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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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Heinrich's Quality of Life Scale

hqls

01

Heinrich's Quality of Life Scale

Download Definition as
Download Submission Template as
Files
PDF file iconQLS (Validation).pdf
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, subject_id
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.age, age_at_test
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldadate, date_hollings, date_of_rating
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
commonplaceIntegerRequiredCommon objects and activities factor (items 18-19 scored 0-6)0::12; 999999=NK/NA/missing
instrumental_roleFloatRequiredInstrumental role factor (items 9-12 scored 0-6)0::24; 999999=NK/NA/missing
interpersonal_relationsFloatRequiredInterpersonal relations factor (items 1-8 scored 0-6)0::48; 999999=NK/NA/missing
intrapsychic_foundationsIntegerRequiredIntrapsychic foundations factor (items 13-17, 20, 21 scored 0-6)0::42; 999999=NK/NA/missing
q01_household_relaIntegerRecommended1. Intimate relationships with household members0::6;90 = Virtually no intimacy; 2 = Only sparse and intermittent intimate interactions; 4 = Some consistent intimate interactions but reduced in extent or intensity; or intimacy only present erratically; 6 = Adequate involvement in intimate relations with household members or immediate family; 9 = Score here if lives alone and no immediate family nearby
q02_intimate_relaIntegerRecommended2. Intimate relationships0::60 = Virtually absent; 2 = Only sparse and intermittent relations; 4 = Some consistent intimate relations but reduced in number or intensity; or intimacy only present erratically; 6 = Adequate involvement with intimate relationships with more than one other person
q03_acquaintIntegerRecommended3. Active acquaintances0::60 = Virtually absent; 2 = Few active acquaintances and only infrequent contact; 4 = Some ongoing active acquaintances but reduced contact and limited shared activity; 6 = Adequate involvement with active acquaintancesacquaint, condition, qls_01
q04_social_actIntegerRecommended4. Level of social activity0::60 = Virtually absent; 2 = Occasional social activity but lack of regular pattern of such activity, or limited only to activity with immediate family or members of household; 4 = Some regular social activity but reduced in frequency or diversity; 6 = Adequate level of regular social activity
q05_social_netIntegerRecommended5. Involved social network0::60 = Virtually absent; 2 = Minimal in number or degree of involvement, and/or limited to immediate family; 4 = Presence of some involved social network but reduced in number or degree of involvement; 6 = Adequate involved social network in both extent and in degree of involvement
q06_social_incentIntegerRecommended6. Social initiatives0::60 = Social activity almost completely dependent on initiatives of others; 2 = Occasional social initiative, but social life significantly improvised due to his pattern of social passivity, or initiative limited to immediate family; 4 =Evidence of some reduction of social initiative, but with only minimal adverse consequences on his social activity; 6 = Adequate social initiative10_0correct_mntmt, 20_0correct_mntmt, 2_5correct_mntmt, 50_0correct_mntmt, 5_0correct_mntmt, qls_02, social, totalcorrect_mntmt
q07_social_withdIntegerRecommended7. Social withdrawal0::60 = Active avoidance of virtually all social contact; 2 = Tolerates that social contact required for meeting other needs, but very little social contact for its own sake, or lack of withdrawal only with immediate family; 4 = Some satisfying and enjoyable social engagement, but reduced due to avoidance; 6 = No evidence of significant social withdrawal
q08_sociosexual_relaIntegerRecommended8. Sociosexual relations0::60 = No interest in opposite sex, or active avoidance; 2 = Some limited contact with opposite sex but superficial with avoidance of intimacy; or sexual activity as just physical release without emotional involvement; or relationships marked by severe and chronic disruption, dissatisfaction or affective chaos; 4 = Relationships with some intimacy and emotional investment, predominantly satisfying, and perhaps some sexual expression or physical signs of affection.; 6 = Usually has satisfying relationships, emotionally rich and intimate and appropriate sexual expression and physical sign of expression.
q09_extent_occ_roleIntegerRecommended9. Extent of occupational role functioning0::60 = Virtually no role functioning; 2 = Less than half time; 4 = Half-time or more, but less than full-time; 6 = Full-time or more10_0percent_mntmt, 20_0percent_mntmt, 2_5percent_mntmt, 50_0percent_mntmt, 5_0percent_mntmt, occupation, qls_03, totalpercent_mntmt
q10_accomplishIntegerRecommended10. Level of accomplishment0::60 = Attempting no role function or performing at level so poor as to imminently threaten the ability to continue in that role; 2 = Functioning just well enough to keep position with very low level of accomplishment; 4 = Generally adequate functioning; 6 = Very good functioning with evidence of new or progressive accomplishments and/or very good functioning in some areas
