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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Family and Child Background Questionnaire

180 Shared Subjects

N/A
Clinical Assessments
Demographics
01/30/2017
fcbq01
01/31/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female fspg, gender
fspgod String 35 Recommended Subject's gender OTHER describe
Query fsprels Integer Recommended Which category best describes your current relationship status? 1::9 1= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Other
self_birthsp String 50 Recommended Where were you born specify. PX010201_Birthplace_Location In the United States - Print name of state. Outside the United States - Print U.S. Territory (e.g., Puerto Rico, U.S. Virgin Islands, Guam) or name of foreign country etc. fspwb
fspliv String 20 Recommended If born outside of U.S., How many years have you been in the U.S.?
race String 30 Required Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported fsgdesr
fsprg String 150 Recommended In your own words, to which race(s) or racial group(s) do you belong?
ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown fsgdese
Query fsrimp Integer Recommended How important is your race to who you are? 1::4 1= (1) Very important to who I am; 2= (2) Somewhat important to who I am; 3= (3) Not very important to who I am; 4= (4) Not at all important to who I am
fspeg String 20 Recommended In your own works, to which ethnic group do you belong?
fspplbel String 20 Recommended What race do other people usually think you belong to?
Query fseimp Integer Recommended How important is your ethnicity to who you are? 1::4 1= (1) Very important to who I am; 2= (2) Somewhat important to who I am; 3= (3) Not very important to who I am; 4= (4) Not at all important to who I am
Query fsptea Integer Recommended How important it is for you to pass on your racial/ethnic identity to your child? 1::4 1= (1) Very Important; 2= (2) Somewhat important; 3= (3) Not very important; 4= (4) Not at all important
Query fsclear Integer Recommended How important it is for you that your child learns your ethnic traditions and customs? 1::4 1= (1) Very Important; 2= (2) Somewhat important; 3= (3) Not very important; 4= (4) Not at all important
Query fsident Integer Recommended How closely do you identify with other people who are of the same racial/ethnic descent as yourself? 1::4 1= (1) Very closely; 2= (2) Somewhat closely; 3= (3) Not very closely; 4= (4) Not at all close
Query fsappl Integer Recommended How close do you feel, in your ideas and feelings about things, to other people of the same racial/ethnic descent? 1::4 1= (1) Very close; 2= (2) Somewhat close; 3= (3) Not very close; 4= (4) Not at all close
Query fstisa Integer Recommended If you could choose, how much time would you like to spend with other people who are of your same racial/ethnic group? 1::4 1= (1) A lot of the time; 2= (2) Some of the time; 3= (3) A little of the time; 4= (4) None of the time
Query employst Integer Recommended Current employment status 1::8 1 = Working full-time job; 2 = Working part-time job; 3=not employed; 4=NA; 5 =retired;6=Disability recipient; 7=Student; 8=Other fspemp
Query studfte Integer Recommended student full time part time 1::3;-7 1=Full time; 2=Part time; 3=currently not in school; -7=Refused fspstu
Query fspedu Integer Recommended What is the highest grade in school you have completed? 1::8 1= 8th grade or less; 2= 1-3 years of high school; 3= 12th grade= high school diploma= or GED; 4= Vocational school/other non-college certificate; 5= 1-3 years of college or Associate degree; 6= College degree; 7= Mater's degree; 8= Professional degree
fscwb String 20 Recommended Where was your child born?
fscliv String 20 Recommended If born outside of the U. S., how many months has your child been in the U.S.?
Query adis_relatchild Integer Recommended What is your relationship to Child? 1::6;8::14 1=Biological Mother; 2=Biological Father; 3=Adoptive Mother; 4=Adoptive Father; 5=Stepmother; 6=Stepfather; 8=Other; 9=Missing; 10=Foster Mother; 11=Foster father; 12=Grandmother; 13=Grandfather; 14=Another Legal Guardian fsprelc
respondent_other_specify String 50 Recommended Respondent: Other (specify) fsprelcod
childgen String 2 Recommended Child gender M;F M=Male; F= Female fscs
child_race String 55 Recommended Child's Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported fscrg
child_ethnic String 55 Recommended Child's Ethnicity 1. Hispanic;2. Non-Hispanic; 3. Refused fsceg
Query fssprel Integer Recommended What is the second parent's or parenting partner's relationship to this child? 1::11 1= Biological mother; 2= Step-mother; 3= Adoptive mother; 4= Grandmother; 5= Foster mother; 6= Biological father; 7= Step-father; 8= Adoptive father; 9= Grandfather; 10= Foster father; 11= Other
cg_relation_status_specify String 50 Recommended Caregiver's relationship status other, specify fssprelod
fswspb String 20 Recommended Where was your child's second parent born?
