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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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First Year Inventory

375 Shared Subjects

First Year Inventory
Clinical Assessments
Questionnaire
09/05/2012
fyi01
09/05/2012
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* CandidateGUID, GUID
src_subject_id String 20 Required Subject ID how it's defined in lab/project IBISID
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field Date_taken
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. Candidate_Age_in_Months
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query respondent String 20 Recommended Respondent
Mother;Father;Both;Other;Parent;Teacher;Child
person_filling_out
respondent_other String 50 Recommended FIGS Y1: Respondent other than mother or father person_filling_out_specify
risk_score String 255 Recommended FYI: Risk Score
percentile String 255 Recommended FYI: Percentile
soc_com_risk String 255 Recommended FYI: Social-Communication domain
Query sen_reg_risk String 255 Recommended FYI: Sensory-Regulatory domain
Query orientrec String 255 Recommended FYI: Social Orienting and Receptive
Query affeng String 255 Recommended FYI: Social Affective Engagement
Query imitate String 255 Recommended FYI: Imitation
Query express String 255 Recommended FYI: Expressive Communication
Query senproc String 255 Recommended FYI: Sensory Processing
Query regpat String 255 Recommended FYI: Regulatory Patterns
Query react String 255 Recommended FYI: Reactivity
Query repplay String 255 Recommended FYI: Repetitive Play and Behavior
Query q_1 Integer Recommended FYI: 1. Does your baby turn to look at you when you call your baby's name?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_2 Integer Recommended FYI: 2. Does your baby seem bothered by loud sounds?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_3 Integer Recommended FYI: 3. Does your baby seem overly sensitive to your touch (for xampl, fuss or pull away when you touch him or her)?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_4 Integer Recommended FYI: 4. During familiar games like ''I'm gonna get you',?? does your baby get excited because he or she knows what will happen next?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_5 Integer Recommended FYI: 5. Does your baby seem to have trouble hearing?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_6 Integer Recommended FYI: 6. When you and your baby are facing each other, does your baby turn his or her eyes to avoid looking at you?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_7 Integer Recommended FYI: 7. In new or strange situations, does your baby look at your face for comfort?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_8 Integer Recommended FYI: 8, Does your baby ignore loud or startling sounds?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_9 Integer Recommended FYI: 9. Does your baby spit out certain textures of foods, such as lumpy or chunky pieces?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_10 Integer Recommended FYI: 10. When you point to something interesting, does your baby turn to look at it?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_11 Integer Recommended FYI: 11. Is your baby content to play alone for an hour or more at a time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_12 Integer Recommended FYI: 12. Does your baby look at people when they begin talking, even when they are not talking directly to your baby?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_13 Integer Recommended FYI: 13. Does your baby rock his or her body back and forth over and over?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_14 Integer Recommended FYI: 14. Does your baby look up from playing with a favorite toy if you show him or her a different toy?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_15 Integer Recommended FYI: 15. Does your baby get upset when you need to switch your baby from one activity to another one?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_16 Integer Recommended FYI: 16. Is it easy to understand your baby's facial expressions?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_17 Integer Recommended FYI: 17. Does your baby forcefully press his or her face, head, or body against people or furniture?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_18 Integer Recommended FYI: 18. Does your baby smile while looking at you?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_19 Integer Recommended FYI: 19. Does your baby try to get your attention to show you something interesting?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_20 Integer Recommended FYI: 20. Does your baby try to get your attention to play games like peek-a-boo?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_21 Integer Recommended FYI: 21. Does your baby try to get your attention to obtain a favorite toy or food?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_22 Integer Recommended FYI: 22. Does your baby try to get your attention to play physical games, like swinging, tickling, or being tossed in the air?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_23 Integer Recommended FYI: 23. When your baby is awake and you pick him or her up, does your baby's body feel loose or floppy?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_24 Integer Recommended FYI: 24. Does your baby copy or imitate you when you make sounds or noises with your mouth?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_25 Integer Recommended FYI: 25. Does your baby copy or imitate your actions, like sticking out your tongue, clapping your hands, or shaking your head?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_26 Integer Recommended FYI: 26. Does your baby copy or imitate you when you do something with a toy or object, like shaking a rattle or banging a spoon on the table?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_27 Integer Recommended FYI: 27. Is it difficult to calm your baby once he or she becomes upset?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_28 Integer Recommended FYI: 28. Are your baby's sleeping and waking patterns regular from day to day?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_29 Integer Recommended FYI: 29. Does your baby try to get your attention by making sounds and looking at you at the same time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_30 Integer Recommended FYI: 30. Does your baby get stuck doing a simple activity over and over?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_31 Integer Recommended FYI: 31. Does your baby seem interested in other babies his or her age?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_32 Integer Recommended FYI: 32. Does your baby babble by putting sounds together, such as 'ba-ba', 'ga-ga-ga', or 'ba-dee'?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_33 Integer Recommended FYI: 33. Does your baby enjoy staring at a bright light for long periods of time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_34 Integer Recommended FYI: 34. Does your baby use gestures such as raising arms to be picked up, shaking head, or waving bye-bye?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_35 Integer Recommended FYI: 35. When you say 'Where's (a familiar person or object)?? without pointing or showing, will your baby look at the person or object named?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_36 Integer Recommended FYI: 36. Does your baby use the first finger and tip of the thumb to pick up a very small object like a raisin or a Cheerio?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_37 Integer Recommended FYI: 37. Does your baby seem to get stuck on playing with a part of a toy (such as an eyeball, label, wheel or tag), instead of the whole toy?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_38 Integer Recommended FYI: 38. Dues your baby communicate with you by using his or her finger to point at objects or picturesf
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_39 Integer Recommended FYI: 39. Do you get the feeling that your baby plays or communicates with you less now than in the past?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_40 Integer Recommended FYI: 40. Do your baby's eyes line up together when looking at an object?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_41 Integer Recommended FYI: 41. Are your baby's feeding patterns regular from day to dayf
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_42 Integer Recommended FYI: 42. Does your baby enjoy rubbing or scratching toys or objects for long periods of time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_43 Integer Recommended FYI: 43. Does your baby seem to get his or her body stuck in a position or posture that is hard to move out of?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_44 Integer Recommended FYI: 44. Does your baby enjoy making objects spin over and over in the same way?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_45 Integer Recommended FYI: 45. While lying down, does your baby enjoy kicking his or her feet over and over for long periods of time?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_46 Integer Recommended FYI: 46. Does your baby stare at his or her fingers while in front of his or her eyes?
