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Data Structures with shared data
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Family Empowerment Form

112 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/23/2015
famempow01
11/14/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query pr_fam_empo1 Integer Recommended 1. I feel that I have a right to approve all the services my son/daughter receives 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo2 Integer Recommended 2. When problems arise with my son/daughter, I handle them pretty well 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo3 Integer Recommended 3. I feel I have a part in improving services for adults/children in my community 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo4 Integer Recommended 4. I feel confident in my ability to help my son/daughter grow and develop 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo5 Integer Recommended 5. I know the steps to take when I am concerned my son/daughter is receiving poor service 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo6 Integer Recommended 6. I make sure that professionals understand my opinions about what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo7 Integer Recommended 7. I know what to do when problems arise with my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo8 Integer Recommended 8. I get in touch with my legislators when important bills or issues concerning adults/children are pending 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo9 Integer Recommended 9. I feel my family life is under control 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo10 Integer Recommended 10. I understand how the service system for adults/children is organized 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo11 Integer Recommended 11. I am able to make good decisions about what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo12 Integer Recommended 12.I am able to work with agencies and professionals to decide what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo13 Integer Recommended 13. I make sure I stay in regular contact with professionals/agencies who are providing services to my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo14 Integer Recommended 14.I have ideas about the ideal service system for adults/children 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo15 Integer Recommended 15. I help other families and adults get the services they need 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo16 Integer Recommended 16. I am able to get the information to help me better understand my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo17 Integer Recommended 17. I believe that other parents and I can have an influence on services for adults/children 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo18 Integer Recommended 18. My opinion is just as important as professionals opinions in deciding what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo19 Integer Recommended 19. I tell professionals what I think about services being provided to my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo20 Integer Recommended 20. I tell people in agencies and government how services for adults/children can be improved 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo21 Integer Recommended 21 .I believe I can solve problems with my son/daughter when they happen 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo22 Integer Recommended 22. I know how to get agency administrators or legislators to listen to me 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo23 Integer Recommended 23. I know what services my son/daughter needs 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo24 Integer Recommended 24. I know what the rights of parents and children are under the laws. 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo25 Integer Recommended 25. I feel that my knowledge and experiences as a parent can be used to improve services for adults/children and other families 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo26 Integer Recommended 26. When I need help with problems in my family, I am able to ask for help from others 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo27 Integer Recommended 27. I make efforts to learn new ways to help my son/daughter grow and develop 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo28 Integer Recommended 28. When necessary, I take the initiative in looking for services for my child and family / for my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo29 Integer Recommended 29. When dealing with my son/daughter, I focus on the good things as well as the problems 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo30 Integer Recommended 30. I have a good understanding of the service system that my son/daughter is involved in 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo31 Integer Recommended 31. When faced with problems involving my son/daughter, I decide what to do and then do it 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo32 Integer Recommended 32. Professionals should ask me what services I want for my son/daughter 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo33 Integer Recommended 33. I have a good understanding of my son/daughter's disorders 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
Query pr_fam_empo34 Integer Recommended 34. I feel I am a good parent 1::5;999 1 = Not True at all; 2 = Mostly Not True; 3 = Somewhat True; 4 = Mostly True; 5 = Very True; 999 = Missing
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data pr_fam_empo35
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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