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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.


  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 


Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Family History Interview

188 Shared Subjects

Family History Interview
Clinical Assessments
Med History
View Change History
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field fhdate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported fh08, gender
family_user_def_id String 20 Required Family Pedigree User-Defined ID fh01
Query fh03 Integer Recommended 3. Generation number 1;2;3;4;5; 9
Query control_proband_relation Integer Recommended if the participant has a relative diagnosed with ASD, specify the relationship to the affected person 0=mother; 1=father; 2=sister; 3=brother; 4=uncle; 5=aunt; 6=cousin; 7=grandmother; 8=grandfather 0 :: 8 0 = Mother; 1 = Father; 2 = Sister; 3 = Brother; 4 = Uncle; 5 = Aunt; 6 = Cousin; 7 = Grandmother; 8 = Grandfather fh04
Query fh04oth String 12 Recommended (specify other)
fh05 String 20 Recommended 5. Biological mother's id
fh06 String 20 Recommended 6. Biological father's id
Query fh07 Integer Recommended 7. Subject adopted 0;1;9
Query fh13 Integer Recommended Birth order 0::13; 99 99 = Missing value
Query fh14 Integer Recommended 14. Social sibship order 0;1;2;3;8; 9
Query fh15 Integer Recommended 15. Side of family 0;1;8; 9
Query age_at_death_months Integer Recommended Age at death in months fh16
Query fh17 Integer Recommended 17. Marital status 0;1;2;3;4;5;6;7;8; 9
Query fh18 Integer Recommended 18. Consanguineous marriage 0;1;2;8; 9
Query fh18b String 40 Recommended (specify relationship)
Query fh19 Integer Recommended 19. Offspring of consanguineous parents 0;1;2; 9
Query fh19b String 40 Recommended (specify details)
Query fh20 Integer Recommended 20. Number of marriages 0::9
Query fh21 Integer Recommended 21. Education 0;1;2;3;4;6;7;8; 9
Query fh22 Integer Recommended 22. Occupation 0;1;2;3;4;5;6;7;8; 9
Query fh23 Integer Recommended 23. Inapplicability 0;2; 9
Query fh24 Integer Recommended 24. Peculiar gait 0;1;2;7;8; 9
Query fh25 Integer Recommended 25. Epilepsy 0;1;2; 9
Query fh26 Integer Recommended 26. Language delay 0;1;2;7;8; 9
Query fh27 Integer Recommended 27. Mental retardation 0;1;2;3;4;7;8; 9
Query fh28 Integer Recommended 28. Cause of retardation 0;1;2;3;7;8; 9
Query fh29 Integer Recommended 29. Reading retardation 0;1;2;7;8; 9
Query fh29am Integer Recommended 29A. Learning disability: Math 0;1;2;7;8; 9
Query fh29as Integer Recommended 29A. Learning disability: Spelling 0;1;2;7;8; 9
Query fh29aw Integer Recommended 29A. Learning disability: Writing 0;1;2;7;8; 9
Query fh29b Integer Recommended 29B. Language articulation 0;1;2;8; 9
Query fh30 Integer Recommended 30. Social disorder 0;1;8; 9
Query fh31 Integer Recommended 31. Lack of affection 0;1;2;7;8; 9
Query fh32 Integer Recommended 32. Impaired social play 0;1;2;7;8; 9
Query fh33 Integer Recommended 33. Circumscribed interests (childhood) 0;1;2;7;8; 9
Query fh34 Integer Recommended 34. Circumscribed interests (adultdhood) 0;1;2;7;8; 9
Query fh35 Integer Recommended 35. Impaired friendships (childhood) 0;1;2;7;8; 9
Query fh36 Integer Recommended 36. Impaired friendships (adulthood) 0;1;2;7;8; 9
Query fh37 Integer Recommended 37. Shyness (childhood) 0;1;2;7;8; 9
Query fh38 Integer Recommended 38. Shyness (adulthood) 0;1;2;7;8; 9
