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Data Structures with shared data
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Family Outcomes Survey

0 Shared Subjects

N/A
Clinical Assessments
Questionnaire
02/25/2016
fos01
02/29/2016
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY fos_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query fos_sec_a_1 Integer Recommended We know the next steps for our child's growth and learning. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_2 Integer Recommended We understand our child's strengths and abilities. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_3 Integer Recommended We understand our child's delays and/or needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_4 Integer Recommended We are able to tell when our child is making progress. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_5 Integer Recommended We are able to find and use the services and programs available to us. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_6 Integer Recommended We know our rights related to our child's special needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_7 Integer Recommended We know who to contact and what to do when we have questions or concerns. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_8 Integer Recommended We know what options are available when our child leaves the program. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_9 Integer Recommended We are comfortable asking for services & supports that our child and family need. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_10 Integer Recommended We are able to help our child get along with others. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_11 Integer Recommended We are able to help our child learn new skills. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_12 Integer Recommended We are able to help our child take care of his/her needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_13 Integer Recommended We are able to work on our child's goals during everyday routines. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_14 Integer Recommended We are comfortable talking to family and friends about our child's needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_15 Integer Recommended We have friends or family members who listen and care. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_16 Integer Recommended We are able to talk with other families who have a child with similar needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_17 Integer Recommended We have friends or family members we can rely on when we need help. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_18 Integer Recommended I am able to take care of my own needs and do things that I enjoy. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_19 Integer Recommended Our child participates in social, recreational, or religious activities that we want. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_20 Integer Recommended We are able to do things we enjoy together as a family. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_21 Integer Recommended Our medical and dental needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_22 Integer Recommended Our child care needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_23 Integer Recommended Our transportation needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_24 Integer Recommended Our food, clothing, housing, needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_ei String 5 Recommended Is your child current receiving Early Intervention (EI) services? Yes;No
Query fos_sec_b_1 Integer Recommended How helpful has early intervention been in giving you useful information about the services and supports for you and your child? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_2 Integer Recommended How helpful has early intervention been in giving you useful information about your rights related to your child's special needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_3 Integer Recommended How helpful has early intervention been in giving you useful information about who to contact when you have questions or concerns? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_4 Integer Recommended How helpful has early intervention been in giving you useful information about available options when your child leaves the program? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_5 Integer Recommended How helpful has early intervention been in explaining your rights in ways that are easy to understand? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_6 Integer Recommended How helpful has early intervention been in giving you useful information about your child's delays or needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_7 Integer Recommended How helpful has early intervention been in listening to you and respecting your choices? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_8 Integer Recommended How helpful has early intervention been in connecting you with other services or people who can help your child and family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_9 Integer Recommended How helpful has early intervention been in talking with you about your child and family's strengths and needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_10 Integer Recommended How helpful has early intervention been in talking with you about what you think is important for your child and your family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_11 Integer Recommended How helpful has early intervention been in developing a good relationship with you and your family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_12 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child get along with others? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_13 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child learn new skills? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_14 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child take care of his/her needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_15 Integer Recommended How helpful has early intervention been in identifying things you do that help your child learn and grow? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_16 Integer Recommended How helpful has early intervention been in sharing ideas on how to include your child in daily activities? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_17 Integer Recommended How helpful has early intervention been in working with you to know when your child is making progress? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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