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Frequently Asked Questions

Glossary

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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Global Response Scale

119 Shared Subjects

N/A
Clinical Assessments
Med History
10/14/2016
glob01
10/14/2016
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query site String 101 Recommended Site Study Site
Query week Float Recommended Week in level/study 99=week 10-week 14
Query rand_num Integer Recommended Randomization Number 0::2
Query daysrz Integer Recommended days since randomization
Query version_form String 100 Recommended Form used/assessment name
Query pgr_overall Integer Recommended Overall Functionality 1::7 7 = very much worse; 4 = no change; 1 = very much improved
Query pgr_sevill Integer Recommended Severity of Illness 1::7 7 = worst possible; 4 = average; 1 = Not Ill at All
Query pgr_comply Integer Recommended Prescription Compliance 1::4 1= Almost always; 4=Almost never
Query pgr_sevside Integer Recommended Severity of Side Effects 1::7 7 = worst possible; 4 = average; 1 = None
Query pgr_pp_none Integer Recommended Physical Problem: None 0;1 1=yes; 0=no
Query pgr_stiff Integer Recommended PGRS 6b Physical Problem: Stiffness 0;1 1=yes; 0=no
Query pgr_rest Integer Recommended Physical: Effect of Restlessness 0;1 1=yes; 0=no
Query weig Integer Recommended Weight gain 0;1 0=No,1=Yes
Query pgr_sleep Integer Recommended Physical Prob: Sleepiness 0;1 1=yes; 0=no
Query pgr_br_size Integer Recommended Physical: P. Change in Breast Size/S.Swelling or Tender breasts 0;1 1=yes; 0=no
Query pgr_mn_cycl Integer Recommended Physical: Change in Menstrual period 0::3 0= No; 1=Yes; 2 = Just Started; 3 = Doesn't apply to me
Query pgr_sexual Integer Recommended Physical: P. Change in Sex Interest/ S.Sex Drive or Sex Life Problems 0::2 1=yes; 0=no; 2=doesn't apply to me
pgr_other String 20 Recommended Physical Problem: Other
Query pgr_help Integer Recommended Med Helps Child Feel Better 1::3 1= No; 2 = A Little; 3 = A lot
Query pgr_symp Integer Recommended Med Diminishes Symptoms 1::3 1= No; 2 = A Little; 3 = A lot
Query pgr_good Integer Recommended Good Things Outweigh Bad 1::3 1= No; 2 = A Little; 3 = A lot
Query pgr_stop Integer Recommended Stop Med due to Side Effects 0;1 1=yes; 0=no
Query pgr_chwant Integer Recommended Why Take Med? Child Wants 0;1 1=yes; 0=no
Query pgr_prwant Integer Recommended Why Take Med? Parent Wants 0;1 1=yes; 0=no
Query pgr_drsays Integer Recommended Why Take Med? Doctor Says 0;1 1=yes; 0=no
Query pgr_upset Integer Recommended Bad or Upsetting Event 0;1 1=yes; 0=no
Query pgr_worry Integer Recommended Worried about safety 0;1 1=yes; 0=no
Query pgr_drugs Integer Recommended Used illegal drugs or alcohol 0;1 1=yes; 0=no
pgr_drugss String 20 Recommended Used illegal drugs or alcohol, specify
Query pgr_othmed Integer Recommended Taken other medications 0;1 1=yes; 0=no
othmed1 String 50 Recommended other medication 1
Query sgr_hurtt Integer Recommended Thought about hurting self/others 0;1 1=yes; 0=no
sgr_hurtts String 20 Recommended Thought about hurting self/others, specify
Query sgr_hurtd Integer Recommended Done anything to hurt self/others 0;1 1=yes; 0=no
sgr_hurtds String 100 Recommended Done anything to hurt self/others, specify
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.