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Data Structures with shared data
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Family Life Impairment Scale

670 Shared Subjects

N/A
Clinical Assessments
Social Support
11/12/2019
flis01
07/13/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
t1fli1 Integer Recommended 1. My child RARELY listens to stories or looks at picture books. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Child Impairment
t1fli2 Integer Recommended 2. My child RARELY does independent activities. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Child Impairment
t1fli3 Integer Recommended 3. My child RARELY plays with other children his/her age. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Child Impairment
t1fli4 Integer Recommended 4. We RARELY take him/her to visit our family or friends. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Family Impairment
t1fli5 Integer Recommended 5. We RARELY take him/her out to family restaurants. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli6 Integer Recommended 6. We RARELY take him/her to child friendly places (such as the playground or the library). 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli7 Integer Recommended 7. We RARELY take him/her grocery shopping (or on other errands). 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli8 Integer Recommended 8. We RARELY take him/her to meet new people or to new places. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli9 Integer Recommended 9. We RARELY take him/her on car, bus, subway or train trips longer than 15 minutes. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli10 Integer Recommended 10. I am UNABLE to see or talk to my relatives or friends as much as I would like. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli11 Integer Recommended 11. I am USUALLY exhausted all day. 0; 1; 2; -999 0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
t1fli12 Integer Recommended 12. We OFTEN get complaints about his/her behavior from his/her teacher, babysitter, school, or other adult who takes care of him/her. (N/A = no school, teacher, babysitter or other adult who takes care of him/her) 0; 1; 2; -999; -888 0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
t1fli13 Integer Recommended 13. My child's teacher or babysitter has talked to me about whether s/he should continue to take care of my child. (N/A = no school, teacher or babysitter) 0; 1; 2; -999; -888 0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
t1fli14 Integer Recommended 14. My child has been asked to leave the place s/he was going for school, childcare or babysitting. (N/A= child never went to school, childcare or a babysitter's home) 0; 1; 2; -999; -888 0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
t1fli15 Integer Recommended 15. I am UNABLE to give my other child(ren) enough attention. (N/A = only child) 0; 1; 2; -999; -888 0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
t1fli16 Integer Recommended 16. My spouse/partner and I have more disagreements. (N/A = no spouse/partner) 0; 1; 2; -999; -888 0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
t1fli17 Integer Recommended 17. I am unable to spend enough quiet or intimate time with my partner. (N/A = no spouse/partner) 0; 1; 2; -999; -888 0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
t1fli18 Integer Recommended 18. It has been difficult to find appropriate child care for him/her. (N/A = stay with child by choice) 0; 1; 2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli19 Integer Recommended 19. My child OFTEN needs extra attention from his/her teacher or babysitter. (N/A = rarely or never use childcare or babysitter) 0; 1; 2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli20 Integer Recommended 20. My child has so much difficulty changing activities that s/he needs extra attention from the teacher or babysitter. (N/A = no regular teacher or babysitter) 0; 1; 2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli21 Integer Recommended 21. We rarely leave him/her with relatives whom s/he knows well. 0; 1; 2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli22 Integer Recommended 22. We rarely leave him/her with a babysitter. (N/A = rarely or never use a babysitter, but it is for other reasons) 0; 1; 2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli23 Integer Recommended 23. We rarely make changes in his/her daily schedule. 0; 1; 2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1flici Float Recommended FLIS Child Impairment Score
t1flicc Float Recommended FLIS Child Care Impairment Score
t1fliccalt Float Recommended FLIS Child Care Impairment Score Main Version (Items 18, 21, 22, 23)
t1flifi Float Recommended FLIS Family Impairment
t1flipi Float Recommended FLIS Parent Impairment
t1flipg Float Recommended FLIS Positive Growth
t1flitot Float Recommended FLIS Total Impairment
t1fli24 Integer Recommended I have become more spiritual or religious 0::2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli25 Integer Recommended My relationships with family or friends have improved 0::2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli26 Integer Recommended I feel that I have grown or matured 0::2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli27 Integer Recommended I have learned to speak out for myself or for my child. 0::2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
t1fli28 Integer Recommended My relationship with my spouse/partner has improved 0::2; -999; -888 0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.