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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Family Outcomes in Autism Spectrum Disorder

340 Shared Subjects

N/A
Clinical Assessments
Med History
07/22/2016
foasd01
07/22/2016
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query ch_anxiety_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of anxiety disorder? No; Experiencing Symptoms; Diagnosed Parent report child_anxiety
Query ch_ocd_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of obsessive compulsive disorder? No; Experiencing Symptoms; Diagnosed Parent report child_ocd
Query ch_bipolar_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of Bipolar disorder? No; Experiencing Symptoms; Diagnosed Parent report child_bipolar
Query child_cp String 25 Recommended Has child been diagnosed with or experiencing symptoms of cerebral palsy? No; Experiencing Symptoms; Diagnosed Parent report
Query child_cdd String 25 Recommended Has child been diagnosed with or experiencing symptoms of childhood disintegrative disorder? No; Experiencing Symptoms; Diagnosed Parent report
Query ch_depr_rep String 25 Recommended Has child been diagnosed with or experiencing symptoms of depression? No; Experiencing Symptoms; Diagnosed Parent report child_depression
Query child_ds String 25 Recommended Has child been diagnosed with or experiencing symptoms of Down syndrome? No; Experiencing Symptoms; Diagnosed Parent report
Query child_fxs String 25 Recommended Has child been diagnosed with or experiencing symptoms of fragile x syndrome? No; Experiencing Symptoms; Diagnosed Parent report
Query child_addadhd String 25 Recommended Has child been diagnosed with or experiencing symptoms of attention deficit disorder, with or without hyperactivity? No; Experiencing Symptoms; Diagnosed Parent report
Query child_odd String 25 Recommended Has child been diagnosed with or experiencing symptoms of oppositional defiant disorder? No; Experiencing Symptoms; Diagnosed Parent report
Query child_ld String 25 Recommended Has child been diagnosed with or experiencing symptoms of a learning disability? No; Experiencing Symptoms; Diagnosed Parent report
Query child_schizo String 25 Recommended Has child been diagnosed with or experiencing symptoms of schizophrenia? No; Experiencing Symptoms; Diagnosed Parent report
Query child_mutism String 25 Recommended Has child been diagnosed with or experiencing symptoms of selective or elective mutism? No; Experiencing Symptoms; Diagnosed Parent report
Query child_tourette String 25 Recommended Has child been diagnosed with or experiencing symptoms of Tourette syndrome? No; Experiencing Symptoms; Diagnosed Parent report
Query child_sensory String 25 Recommended Has child been diagnosed with or experiencing symptoms of sensory issues? No; Experiencing Symptoms; Diagnosed Parent report
Query child_speech String 25 Recommended Has child been diagnosed with or experiencing symptoms of speech problems? No; Experiencing Symptoms; Diagnosed Parent report
Query child_dysgraphia String 25 Recommended Has child been diagnosed with or experiencing symptoms of dysgraphia? No; Experiencing Symptoms; Diagnosed Parent report
Query child_theoryofmind String 25 Recommended Has child been diagnosed with or experiencing symptoms of theory of mind issues? No; Experiencing Symptoms; Diagnosed Parent report
Query child_epilepsy String 25 Recommended Has child been diagnosed with or experiencing symptoms of epilepsy? No; Experiencing Symptoms; Diagnosed Parent report
Query child_ptsd String 25 Recommended Has child been diagnosed with or experiencing symptoms of post-traumatic stress disorder? No; Experiencing Symptoms; Diagnosed Parent report
Query child_gdd String 25 Recommended Has child been diagnosed with or experiencing symptoms of global developmental delay? No; Experiencing Symptoms; Diagnosed Parent report
Query child_hypotonia String 25 Recommended Has child been diagnosed with or experiencing symptoms of hypotonia? No; Experiencing Symptoms; Diagnosed Parent report
Query child_otherconditions String 25 Recommended Has child been diagnosed with or experiencing symptoms of another medical, mental, or physical condition? No; Experiencing Symptoms; Diagnosed Parent report
