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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Fear Assessment

48 Shared Subjects

N/A
Clinical Assessments
Fear
07/12/2019
feass01
07/12/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subjectid
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
t1frs1 Integer Recommended When my child is scared, frightened or afraid s/he... Takes a long time to calm down. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs1
t1frs2 Integer Recommended When my child is scared, frightened or afraid s/he.... Gets very still, freezes, or doesn't move. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs2
t1frs3 Integer Recommended When my child is scared, frightened or afraid s/he.... Yells or screams. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs3
t1frs4 Integer Recommended When my child is scared, frightened or afraid s/he.... Runs away. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs4
t1frs5 Integer Recommended When my child is scared, frightened or afraid s/he.... Hides. For example, crawls under a bed or into a closet. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs5
t1frs6 Integer Recommended When my child is scared, frightened or afraid s/he.... Cries. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs6
t1frs7 Integer Recommended When my child is scared, frightened or afraid s/he.... Speaks very quietly or won't talk. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs7
t1frs8 Integer Recommended When my child is scared, frightened or afraid s/he.... Acts aggressive or lashes out at people or animals. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs8
t1frs9 Integer Recommended When my child is scared, frightened or afraid s/he.... Gets distracted or cannot concentrate. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs9
t1frs10 Integer Recommended When my child is scared, frightened or afraid s/he.... Acts restless or has trouble sitting still. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs10
t1frs11 Integer Recommended When my child is scared, frightened or afraid s/he.... Can't stop talking about what scared or frightened him/her. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs11
t1frs12 Integer Recommended When my child is scared, frightened or afraid s/he.... Covers his/her face, ears, or body. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs12
t1frs13 Integer Recommended When my child is scared, frightened or afraid s/he.... Clings to you or another caregiver and won't let go. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs13
t1frs14 Integer Recommended When my child is scared, frightened or afraid s/he.... Behaves like a younger child. For example, sucks thumb or talks like a baby. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs14
t1frs15 Integer Recommended When my child is scared, frightened or afraid s/he.... Holds onto or strokes something soft. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs15
t1frs16 Integer Recommended When my child is scared, frightened or afraid s/he.... Bangs his/her head or rocks back and forth. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs16
t1frs17 Integer Recommended When my child is scared, frightened or afraid s/he.... Bites or scratches him/herself. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs17
t1frs18 Integer Recommended When my child is scared, frightened or afraid s/he.... Hits, punches, or kicks things like walls, furniture, or the floor. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs18
t1frs19 Integer Recommended When my child is scared, frightened or afraid s/he.... Sings or hums to him/herself, over and over. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs19
t1frs20 Integer Recommended When my child is scared, frightened or afraid s/he.... Bites nails, twirls hair, or chews on or picks at things. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs20
t1frs21 Integer Recommended When my child is scared, frightened or afraid s/he.... Acts as though something else bad is going to happen. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs21
t1frs22 Integer Recommended When my child is scared, frightened or afraid s/he.... Is sick to stomach, throws up, or has a stomach ache. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs22
t1frs23 Integer Recommended When my child is scared, frightened or afraid s/he.... Complains of headache or body aches. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs23
t1frs24 Integer Recommended When my child is scared, frightened or afraid s/he.... Loses appetite or won't eat. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs24
t1frs25 Integer Recommended When my child is scared, frightened or afraid s/he.... Has trouble falling asleep or staying asleep. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs25
t1frs26 Integer Recommended When my child is scared, frightened or afraid s/he.... Won't let anyone get close to or touch him/her. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs26
t1frs27 Integer Recommended When my child is scared, frightened or afraid s/he... Won't make eye contact or respond when spoken to. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs27
t1frs28 Integer Recommended When my child is scared, frightened or afraid s/he.... Wets or soils him/herself. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs28
t1frs29 Integer Recommended When my child is scared, frightened or afraid s/he.... Throws food or objects. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs29
t1frs30 Integer Recommended When my child is scared, frightened or afraid s/he.... Holds his/her breath long enough to become flushed. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs30
t1frs31 Integer Recommended When my child is scared, frightened or afraid s/he.... Refuses to do things s/he would normally do. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs31
t1frs32 Integer Recommended When my child is scared, frightened or afraid s/he.... Does not want to be alone in a room or play by him/herself 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs32
t1frs33 Integer Recommended When my child is scared, frightened or afraid s/he.... Refuses to sleep alone or in the dark. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs33
t1frs34 Integer Recommended When my child is scared, frightened or afraid s/he.... Curls up into a ball (fetal position). 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs34
t1frs35 Integer Recommended When my child is scared, frightened or afraid s/he.... Cuddles with a pet or stuffed animal. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs35
t1frs36 Integer Recommended When my child is scared, frightened or afraid s/he... Checks to make sure you or another caregiver is nearby. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs36
t1frs37 Integer Recommended When my child is scared, frightened or afraid s/he.... Plays out the scary event in their play (e.g., with dolls or stuffed animals). 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs37
t1frs38 Integer Recommended When my child is scared, frightened or afraid s/he.... Tries to hide their fear by laughing or acting brave. 0::2;-999 0= Not True or Hardly Ever True; 1= Somewhat True or Sometimes True; 2= Very True or Often True; -999= Prefer not to answer frs38
fears39 Integer Recommended Thinking about the past month, how often would you say your child has been scared, frightened, or afraid? 0::4;-999 0= Never; 1= Once or twice; 2= Less than once a week; 3= A few times a week; 4= Every day or almost every day; -999= Prefer not to answer frs39
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.