NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

Contact NDA Help Desk

NDA Help Center

Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

Contact NDA Help Desk

Loading...

Login
Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
NIMH Data Archive
NDA ABCD CCF OAI
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Frontal Systems Behavior Scale

frsbe

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*nimhid
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, ptid, subject_id, subjectid, subjid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
crcidString40RecommendedCRC ID/ROA ID
dateDateRecommendedOpen Label Baseline dateComplete only if starting Open Label Phase. OL Baseline contact is visit where participant is given active drug - included in random data set.
updateIntegerRecommendedUpdated form0;11=Updated
lang_visitIntegerRecommendedLanguage during visit0;11=Spanish; 0=Englishspanish
frsbe1IntegerRecommendedFrSBe question 1: Do you speak only when spoken to?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe2IntegerRecommendedFrSBe question 2: Do you have difficulty starting an activity?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe3IntegerRecommendedFrSBe question 3: Do you neglect personal hygiene?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe4IntegerRecommendedFrSBe question 4: Do you sit around doing nothing?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe5IntegerRecommendedFrSBe question 5: Do you lose control of urine or bowels and seem unconcerned?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe6IntegerRecommendedFrSBe question 6: Have you lost interest in things that used to be fun or important?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe7IntegerRecommendedFrSBe question 7: Do you start things but fail to finish them?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe8IntegerRecommendedFrSBe question 8: Do you show little emotion?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe9IntegerRecommendedFrSBe question 9: Are you slow moving?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe10IntegerRecommendedFrSBe question 10: Are you interested in sex?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe11IntegerRecommendedFrSBe question 11: Do you care about your appearance? (example: daily grooming)1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe12IntegerRecommendedFrSBe question 12: Do you get involved with activities spontaneously? (example: hobbies)1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe13IntegerRecommendedFrSBe question 13: Do you do things without being requested to do so?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe14IntegerRecommendedFrSBe question 14: Do you start conversations spontaneously?1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
relationshipIntegerRecommendedRelationship of respondent to individual1::93;-9991 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent
edu_12IntegerRecommendedYears of education0;10 = Less than or equal to 12 years; 1 = Greater than 12 years
timeframeIntegerRecommendedSpecify retrospective or current reporting0;10 = Retrospective; 1 = Current
frsbe15IntegerRecommendedIs easily angered1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe16IntegerRecommendedDoes things impulsively1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe17IntegerRecommendedLaughs or cries too easily1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe18IntegerRecommendedMakes sexual comments1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe19IntegerRecommendedDoes embarrassing things1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe20IntegerRecommendedIs hyperactive1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe21IntegerRecommendedTalks out of turn1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe22IntegerRecommendedTrouble with the law1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe23IntegerRecommendedDoes risky things1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe24IntegerRecommendedIs overly silly1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe25IntegerRecommendedLoss of taste or smell1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe26IntegerRecommendedSwears1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe27IntegerRecommendedIs sensitive to others1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe28IntegerRecommendedGets along with others1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe29IntegerRecommendedActs appropriately1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe30IntegerRecommendedRepeats certain actions1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe31IntegerRecommendedMixes up a sequence1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe32IntegerRecommendedRepeats same mistakes1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe33IntegerRecommendedUnaware of problems1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe34IntegerRecommendedIs disorganized1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe35IntegerRecommendedCannot do two things at once1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe36IntegerRecommendedShows poor judgement1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe37IntegerRecommendedMakes up stories1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe38IntegerRecommendedSays one thing, does another1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe39IntegerRecommendedForgets to do things1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe40IntegerRecommendedIs inflexible1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe41IntegerRecommendedApologizes for misbehavior1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe42IntegerRecommendedPays attention1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe43IntegerRecommendedThinks things through1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe44IntegerRecommendedUses memory strategies1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe45IntegerRecommendedIs able to plan ahead1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe46IntegerRecommendedBenefits from feedback1;2;3;4;5;91=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
frsbe_apathyFloatRecommendedScore for Apathy Subscale
frsbe_disinhibitionFloatRecommendedScore for Disinhibition Subscale
frsbe_execdysFloatRecommendedScore for Executive Dysfunction
frsbe_totalFloatRecommendedTotal Score for FRSBE
frsbe_apathy_tscoreFloatRecommendedScore for Apathy Subscale T-Score
frsbe_disinhibition_tscoreFloatRecommendedScore for Disinhibition Subscale T-Score
frsbe_execdys_tscoreFloatRecommendedScore for Executive Dysfunction T-Score
frsbe_total_tscoreFloatRecommendedTotal Score for FRSBE T-Score
version_formString100RecommendedForm used/assessment name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: frsbe01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.