Query relationship Integer Recommended Relationship of respondent to individual 1::94;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
family_id String 20 Recommended Family User-Defined ID
subjectkey_mother GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological mother NDAR*
Query mother_age Integer Recommended Mother's age 0 :: 1200
Query mom_respiratory String 1 Recommended In the past 12 months, has mother experienced respiratory problems? N; Y N = No; Y = Yes; asthma, bronchitis, emphysema, sleep apnea, or other lung problems
Query mom_musculoskeletal String 1 Recommended In the past 12 months, has mother experienced musculoskeletal problems? N; Y N = No; Y = Yes; arthiritis, rheumatism, osteoporosis, sciatica, lumbargo, recurring backache or serious back trouble, and other bone or joint diseases
Query mom_skin String 1 Recommended In the past 12 months, has mother experienced skin problems? N; Y N = No; Y = Yes; persistent skin trouble
Query mom_thyroid String 1 Recommended In the past 12 months, has mother experienced thyroid problems? N; Y N = No; Y = Yes; thyroid disease
Query mom_allergies String 1 Recommended In the past 12 months, has mother experienced allergies? N; Y N = No; Y = Yes; hay fever or other allergies
Query mom_gastrointestinal String 1 Recommended In the past 12 months, has mother experienced gastrointestinal problems? N; Y N = No; Y = Yes; reoccurring stomach trouble, indigestion, diarrhea, constipation, gall bladder trouble, piles, hemorrhoids, swallowing problems, anemia, colitis
Query mom_urinary String 1 Recommended In the past 12 months, has mother experienced urinary problems? N; Y N = No; Y = Yes; urinary or bladder problems
Query mom_foot String 1 Recommended In the past 12 months, has mother experienced foot problems? N; Y N = No; Y = Yes; persistent foot trouble (bunions, ingrown toenails, etc.)
Query mom_migraine String 1 Recommended In the past 12 months, has mother experienced migraines? N; Y N = No; Y = Yes; migraine headaches
Query mom_sleep String 1 Recommended In the past 12 months, has mother experienced sleep problems? N; Y N = No; Y = Yes; chronic sleeping problems
Query mom_diabetes String 1 Recommended In the past 12 months, has mother experienced diabetes? N; Y N = No; Y = Yes; diabetes or high blood sugar
Query mom_neurological String 1 Recommended In the past 12 months, has mother experienced neurological issues? N; Y N = No; Y = Yes; multiple sclerosis, epilepsy, stroke, fibromyalgia, other neurological disorders
Query mom_ulcer String 1 Recommended In the past 12 months, has mother experienced ulcers? N; Y N = No; Y = Yes; ulcer
Query mom_hernia String 1 Recommended In the past 12 months, has mother experienced hernia? N; Y N = No; Y = Yes; hernia or rupture
Query mom_cancer String 1 Recommended In the past 12 months, has mother experienced cancer? N; Y N = No; Y = Yes; cancer
Query mom_autoimmune String 1 Recommended In the past 12 months, has mother experienced autoimmune disorders? N; Y N = No; Y = Yes; lupus or other autoimmune disorders
Query mom_mouth String 1 Recommended In the past 12 months, has mother experienced mouth problems? N; Y N = No; Y = Yes; persistent trouble with gums, mouth, or teeth
Query mom_mentalhealth String 1 Recommended In the past 12 months, has mother experienced mental health issues? N; Y N = No; Y = Yes; anxiety, depression, attention deficit disorder (hyperactivity), obsessive-compulsive disorder, eating disorders such as anorexia or bulimia, bipolar, schizophrenia, or another emotional disorder
Query mom_overweight String 1 Recommended In the past 12 months, has mother experienced being overweight or obese? N; Y N = No; Y = Yes; trouble with being overweight or obese
Query mom_ld String 1 Recommended In the past 12 months, has mother experienced a learning disability? N; Y N = No; Y = Yes; learning disability
Query mom_liver String 1 Recommended In the past 12 months, has mother experienced liver problems? N; Y N = No; Y = Yes; chronic liver problems
Query mom_cardio String 1 Recommended In the past 12 months, has mother experienced cardiovascular problems? N; Y N = No; Y = Yes; heart disease, trouble with varicose veins requiring medical treatment, high blood pressure or hypertension, high cholesterol
