NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

NDA Help Center

Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

Loading...

Login
Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Family Quality of Life Assessment

214 Shared Subjects

Family Quality of Life Assessment
Clinical Assessments
Quality of Life
10/04/2012
famqol01
10/04/2012
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* GUID
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field cg_interview_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. cg_Months_Difference
sex String 20 Required Sex of the subject M;F M = Male; F = Female chi_gen, gender
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data cg_comments_misc
Query cg_enjoytime Integer Recommended Family enjoyes time together 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q55
Query cg_talkopen Integer Recommended Family members talk openly 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q56
Query cg_solveprob Integer Recommended Family solves problems together 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q57
Query cg_support Integer Recommended Family members support each other to accomplish goals 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q58
Query cg_showlove Integer Recommended Feamily members show they love/care for each other 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q59
Query cg_updown Integer Recommended Family is able to handle life's ups and downs 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q60
Query cg_help_indep Integer Recommended Family members help children be independent 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q61
Query cg_help_scl Integer Recommended Family helps children with Schoolwork 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q62
Query cg_getalong Integer Recommended Family teach children how to get along with others 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q63
Query cg_gdchoice Integer Recommended Adults teach children good choices 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q64
Query cg_otherppl Integer Recommended Adults know other people in childrens lives 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q65
Query cg_indiv_need Integer Recommended Adults have time to take care of childrens individual needs 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q66
Query cg_spt_stress Integer Recommended Family and support to relieve stress 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q67
Query cg_othershelp Integer Recommended Family members have others who help provide support 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q68
Query cg_ownint Integer Recommended Family members have time to pursue own interests 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q69
Query cg_specneeds Integer Recommended Family has outside help avaliable for special needs 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q70
Query cg_transp Integer Recommended Family has transportation 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q71
Query cg_dental Integer Recommended Family gets dental care when needed 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q72
Query cg_medical Integer Recommended Family gets medical care when needed 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q73
Query cg_expenses Integer Recommended Family has a way to handle expenses 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q74
Query cg_safe Integer Recommended Family feels safe 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q75
Query cg_mem_schsup Integer Recommended Special needs family member has support to progress at school/work 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q76
Query cg_mem_homsup Integer Recommended Special needs family member has support to progress at home 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q77
Query cg_mem_frisup Integer Recommended Special needs family member has support to make friends 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q78
Query cg_prov_rel Integer Recommended Family has good relationshipp with service providers who work with family member with a disability 1::5 1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always q79
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.