Query fh39 Integer Recommended 39. Lack of conversation (childhood) 0;1;2;7;8; 9
Query fh40 Integer Recommended 40. Impaired conversation (adulthood) 0;1;2;7;8; 9
Query fh41 Integer Recommended 41. Social dysfunction (childhood) 0;1;2;7;8; 9
Query fh42 Integer Recommended 42. Social dysfunction (adulthood) 0;1;2;7;8; 9
Query fh43 Integer Recommended 43. Socially odd (childhood) 0;1;2;7;8; 9
Query fh44 Integer Recommended 44. Socially odd (adulthood) 0;1;2;7;8; 9
Query fh45 Integer Recommended 45. Over-sensitive (childhood) 0;1;2;7;8; 9
Query fh46 Integer Recommended 46. Over-sensitive (adulthood) 0;1;2;7;8; 9
Query fh47 Integer Recommended 47. Rigid style (childhood) 0;1;2;7;8; 9
Query fh48 Integer Recommended 48. Rigid style (adulthood) 0;1;2;7;8; 9
Query fh49 Integer Recommended 49. Impairment in social interaction 0;1;2;7; 9
Query fh50 Integer Recommended 50. Impairment in communication 0;1;2;7; 9
Query fh51 Integer Recommended 51. Repetitive behavior 0;1;2;7; 9
Query fh52 Integer Recommended 52. Age abnormalities manifest 0;1;8; 9
Query fh53 Integer Recommended 53. Autism 0;1;2;6;7; 9
Query fh54 Integer Recommended 54. Psychiatric disorder screen 0;1;8; 9
Query fh55 Integer Recommended 55. Alcohol abuse 0;1;2;3;8; 9
Query fh56 Integer Recommended 56. Drug abuse 0;1;2;3;8; 9
Query fh57 Integer Recommended 57. Depression 0;1;2;3;5;7;8; 9
Query fh571 Integer Recommended 57.1. Number of 2-week episodes 0::888; 9
Query fh572 Integer Recommended 57.2. Number since second child with disability 0::888; 9
Query fh57a Integer Recommended 57A. Anxiety 0;1;2;3;5;7;8; 9
Query fh57a1 Integer Recommended 57A.1. Number of months symptoms lasted 0::888; 9
Query fh57a2 Integer Recommended 57A.2. Number since second child with disability 0::888; 9
Query fh58 Integer Recommended 58. Affective disorder (summary) 0;1;2;3;5;7;8; 9
Query fh59 Integer Recommended 59. Bipolar affective disorder (summary) 0;1;2;3;5;8; 9
Query fh60 Integer Recommended 60. Schizophrenia etc. 0;1;2;3;5;8; 9
Query fh61 Integer Required 61. Hyperactivity and ADD or ADHD 0;1;2;5;8; 9
Query fh62 Integer Recommended 62. Oppositional defiant disorder 0;1;2;5;8; 9
Query fh63 Integer Recommended 63. Conduct disorder 0;1;2;3;5;8; 9
Query fh64 Integer Recommended 64. Obsessive-Compulsive Disorder 0;1;2;3;5;8; 9
Query fh65 Integer Recommended 65. Tics 0;1;2; 9
Query fhsocdef Integer Required FHI Social (0=No, 1=TypeI, 2=TypeII) 0::2; -999 0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
Query fhcomdef Integer Required FHI Communcation (0=No, 1=TypeI, 2=TypeII) 0::2; -999 0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
Query fhrepdef Integer Required FHI Repetitive (0=No, 1=TypeI, 2=TypeII) 0::2; -999 0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
Query fhtot Integer Required FHI Total # of deficits (0,1,2-3)
Query fhsoc Integer Required FHI Social (0=No, 1=Yes) 0; 1;-999 0 = No deficit; 1 = Yes deficit; -999 = Missing value
Query fhcom Integer Required FHI Communcation (0=No, 1=Yes) 0; 1;-999 0 = No deficit; 1 = Yes deficit; -999 = Missing value
Query fhrep Integer Required FHI Repetitive (0=No, 1=Yes) 0; 1;-999 0 = No deficit; 1 = Yes deficit; -999 = Missing value
Query fhdefs Integer Required FHI Pattern of deficits
Query fhscrmsg String 200 Recommended FHI Scoring message
Query fhqual Integer Required FHI: Quality of information 0; 1;2;8;9
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data hcmnt
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.