is closest to you within your household? Other
hi_14_yIntegerRecommendedIf you are your own caretaker, do not have an intimate partner and live alone, who is your closest friend or family member right now?1::121= Natural mother; 2= Natural father; 3= Uncle/ Aunt; 4= Grandparent; 5= Brother/ Sister; 6= Other family relative; 7= Girlfriend/ Boyfriend/ Husband/ Wife/ Partner; 8= Children; 9= Foster parent; 10= Stepfather/ Stepmother; 11= Friend; 12= Other
hi_14a_yString50RecommendedIf you are your own caretaker, do not have an intimate partner and live alone, who is your closest friend or family member right now? Other
pregevIntegerRecommendedHave you ever been pregnant0;10=No; 1=Yes
mfcs3IntegerRecommendedHow many children do you have. Include both children who do and do not live with you?99=missing
hi_18a_yIntegerRecommendedHow many of your biological children live with you?
hi_19a_yIntegerRecommendedHow many non-biological children are you presently the principal caretaker for?
hi_20_yIntegerRecommendedDoes anyone, other than yourself, provide support and care for your children?
ed_1_yIntegerRecommendedAre you currently in school?0;10= No; 1= Yes
ed_1a_yIntegerRecommendedWhy are you not currently attending school?1::121= Completed; 2= Too far away; 3= Too expensive; 4= Working; 5= Useless; 6= Illness; 7= Pregnancy; 8= Failed exams; 9= Got married; 10= Awaiting admission; 11= Dismissed; 12= Other
ed_2_yIntegerRecommendedHave you ever attended school?0;10= No; 1= Yes
ed_2a_yIntegerRecommendedWhy have you never attended school?1::71= Too young; 2= Too far away; 3= Too expensive; 4= Working; 5= Useless; 6= Illness; 7= Other
ed_3_yIntegerRecommendedHow long ago did you stop attending school? Number of months:
ed_3a_yIntegerRecommendedHow long ago did you stop attending school? Number of years:
ed_4_yIntegerRecommendedWhy did you stop attending school?1::121= I was taken by an armed group; 2= My school was closed or destroyed; 3= I moved; 4= No money for fees/ uniform; 5= Too many children in my family to afford school; 6= I had difficulty reading; 7= Reading hurt my eyes; 8= I had a good work opportunity; 9= I got married; 10= I did not want to repeat a grade; 11= I had to care for family members; 12= Other
ed_4a_yIntegerRecommendedWhy did you stop attending school? Exact answer
ed_5_yIntegerRecommendedDid you try to return to school at any point after you stopped attending?0;10= No; 1= Yes
phne_sc_2String40RecommendedWhat is your highest grade completed in school?
ed_7_yIntegerRecommendedHave you received financial support from anyone in your family in order to complete school up to this level?0;10= No; 1= Yes
ed_8_yIntegerRecommendedHave you received support from a community member/NGO/government in order to complete school up to this level?0;10= No; 1= Yes
ed_9_yIntegerRecommendedHow well can you read?1::41= I can't read; 2= I have difficulty reading; 3= I know how to read but it takes effort; 4= I know how to read well
ed_10_yIntegerRecommendedHow well can you write?1::41= I can't read; 2= I have difficulty reading; 3= I know how to read but it takes effort; 4= I know how to read well
ed_11_yIntegerRecommendedHave you ever received education or training at a vocational program or a technical school?0;10= No; 1= Yes
ed_11b_yString100RecommendedWhat type of training program did you participate in: Write exact answer.
ed_11d_yIntegerRecommendedHow long was your training? Number of days:
ed_11e_yIntegerRecommendedHow long was your training? Number of months:
ed_11f_yIntegerRecommendedHow long was your training? Number of years:
ed_11g_yIntegerRecommendedDid you receive financial support from anyone in your family in order to complete vocational/technical program?
ed_11h_yIntegerRecommendedDid you receive support from a community member/ NGO/government in order to complete vocational/technical program?