1::5
1 = Never; 2 = Seldom; 3 = Sometimes; 4 = Often; 5 = Not answered
Query q_47 String 5 Recommended FYI: 47. Which of the following best describes your baby's typical play..?
a; b; c; -9
a = Same way; b = New way; c = Often explores; -9 = Not answered
Query q_48 String 5 Recommended FYI: 48. Which of the following describes your baby's interest in toys..?
a; b; c; -9
a = One or two; b = Small number; c = Large number; -9 = Not answered
Query q_49 String 5 Recommended FYI: 49. When you introduce your baby to a new game..?
a; b; c;d; -9
a = Joins in immediately; b = Usually joins in; c = Joins in only with a lot; d = Doesn't seem interested; -9 = Not answered
Query q_50 String 5 Recommended FYI: 50. What do you typically have to do to get your baby to look..?
a; b; c; -9
a = Show different toy; b = Move, shake, make noise; c = Take favourite; -9 = Not answered
Query q_51 String 5 Recommended FYI: 51. What is your baby's usual reaction..?
a; b; c; -9
a = Doesn't notice; b = Reacts a little; c = Sensitive or cries; -9 = Not answered
Query q_52 String 5 Recommended FYI: 52. What do you typically have to do to get your baby to turn..?
a; b; c;d; -9
a = Say name; b = Say name several times; c = Say name loudly; d = Doesn't do; -9 = Not answered
Query q_53 String 5 Recommended FYI: 53. What do you typically have to do to get your baby to smile..?
a; b; c;d; -9
a = Smiling, laughing; b = Touch, tickle; c = Swing, bounce; d = Doesn't do; -9 = Not answered
Query q_54 String 5 Recommended FYI: 54. On a typical night, how many hours does your baby sleep?
a; b; c;d; -9
a = 12 or more; b = 10 to 11; c = 8 to 9; d = 7 or fewer; -9 = Not answered
Query q_55 String 5 Recommended FYI: 55. On a typical night, how many times does your baby wake up?
a; b; c; -9
a = 0; b = 1 to 2; c = 3 or more; -9 = Not answered
Query q_56 String 5 Recommended FYI: 56. Which of the following best describes your baby's skill level?
a; b; c;d; -9
a = Walks independently; b = Walks with hands; c = Pulls up to stand; d = Does not pull; -9 = Not answered
Query q_57 String 5 Recommended FYI: 57. Which of the following best describes your baby's typical day?
a; b; c;d; -9
a = Never gets upset; b = Upset, calmed 1 to 3 times; c = Upset, calmed 4 to 6 times; d = Upset, calmed 6 or more times; -9 = Not answered
Query q_58 String 5 Recommended FYI: 58. If you start a game by copying or imitating a sound..?
a; b; c;d; -9
a = Doesn't notice sound; b = Looks but doesn't make; c = Looks and makes; d = Plays making; -9 = Not answered
Query q_59 String 5 Recommended FYI: 59. When your baby is awake and not eating?
a; b; c;d; -9
a = Almost never; b = Sometimes; c = Often; d = Almost always; -9 = Not answered
Query q_60 String 5 Recommended FYI: 60. Which of the following best describes the way your baby coordinates?
a; b; c;d; -9
a = Almost always; b = Sometimes; c = Rarely; d = Almost never; -9 = Not answered
Query sounds_p String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - p
Query sounds_b String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - b
Query sounds_t String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - Total Symptoms
Query sounds_d String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - d
Query sounds_k String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - k
Query sounds_g String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - g
Query sounds_m String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - m
Query sounds_n String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - n
Query sounds_w String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - w
Query sounds_y String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - y
Query sounds_h String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - h
Query sounds_s String 255 Recommended FYI: 61. Please circle all of the following sounds you have heard your baby use in babble, word approximations, or words - s
Query q_62 String 500 Recommended FYI: 62. Do you or others have any concerns..? If yes, please describe.
Query q_63 String 255 Recommended FYI: 63. Does your baby have any unusual physical or medical characteristics? If yes, please describe.
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.