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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Frontal Systems Behavior Scale

27 Shared Subjects

N/A
Clinical Assessments
Behavior
05/23/2017
frsbe01
02/13/2019
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* nimhid
src_subject_id String 20 Required Subject ID how it's defined in lab/project id, ptid, subject_id, subjectid, subjid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
crcid String 40 Recommended CRC ID/ROA ID
date Date Recommended Open Label Baseline date Complete only if starting Open Label Phase. OL Baseline contact is visit where participant is given active drug - included in random data set.
Query update Integer Recommended Updated form 0;1 1=Updated
Query lang_visit Integer Recommended Language during visit 0;1 1=Spanish; 0=English spanish
Query frsbe1 Integer Recommended FrSBe question 1: Do you speak only when spoken to? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe2 Integer Recommended FrSBe question 2: Do you have difficulty starting an activity? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe3 Integer Recommended FrSBe question 3: Do you neglect personal hygiene? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe4 Integer Recommended FrSBe question 4: Do you sit around doing nothing? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe5 Integer Recommended FrSBe question 5: Do you lose control of urine or bowels and seem unconcerned? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe6 Integer Recommended FrSBe question 6: Have you lost interest in things that used to be fun or important? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe7 Integer Recommended FrSBe question 7: Do you start things but fail to finish them? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe8 Integer Recommended FrSBe question 8: Do you show little emotion? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe9 Integer Recommended FrSBe question 9: Are you slow moving? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe10 Integer Recommended FrSBe question 10: Are you interested in sex? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe11 Integer Recommended FrSBe question 11: Do you care about your appearance? (example: daily grooming) 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe12 Integer Recommended FrSBe question 12: Do you get involved with activities spontaneously? (example: hobbies) 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe13 Integer Recommended FrSBe question 13: Do you do things without being requested to do so? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe14 Integer Recommended FrSBe question 14: Do you start conversations spontaneously? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query relationship Integer Recommended Relationship of respondent to individual 1::93;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent
Query edu_12 Integer Recommended Years of education 0;1 0 = Less than or equal to 12 years; 1 = Greater than 12 years
Query timeframe Integer Recommended Specify retrospective or current reporting 0;1 0 = Retrospective; 1 = Current
Query frsbe15 Integer Recommended Is easily angered 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe16 Integer Recommended Does things impulsively 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe17 Integer Recommended Laughs or cries too easily 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe18 Integer Recommended Makes sexual comments 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe19 Integer Recommended Does embarrassing things 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe20 Integer Recommended Is hyperactive 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe21 Integer Recommended Talks out of turn 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe22 Integer Recommended Trouble with the law 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe23 Integer Recommended Does risky things 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe24 Integer Recommended Is overly silly 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe25 Integer Recommended Loss of taste or smell 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe26 Integer Recommended Swears 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe27 Integer Recommended Is sensitive to others 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe28 Integer Recommended Gets along with others 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe29 Integer Recommended Acts appropriately 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe30 Integer Recommended Repeats certain actions 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe31 Integer Recommended Mixes up a sequence 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe32 Integer Recommended Repeats same mistakes 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe33 Integer Recommended Unaware of problems 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe34 Integer Recommended Is disorganized 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe35 Integer Recommended Cannot do two things at once 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe36 Integer Recommended Shows poor judgement 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe37 Integer Recommended Makes up stories 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe38 Integer Recommended Says one thing, does another 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe39 Integer Recommended Forgets to do things 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe40 Integer Recommended Is inflexible 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe41 Integer Recommended Apologizes for misbehavior 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe42 Integer Recommended Pays attention 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe43 Integer Recommended Thinks things through 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe44 Integer Recommended Uses memory strategies 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe45 Integer Recommended Is able to plan ahead 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe46 Integer Recommended Benefits from feedback 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe_apathy Float Recommended Score for Apathy Subscale
Query frsbe_disinhibition Float Recommended Score for Disinhibition Subscale
Query frsbe_execdys Float Recommended Score for Executive Dysfunction
Query frsbe_total Float Recommended Total Score for FRSBE
Query frsbe_apathy_tscore Float Recommended Score for Apathy Subscale T-Score
Query frsbe_disinhibition_tscore Float Recommended Score for Disinhibition Subscale T-Score
Query frsbe_execdys_tscore Float Recommended Score for Executive Dysfunction T-Score
Query frsbe_total_tscore Float Recommended Total Score for FRSBE T-Score
version_form String 100 Recommended Form used/assessment name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.