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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender |
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qols_1 |
Integer |
|
Recommended |
Satisfaction at the present time with: Material comforts home, food, conveniences, financial security |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
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qols_2 |
Integer |
|
Recommended |
Satisfaction at the present time with: Health - being physically fit and vigorous |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
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qols_3 |
Integer |
|
Recommended |
Satisfaction at the present time with: Relationships with parents, siblings & other relatives - communicating, visiting, helping |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
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qols_4 |
Integer |
|
Recommended |
Satisfaction at the present time with: Having and rearing children |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
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qols_5 |
Integer |
|
Recommended |
Satisfaction at the present time with: Close relationships with spouse or significant other |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
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qols_6 |
Integer |
|
Recommended |
Satisfaction at the present time with: Close friends |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
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qols_7 |
Integer |
|
Recommended |
Satisfaction at the present time with: Helping and encouraging others, volunteering, giving advice |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
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qols_8 |
Integer |
|
Recommended |
Satisfaction at the present time with: Participating in organizations and public affairs |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
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qols_9 |
Integer |
|
Recommended |
Satisfaction at the present time with: Learning - attending school, improving understanding, getting additional knowledge |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
|
|
qols_10 |
Integer |
|
Recommended |
Satisfaction at the present time with: Understanding yourself - knowing your assets and limitations - knowing what life is about |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
|
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qols_11 |
Integer |
|
Recommended |
Satisfaction at the present time with: Work - job or in home |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
|
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qols_12 |
Integer |
|
Recommended |
Satisfaction at the present time with: Expressing yourself creatively |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
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qols_13 |
Integer |
|
Recommended |
Satisfaction at the present time with: Socializing - meeting other people, doing things, parties, etc |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
|
|
qols_14 |
Integer |
|
Recommended |
Satisfaction at the present time with: Reading, listening to music, or observing entertainment |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
|
|
qols_15 |
Integer |
|
Recommended |
Satisfaction at the present time with: Participating in active recreation |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
|
|
qols_16 |
Integer |
|
Recommended |
Satisfaction at the present time with: Independence, doing for yourself |
1::7
|
7=Delighted, 6=Pleased, 5=Mostly Satisfied, 4=Mixed, 3=Mostly Dissatisfied, 2=Unhappy, 1=Terrible
|
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qols_total |
Integer |
|
Recommended |
Flanagan Quality of Life Total |
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qols_f1 |
Integer |
|
Recommended |
Flanagan Quality of Life Factor 1: Relationships and Material Well-Being |
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qols_f2 |
Integer |
|
Recommended |
Flanagan Quality of Life Factor 2: Health and Functioning |
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qols_f3 |
Integer |
|
Recommended |
Flanagan Quality of Life Factor 3: Personal, Social, and Community Commitment |
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