he_1_yIntegerRecommendedCompared to another person of your age, would you say your health is:1::31= Worse than others; 2= Same as others; 3= Better than the others
he_2a_yString100RecommendedHow often in the past one month were you unable to do the work you usually do because of an emotional or psychological problem? Write exact answer:
he_3a_yString100RecommendedHow often in the past one month did you have to lie in bed for more than half a day because because of an emotional or psychological problem? Write exact answer
he_4_yIntegerRecommendedDuring the past month, how much difficulty did you have in taking care of your household responsibilities because of an emotional or psychological problem?0::30= Not at all; 1= A little; 2= Quite a bit; 3= Extremely
phaseIntegerRecommendedPhase9 =follow upeasie_phase
sclgenderString15Recommendedrespondent's genderM;FM = Male; F = Female
sclgender_specString100RecommendedPlease specify your respondent's gendergender_spec
race_specString100RecommendedPlease specify your racial/ethnic brackground
religIntegerRecommendedcurent religious preference1::18;-71::Lutheran; 2=Methodist; 3=Baptist; 4=Episcopal; 5=Presbyterian; 6=Other Protestant; 7=Roman Catholic; 8=Orthodox Christian; 9=Jewish; 10=Islamic; 11=Buddhist; 12=Confucian; 13=Shintoist; 14=Hindu; 15=Jehovah's Witness; 16=Spiritual-not religious; 17=Other; 18=None; -7=Refusedsic_religion
religion_specString50RecommendedSpecify child's religion, if 'other'
studentIntegerRecommendedCurrently a student0::20=No; 1=Yes; 2=Part time
empcurIntegerRecommendedCurrently employed0;1; -99; 77; 880 = No; 1 = Yes; -99= N/A ; 88= Missing ; 77= Refused
srcunempIntegerRecommendedsources of income unemployed0;1;-70=No; 1=Yes; -7=Refusedoccupation_unemployed
occupation_recdisIntegerRecommendedAre you currently receiving disability?0; 10= No; 1= Yes
occupation_student_grades_currIntegerRecommendedCurrent grades [of student]1::81=Mostly Ds and Fs; 2=Mostly Ds; 3=Mostly Ds and Cs; 4=Mostly Cs; 5=Mostly Bs and Cs; 6=Mostly Bs; 7=Mostly As and Bs; 8=Mostly As
occupation_student_grades_prevIntegerRecommendedPrevious year's grades [of participant]1::81=Mostly Ds and Fs; 2=Mostly Ds; 3=Mostly Ds and Cs; 4=Mostly Cs; 5=Mostly Bs and Cs; 6=Mostly Bs; 7=Mostly As and Bs; 8=Mostly As
occupation_student_accomIntegerRecommendedDo you [participant] receive any special accommodations in school?0::10=No; 1=Yes
occupation_student_accom_specString100RecommendedPlease describe the special accommodations you receive in school.
occupation_student_monthly_absIntegerRecommendedHow often have you [participant] missed school in the past 6 months?1::40=None; 1=Less than once per month; 2=1 or 2 times per month; 3=1 or 2 times per week; 4=3 or 4 times per week
occupation_employed_roleString100RecommendedWhat is your [patient's] occupation?Occupation
occupation_employed_timeString100RecommendedIs this a full- or part-time position?Full-time;Part-timePosition is full- or part-time
occupation_employed_hoursIntegerRecommendedHow many hours do you [patient] typically work per week?Hours/week
occupation_employed_startDateRecommendedWhen did you [patient] start this position?MM/YY
occupation_employed_eduIntegerRecommendedWhat is the highest level of education that you [patient] have completed?1::9; 991=Completed post-graduate training, advanced degree; 2=Some post-graduate training, no degree; 3=Completed college, 4 year degree; 4=Some post secondary school, but no 4 year degree, including associate degrees & technical certificates or diploma; 5=Completed high school, diploma; 6=Attended high school, no diploma; 7=Completed 8th grade, no high school; 8=Attended grade school, not through 8th grade; 9=No schooling; 99=Information not available.
occupation_employed_accomIntegerRecommendedDid you receive any special accommodation while you [patient] were in school?0::10=No;1=Yes
occupation_employed_accom_specString100RecommendedIf yes, please describe the special accommodations that you [patient] received in school.
occupation_unemployed_lengthIntegerRecommendedWhat is the current length of your [patient's] unemployment?Approximate months
occupation_unemployed_eduIntegerRecommendedWhat is the highest level of education that you [patient] have completed?1::9; 991=Completed post-graduate training, advanced degree; 2=Some post-graduate training, no degree; 3=Completed college, 4 year degree; 4=Some post secondary school, but no 4 year degree, including associate degrees & technical certificates or diploma; 5=Completed high school, diploma; 6=Attended high school, no diploma; 7=Completed 8th grade, no high school; 8=Attended grade school, not through 8th grade; 9=No schooling; 99=Information not available.
