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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Family Economic Impact Inventory

famei

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/project
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
chcname1String50RecommendedChronic health condition name 1
chcname2String50RecommendedChronic health condition name 2
chcname3String50RecommendedChronic health condition name 3
chcname4String50RecommendedChronic health condition name 4
chcname5String50RecommendedChronic health condition name 5
servicename1String50RecommendedFirst "sevice with a medical or other professional provider" used
servicename2String50RecommendedSecond "sevice with a medical or other professional provider" used
servicename3String50RecommendedThird "sevice with a medical or other professional provider" used
servicename4String50RecommendedFourth "sevice with a medical or other professional provider" used
servicename5String50RecommendedFifth "sevice with a medical or other professional provider" used
servicecondition1String50RecommendedIf not related to chronic health condition, what was it for?
servicecondition2String50RecommendedIf not related to chronic health condition, what was it for?
servicecondition3String50RecommendedIf not related to chronic health condition, what was it for?
servicecondition4String50RecommendedIf not related to chronic health condition, what was it for?
servicecondition5String50RecommendedIf not related to chronic health condition, what was it for?
serviceusage1IntegerRecommendedHas [name of child] ever used the following service? Service 11::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
serviceusage2IntegerRecommendedHas [name of child] ever used the following service? Service 21::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
serviceusage3IntegerRecommendedHas [name of child] ever used the following service? Service 31::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
serviceusage4IntegerRecommendedHas [name of child] ever used the following service? Service 41::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
serviceusage5IntegerRecommendedHas [name of child] ever used the following service? Service 51::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
service_recent1IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 1
service_recent2IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 2
service_recent3IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 3
service_recent4IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 4
service_recent5IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 5
service_pay1IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 1
service_pay2IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 2
service_pay3IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 3
service_pay4IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 4
service_pay5IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 5
service_helpful1IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
service_helpful2IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
service_helpful3IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
service_helpful4IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
service_helpful5IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdservicename1String50RecommendedFirst "ASD specific service" used
asdservicename2String50RecommendedSecond "ASD specific service" used
asdservicename3String50RecommendedThird "ASD specific service" used
asdservicename4String50RecommendedFourth "ASD specific service" used
asdservicename5String50RecommendedFifth "ASD specific service" used
asdserviceusage1IntegerRecommendedHas [name of child] ever used the following service? Service 11::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
asdserviceusage2IntegerRecommendedHas [name of child] ever used the following service? Service 21::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
asdserviceusage3IntegerRecommendedHas [name of child] ever used the following service? Service 31::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
asdserviceusage4IntegerRecommendedHas [name of child] ever used the following service? Service 41::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
asdserviceusage5IntegerRecommendedHas [name of child] ever used the following service? Service 51::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
asdservice_recent1IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 1
asdservice_recent2IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 2
asdservice_recent3IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 3
asdservice_recent4IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 4
asdservice_recent5IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 5
asdservice_pay1IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 1
asdservice_pay2IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 2
asdservice_pay3IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 3
asdservice_pay4IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 4
asdservice_pay5IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 5
asdservice_helpful1IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdservice_helpful2IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdservice_helpful3IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdservice_helpful4IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdservice_helpful5IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
camservicename1String50RecommendedFirst "Complementary and Alternative Medicine Service" used
camservicename2String50RecommendedSecond "Complementary and Alternative Medicine Service" used
camservicename3String50RecommendedThird "Complementary and Alternative Medicine Service" used
camservicename4String50RecommendedFourth "Complementary and Alternative Medicine Service" used
camservicename5String50RecommendedFifth "Complementary and Alternative Medicine Service" used
camservicecondition1String50RecommendedIf not related to chronic health condition, what was it for?
camservicecondition2String50RecommendedIf not related to chronic health condition, what was it for?
camservicecondition3String50RecommendedIf not related to chronic health condition, what was it for?
camservicecondition4String50RecommendedIf not related to chronic health condition, what was it for?
camservicecondition5String50RecommendedIf not related to chronic health condition, what was it for?
