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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Health of Nation Outcomes Scales

472 Shared Subjects

N/A
Clinical Assessments
Questionnaire
12/31/2014
hon01

View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project patid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query asstyp Integer Recommended Assessment type 1::20 1=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
Query stage Integer Recommended Study stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
Query bsit0 Float Recommended Weeks from Time 0/baseline to assessment hont0
Query relationship Integer Recommended Relationship of respondent to individual
1::93;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 13 = Other; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 27=Missing Data; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); 90=Other; -999=Missing; 89 = Biological parent; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent honrel1
Query respond_detail_oth_spec String 255 Recommended Respondent details honrelo
Query hon1rtu Integer Recommended Scale 1: Problems with disruptive, antisocial or aggressive behavior 0::4 0 = No problems of this kind during the past month 1 = Minor quarrelling, demanding behavior, undueirritability, lying to avoid getting into trouble, etc.2 = Mild but definitely disruptive or antisocial behavior, lesser damage to property or aggression, or defiant behavior. Behavior occurs more than a typical child his/her age3 = Moderately severe aggressive or antisocial behavior such as fighting or persistently threatening or very oppositional or more serious destruction to property or moderate delinquent acts.4 = Disruptive in almost all activities, or at least one serious physical attack on others or animals, or serious destruction to property. hon_q1
Query hon2rtu Integer Recommended Scale 2: Problems with overactivity, attention or concentration 0::4 0 = No problems of this kind during the past month 1 = Slight overactivity or minor restlessness, etc.2 = Mild but definite overactivity and/or attentional problems, but these can usually be controlled3 = Moderately severe overactivity and/or attentional problems that are sometimes uncontrollable4 = Severe overactivity and/or attentional problems that are present in most activities and almost never controllable hon_q2
Query hon3rtu Integer Recommended Scale 3: Non-accidental self-injury 0::4 0 = No problem of this kind during the past month 1 = Occasional thoughts about death, or of self-harm not leading to injury. No self-harm or suicidal thoughts.2 = Non-hazardous self-harm, such as wrist scratching, whether or not associated with suicidal thoughts.3 = Moderately severe suicidal intent or moderate non-hazardous self-harm4 = Serious suicidal attempt or serious deliberate self-injury hon_q3
Query hon4rtu Integer Recommended Scale 4: Problems with alcohol, substance/solvent misuse 0::4 0 = No problems of this kind during the past month 1 = Minor alcohol or drug use, within age norms2 = Mildly excessive alcohol or drug use3 = Moderately severe drug or alcohol problems significantly out of keeping with age norms4 = Severe drug or alcohol problems leading to dependency or incapacity hon_q4
Query hon5rtu Integer Recommended Scale 5: Problems with scholastic or language skills 0::4 0 = No problems of this kind during the past month 1 = Minor impairment within the normal range ofvariation2 = Mild but definite impairment of clinical significance3 = Moderately severe problems, below the level expected on the basis of mental age, past performance or physical disability4 = Severe impairment much below the level expected on the basis of mental age, past performance or physical disability hon_q5
Query hon6rtu Integer Recommended Scale 6: Physical illness or disability problems 0::4 0 = No incapacity as a result of physical health problem during the past month1 = Slight incapacity as a result of a health problem during the period2 = Physical health problem imposes mild but definite functional restriction3 = Moderate degree of restriction on activity due to a physical health problem4 = Complete or severe incapacity due to physical health problems hon_q6
Query hon7rtu Integer Recommended Scale 7: Problems associated with hallucination, delusions or abnormal perceptions 0::4 0 = No evidence of abnormal thought or perceptions during the past month1 = Somewhat odd or eccentric beliefs not in keeping with cultural norms2 = Abnormal thoughts or perceptions are present, but there is little distress or manifestation in bizarre behavior, i.e., clinically present but mild3 = Moderate preoccupation with abnormal thoughts or perceptions or delusions, hallucinations, causing much distress and/or manifested in obviously bizarre behavior.4 = Mental state and behavior is seriously and adversely affected by delusions or hallucinations or abnormal perceptions, with severe impact on child/adolescent or others hon_q7
Query hon8rtu Integer Recommended Scale 8: Problems with non-organic somatic symptoms 0::4 0 = No problems of this kind during the past month 1 = Slight problems only; such as occasionalenuresis, minor sleep problems, headaches or stomach aches without organic basis2 = Mild but definite problem with non-organic somatic symptoms3 = Moderately severe, symptoms produce a moderate degree of restriction in some activities4 = Very severe or symptoms persist into most activities. The child is seriously or adversely affected hon_q8
Query hon9rtu Integer Recommended Scale 9: Problems with emotional and related symptoms 0::4 0 = No evidence of depression, anxieties, fears or phobias during the past month1 = Mildly anxious; gloomy; or transient mood changes2 = A mild but definite emotional symptom is clinically present, but is not preoccupying3 = Moderately severe emotional symptoms, which are preoccupying, intrude into some activities and are uncontrollable at least sometimes4 = Severe emotional symptoms which intrude into all activities and are nearly always uncontrollable hon_q9