occupation_unemployed_roleString100RecommendedWhat was your position at your [patient's] most recent place of employment?Occupation at most recent employer
occupation_unemployed_accomIntegerRecommendedDid you receive any special accommodation while you [patient] were in school?0::10=No;1=Yes
accom_specString300RecommendedIf yes, please describe the special accommodations that you [patient] received in school.occupation_unemployed_accom_spec
hx_psycounsIntegerRecommendedHave you ever received counseling services or psychiatric treatment?0; 10= No; 1= Yes
hx_psycouns_specString300RecommendedPlease describe your history of receiving counseling services or psychiatric treatment.
hx_psymedsIntegerRecommendedHave you ever been prescribed psychiatric medication?0; 10= No; 1= Yes
hx_psymeds_specString300RecommendedPlease describe your history of taking psychiatric medication.
hx_medtxIntegerRecommendedDo you have a history medical treatment?0; 10= No; 1= Yes
hx_medtx_specString300RecommendedPlease describe your history of medical treatment.
hx_pregcompIntegerRecommendedDo you have a history of maternal complications during pregnancy/delivery?0;1;9990=No;1=Yes;999=Don't know
hx_pregcomp_specString300RecommendedPlease describe your history of maternal complications during pregnancy/delivery.
hx_devdiffIntegerRecommendedDo you have a history of developmental difficulties (e.g., delayed walking, delayed speech)?0;1;9990=No;1=Yes; 999=Don't know
hx_devdiff_specString300RecommendedPlease describe your history of developmental difficulties.
bio_childage_1IntegerRecommendedBiological child 1 age0::1200In monthsnum_child1
bio_childage_2IntegerRecommendedBiological child 2 age0::1200In monthsnum_child2
bio_childage_3IntegerRecommendedBiological child 3 age0::1200In monthsnum_child3
bio_childage_4IntegerRecommendedBiological child 4 age0::1200In monthsnum_child4
bio_childage_5IntegerRecommendedBiological child 5 age0::1200In monthsnum_child5
bio_childage_6IntegerRecommendedBiological child 6 age0::1200In monthsnum_child6
bio_childage_7IntegerRecommendedBiological child 6 age0::1200In monthsnum_child7
bio_childage_8IntegerRecommendedBiological child 8 age0::1200In monthsnum_child8
house_occ_totalIntegerRecommendedTotal number of household occupants, including the participant.
house_occ_total1String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total2String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total3String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total4String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total5String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total6String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total7String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
house_occ_total8String50RecommendedWhat is the relationship of this occupant to the participant?E.g., Mother, Brother, Grandmother, Spouse, Roommate, etc.
subjectkey_motherGUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's biological motherNDAR*subject_key_mother
src_mother_idString100Recommendedsite specific mother IDbiomother, mat_id, src_subject_id_mother
mother_occupationString50RecommendedWhat is the mother's occupation?
mother_eduString55RecommendedMother's EducationNo formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School; Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional Training; Some Grade School
subjectkey_fatherGUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's biological fatherNDAR*subject_key_father
src_father_idString100Recommendedsite specific father IDpat_id, src_subject_id_father
father_occupationString50RecommendedWhat is the father's occupation?
father_eduString55RecommendedFather's EducationNo formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School;Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional Training;Some Grade School
fam_hx_psyString300RecommendedPlease describe your family history of emotional difficulties and/or psychiatric treatment.
subjectkey_sibling1GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling1_idString100Recommendedsite specific sibling1 ID
sibling_type1String255RecommendedType of SiblingFull Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling2GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling2_idString100Recommendedsite specific sibling2 ID
sibling_type2String255Recommendedsibling typeFull Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling3GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling3_idString100Recommendedsite specific sibling3 ID
sibling_type3String255Recommendedsibling typeFull Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
subjectkey_sibling4GUIDRecommendedThe NDAR Global Unique Identifier (GUID) for subject's siblingNDAR*
src_sibling4_idString100Recommendedsite specific sibling4 ID
sibling_type4String255Recommendedsibling typeFull Brother FB; Half Mother Brother HMB; Half Father Brother HFB; Full Sister FS; Half Mother Sister HMS; Half Father Sister HFS
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: fam_dem01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.