fsyinus String 20 Recommended If born outside the U.S., how many years has the child's second parent been in the U.S.?
fssprg String 30 Recommended In your own words, what race or racial group does the second parent belong to?
fsspeg String 30 Recommended In your own words, to which ethnic group does the second parent belong?
cg2_race String 100 Recommended Race of the Caregiver/Parent 2 American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported fsdespr
cg2_ethnicity String 30 Recommended Caregiver/Parent 2's ethnicity Hispanic or Latino; Not Hispanic or Latino fsdespe
Query fsspinv Integer Recommended Is the second parent or a parenting partner involved in the child's life? 0; 1 0= No; 1= Yes
Query fsspedu Integer Recommended What is the highest grade in school the second parent has completed? 1::8 1= 8th grade or less; 2= 1-3 years of high school; 3= 12th grade= high school diploma= or GED; 4= Vocational school/other non-college certificate; 5= 1-3 years of college or Associate degree; 6= College degree; 7= Mater's degree; 8= Professional degree
Query fsspemp Integer Recommended What is the second parent's current employment status? 1::3 1= Currently working a paid job full time (40+ hrs/wk); 2= Currently working a paid job part time (under 40 hrs/wk); 3= Currently not working a paid job
Query fsspstu Integer Recommended Is the second parent currently a: 1::3 1= Full-time student; 2= Part-time student; 3= Not in school currently
Query fstinc Integer Recommended What is your household's total income from all sources before you pay taxes? 1::10 1= $0 to $15,000; 2= $15,001 to $25,000; 3= $25,001 to $35,000; 4= $35,001 to $45,000; 5= $45,001 to $55,000; 6= $55,001 to $65,000; 7= $65,001 to $75,000; 8= $75,001 to $100,000; 9= $100,001 to $125,000; 10= $125,001 to more
fsrinca String 20 Recommended What is the total number of people who currently rely on this income? ADULTS:
fsrincc String 20 Recommended What is the total number of people who currently rely on this income? CHILDREN:
Query fspinc Integer Recommended How hard is it to pay your monthly bills on your income? 0::4 0= 0 Not Hard; 1= 1; 2= 2; 3= 3; 4= 4 Very Hard
Query fsrece Integer Recommended In the past year, did you receive any: 1::7 1= Temporary Assistance for Needy Families (TANF); 2= WIC; 3= Food stamps; 4= Childcare voucher; 5= Government (public) housing; 6= Transitional Aid to Families with Dependent Children (TAFDC); 7= Free or reduced lunch at school for your children; 8= Social Security Disability Income (SSDI)
Query totaladults Integer Recommended How many total adults are in the home, including PCG? fslivha
Query totalkids Integer Recommended How many total children are in the home, including target teen/child? fslivhc
Query fsworryf Integer Recommended Do you worry whether food will run out before money is available to buy more? 1::4 1= (1) Often true; 2= (2) Sometimes true; 3= (3) Never true; 4= (4) Don't know
Query fseatf Integer Recommended In the last 12 months, did you ever eat less than you felt you should because there wasn't enough money for food? 1::3 1= Yes; 2= No; 3= Don't know
Query fsnumsib Integer Recommended How many siblings does your child have?
