NDA Help Center

Login Dialog

Frequently Asked Questions

Glossary

Contact NDA Help Desk

NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

Contact NDA Help Desk

Loading...

Login
Reset Password

NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
NIMH Data Archive
Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
Switch User

Frontal Systems Behavior Scale

106 Shared Subjects

N/A
Clinical Assessments
Behavior
05/23/2017
frsbe01
02/13/2019
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* nimhid
src_subject_id String 20 Required Subject ID how it's defined in lab/project id, ptid, subject_id, subjectid, subjid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
crcid String 40 Recommended CRC ID/ROA ID
date Date Recommended Open Label Baseline date Complete only if starting Open Label Phase. OL Baseline contact is visit where participant is given active drug - included in random data set.
Query update Integer Recommended Updated form 0;1 1= yes; 0= no
Query lang_visit Integer Recommended Language during visit 0;1 1=Spanish; 0=English spanish
Query frsbe1 Integer Recommended FrSBe question 1: Do you speak only when spoken to? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe2 Integer Recommended FrSBe question 2: Do you have difficulty starting an activity? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe3 Integer Recommended FrSBe question 3: Do you neglect personal hygiene? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe4 Integer Recommended FrSBe question 4: Do you sit around doing nothing? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe5 Integer Recommended FrSBe question 5: Do you lose control of urine or bowels and seem unconcerned? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe6 Integer Recommended FrSBe question 6: Have you lost interest in things that used to be fun or important? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe7 Integer Recommended FrSBe question 7: Do you start things but fail to finish them? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe8 Integer Recommended FrSBe question 8: Do you show little emotion? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe9 Integer Recommended FrSBe question 9: Are you slow moving? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe10 Integer Recommended FrSBe question 10: Are you interested in sex? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe11 Integer Recommended FrSBe question 11: Do you care about your appearance? (example: daily grooming) 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe12 Integer Recommended FrSBe question 12: Do you get involved with activities spontaneously? (example: hobbies) 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe13 Integer Recommended FrSBe question 13: Do you do things without being requested to do so? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe14 Integer Recommended FrSBe question 14: Do you start conversations spontaneously? 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query relationship Integer Recommended Relationship of respondent to individual 1::104;-999 1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent
Query edu_12 Integer Recommended Years of education 0;1 0 = Less than or equal to 12 years; 1 = Greater than 12 years
Query timeframe Integer Recommended Specify retrospective or current reporting 0;1 0 = Retrospective; 1 = Current
Query frsbe15 Integer Recommended Is easily angered 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe16 Integer Recommended Does things impulsively 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe17 Integer Recommended Laughs or cries too easily 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe18 Integer Recommended Makes sexual comments 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe19 Integer Recommended Does embarrassing things 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe20 Integer Recommended Is hyperactive 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe21 Integer Recommended Talks out of turn 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe22 Integer Recommended Trouble with the law 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe23 Integer Recommended Does risky things 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe24 Integer Recommended Is overly silly 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe25 Integer Recommended Loss of taste or smell 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe26 Integer Recommended Swears 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe27 Integer Recommended Is sensitive to others 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe28 Integer Recommended Gets along with others 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe29 Integer Recommended Acts appropriately 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe30 Integer Recommended Repeats certain actions 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe31 Integer Recommended Mixes up a sequence 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe32 Integer Recommended Repeats same mistakes 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe33 Integer Recommended Unaware of problems 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe34 Integer Recommended Is disorganized 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe35 Integer Recommended Cannot do two things at once 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe36 Integer Recommended Shows poor judgement 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe37 Integer Recommended Makes up stories 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe38 Integer Recommended Says one thing, does another 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe39 Integer Recommended Forgets to do things 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe40 Integer Recommended Is inflexible 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe41 Integer Recommended Apologizes for misbehavior 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe42 Integer Recommended Pays attention 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe43 Integer Recommended Thinks things through 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe44 Integer Recommended Uses memory strategies 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe45 Integer Recommended Is able to plan ahead 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe46 Integer Recommended Benefits from feedback 1;2;3;4;5;9 1=Almost never;2=Seldom;3=Sometimes;4=Frequently;5=Almost always;9=Missing
Query frsbe_apathy Float Recommended Score for Apathy Subscale
Query frsbe_disinhibition Float Recommended Score for Disinhibition Subscale
Query frsbe_execdys Float Recommended Score for Executive Dysfunction
Query frsbe_total Float Recommended Total Score for FRSBE
Query frsbe_apathy_tscore Float Recommended Score for Apathy Subscale T-Score
Query frsbe_disinhibition_tscore Float Recommended Score for Disinhibition Subscale T-Score
Query frsbe_execdys_tscore Float Recommended Score for Executive Dysfunction T-Score
Query frsbe_total_tscore Float Recommended Total Score for FRSBE T-Score
version_form String 121 Recommended Form used/assessment name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.