Query hon10rtu Integer Recommended Scale 10: Problems with peer relationships 0::4 0 = No significant problems during the past month 1 = Either transient or slight problems, occasionalsocial withdrawal2 = Mild but definite problems in making or sustaining peer relationships. Problems causing distress due to social withdrawal3 = Moderate problems due to active or passive withdrawal from social relationships,over-intrusiveness and/or to relationships that provide little or no comfort or support: e.g., as a result of being severely bullied4 = Severe social isolation with no friends due to inability to communicate socially and/or withdrawal from social relationships hon_q10
Query hon11rtu Integer Recommended Scale 11: Problems with self-care and independence 0::4 0 = No problems during the past month; good ability to function in all areas1 = Minor problems only; e.g., untidy, disorganized 2 = Self-care adequate, but definite inability toperform one or more complex skills3 = Major problems in one or more areas of self- care or inability to perform several complex skills4 = Severe disability in all or nearly all areas of self-care and/or complex skills hon_q11
Query hon12rtu Integer Recommended Scale 12: Problems with family life and relationships 0::4 0 = No problems during the past month 1 = Slight or transient problems2 = Mild but definite problem, e.g., some episode of neglect or hostility or enmeshment or overprotection3 = Moderate problems, e.g., neglect, abuse, hostility. Problems associated with family/carer breakdown or reorganization4 = Serious problems with child feeling or being victimized, abused or seriously neglected by family or carer hon_q12
Query hon13rtu Integer Recommended Scale 13: Poor school attendance 0::4 0 = No problems of this kind during the past month 1 = Slight problems, e.g., late for two or morelessons2 = Definite but mild problems, e.g., missed several lessons because of truancy or refusal to go to school3 = Marked problems, absent several days during the period rated4 = Severe problems, absent most or all days. Any school suspension, exclusion or expulsion for any cause during the period rated hon_q13
Query hon1rt Integer Recommended Scale 1: Problems with disruptive, antisocial or aggressive behavior (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON1RT missing then HON1RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems of this kind during the past month 1 = Minor quarrelling, demanding behavior, undueirritability, lying to avoid getting into trouble, etc.2 = Mild but definitely disruptive or antisocial behavior, lesser damage to property or aggression, or defiant behavior. Behavior occurs more than a typical child his/her age3 = Moderately severe aggressive or antisocial behavior such as fighting or persistently threatening or very oppositional or more serious destruction to property or moderate delinquent acts.4 = Disruptive in almost all activities, or at least one serious physical attack on others or animals, or serious destruction to property. hon1
Query hon2rt Integer Recommended Scale 2: Problems with overactivity, attention or concentration (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON2RT missing then HON2RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems of this kind during the past month 1 = Slight overactivity or minor restlessness, etc.2 = Mild but definite overactivity and/or attentional problems, but these can usually be controlled3 = Moderately severe overactivity and/or attentional problems that are sometimes uncontrollable4 = Severe overactivity and/or attentional problems that are present in most activities and almost never controllable hon2
Query hon3rt Integer Recommended Scale 3: Non-accidental self-injury (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON3RT missing then HON3RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problem of this kind during the past month 1 = Occasional thoughts about death, or of self-harm not leading to injury. No self-harm or suicidal thoughts.2 = Non-hazardous self-harm, such as wrist scratching, whether or not associated with suicidal thoughts.3 = Moderately severe suicidal intent or moderate non-hazardous self-harm4 = Serious suicidal attempt or serious deliberate self-injury hon3
Query hon4rt Integer Recommended Scale 4: Problems with alcohol, substance/solvent misuse (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON4RT missing then HON4RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems of this kind during the past month 1 = Minor alcohol or drug use, within age norms2 = Mildly excessive alcohol or drug use3 = Moderately severe drug or alcohol problems significantly out of keeping with age norms4 = Severe drug or alcohol problems leading to dependency or incapacity hon4
Query hon5rt Integer Recommended Scale 5: Problems with scholastic or language skills (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON5RT missing then HON5RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems of this kind during the past month 1 = Minor impairment within the normal range ofvariation2 = Mild but definite impairment of clinical significance3 = Moderately severe problems, below the level expected on the basis of mental age, past performance or physical disability4 = Severe impairment much below the level expected on the basis of mental age, past performance or physical disability hon5