camserviceusage1IntegerRecommendedHas [name of child] ever used the following service? Service 11::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
camserviceusage2IntegerRecommendedHas [name of child] ever used the following service? Service 21::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
camserviceusage3IntegerRecommendedHas [name of child] ever used the following service? Service 31::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
camserviceusage4IntegerRecommendedHas [name of child] ever used the following service? Service 41::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
camserviceusage5IntegerRecommendedHas [name of child] ever used the following service? Service 51::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
camservice_recent1IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 1
camservice_recent2IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 2
camservice_recent3IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 3
camservice_recent4IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 4
camservice_recent5IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 5
camservice_pay1IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 1
camservice_pay2IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 2
camservice_pay3IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 3
camservice_pay4IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 4
camservice_pay5IntegerRecommendedAbout how much did your family pay for this service IN THE LAST 4 MONTHS? Service 5
camservice_helpful1IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
camservice_helpful2IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
camservice_helpful3IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
camservice_helpful4IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
camservice_helpful5IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childs ASD: Service 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
educational_settingString50RecommendedWhich of the following best describes [name of child]s most recent school or educational setting?Public school; Charter school; Private school; Home school program; Early childhood intervention program; Other (specify); Does not currently attend school; Don't Know
classroom_settingIntegerRecommendedWithin that school or educational program, which of the following best describes your childs most recent classroom setting1::71= Regular classroom all day; 2= Regular classroom all day with an aide or assistant; 3= Regular classroom most of the day, special education classroom some of the time; 4= Regular classroom most of the day, pulled out for support services such as speech; 5= Same amount of time in regular classroom and in special education classroom; 6= Special education classroom most of the day, regular classroom some of the time; 7= Special education classroom all day
schoolservicename1String50RecommendedFirst "School Service" used
schoolservicename2String50RecommendedSecond "School Service" used
schoolservicename3String50RecommendedThird "School Service" used
schoolservicename4String50RecommendedFourth "School Service" used
schoolservicename5String50RecommendedFifth "School Service" used
schoolservicecondition1String50RecommendedIf not related to chronic health condition, what was it for?
schoolservicecondition2String50RecommendedIf not related to chronic health condition, what was it for?
schoolservicecondition3String50RecommendedIf not related to chronic health condition, what was it for?
schoolservicecondition4String50RecommendedIf not related to chronic health condition, what was it for?
schoolservicecondition5String50RecommendedIf not related to chronic health condition, what was it for?
schoolserviceusage1IntegerRecommendedHas [name of child] ever used the following service? Service 11::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
schoolserviceusage2IntegerRecommendedHas [name of child] ever used the following service? Service 21::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
schoolserviceusage3IntegerRecommendedHas [name of child] ever used the following service? Service 31::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
schoolserviceusage4IntegerRecommendedHas [name of child] ever used the following service? Service 41::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
schoolserviceusage5IntegerRecommendedHas [name of child] ever used the following service? Service 51::31= Never used this service/ Don't Know; 2= Ever used this service in child's lifetime; 3= Used this service in the last 4 months
schoolservice_recent1IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 1
schoolservice_recent2IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 2
schoolservice_recent3IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 3
schoolservice_recent4IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 4
schoolservice_recent5IntegerRecommendedAbout how many times did you use this service IN THE LAST 4 MONTHS? Service 5
schoolservice_helpful1IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childshealth or chronic health conditions: Service 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
schoolservice_helpful2IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childshealth or chronic health conditions: Service 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
schoolservice_helpful3IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childshealth or chronic health conditions: Service 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
schoolservice_helpful4IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childshealth or chronic health conditions: Service 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
schoolservice_helpful5IntegerRecommendedSERVICE you indicated your child or family has EVER used to help with your childshealth or chronic health conditions: Service 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
medication_nameString255RecommendedName of medication
medication2_nameString200RecommendedName second medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication3_nameString150RecommendedName third medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication4_nameString100RecommendedName fourth medication that the participant has taken0 = No medication; 999= Legitimately skipped
medication5_nameString500RecommendedName fifth medication that the participant has taken0 = No medication; 999= Legitimately skipped
drugusage1IntegerRecommendedHas [name of child] ever used medication1?1::31= Never used this medicine/ Don't Know; 2= Ever used this medicine in child's lifetime; 3= Used this medicine in the last 4 months
drugusage2IntegerRecommendedHas [name of child] ever used medication2?1::31= Never used this medicine/ Don't Know; 2= Ever used this medicine in child's lifetime; 3= Used this medicine in the last 4 months
drugusage3IntegerRecommendedHas [name of child] ever used medication3?1::31= Never used this medicine/ Don't Know; 2= Ever used this medicine in child's lifetime; 3= Used this medicine in the last 4 months
drugusage4IntegerRecommendedHas [name of child] ever used medication4?1::31= Never used this medicine/ Don't Know; 2= Ever used this medicine in child's lifetime; 3= Used this medicine in the last 4 months
drugusage5IntegerRecommendedHas [name of child] ever used medication5?1::31= Never used this medicine/ Don't Know; 2= Ever used this medicine in child's lifetime; 3= Used this medicine in the last 4 months
drug_pay1IntegerRecommendedAbout how much did your family pay for medication1 IN THE LAST 4 MONTHS?
