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subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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subject_id |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
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Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
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Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
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M = Male; F = Female; O=Other; NR = Not reported
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gender |
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t1fli1 |
Integer |
|
Recommended |
1. My child RARELY listens to stories or looks at picture books. |
0; 1; 2; -999
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0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Child Impairment
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t1fli2 |
Integer |
|
Recommended |
2. My child RARELY does independent activities. |
0; 1; 2; -999
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0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Child Impairment
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t1fli3 |
Integer |
|
Recommended |
3. My child RARELY plays with other children his/her age. |
0; 1; 2; -999
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0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Child Impairment
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t1fli4 |
Integer |
|
Recommended |
4. We RARELY take him/her to visit our family or friends. |
0; 1; 2; -999
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0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer; Family Impairment
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t1fli5 |
Integer |
|
Recommended |
5. We RARELY take him/her out to family restaurants. |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
|
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t1fli6 |
Integer |
|
Recommended |
6. We RARELY take him/her to child friendly places (such as the playground or the library). |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
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t1fli7 |
Integer |
|
Recommended |
7. We RARELY take him/her grocery shopping (or on other errands). |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
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t1fli8 |
Integer |
|
Recommended |
8. We RARELY take him/her to meet new people or to new places. |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
|
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t1fli9 |
Integer |
|
Recommended |
9. We RARELY take him/her on car, bus, subway or train trips longer than 15 minutes. |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
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t1fli10 |
Integer |
|
Recommended |
10. I am UNABLE to see or talk to my relatives or friends as much as I would like. |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
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t1fli11 |
Integer |
|
Recommended |
11. I am USUALLY exhausted all day. |
0; 1; 2; -999
|
0= Not true;1= Somewhat true;2= Very true;-999= Prefer not to answer
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t1fli12 |
Integer |
|
Recommended |
12. We OFTEN get complaints about his/her behavior from his/her teacher, babysitter, school, or other adult who takes care of him/her. (N/A = no school, teacher, babysitter or other adult who takes care of him/her) |
0; 1; 2; -999; -888
|
0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
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t1fli13 |
Integer |
|
Recommended |
13. My child's teacher or babysitter has talked to me about whether s/he should continue to take care of my child. (N/A = no school, teacher or babysitter) |
0; 1; 2; -999; -888
|
0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
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t1fli14 |
Integer |
|
Recommended |
14. My child has been asked to leave the place s/he was going for school, childcare or babysitting. (N/A= child never went to school, childcare or a babysitter's home) |
0; 1; 2; -999; -888
|
0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
|
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t1fli15 |
Integer |
|
Recommended |
15. I am UNABLE to give my other child(ren) enough attention. (N/A = only child) |
0; 1; 2; -999; -888
|
0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
|
|
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t1fli16 |
Integer |
|
Recommended |
16. My spouse/partner and I have more disagreements. (N/A = no spouse/partner) |
0; 1; 2; -999; -888
|
0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
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t1fli17 |
Integer |
|
Recommended |
17. I am unable to spend enough quiet or intimate time with my partner. (N/A = no spouse/partner) |
0; 1; 2; -999; -888
|
0= Not true;1= Somewhat true;2= Very True;-888= N/A;-999= Prefer not to answer
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t1fli18 |
Integer |
|
Recommended |
18. It has been difficult to find appropriate child care for him/her. (N/A = stay with child by choice) |
0; 1; 2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
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t1fli19 |
Integer |
|
Recommended |
19. My child OFTEN needs extra attention from his/her teacher or babysitter. (N/A = rarely or never use childcare or babysitter) |
0; 1; 2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
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t1fli20 |
Integer |
|
Recommended |
20. My child has so much difficulty changing activities that s/he needs extra attention from the teacher or babysitter. (N/A = no regular teacher or babysitter) |
0; 1; 2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
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t1fli21 |
Integer |
|
Recommended |
21. We rarely leave him/her with relatives whom s/he knows well. |
0; 1; 2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
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t1fli22 |
Integer |
|
Recommended |
22. We rarely leave him/her with a babysitter. (N/A = rarely or never use a babysitter, but it is for other reasons) |
0; 1; 2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
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t1fli23 |
Integer |
|
Recommended |
23. We rarely make changes in his/her daily schedule. |
0; 1; 2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
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t1flici |
Float |
|
Recommended |
FLIS Child Impairment Score |
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t1flicc |
Float |
|
Recommended |
FLIS Child Care Impairment Score |
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t1fliccalt |
Float |
|
Recommended |
FLIS Child Care Impairment Score Main Version (Items 18, 21, 22, 23) |
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t1flifi |
Float |
|
Recommended |
FLIS Family Impairment |
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t1flipi |
Float |
|
Recommended |
FLIS Parent Impairment |
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t1flipg |
Float |
|
Recommended |
