|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
nimhid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
id, ptid, subject_id, subjectid, subjid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
Required field
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of the subject |
M;F
|
M = Male; F = Female
|
gender |
|
crcid |
String |
40
|
Recommended |
CRC ID/ROA ID |
|
|
|
|
date |
Date |
|
Recommended |
Open Label Baseline date |
|
Complete only if starting Open Label Phase. OL Baseline contact is visit where participant is given active drug - included in random data set.
|
|
Query
|
update |
Integer |
|
Recommended |
Updated form |
0;1
|
1=Updated
|
|
Query
|
lang_visit |
Integer |
|
Recommended |
Language during visit |
0;1
|
1=Spanish; 0=English
|
spanish |
Query
|
frsbe1 |
Integer |
|
Recommended |
FrSBe question 1: Do you speak only when spoken to? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe2 |
Integer |
|
Recommended |
FrSBe question 2: Do you have difficulty starting an activity? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe3 |
Integer |
|
Recommended |
FrSBe question 3: Do you neglect personal hygiene? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe4 |
Integer |
|
Recommended |
FrSBe question 4: Do you sit around doing nothing? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe5 |
Integer |
|
Recommended |
FrSBe question 5: Do you lose control of urine or bowels and seem unconcerned? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe6 |
Integer |
|
Recommended |
FrSBe question 6: Have you lost interest in things that used to be fun or important? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe7 |
Integer |
|
Recommended |
FrSBe question 7: Do you start things but fail to finish them? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe8 |
Integer |
|
Recommended |
FrSBe question 8: Do you show little emotion? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe9 |
Integer |
|
Recommended |
FrSBe question 9: Are you slow moving? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe10 |
Integer |
|
Recommended |
FrSBe question 10: Are you interested in sex? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe11 |
Integer |
|
Recommended |
FrSBe question 11: Do you care about your appearance? (example: daily grooming) |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe12 |
Integer |
|
Recommended |
FrSBe question 12: Do you get involved with activities spontaneously? (example: hobbies) |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe13 |
Integer |
|
Recommended |
FrSBe question 13: Do you do things without being requested to do so? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe14 |
Integer |
|
Recommended |
FrSBe question 14: Do you start conversations spontaneously? |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
1::93;-999
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent
|
|
Query
|
edu_12 |
Integer |
|
Recommended |
Years of education |
0;1
|
0 = Less than or equal to 12 years; 1 = Greater than 12 years
|
|
Query
|
timeframe |
Integer |
|
Recommended |
Specify retrospective or current reporting |
0;1
|
0 = Retrospective; 1 = Current
|
|
Query
|
frsbe15 |
Integer |
|
Recommended |
Is easily angered |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe16 |
Integer |
|
Recommended |
Does things impulsively |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe17 |
Integer |
|
Recommended |
Laughs or cries too easily |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe18 |
Integer |
|
Recommended |
Makes sexual comments |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe19 |
Integer |
|
Recommended |
Does embarrassing things |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe20 |
Integer |
|
Recommended |
Is hyperactive |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe21 |
Integer |
|
Recommended |
Talks out of turn |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe22 |
Integer |
|
Recommended |
Trouble with the law |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe23 |
Integer |
|
Recommended |
Does risky things |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe24 |
Integer |
|
Recommended |
Is overly silly |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe25 |
Integer |
|
Recommended |
Loss of taste or smell |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe26 |
Integer |
|
Recommended |
Swears |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe27 |
Integer |
|
Recommended |
Is sensitive to others |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe28 |
Integer |
|
Recommended |
Gets along with others |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe29 |
Integer |
|
Recommended |
Acts appropriately |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe30 |
Integer |
|
Recommended |
Repeats certain actions |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe31 |
Integer |
|
Recommended |
Mixes up a sequence |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe32 |
Integer |
|
Recommended |
Repeats same mistakes |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe33 |
Integer |
|
Recommended |
Unaware of problems |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe34 |
Integer |
|
Recommended |
Is disorganized |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe35 |
Integer |
|
Recommended |
Cannot do two things at once |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe36 |
Integer |
|
Recommended |
Shows poor judgement |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe37 |
Integer |
|
Recommended |
Makes up stories |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe38 |
Integer |
|
Recommended |
Says one thing, does another |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe39 |
Integer |
|
Recommended |
Forgets to do things |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe40 |
Integer |
|
Recommended |
Is inflexible |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe41 |
Integer |
|
Recommended |
Apologizes for misbehavior |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe42 |
Integer |
|
Recommended |
Pays attention |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe43 |
Integer |
|
Recommended |
Thinks things through |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe44 |
Integer |
|
Recommended |
Uses memory strategies |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe45 |
Integer |
|
Recommended |
Is able to plan ahead |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe46 |
Integer |
|
Recommended |
Benefits from feedback |
1;2;3;4;5;9
|
1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
|
|
Query
|
frsbe_apathy |
Float |
|
Recommended |
Score for Apathy Subscale |
|
|
|
Query
|
frsbe_disinhibition |
Float |
|
Recommended |
Score for Disinhibition Subscale |
|
|
|
Query
|
frsbe_execdys |
Float |
|
Recommended |
Score for Executive Dysfunction |
|
|
|
Query
|
frsbe_total |
Float |
|
Recommended |
Total Score for FRSBE |
|
|
|
Query
|
frsbe_apathy_tscore |
Float |
|
Recommended |
Score for Apathy Subscale T-Score |
|
|
|
Query
|
frsbe_disinhibition_tscore |
Float |
|
Recommended |
Score for Disinhibition Subscale T-Score |
|
|
|
Query
|
frsbe_execdys_tscore |
Float |
|
Recommended |
Score for Executive Dysfunction T-Score |
|
|
|
Query
|
frsbe_total_tscore |
Float |
|
Recommended |
Total Score for FRSBE T-Score |
|
|
|
|
version_form |
String |
100
|
Recommended |
Form used/assessment name |
|
|
|