drug_pay2IntegerRecommendedAbout how much did your family pay for medication2 IN THE LAST 4 MONTHS?
drug_pay3IntegerRecommendedAbout how much did your family pay for medication3 IN THE LAST 4 MONTHS?
drug_pay4IntegerRecommendedAbout how much did your family pay for medication4 IN THE LAST 4 MONTHS?
drug_pay5IntegerRecommendedAbout how much did your family pay for medication5 IN THE LAST 4 MONTHS?
drug_helpful1IntegerRecommendedMEDICATION you indicated your child or family has EVER used to help with your childs ASD: medication11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
drug_helpful2IntegerRecommendedMEDICATION you indicated your child or family has EVER used to help with your childs ASD: medication21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
drug_helpful3IntegerRecommendedMEDICATION you indicated your child or family has EVER used to help with your childs ASD: medication31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
drug_helpful4IntegerRecommendedMEDICATION you indicated your child or family has EVER used to help with your childs ASD: medication41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
drug_helpful5IntegerRecommendedMEDICATION you indicated your child or family has EVER used to help with your childs ASD: medication51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
vitaminname1String50RecommendedFirst "Vitamins, Supplements, and Herbs" used
vitaminname2String50RecommendedSecond "Vitamins, Supplements, and Herbs" used
vitaminname3String50RecommendedThird "Vitamins, Supplements, and Herbs" used
vitaminname4String50RecommendedFourth "Vitamins, Supplements, and Herbs" used
vitaminname5String50RecommendedFifth "Vitamins, Supplements, and Herbs" used
vitaminusage1IntegerRecommendedHas [name of child] ever used vitamin1?1::31= Never used this vitamin/ Don't Know; 2= Ever used this vitamin in child's lifetime; 3= Used this vitamin in the last 4 months
vitaminusage2IntegerRecommendedHas [name of child] ever used vitamin2?1::31= Never used this vitamin/ Don't Know; 2= Ever used this vitamin in child's lifetime; 3= Used this vitamin in the last 4 months
vitaminusage3IntegerRecommendedHas [name of child] ever used vitamin3?1::31= Never used this vitamin/ Don't Know; 2= Ever used this vitamin in child's lifetime; 3= Used this vitamin in the last 4 months
vitaminusage4IntegerRecommendedHas [name of child] ever used vitamin4?1::31= Never used this vitamin/ Don't Know; 2= Ever used this vitamin in child's lifetime; 3= Used this vitamin in the last 4 months
vitaminusage5IntegerRecommendedHas [name of child] ever used vitamin5?1::31= Never used this vitamin/ Don't Know; 2= Ever used this vitamin in child's lifetime; 3= Used this vitamin in the last 4 months
vitamin_pay1IntegerRecommendedAbout how much did your family pay for this vitamin IN THE LAST 4 MONTHS? vitamin 1
vitamin_pay2IntegerRecommendedAbout how much did your family pay for this vitamin IN THE LAST 4 MONTHS? vitamin 2
vitamin_pay3IntegerRecommendedAbout how much did your family pay for this vitamin IN THE LAST 4 MONTHS? vitamin 3
vitamin_pay4IntegerRecommendedAbout how much did your family pay for this vitamin IN THE LAST 4 MONTHS? vitamin 4
vitamin_pay5IntegerRecommendedAbout how much did your family pay for this vitamin IN THE LAST 4 MONTHS? vitamin 5
vitamin_helpful1IntegerRecommendedVitamin you indicated your child or family has EVER used to help with your childs ASD: vitamin 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
vitamin_helpful2IntegerRecommendedVitamin you indicated your child or family has EVER used to help with your childs ASD: vitamin 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
vitamin_helpful3IntegerRecommendedVitamin you indicated your child or family has EVER used to help with your childs ASD: vitamin 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
vitamin_helpful4IntegerRecommendedVitamin you indicated your child or family has EVER used to help with your childs ASD: vitamin 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
vitamin_helpful5IntegerRecommendedVitamin you indicated your child or family has EVER used to help with your childs ASD: vitamin 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
homepathicnameString50RecommendedYou answered "Homeopathic remedy" to the question about vitamins or supplements to help manage s ASD. Please tell us the name of the remedy
herbnameString50RecommendedYou answered "Chinese herb" to the question about vitamins or supplements to help manage s ASD. Please tell us the name of the herb
childcare_satisfactionIntegerRecommendedNow I am going to ask you how satisfied you are with the childcare arrangement or combination of arrangements for this child. I would like to use these categories:1::51= Very satisfied; 2= Satisfied; 3= Mixed feelings; 4= Dissatisfied; 5= Very dissatisfied
childcare_pastchangesIntegerRecommendedHow frequently have you changed child care arrangements in the past year?0::70= Does not apply; 1= Never; 2= Yearly; 3= Once every six months; 4= Every few months; 5= Monthly; 6= Weekly; 7= On a daily basis
