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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Family Impact Questionnaire

320 Shared Subjects

Family Impact Questionnaire
Clinical Assessments
Questionnaire
07/09/2013
fiq01
07/09/2013
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field FIQ_1_Date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query relashionship String 255 Required relashionship of respondent to individual
Query fiq_1 Integer Recommended Compared to children and parents with children the same age as my child: My child is more stressful. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_2 Integer Recommended Compared to children and parents with children the same age as my child: I enjoy the time I spend with my child more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_3 Integer Recommended Compared to children and parents with children the same age as my child: My child brings out feelings of frustration and anger more 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_4 Integer Recommended Compared to children and parents with children the same age as my child: My child brings out feelings of happiness and pride more 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_5 Integer Recommended Compared to children and parents with children the same age as my child: When I am with my child, I feel less effective and competent as a parent. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_6 Integer Recommended Compared to children and parents with children the same age as my child: It is easier for me to play and have fun with my child. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_7 Integer Recommended Compared to children and parents with children the same age as my child: My child's behavior bothers me more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_8 Integer Recommended Compared to children and parents with children the same age as my child: My child makes me feel more loved. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_9 Integer Recommended Compared to children and parents with children the same age as my child: I feel like I am working alone in trying to deal with my child's behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_10 Integer Recommended Compared to children and parents with children the same age as my child: My child makes me feel more energetic. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_11 Integer Recommended Compared to children and parents with children the same age as my child: I feel like I could be a better parent with my child. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_12 Integer Recommended Compared to children and parents with children the same age as my child: My child makes me feel more confident as a parent. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_13 Integer Recommended Compared to children and parents with children the same age as my child: I feel like I should have better control over his/her behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_14 Integer Recommended Compared to children and parents with children the same age as my child: My child does what I tell him/her to do most of the time. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_15 Integer Recommended Compared to children and parents with children the same age as my child: I feel like I know how to deal with my child's behavior most of the time. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_16 Integer Recommended Compared to children and parents with children the same age as my child: My child's behavior embarrasses me in public more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_17 Integer Recommended Compared to children and parents with children the same age as my child: My family avoids social outings more (e.g. public events, restaurants) because of his/her behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_18 Integer Recommended Compared to children and parents with children the same age as my child: It is more difficult to find a babysitter to stay with him/her. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_19 Integer Recommended Compared to children and parents with children the same age as my child: My family visits relatives and friends less often than I would like to because of my child's behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_20 Integer Recommended Compared to children and parents with children the same age as my child: My child interferes more with my opportunity to spend time with friends. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_21 Integer Recommended Compared to children and parents with children the same age as my child: I feel more tense when my family goes out in public because I am worried about his/her behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_22 Integer Recommended Compared to children and parents with children the same age as my child: I need to explain my child's behavior more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_23 Integer Recommended Compared to children and parents with children the same age as my child: I participate less in community activities because of my child's behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_24 Integer Recommended Compared to children and parents with children the same age as my child: I have guests over to our house less often than I would like to because of my child's behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_25 Integer Recommended Compared to children and parents with children the same age as my child: I take my child shopping and on errands less. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_26 Integer Recommended Compared with other children my child's age: The cost of raising my child is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_27 Integer Recommended Compared with other children my child's age: The cost of child care is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_28 Integer Recommended Compared with other children my child's age: The cost of food, clothes, and/or toys is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_29 Integer Recommended Compared with other children my child's age: The cost of home alterations and/or fixing and replacing items in the home is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_30 Integer Recommended Compared with other children my child's age: The cost of medication, medical care and/or medical insurance is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_31 Integer Recommended Compared with other children my child's age: The cost of educational and psychological services is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_32 Integer Recommended Compared with other children my child's age: The cost of recreational activities (e.g. music, swimming, gymnastics) is more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_33 Integer Recommended Compared to parents with children the same age as my child: My spouse and I disagree more about how to raise this child. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_34 Integer Recommended Compared to parents with children the same age as my child: My spouse is more supportive of the way I deal with my child's behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_35 Integer Recommended Compared to parents with children the same age as my child: This child pits my spouse and me against each other 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_36 Integer Recommended Compared to parents with children the same age as my child: Raising this child has brought my spouse and me closer together. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_37 Integer Recommended Compared to parents with children the same age as my child: My child causes more disagreements between my spouse and me. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_38 Integer Recommended Compared to parents with children the same age as my child: My spouse is less supportive of the way I deal with my child's behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_39 Integer Recommended Compared to parents with children the same age as my child: Raising this child has pushed my spouse and me further apart. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_40 Integer Recommended Compared with other children my child's age: The other children in the family help take care of him/her more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_41 Integer Recommended Compared with other children my child's age: My child prevents his/her siblings from participating in activities more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_42 Integer Recommended Compared with other children my child's age: The other children in the family complain about his/her behavior more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_43 Integer Recommended Compared with other children my child's age: The other children in the family feel more embarrassed by his/her behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_44 Integer Recommended Compared with other children my child's age: My child is more rejected by his/her siblings. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_45 Integer Recommended Compared with other children my child's age: The other children in the family invite friends over to the house less often because of his/her behavior. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_46 Integer Recommended Compared with other children my child's age: The other children in the family enjoy spending time with him/her more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_47 Integer Recommended Compared with other children my child's age: My child uses his/her siblings' toys without asking permission more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_48 Integer Recommended Compared with other children my child's age: My child breaks or loses his/her siblings' toys more. 1::4; 99999 1 = Not at all; 2 = Somewhat; 3 = Much; 4 = Very much; 99999=NA/NK/missing
Query fiq_49 String 2 Recommended Compared with other children my child's age, the degree of difficulty living with him/her is: A; B; C; D; E; F; G; 99999 A = Much easier; B = Easier; C = Slightly easier; D = About the same; E = Slightly more difficult; F = More difficult; G = Much more difficult
Query fiq_50 String 2 Recommended Compared with other children my child's age, the impact of my child on our family is: A; B; C; D; E; F; G; 99999 A = Much less positive; B = Less positive; C = Slightly less positive; D = About the same; E = Slightly more positive; F = More positive; G = Much more positive
Query fiq_positiveparenting Integer Required FIQ Positive Parenting Score
Query fiq_negativeparenting Integer Required FIQ Negative Parenting Score
Query fiq_impactsocial Integer Required FIQ Impact Social Score
Query fiq_financial Integer Required FIQ Financial Score
Query fiq_marriage Integer Required FIQ Marriage Score
Query fiq_siblings Integer Required FIQ Siblings Score
Query fiq_negativeimpactscale Integer Required FIQ Negative Impact Scale Score
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.