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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Baseline HIV Medication Adherence

0 Shared Subjects

Assessment of self reported HIV medication adherence.
Clinical Assessments
Behavior; Med History; Treatment
11/12/2021
hivma01
02/22/2024
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
carc_medaherence1 Integer Recommended Do you sometimes forget to take your HIV medication? 0;1 0=No; 1=Yes
carc_medaherence2 Integer Recommended Remembering back over the past two weeks, did you miss taking your medicine on any day for any reason? 0;1 0=No; 1=Yes
carc_medaherence3 Integer Recommended Have you ever stopped taking your medicine without telling your healthcare provider because it made you feel worse when you took it? 0;1 0=No; 1=Yes
carc_medaherence4 Integer Recommended Did you take all your medicine yesterday? 0;1 0=No; 1=Yes
mars_3 Integer Recommended When you feel better, do you sometimes stop taking your medication? 0;1;-99 0 = No; 1 = Yes; -99 = Missing carc_medaherence5
adh_motiv_1 Integer Recommended I do not like taking my HIV medicines because they remind me that I am HIV+. 0;1 0=Disagree; 1=Agree
carc_medaherence24 Integer Recommended As a percent, what is your best guess about how much of your medication you have taken in the last month? 0::100
carc_medaherence25 Integer Recommended As a percent, what is your best guess about how much medication you have taken within 2 hours of the correct time? 0::100
carc_medaherence26 Integer Recommended As a percent, what is your best guess about how much medication you have taken more than 2 hours late? 0::100
art_adh_01 Integer Recommended In the last 30 days, on how many days did you miss at least one dose of any of your HIV medications? 0::30
art_adh_02 Integer Recommended In the last 30 days, how good a job did you do at taking your HIV medication in the way you were supposed to? 1::6 1 = Very poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good; 6 = Excellent
art_adh_03 Integer Recommended In the last 30 days, how often did you take your HIV medication in the way you were supposed to? 1::6 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Almost always; 6 = Always
hiv_a1 Integer Recommended Are you currently (for the past 30 days) prescribed HIV medications? 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_a2 Integer Recommended How many times a day do you take a dose of HIV medications? Number of times a day; 999 = Decline to answer
hiv_a3 Integer Recommended In the last 30 days, on how many days did you miss at least one dose of any of your HIV medicines? 0::30; 999 999 = Decline to answer
hiv_a4 Integer Recommended In the last 30 days, how good a job did you do at taking your HIV medicines in the way you were supposed to? 1::6; 999 1 = Very poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good; 6 = Excellent; 999 = Decline to answer
hiv_a5 Integer Recommended In the last 30 days, how often did you take your HIV medicines in the way you were supposed to? 1::6; 999 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Almost Always; 6 = Always; 999 = Decline to answer
hiv_itb1 Integer Recommended I skip taking my medicine if I have been drinking. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb2 Integer Recommended I stop taking my HIV medications if I will be drinking alcohol. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb3 Integer Recommended I do not take my medications until alcohol is completely out of my system. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb4 Integer Recommended I will not take medications if I am hung over from drinking alcohol. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb5 Integer Recommended If I drink alcohol then I know my medicines are not going to work as well. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb6 Integer Recommended Alcohol dilutes HIV medicines so the medicines do not work. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb7 Integer Recommended I wait at least a couple hours after I take my medicine to drink alcohol. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb8 Integer Recommended I do not mix alcohol and HIV medications because it is not safe. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb9 Integer Recommended I would not go out to a bar or club if I know that I have to take my HIV medications. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb10 Integer Recommended I get sick if I mix HIV medications and alcohol together. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
hiv_itb11 Integer Recommended I do not drink alcohol if I have taken HIV medications. 0;1; 999 0 = No; 1 = Yes; 999 = Decline to answer
fu_prepadherence3 Integer Recommended Since your last survey on [MM/DD/YYYY], how often was it difficult for you to take your PrEP medication in the way you were supposed to? 1::6 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Most always; 6 = Always
hivma01p Integer Recommended Thinking about the past 4 weeks, how would you rate your ability to take all of your PrEP medications? 1::6 1 = Very poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good; 6 = Excellent
hivma02p Integer Recommended Thinking about the past 4 weeks, how often did you take all of your PrEP medications? 1::5 1 = None; 2 = A Little; 3 = Sometimes; 4 = Most of the time; 5 = All of the time
hivma03p Float Recommended Thinking about the past 4 weeks, what percent of the time were you able to take all of your PrEP medications? 0::100 (Between 0-100 percent)
hivma04p Integer Recommended When was the last time you were not able to take your PrEP medication? 1::6 1 = Never; 2 = Greater than 3 months ago; 3 = 1-3 months; 4 = 2-4 weeks; 5 = 1-2 weeks; 6 = Past week
prepmaintain_cov Integer Recommended Since the COVID-19 outbreak, have you been able to maintain your PrEP-related medical appointments? 1::4 1 = Yes, in person; 2 = Yes, via telephone or videochat; 3 = Yes, both in person and via telephone or videochat; 4 = No
prepreceive_cov Integer Recommended Since the COVID-19 outbreak, have you been able to receive your PrEP prescription? 1::3 1 = Yes, using the same pharmacy; 2 = Yes, using another pharmacy/mail-order service; 3 = No, I have been unable to retrieve my prescription
prepadherence1 Integer Recommended In the last 30 days, how good of a job did you do at taking your PrEP medication in the way you are supposed to? 1::4 1 = Very poor; 2 = Poor/Fair; 3 = Good/Very Good; 4 = Excellent
prepadherence2 Integer Recommended In the last 30 days, how often did you take your PrEP medication in the way you are supposed to? 1::6 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Most always; 6 = Always
prepadherence3 Integer Recommended In the last 30 days, how often was it difficult for you to take your PrEP medication in the way you are supposed to? 1::6 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Most always; 6 = Always
fu_prepadherence1 Integer Recommended Since your last survey on [MM/DD/YYYY], how good a job did you do at taking your PrEP medication in the way you were supposed to? 1::4 1 = Very poor; 2 = Poor/Fair; 3 = Good/Very Good; 4 = Excellent
fu_prepadherence2 Integer Recommended Since your last survey on [MM/DD/YYYY], how often did you take your PrEP medication in the way you were supposed to? 1::6 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Most always; 6 = Always
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

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