Query hon6rt Integer Recommended Scale 6: Physical illness or disability problems (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON6RT missing then HON6RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No incapacity as a result of physical health problem during the past month1 = Slight incapacity as a result of a health problem during the period2 = Physical health problem imposes mild but definite functional restriction3 = Moderate degree of restriction on activity due to a physical health problem4 = Complete or severe incapacity due to physical health problems hon6
Query hon7rt Integer Recommended Scale 7: Problems associated with hallucination, delusions or abnormal perceptions (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON7RT missing then HON7RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No evidence of abnormal thought or perceptions during the past month1 = Somewhat odd or eccentric beliefs not in keeping with cultural norms2 = Abnormal thoughts or perceptions are present, but there is little distress or manifestation in bizarre behavior, i.e., clinically present but mild3 = Moderate preoccupation with abnormal thoughts or perceptions or delusions, hallucinations, causing much distress and/or manifested in obviously bizarre behavior.4 = Mental state and behavior is seriously and adversely affected by delusions or hallucinations or abnormal perceptions, with severe impact on child/adolescent or others hon7
Query hon8rt Integer Recommended Scale 8: Problems with non-organic somatic symptoms (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON8RT missing then HON8RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems of this kind during the past month 1 = Slight problems only; such as occasionalenuresis, minor sleep problems, headaches or stomach aches without organic basis2 = Mild but definite problem with non-organic somatic symptoms3 = Moderately severe, symptoms produce a moderate degree of restriction in some activities4 = Very severe or symptoms persist into most activities. The child is seriously or adversely affected hon8
Query hon9rt Integer Recommended Scale 9: Problems with emotional and related symptoms (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON9RT missing then HON9RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No evidence of depression, anxieties, fears or phobias during the past month1 = Mildly anxious; gloomy; or transient mood changes2 = A mild but definite emotional symptom is clinically present, but is not preoccupying3 = Moderately severe emotional symptoms, which are preoccupying, intrude into some activities and are uncontrollable at least sometimes4 = Severe emotional symptoms which intrude into all activities and are nearly always uncontrollable hon9
Query hon10rt Integer Recommended Scale 10: Problems with peer relationships (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON10RT missing then HON10RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No significant problems during the past month 1 = Either transient or slight problems, occasionalsocial withdrawal2 = Mild but definite problems in making or sustaining peer relationships. Problems causing distress due to social withdrawal3 = Moderate problems due to active or passive withdrawal from social relationships,over-intrusiveness and/or to relationships that provide little or no comfort or support: e.g., as a result of being severely bullied4 = Severe social isolation with no friends due to inability to communicate socially and/or withdrawal from social relationships hon10
Query hon11rt Integer Recommended Scale 11: Problems with self-care and independence (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON11RT missing then HON11RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems during the past month; good ability to function in all areas1 = Minor problems only; e.g., untidy, disorganized 2 = Self-care adequate, but definite inability toperform one or more complex skills3 = Major problems in one or more areas of self- care or inability to perform several complex skills4 = Severe disability in all or nearly all areas of self-care and/or complex skills hon11
Query hon12rt Integer Recommended Scale 12: Problems with family life and relationships (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON12RT missing then HON12RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems during the past month 1 = Slight or transient problems2 = Mild but definite problem, e.g., some episode of neglect or hostility or enmeshment or overprotection3 = Moderate problems, e.g., neglect, abuse, hostility. Problems associated with family/carer breakdown or reorganization4 = Serious problems with child feeling or being victimized, abused or seriously neglected by family or carer hon12
Query hon13rt Integer Recommended Scale 13: Poor school attendance (Imputed Version). Imputation Rule: if less than 3 of HON1RTU through HON13RTU are missing and HON13RT missing then HON13RT = integer(median of non-missing HON1RTU through HON13RTU) 0::4 0 = No problems of this kind during the past month 1 = Slight problems, e.g., late for two or morelessons2 = Definite but mild problems, e.g., missed several lessons because of truancy or refusal to go to school3 = Marked problems, absent several days during the period rated4 = Severe problems, absent most or all days. Any school suspension, exclusion or expulsion for any cause during the period rated hon13
Query hontot Integer Recommended HoNOSCA Total Score using imputed values 0::52 Items included in score: HON1RT through HON13RT
Query bsimo Float Recommended Months from Time 0 to assessment honmo
Query bsistm Float Recommended Months from SOFTAD enrollment date to assessment honstm
Query visit String 50 Recommended Visit name
Query hon13ref Integer Recommended School/work reference 1;2 1=School; 2=work
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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