q11_underemployIntegerRecommended11. Degree of underemployment0::60 = Almost complete failure to actualize potentials; 2 = Significant underemployment of abilities or unemployment but looking for work actively; 4 = Somewhat below the person's capacity; 6 = Role functioning commensurate with person's abilities and opportunities
q12_sat_occ_roleIntegerRecommended12. Satisfaction with occupational role functioning0::6;8;90 = Pervasive unhappiness and dissatisfaction with occupational role; 2 = Little or no definite evidence of unhappiness or dissatisfaction, but role does not provide any positive pleasure or fulfillment. Perhaps boredom is evident; 4 = Little or no discontent and some limited pleasure in work; 6 = Rather consistent sense of fulfillment and satisfaction, perhaps in spite of some limited complaints; 8=missing; 9 = Not applicable if patient not involved in any occupational role functioning
q13_purposeIntegerRecommended13. Sense of purpose0::60 = No plans, or plans are bizarre, delusional, or grossly unrealistic; 2 = Has plans, but they are vague, somewhat unrealistic, poorly integrated with one another, or of little consequence to the person's life; 4 = Realistic and concise plans for next year or so but little integration into long-range life plan; 6 = Realistic, concise, and integrated plans, both short, and long-rangeqls_04
q14_motivationIntegerRecommended14. Degree of motivation0::60 = Lack of motivation significantly interferes with basic routine; 2 = Able to meet basic maintenance demands of life, but lack motivation significantly impairs any progress or new accomplishment; 4 = Able to meet routine demands of life and some new accomplishments, but lack of motivation results in significant underachievement in some areas; 6 = No evidence of significant lack of motivationmotivation, qls_05
q15_curiosityIntegerRecommended15. Curiosity0::60 =Very little curiosity or interest in new topics or events; 2 = Some sporadic curiosity, but not pursued in thought or action; 4 = Some curiosity and time thinking about topics of interest and some actual effort to learn more about them; 6 = Curiosity about a number of topics and some effort to learn more about some of them such as reading, asking questions and planned observationqls_06
q16_anhedoniaIntegerRecommended16. Anhedonia0::60 = Nearly complete inability to experience pleasure or humor; 2 = Some sporadic and limited experiences of pleasure or humor but a predominant lacking of these capacities; 4 = Some regular experiences of pleasure and humor but reduced in extent and intensity; 6 = No evidence of anhedonia or can be explained completely by concurrent depression or anxietyanhedonia, qls_07
q17_time_utilIntegerRecommended17. Time utilization0::60 = Spends the vast majority of his day in aimless activity; 2 = Spends about half of his days in aimless activity; 4 = Some excessive aimless inactivity but less than half his day; 6 = No excessive aimless inactivity beyond the normal amount required for relaxation
q18_common_objIntegerRecommended18. Commonplace objects0::60 = Absence of nearly all commonplace objects (0 items); 2 = Major deficit of commonplace objects(3-4 items); 4 = 4. Moderate deficit (7-8 items); 6 = Little or no deficit (11-12 items)objects, qls_08
q19_common_actIntegerRecommended19. Commonplace activities0::60 = Absence of nearly all commonplace objects (0 items); 2 = Major deficit (3-4 items); 4 = Moderate deficit (7-8 items); 6 = Little or no deficit
q20_empathyIntegerRecommended20. Capacity for empathy0::60 = Shows no capacity to consider the views and feelings of others; 2 = Shows little capacity to consider the views and feelings of others; 4 = He can consider other people's views and feelings but tends to be caught up in his own world; 6 = He spontaneously considers the other person's situation in most instances, can intuit the other person's affective responses, and uses this knowledge to adjust his own responsesempathy, qls_09
q21_engagementIntegerRecommended21. Engagement and emotional interaction with interviewer0::60 = Interviewer feels virtually ignored with essentially no sense of engagement, with very little reactivity; 2 = Very limited engagement; 4 = 4. Engagement somewhat limited or present erratically; 6 = Consistently good engagement and reactivity
t1wkIntegerRecommendedWeeks since Treatment Session 1tpt
qol_p_totalIntegerRecommendedQuality of life total score888 = not applicable; 999 = missing
aescodeIntegerRecommendedStaff code number of person completing this formrater
dodeString10RecommendedDate of Data Entrydate_of_entry
comments_miscString4,000RecommendedMiscellaneous comments on study, interview, methodology relevant to this form datanotes
studyString100RecommendedStudy
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: hqls01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.