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Data Structures with shared data
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Family Quality of Life Assessment

270 Shared Subjects

Family Quality of Life Assessment
Clinical Assessments
Quality of Life
10/04/2012
famqol01
07/13/2020
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* GUID
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY cg_interview_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. cg_Months_Difference
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported chi_gen, gender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data cg_comments_misc
Query cg_enjoytime Integer Recommended My family enjoys spending time together. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q55
Query cg_talkopen Integer Recommended My family members talk openly with each other. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q56
Query cg_solveprob Integer Recommended Our family solves problems together. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q57
Query cg_support Integer Recommended My family members support each other to accomplish goals. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q58
Query cg_showlove Integer Recommended My family members show that they love and care for each other. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q59
Query cg_updown Integer Recommended My family is able to handle life’s ups and downs. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q60
Query cg_help_indep Integer Recommended My family members help the children learn to be independent. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q61
Query cg_help_scl Integer Recommended My family members help the children with schoolwork and activities. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q62
Query cg_getalong Integer Recommended My family members teach the children how to get along with others. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q63
Query cg_gdchoice Integer Recommended Adults in our family teach the children to make good decisions. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q64
Query cg_otherppl Integer Recommended Adults in my family know other people in the children’s lives (friends, teachers, etc.). Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q65
Query cg_indiv_need Integer Recommended Adults in my family have time to take care of the individual needs of every child. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q66
Query cg_spt_stress Integer Recommended My family has the support we need to relieve stress. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q67
Query cg_othershelp Integer Recommended My family members have friends or others who provide support. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q68
Query cg_ownint Integer Recommended My family members have some time to pursue our own interests. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q69
Query cg_specneeds Integer Recommended My family has outside help available to us to take care of special needs of all family members. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q70
Query cg_transp Integer Recommended My family members have transportation to get to the places they need to be. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q71
Query cg_dental Integer Recommended My family gets dental care when needed. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q72
Query cg_medical Integer Recommended My family gets medical care when needed. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q73
Query cg_expenses Integer Recommended My family has a way to take care of our expenses. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q74
Query cg_safe Integer Recommended My family feels safe at home, work, school, and in our neighborhood. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q75
Query cg_mem_schsup Integer Recommended My family member with a disability has support to accomplish goals at school or at workplace. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q76
Query cg_mem_homsup Integer Recommended My family member with a disability has support to accomplish goals at home. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q77
Query cg_mem_frisup Integer Recommended My family member with a disability has support to make friends. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q78
Query cg_prov_rel Integer Recommended My family has good relationships with the service providers who provide services and support to our family member with a disability. Frequency 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q79
famq08 Integer Recommended My family members teach the children how to get along with others. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq09 Integer Recommended My family members have some time to pursue our own interests. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq10 Integer Recommended Our family solves problems together. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq11 Integer Recommended My family members support each other to accomplish goals. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq12 Integer Recommended My family members show that they love and care for each other. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq13 Integer Recommended My family has outside help available to us to take care of special needs of all family members. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq14 Integer Recommended Adults in our family teach the children to make good decisions. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq15 Integer Recommended My family gets medical care when needed. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq16 Integer Recommended My family has a way to take care of our expenses. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq17 Integer Recommended Adults in my family know other people in the children?s lives (friends, teachers, etc.). Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq18 Integer Recommended My family is able to handle life?s ups and downs. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq19 Integer Recommended Adults in my family have time to take care of the individual needs of every child. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq20 Integer Recommended My family gets dental care when needed. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq21 Integer Recommended My family feels safe at home, work, school, and in our neighborhood. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq22 Integer Recommended My family member with a disability has support to accomplish goals at school or at workplace. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq23 Integer Recommended My family member with a disability has support to accomplish goals at home. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq24 Integer Recommended My family member with a disability has support to make friends. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq25 Integer Recommended My family has good relationships with the service providers who provide services and support to our family member with a disability. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq01 Integer Recommended My family enjoys spending time together. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq02 Integer Recommended My family members help the children learn to be independent. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq03 Integer Recommended My family has the support we need to relieve stress. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq04 Integer Recommended My family members have friends or others who provide support. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq05 Integer Recommended My family members help the children with schoolwork and activities. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq06 Integer Recommended My family members have transportation to get to the places they need to be. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
famq07 Integer Recommended My family members talk openly with each other. Satisfaction 1::5 1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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