childcare_futureIntegerRecommendedDo you plan to change your child care arrangements in the near future?0; 10= No; 1= Yes
dietname1String50RecommendedFirst "Special Diet" used
dietname2String50RecommendedSecond "Special Diet" used
dietname3String50RecommendedThird "Special Diet" used
dietname4String50RecommendedFourth "Special Diet" used
dietname5String50RecommendedFifth "Special Diet" used
dietusage1IntegerRecommendedHas [name of child] ever used the following diet? diet 11::31= Never used this diet/ Don't Know; 2= Ever used this diet in child's lifetime; 3= Used this diet in the last 4 months
dietusage2IntegerRecommendedHas [name of child] ever used the following diet? diet 21::31= Never used this diet/ Don't Know; 2= Ever used this diet in child's lifetime; 3= Used this diet in the last 4 months
dietusage3IntegerRecommendedHas [name of child] ever used the following diet? diet 31::31= Never used this diet/ Don't Know; 2= Ever used this diet in child's lifetime; 3= Used this diet in the last 4 months
dietusage4IntegerRecommendedHas [name of child] ever used the following diet? diet 41::31= Never used this diet/ Don't Know; 2= Ever used this diet in child's lifetime; 3= Used this diet in the last 4 months
dietusage5IntegerRecommendedHas [name of child] ever used the following diet? diet 51::31= Never used this diet/ Don't Know; 2= Ever used this diet in child's lifetime; 3= Used this diet in the last 4 months
diet_recent1IntegerRecommendedIF YOU HAVE USED THIS DIET IN THE LAST THREE MONTHS: Please indicate how often, in the last 4 months, you used this diet with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
diet_recent2IntegerRecommendedIF YOU HAVE USED THIS DIET IN THE LAST THREE MONTHS: Please indicate how often, in the last 4 months, you used this diet with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
diet_recent3IntegerRecommendedIF YOU HAVE USED THIS DIET IN THE LAST THREE MONTHS: Please indicate how often, in the last 4 months, you used this diet with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
diet_recent4IntegerRecommendedIF YOU HAVE USED THIS DIET IN THE LAST THREE MONTHS: Please indicate how often, in the last 4 months, you used this diet with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
diet_recent5IntegerRecommendedIF YOU HAVE USED THIS DIET IN THE LAST THREE MONTHS: Please indicate how often, in the last 4 months, you used this diet with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
diet_helpful1IntegerRecommendedDiet you indicated your child or family has EVER used to help with your childs ASD: diet 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
diet_helpful2IntegerRecommendedDiet you indicated your child or family has EVER used to help with your childs ASD: diet 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
diet_helpful3IntegerRecommendedDiet you indicated your child or family has EVER used to help with your childs ASD: diet 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
diet_helpful4IntegerRecommendedDiet you indicated your child or family has EVER used to help with your childs ASD: diet 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
diet_helpful5IntegerRecommendedDiet you indicated your child or family has EVER used to help with your childs ASD: diet 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdprogramname1String50RecommendedFirst "ASD Programs" used
asdprogramname2String50RecommendedSecond "ASD Programs" used
asdprogramname3String50RecommendedThird "ASD Programs" used
asdprogramname4String50RecommendedFourth "ASD Programs" used
asdprogramname5String50RecommendedFifth "ASD Programs" used
asdprogramusage1IntegerRecommendedHas [name of child] ever used the following ASD program 1?1::31= Never used this program/ Don't Know; 2= Ever used this program in child's lifetime; 3= Used this program in the last 4 months
asdprogramusage2IntegerRecommendedHas [name of child] ever used the following ASD program 2?1::31= Never used this program/ Don't Know; 2= Ever used this program in child's lifetime; 3= Used this program in the last 4 months
asdprogramusage3IntegerRecommendedHas [name of child] ever used the following ASD program 3?1::31= Never used this program/ Don't Know; 2= Ever used this program in child's lifetime; 3= Used this program in the last 4 months
asdprogramusage4IntegerRecommendedHas [name of child] ever used the following ASD program 4?1::31= Never used this program/ Don't Know; 2= Ever used this program in child's lifetime; 3= Used this program in the last 4 months
asdprogramusage5IntegerRecommendedHas [name of child] ever used the following ASD program 5?1::31= Never used this program/ Don't Know; 2= Ever used this program in child's lifetime; 3= Used this program in the last 4 months
asdprogram_recent1IntegerRecommendedIF YOU HAVE USED THIS PROGRAM IN THE LAST THREE MONTHS: please indicate how often, in the last 4 months, you have used this program with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
