NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

Loading...

Login
Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Family Outcomes Survey

0 Shared Subjects

N/A
Clinical Assessments
Questionnaire
02/25/2016
fos01
02/29/2016
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field fos_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query fos_sec_a_1 Integer Recommended We know the next steps for our child's growth and learning. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_2 Integer Recommended We understand our child's strengths and abilities. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_3 Integer Recommended We understand our child's delays and/or needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_4 Integer Recommended We are able to tell when our child is making progress. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_5 Integer Recommended We are able to find and use the services and programs available to us. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_6 Integer Recommended We know our rights related to our child's special needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_7 Integer Recommended We know who to contact and what to do when we have questions or concerns. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_8 Integer Recommended We know what options are available when our child leaves the program. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_9 Integer Recommended We are comfortable asking for services & supports that our child and family need. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_10 Integer Recommended We are able to help our child get along with others. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_11 Integer Recommended We are able to help our child learn new skills. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_12 Integer Recommended We are able to help our child take care of his/her needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_13 Integer Recommended We are able to work on our child's goals during everyday routines. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_14 Integer Recommended We are comfortable talking to family and friends about our child's needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_15 Integer Recommended We have friends or family members who listen and care. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_16 Integer Recommended We are able to talk with other families who have a child with similar needs. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_17 Integer Recommended We have friends or family members we can rely on when we need help. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_18 Integer Recommended I am able to take care of my own needs and do things that I enjoy. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_19 Integer Recommended Our child participates in social, recreational, or religious activities that we want. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_20 Integer Recommended We are able to do things we enjoy together as a family. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_21 Integer Recommended Our medical and dental needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_22 Integer Recommended Our child care needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_23 Integer Recommended Our transportation needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
Query fos_sec_a_24 Integer Recommended Our food, clothing, housing, needs are met. 0::4 0=Not at all; 1=A little; 2=Somewhat; 3=Almost; 4=Completely
fos_ei String 5 Recommended Is your child current receiving Early Intervention (EI) services? Yes;No
Query fos_sec_b_1 Integer Recommended How helpful has early intervention been in giving you useful information about the services and supports for you and your child? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_2 Integer Recommended How helpful has early intervention been in giving you useful information about your rights related to your child's special needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_3 Integer Recommended How helpful has early intervention been in giving you useful information about who to contact when you have questions or concerns? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_4 Integer Recommended How helpful has early intervention been in giving you useful information about available options when your child leaves the program? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_5 Integer Recommended How helpful has early intervention been in explaining your rights in ways that are easy to understand? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_6 Integer Recommended How helpful has early intervention been in giving you useful information about your child's delays or needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_7 Integer Recommended How helpful has early intervention been in listening to you and respecting your choices? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_8 Integer Recommended How helpful has early intervention been in connecting you with other services or people who can help your child and family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_9 Integer Recommended How helpful has early intervention been in talking with you about your child and family's strengths and needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_10 Integer Recommended How helpful has early intervention been in talking with you about what you think is important for your child and your family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_11 Integer Recommended How helpful has early intervention been in developing a good relationship with you and your family? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_12 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child get along with others? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_13 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child learn new skills? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_14 Integer Recommended How helpful has early intervention been in giving you useful information about how to help your child take care of his/her needs? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_15 Integer Recommended How helpful has early intervention been in identifying things you do that help your child learn and grow? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_16 Integer Recommended How helpful has early intervention been in sharing ideas on how to include your child in daily activities? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Query fos_sec_b_17 Integer Recommended How helpful has early intervention been in working with you to know when your child is making progress? 0::4 0=Not at all helpful; 1=A little helpful; 2=Somewhat helpful; 3=Very helpful; 4=Extremely helpful
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.