Query ques_age1 Integer Recommended Age -Sibling 1(in months) 0 :: 1200 fssib1age
ques_gender1 String 50 Recommended Gender -Sibling 1 M;F;T M = Male; F = Female; T =Transgender fssib1sex
Query ques_age2 Integer Recommended Age -Sibling 2(in months) 0 :: 1200 fssib2age
ques_gender2 String 50 Recommended Gender -Sibling 2 M;F M = Male; F = Female fssib2sex
Query ques_age3 Integer Recommended Age -Sibling 3(in months) 0 :: 1200 fssib3age
ques_gender3 String 50 Recommended Gender -Sibling 3 M;F M = Male; F = Female fssib3sex
Query ques_age4 Integer Recommended Age -Sibling 4(in months) 0 :: 1200 fssib4age
ques_gender4 String 50 Recommended Gender -Sibling 4 M;F M = Male; F = Female fssib4sex
Query ques_age5 Integer Recommended Age -Sibling 5(in months) 0 :: 1200 fssib5age
ques_gender5 String 50 Recommended Gender -Sibling 5 M;F M = Male; F = Female fssib5sex
Query ques_age6 Integer Recommended Age -Sibling 6(in months) 0 :: 1200 fssib6age
ques_gender6 String 50 Recommended Gender -Sibling 6 M;F M = Male; F = Female fssib6sex
Query ques_age7 Integer Recommended Age -Sibling 7(in months) 0 :: 1200 fssib7age
ques_gender7 String 50 Recommended Gender -Sibling 7 M;F M = Male; F = Female fssib7sex
Query fssib1sh Integer Recommended Does sibling #1 live in the same house? 0; 1 0= No; 1= Yes
Query fssib1rela Integer Recommended What is sibling #1's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib1diag String 20 Recommended Prior diagnosis sibling #1 has received
Query fssib2sh Integer Recommended Does sibling #2 live in the same house? 0; 1 0= No; 1= Yes
Query fssib2rela Integer Recommended What is sibling #2's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib2diag String 20 Recommended Prior diagnosis sibling #2 has received
Query fssib3sh Integer Recommended Does sibling #3 live in the same house? 0; 1 0= No; 1= Yes
Query fssib3rela Integer Recommended What is sibling #3's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib3diag String 20 Recommended Prior diagnosis sibling #3 has received
Query fssib4sh Integer Recommended Does sibling #4 live in the same house? 0; 1 0= No; 1= Yes
Query fssib4rela Integer Recommended What is sibling #4's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib4diag String 20 Recommended Prior diagnosis sibling #4 has received
Query fssib5sh Integer Recommended Does sibling #5 live in the same house? 0; 1 0= No; 1= Yes
Query fssib5rela Integer Recommended What is sibling #5's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib5diag String 20 Recommended Prior diagnosis sibling #5 has received
Query fssib6sh Integer Recommended Does sibling #6 live in the same house? 0; 1 0= No; 1= Yes
Query fssib6rela Integer Recommended What is sibling #6's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib6diag String 20 Recommended Prior diagnosis sibling #6 has received
Query fssib7sh Integer Recommended Does sibling #7 live in the same house? 0; 1 0= No; 1= Yes
Query fssib7rela Integer Recommended What is sibling #7's relationship to child? 1::5 1= Full sibling; 2= Half sibling; 3= Stepsibling; 4= Adoptive; 5= Foster sibling
fssib7diag String 20 Recommended Prior diagnosis sibling #7 has received
primary_language String 255 Recommended Subject's Primary Language fsclang
fsclangb String 20 Recommended If caregivers use more than one language with your child, which language do you think your child understands best?
Query dem_1lang Integer Recommended First Language 1::6 1=English; 2=Spanish; 3=Other; 6= Mandarin; 4= Hmong; 5= Russian fsplang
fsplangsp String 20 Recommended Describe first language you learned to speak
fspseng String 20 Recommended If English is not your first language, how long have you been speaking English?
Query fspueng Integer Recommended If English is not your first language, how good is your ability to speak and understand English 1::5 1= Poor; 2= Fair; 3= Good; 4= Very good; 5= Excellent
Query fssplang Integer Recommended What was the first language your child's second parent learned to speak? 1::3 1= English; 2= Spanish; 3= Other
fssplangsp String 20 Recommended Description of first language your child's second parent learned to speak
fsspsen String 20 Recommended If English is not his/her first language, how long has he/she been speaking English?