FLIS Positive Growth |
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t1flitot |
Float |
|
Recommended |
FLIS Total Impairment |
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t1fli24 |
Integer |
|
Recommended |
I have become more spiritual or religious |
0::2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
|
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t1fli25 |
Integer |
|
Recommended |
My relationships with family or friends have improved |
0::2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
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t1fli26 |
Integer |
|
Recommended |
I feel that I have grown or matured |
0::2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
|
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t1fli27 |
Integer |
|
Recommended |
I have learned to speak out for myself or for my child. |
0::2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
|
|
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t1fli28 |
Integer |
|
Recommended |
My relationship with my spouse/partner has improved |
0::2; -999; -888
|
0= Not true ; 1= Somewhat true ; 2= Very True ; -888= N/A ; -999= Prefer not to answer
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timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
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fl08 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following CHILD activities: playing with other children his/her age |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl09 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following CHILD activities: going to child friendly places (such as the playground or the library) |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
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fl10 |
Integer |
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Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following CHILD activities: eating his/her meals with the rest of the family |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl11 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for YOU doing the following activities: talking to my relatives or friends |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl12 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for YOU doing the following activities: spending quiet or intimate time with my partner |
0 :: 5
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0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
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fl13 |
Integer |
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Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for YOU doing the following activities: having enough energy |
0 :: 5
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0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
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fl14 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for YOU doing the following activities: giving my other children enough attention |
0 :: 5
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0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl15 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for YOU doing the following activities: getting along with my partner |
0 :: 5
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0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl16 |
Integer |
|
Recommended |
Because of my child's mood and behavior: It has been difficult to find appropriate child care for him/her. |
0 :: 4
|
0= Never or almost never; 1= Occasionally; 2= Often; 3= Almost every time I try to find childcare; 4= Every time I try to find childcare
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flcare |
Integer |
|
Recommended |
Does someone else other than yourself or your partner/spouse/the child's father take care of your child on a regular basis (at least 8 hours/week)? |
0;1
|
0= No; 1= Yes
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fl17 |
Integer |
|
Recommended |
We have gotten complaints about his/her behavior from his/her teacher, babysitter, or preschool. |
0 :: 4
|
0= Never or almost never; 1= Occasionally; 2= Often; 3= Almost every time I try to find childcare; 4= Every time I try to find childcare
|
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fl18 |
Integer |
|
Recommended |
My child's teacher or babysitter has talked to me about whether s/he should continue to take care of my child. |
0 :: 4
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0= Never or almost never; 1= Occasionally; 2= Often; 3= Almost every time I try to find childcare; 4= Every time I try to find childcare
|
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fl19 |
Integer |
|
Recommended |
My child has been asked to leave the place s/he was going for preschool, childcare or babysitting. |
0 :: 4
|
0= Never or almost never; 1= Occasionally; 2= Often; 3= Almost every time I try to find childcare; 4= Every time I try to find childcare
|
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fl20 |
Integer |
|
Recommended |
My child has needed extra attention from his/her teacher or babysitter. |
0 :: 4
|
0= Never or almost never; 1= Occasionally; 2= Often; 3= Almost every time I try to find childcare; 4= Every time I try to find childcare
|
|
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fl21 |
Integer |
|
Recommended |
My child has had so much difficulty changing activities that s/he needs extra attention from the teacher or babysitter. |
0 :: 4
|
0= Never or almost never; 1= Occasionally; 2= Often; 3= Almost every time I try to find childcare; 4= Every time I try to find childcare
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fl01 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following FAMILY activities: taking him/her to meet new people or to new places |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl02 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following FAMILY activities: taking him/her on car, bus or train trips longer than 15 minutes |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl03 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following FAMILY activities: taking him/her to visit family or friends |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl04 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following FAMILY activities: taking him/her out to family restaurants |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl05 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following FAMILY activities: taking him/her grocery shopping (or on other errands) |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl06 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following CHILD activities: listening to stories or looking at picture books |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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fl07 |
Integer |
|
Recommended |
Thinking about the PAST MONTH, please rate how much your child's mood and behavior were a problem for the following CHILD activities: playing on his/her own |
0 :: 5
|
0= Never or almost never a problem; 1= Occasionally a problem; 2= Regularly a problem; 3= Almost always a problem; 4= Always a problem; 5= So much of a problem that we never (or almost never) do this
|
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