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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Data Structures with shared data
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Fear Assessment

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Clinical Assessments
Fear
07/12/2019
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01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subjectid
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
t1frs1 Integer Recommended When my child is scared, frightened or afraid s/he... Takes a long time to calm down. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs1
t1frs2 Integer Recommended When my child is scared, frightened or afraid s/he.... Gets very still, freezes, or doesn't move. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs2
t1frs3 Integer Recommended When my child is scared, frightened or afraid s/he.... Yells or screams. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs3
t1frs4 Integer Recommended When my child is scared, frightened or afraid s/he.... Runs away. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs4
t1frs5 Integer Recommended When my child is scared, frightened or afraid s/he.... Hides. For example, crawls under a bed or into a closet. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs5
t1frs6 Integer Recommended When my child is scared, frightened or afraid s/he.... Cries. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs6
t1frs7 Integer Recommended When my child is scared, frightened or afraid s/he.... Speaks very quietly or won't talk. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs7
t1frs8 Integer Recommended When my child is scared, frightened or afraid s/he.... Acts aggressive or lashes out at people or animals. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs8
t1frs9 Integer Recommended When my child is scared, frightened or afraid s/he.... Gets distracted or cannot concentrate. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs9
t1frs10 Integer Recommended When my child is scared, frightened or afraid s/he.... Acts restless or has trouble sitting still. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs10
t1frs11 Integer Recommended When my child is scared, frightened or afraid s/he.... Can't stop talking about what scared or frightened him/her. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs11
t1frs12 Integer Recommended When my child is scared, frightened or afraid s/he.... Covers his/her face, ears, or body. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs12
t1frs13 Integer Recommended When my child is scared, frightened or afraid s/he.... Clings to you or another caregiver and won't let go. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs13
t1frs14 Integer Recommended When my child is scared, frightened or afraid s/he.... Behaves like a younger child. For example, sucks thumb or talks like a baby. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs14
t1frs15 Integer Recommended When my child is scared, frightened or afraid s/he.... Holds onto or strokes something soft. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs15
t1frs16 Integer Recommended When my child is scared, frightened or afraid s/he.... Bangs his/her head or rocks back and forth. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs16
t1frs17 Integer Recommended When my child is scared, frightened or afraid s/he.... Bites or scratches him/herself. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs17
t1frs18 Integer Recommended When my child is scared, frightened or afraid s/he.... Hits, punches, or kicks things like walls, furniture, or the floor. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs18
t1frs19 Integer Recommended When my child is scared, frightened or afraid s/he.... Sings or hums to him/herself, over and over. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs19
t1frs20 Integer Recommended When my child is scared, frightened or afraid s/he.... Bites nails, twirls hair, or chews on or picks at things. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs20
t1frs21 Integer Recommended When my child is scared, frightened or afraid s/he.... Acts as though something else bad is going to happen. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs21
t1frs22 Integer Recommended When my child is scared, frightened or afraid s/he.... Is sick to stomach, throws up, or has a stomach ache. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs22
t1frs23 Integer Recommended When my child is scared, frightened or afraid s/he.... Complains of headache or body aches. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs23
t1frs24 Integer Recommended When my child is scared, frightened or afraid s/he.... Loses appetite or won't eat. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs24
t1frs25 Integer Recommended When my child is scared, frightened or afraid s/he.... Has trouble falling asleep or staying asleep. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs25
t1frs26 Integer Recommended When my child is scared, frightened or afraid s/he.... Won't let anyone get close to or touch him/her. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs26
t1frs27 Integer Recommended When my child is scared, frightened or afraid s/he... Won't make eye contact or respond when spoken to. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs27
t1frs28 Integer Recommended When my child is scared, frightened or afraid s/he.... Wets or soils him/herself. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs28
t1frs29 Integer Recommended When my child is scared, frightened or afraid s/he.... Throws food or objects. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs29
t1frs30 Integer Recommended When my child is scared, frightened or afraid s/he.... Holds his/her breath long enough to become flushed. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs30
t1frs31 Integer Recommended When my child is scared, frightened or afraid s/he.... Refuses to do things s/he would normally do. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs31
t1frs32 Integer Recommended When my child is scared, frightened or afraid s/he.... Does not want to be alone in a room or play by him/herself 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs32
t1frs33 Integer Recommended When my child is scared, frightened or afraid s/he.... Refuses to sleep alone or in the dark. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs33
t1frs34 Integer Recommended When my child is scared, frightened or afraid s/he.... Curls up into a ball (fetal position). 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs34
t1frs35 Integer Recommended When my child is scared, frightened or afraid s/he.... Cuddles with a pet or stuffed animal. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs35
t1frs36 Integer Recommended When my child is scared, frightened or afraid s/he... Checks to make sure you or another caregiver is nearby. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs36
t1frs37 Integer Recommended When my child is scared, frightened or afraid s/he.... Plays out the scary event in their play (e.g., with dolls or stuffed animals). 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs37
t1frs38 Integer Recommended When my child is scared, frightened or afraid s/he.... Tries to hide their fear by laughing or acting brave. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs38
fears39 Integer Recommended Thinking about the past month, how often would you say your child has been scared, frightened, or afraid? 0::4;-999 0= Never; 1= Once or twice; 2= Less than once a week; 3= A few times a week; 4= Every day or almost every day; -999= Prefer not to answer frs39
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.