Query fsspuen Integer Recommended If English is not his/her first language, how good is his/her ability to speak and understand English? 1::5 1= Poor; 2= Fair; 3= Good; 4= Very good; 5= Excellent
Query fscpreg Integer Recommended Were there any problems or complications during this child's pregnancy? 0::2 0= No; 1= Yes; 2= Don't Know
wk_preg_status_com String 250 Recommended Pregnancy. If some complications, please specify fscpregsp
info_gest String 50 Recommended No. Weeks Gestation (G.A.) fscgest
Query birth_weight_lbs Float Recommended Birth weight pounds fscwab
Query birth Integer Recommended Perinatal - Complications at birth? 0::3 0=N/A; 1=no; 2=yes; 3=NK fsccomp
Query breath Integer Recommended Baby's problems during birth and hospital stay: needed help breathing 1::3 1=No; 2=Yes; 3=NK fscbrth
Query incubatr Integer Recommended Baby's problems during birth and hospital stay: had to be in an incubator 1::3 1=No; 2=Yes; 3=NK fscincu
fscincusp String 20 Recommended How long did the baby have to be in an incubator.
Query fshday Integer Recommended Baby was in the hospital more than 4 days. 1::3 1= No; 2= Yes; 3= Don't Know
fshdaysp String 20 Recommended How long was the baby in the hospital
Query babyprob Integer Recommended Baby's problems during birth and hospital stay: other problems 1::3 1=No; 2=Yes; 3=NK fscprob
dem_birthcomp_spec_12 String 500 Recommended Please explain any difficulties or complications experienced by your child during birth fscprobsp
Query fscphp Integer Recommended Does your child have any physical health problems? 0::2 0= No; 1= Yes; 2= Don't Know
fscphpsp String 20 Recommended Description of child's physical health problems.
Query fsmed Integer Recommended How many medications is your child currently taking?
Query fsccare Integer Recommended Does your child currently attend childcare?
Query fsccarehour Integer Recommended If yes, for how many hours per week does your child attend childcare? 1::10 1= A. 1-5 Hours; 2= B. 6-10 Hours; 3= C. 11-15 Hours; 4= D. 16-20 Hours; 5= E. 21-25 Hours; 6= F. 26-30 Hours; 7= G. 31-35 Hours; 8= H. 36-40 Hours; 9= I. 41-50 Hours; 10= J. 51+ Hours
Query fsccaretype Integer Recommended If yes, what type of child care program does your child attend? 1::6 1= A. Child care center with same-age peers; 2= B. Child care center with a range of ages; 3= C. Family-based day care with same-age peers; 4= D. Family-based day care with a range of ages; 5= E. Special preschool for children with developmental or behavioral challenges; 6= F. Other
fsccaretypesp String 50 Recommended Describe child's child care program.
Query fscexp Integer Recommended Has your child ever been asked to leave or expelled from childcare? 0;1 0=No; 1=Yes
fscexpage String 20 Recommended At what age was your child asked to leave or expelled from childcare.
fscexpsp String 20 Recommended Why was he/she asked to leave?
medication_name String 255 Recommended Name of medication fsmed1
medreason1 String 250 Recommended Reason for taking medication 1 fsmed1r
medication_start Date Recommended Start date of medication fsmed1dst
medication1_dose String 50 Recommended Medication 1 dose last taken fsmed1dos
Query fsmed1today Integer Recommended Med 1 Taken today?
medication2_name String 200 Recommended Name second medication that the participant has taken 0 = No medication; 999= Legitimately skipped fsmed2
medreason2 String 250 Recommended Reason for taking medication 2 fsmed2r
medication_start2 Date Recommended Start date of medication fsmed2dst
medication2_dose String 50 Recommended Medication 2 dose last taken fsmed2dos
Query fsmed2today Integer Recommended Med 2 Taken today?
medication3_name String 150 Recommended Name third medication that the participant has taken 0 = No medication; 999= Legitimately skipped fsmed3
medication_start3 Date Recommended Start date of medication fsmed3dst
medication3_dose String 50 Recommended Medication 3 dose last taken fsmed3dos
medreason3 String 250 Recommended Reason for taking medication 3 fsmed3r
Query fsmed3today Integer Recommended Med 3 Taken today?
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.