asdprogram_recent2IntegerRecommendedIF YOU HAVE USED THIS PROGRAM IN THE LAST THREE MONTHS: please indicate how often, in the last 4 months, you have used this program with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
asdprogram_recent3IntegerRecommendedIF YOU HAVE USED THIS PROGRAM IN THE LAST THREE MONTHS: please indicate how often, in the last 4 months, you have used this program with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
asdprogram_recent4IntegerRecommendedIF YOU HAVE USED THIS PROGRAM IN THE LAST THREE MONTHS: please indicate how often, in the last 4 months, you have used this program with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
asdprogram_recent5IntegerRecommendedIF YOU HAVE USED THIS PROGRAM IN THE LAST THREE MONTHS: please indicate how often, in the last 4 months, you have used this program with your child.1::31= Often; 2= Sometimes (at least 1 time per week); 3= Once in awhile (less than 1 time per week)
asdprogram_helpful1IntegerRecommendedPROGRAM you indicated your child or family has EVER used to help with your childs ASD: ASD Program 11::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdprogram_helpful2IntegerRecommendedPROGRAM you indicated your child or family has EVER used to help with your childs ASD: ASD Program 21::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdprogram_helpful3IntegerRecommendedPROGRAM you indicated your child or family has EVER used to help with your childs ASD: ASD Program 31::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdprogram_helpful4IntegerRecommendedPROGRAM you indicated your child or family has EVER used to help with your childs ASD: ASD Program 41::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
asdprogram_helpful5IntegerRecommendedPROGRAM you indicated your child or family has EVER used to help with your childs ASD: ASD Program 51::51= Very Harmful; 2= Moderately Harmful; 3= No Effect; 4= Moderately Helpful; 5= Very Helpful
chc_needmedIntegerRecommendedIn the LAST 44 MONTHS, was subject supposed to be taking medication for his/her health or chronic health condition?0; 10= No; 1= Yes
med_genhealthIntegerRecommendedWas the medication for general health?0; 10= No; 1= Yes
med_forchcIntegerRecommendedWas the medication for your childs chronic health condition?0; 10= No; 1= Yes
medicated_conditionString50RecommendedName condition for which subject is taking medication
famcost1IntegerRecommendedDid you spend extra time helping, reminding, or urging [name of child] to take his/her medication?0; 10= No; 1= Yes
famcost2IntegerRecommendedIn the LAST 44 MONTHS, have you spent time educating or explaining to [name of child], other family members, or other people abour your childs chronic health condition? (This could include discussing the diagnosis, symptoms, treatment, or any other aspects of [name of child]s condition.0; 10= No; 1= Yes
famcost3IntegerRecommendedIn the LAST 44 MONTHS, have you spent time at the library, bookstores, or on the Internet (or anywhere else) doing general research about [name of child]s ASD? (This might include talking to people on the phone about [name of child]s ASD, but DOES NOT INCLUDE discussions with treatment providers, school, or child care staff.)0; 10= No; 1= Yes
famcost4IntegerRecommendedIn the LAST 4 MONTHS, have you gotten help from or hired a person to provide help to advocate for [name of child] in court or in other situations? (This might include a lawyer, an advocate with the school regarding an individual education plan, or other special advocate for [name of child] related to his/her HEALTH OR CHRONIC HEALTH CONDITION.)0; 10= No; 1= Yes
famcost5IntegerRecommendedIn the LAST 4 MONTHS, have you spent time doing paperwork or other administrative tasks (such as talking with insurance companies about insurance coverage or payments, or filline out legal documents) related to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost6IntegerRecommendedIn the LAST 4 MONTHS, have you spent time planning for [name of childs FUTURE care or planning for FUTURE expenses related to his/her HEALTH OR CHRONIC HEALTH CONDITION? (Examples might include discussions about saving or budgeting for services, schools, or long-term care for your child, planning for more immediate issues like next year�s medical bills or school fees, creating wills and trusts, or planning for college, adulthood, or changes in medical coverage or life insurance.)0; 10= No; 1= Yes
famcost7IntegerRecommendedIn the LAST 4 MONTHS, have you had extra expenses for safety modividations or changes in your home due to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost8IntegerRecommendedIn the LAST 4 MONTHS, have you spent time or money on any other activities related to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION or behavior problems, such as extra laundry, higher utilities, or phone charges?0; 10= No; 1= Yes
famcost9IntegerRecommendedIN THE LAST 4 MONTHS, did you work either full time or part time, for pay?