Query mom_reproductive String 1 Recommended In the past 12 months, has mother experienced problems with the reproductive system? N; Y N = No; Y = Yes; endometriosis or pelvic inflammatory disease
subjectkey_father GUID Recommended The NDAR Global Unique Identifier (GUID) for subject's biological father NDAR*
Query father_age Integer Recommended Father's age 0 :: 1200
Query dad_respiratory String 1 Recommended In the past 12 months, has father experienced respiratory problems? N; Y N = No; Y = Yes; asthma, bronchitis, emphysema, sleep apnea, or other lung problems
Query dad_musculoskeletal String 1 Recommended In the past 12 months, has father experienced musculoskeletal problems? N; Y N = No; Y = Yes; arthiritis, rheumatism, osteoporosis, sciatica, lumbargo, recurring backache or serious back trouble, and other bone or joint diseases
Query dad_skin String 1 Recommended In the past 12 months, has father experienced skin problems? N; Y N = No; Y = Yes; persistent skin trouble
Query dad_thyroid String 1 Recommended In the past 12 months, has father experienced thyroid problems? N; Y N = No; Y = Yes; thyroid disease
Query dad_allergies String 1 Recommended In the past 12 months, has father experienced allergies? N; Y N = No; Y = Yes; hay fever or other allergies
Query dad_gastrointestinal String 1 Recommended In the past 12 months, has father experienced gastrointestinal problems? N; Y N = No; Y = Yes; reoccurring stomach trouble, indigestion, diarrhea, constipation, gall bladder trouble, piles, hemorrhoids, swallowing problems, anemia, colitis
Query dad_urinary String 1 Recommended In the past 12 months, has father experienced urinary problems? N; Y N = No; Y = Yes; urinary or bladder problems
Query dad_foot String 1 Recommended In the past 12 months, has father experienced foot problems? N; Y N = No; Y = Yes; persistent foot trouble (bunions, ingrown toenails, etc.)
Query dad_migraine String 1 Recommended In the past 12 months, has father experienced migraines? N; Y N = No; Y = Yes; migraine headaches
Query dad_sleep String 1 Recommended In the past 12 months, has father experienced sleep problems? N; Y N = No; Y = Yes; chronic sleeping problems
Query dad_diabetes String 1 Recommended In the past 12 months, has father experienced diabetes? N; Y N = No; Y = Yes; diabetes or high blood sugar
Query dad_neurological String 1 Recommended In the past 12 months, has father experienced neurological issues? N; Y N = No; Y = Yes; multiple sclerosis, epilepsy, stroke, fibromyalgia, other neurological disorders
Query dad_ulcer String 1 Recommended In the past 12 months, has father experienced ulcers? N; Y N = No; Y = Yes; ulcer
Query dad_hernia String 1 Recommended In the past 12 months, has father experienced hernia? N; Y N = No; Y = Yes; hernia or rupture
Query dad_cancer String 1 Recommended In the past 12 months, has father experienced cancer? N; Y N = No; Y = Yes; cancer
Query dad_autoimmune String 1 Recommended In the past 12 months, has father experienced autoimmune disorders? N; Y N = No; Y = Yes; lupus or other autoimmune disorders
Query dad_mouth String 1 Recommended In the past 12 months, has father experienced mouth problems? N; Y N = No; Y = Yes; persistent trouble with gums, mouth, or teeth
Query dad_mentalhealth String 1 Recommended In the past 12 months, has father experienced mental health issues? N; Y N = No; Y = Yes; anxiety, depression, attention deficit disorder (hyperactivity), obsessive-compulsive disorder, eating disorders such as anorexia or bulimia, bipolar, schizophrenia, or another emotional disorder
Query dad_overweight String 1 Recommended In the past 12 months, has father experienced being overweight or obese? N; Y N = No; Y = Yes; trouble with being overweight or obese
Query dad_ld String 1 Recommended In the past 12 months, has father experienced a learning disability? N; Y N = No; Y = Yes; learning disability
Query dad_liver String 1 Recommended In the past 12 months, has father experienced liver problems? N; Y N = No; Y = Yes; chronic liver problems
Query dad_cardio String 1 Recommended In the past 12 months, has father experienced cardiovascular problems? N; Y N = No; Y = Yes; heart disease, trouble with varicose veins requiring medical treatment, high blood pressure or hypertension, high cholesterol
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.