famcost10String50RecommendedWhat best describes your current job status?
famcost11String200RecommendedDescribe the job in which you received the most earnings IN THE LAST 4 MONTHS?
famcost12IntegerRecommendedIN THE LAST 4 MONTHS, did you have to use paid time off, vacation time, or sick leave due to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost13IntegerRecommendedIN THE LAST 4 MONTHS, do you think [name of child]s HEALTH OR CHRONIC HEALTH CONDITION affected how you spent your time or how well you focused or performed tasks while at work?0; 10= No; 1= Yes
famcost14IntegerRecommendedAbout how much did [name of child]s HEALTH OR CHRONIC HEALTH CONDITION affect your work performance?0::40= Don't Know; 1= I almost could not work at all (affected me 75-100% of the time); 2= My work was greatly affected (affected me 50-75% of the time); 3= Regularly (affected me 25-50% of the time); 4= Only a little (affected me less than 25% of the time)
famcost15IntegerRecommendedIN THE LAST 4 MONTHS, were you in school full or part time related to career development?0; 10= No; 1= Yes
famcost16IntegerRecommendedIN THE LAST 4 MONTHS, did you take time off of work or school related to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost17IntegerRecommendedIN THE LAST 4 MONTHS, how many hours did you miss from work or school because of these activities?
famcost18IntegerRecommendedHas [name of child]s HEALTH OR CHRONIC HEALTH CONDITION EVER affected your ability to go to school or work or perform your regular tasks at work or school?0; 10= No; 1= Yes
famcost19IntegerRecommendedIn the LAST 4 MONTHS, has [name of child]s HEALTH OR CHRONIC HEALTH CONDITION affected your ability to go to school or work, or perform your regular tasks at work or school?0; 10= No; 1= Yes
famcost20IntegerRecommendedHave you EVER changed jobs, work schedule, or number of hours worked due to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost21String100RecommendedDescribe job-related change
famcost22IntegerRecommendedHave you EVER chosen NOT to work or attend school due to [name of child]s HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost23IntegerRecommendedHave you EVER been prevented from pursuing a career or advancing a job because of caring for [name of child] or because of his/her HEALTH OR CHRONIC HEALTH CONDITION?0; 10= No; 1= Yes
famcost24IntegerRecommendedHave you EVER been unable to work because of problems finding or keeping childcare for [name of child]?0; 10= No; 1= Yes
famcost25String100RecommendedDescribe problems working or finding work
child_caretakerString50RecommendedWho cares for this child?
child_nursery_locationString110RecommendedWhere is this child cared for?
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form data
pregia_cString100RecommendedWho else has been a primary caretaker?
resp_householdincomeIntegerRecommendedRespondent's total household income in the last year before taxes1::111 = $20,000 or less; 2 = $20,000-$40,000; 3 = $40,000-$60,000; 4 = $60,000-$100,000; 5 = $100,000-$125,000; 6 = $125,000-$150,000; 7 = $125,000-$150,000; 8 = $150,000-$200,000; 9 = $200,000 or higher; 10 = I don't know; 11 = I prefer not to answer
das1msString200RecommendedMarital status
grade_highedString50RecommendedGrade/Highest education1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high school
primary_languageString255RecommendedSubject's Primary Language
ethnicityString30RecommendedEthnicity of participantHispanic or Latino; Not Hispanic or Latino; Unknown
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
relationshipIntegerRecommendedRelationship of respondent to individual1::93;-9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: famei01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.