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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.


  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 


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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Heinrich's Quality of Life Scale

776 Shared Subjects

Heinrich's Quality of Life Scale
Clinical Assessments
Quality of Life
View Change History
QLS (Validation).pdf PDF file icon
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id, subject_id
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age, age_at_test
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY adate, date_hollings, date_of_rating
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query commonplace Integer Required Common objects and activities factor (items 18-19 scored 0-6) 0::12; 999 999=NK/NA/missing
Query instrumental_role Float Required Instrumental role factor (items 9-12 scored 0-6) 0::24; 999 999=NK/NA/missing
Query interpersonal_relations Float Required Interpersonal relations factor (items 1-8 scored 0-6) 0::48; 999 999=NK/NA/missing
Query intrapsychic_foundations Integer Required Intrapsychic foundations factor (items 13-17, 20, 21 scored 0-6) 0::42; 999 999=NK/NA/missing
Query q01_household_rela Integer Recommended 1. Intimate relationships with household members 0::6;9 0 = Virtually no intimacy; 2 = Only sparse and intermittent intimate interactions; 4 = Some consistent intimate interactions but reduced in extent or intensity; or intimacy only present erratically; 6 = Adequate involvement in intimate relations with household members or immediate family; 9 = Score here if lives alone and no immediate family nearby
Query q02_intimate_rela Integer Recommended 2. Intimate relationships 0::6 0 = Virtually absent; 2 = Only sparse and intermittent relations; 4 = Some consistent intimate relations but reduced in number or intensity; or intimacy only present erratically; 6 = Adequate involvement with intimate relationships with more than one other person
Query q03_acquaint Integer Recommended 3. Active acquaintances 0::6 0 = Virtually absent; 2 = Few active acquaintances and only infrequent contact; 4 = Some ongoing active acquaintances but reduced contact and limited shared activity; 6 = Adequate involvement with active acquaintances acqnt, acquaint, condition, qls_01
Query q04_social_act Integer Recommended 4. Level of social activity 0::6 0 = Virtually absent; 2 = Occasional social activity but lack of regular pattern of such activity, or limited only to activity with immediate family or members of household; 4 = Some regular social activity but reduced in frequency or diversity; 6 = Adequate level of regular social activity initiat
Query q05_social_net Integer Recommended 5. Involved social network 0::6 0 = Virtually absent; 2 = Minimal in number or degree of involvement, and/or limited to immediate family; 4 = Presence of some involved social network but reduced in number or degree of involvement; 6 = Adequate involved social network in both extent and in degree of involvement
Query q06_social_incent Integer Recommended 6. Social initiatives 0::6 0 = Social activity almost completely dependent on initiatives of others; 2 = Occasional social initiative, but social life significantly improvised due to his pattern of social passivity, or initiative limited to immediate family; 4 =Evidence of some reduction of social initiative, but with only minimal adverse consequences on his social activity; 6 = Adequate social initiative 10_0correct_mntmt, 20_0correct_mntmt, 2_5correct_mntmt, 50_0correct_mntmt, 5_0correct_mntmt, qls_02, social, totalcorrect_mntmt
Query q07_social_withd Integer Recommended 7. Social withdrawal 0::6 0 = Active avoidance of virtually all social contact; 2 = Tolerates that social contact required for meeting other needs, but very little social contact for its own sake, or lack of withdrawal only with immediate family; 4 = Some satisfying and enjoyable social engagement, but reduced due to avoidance; 6 = No evidence of significant social withdrawal
Query q08_sociosexual_rela Integer Recommended 8. Sociosexual relations 0::6 0 = No interest in opposite sex, or active avoidance; 2 = Some limited contact with opposite sex but superficial with avoidance of intimacy; or sexual activity as just physical release without emotional involvement; or relationships marked by severe and chronic disruption, dissatisfaction or affective chaos; 4 = Relationships with some intimacy and emotional investment, predominantly satisfying, and perhaps some sexual expression or physical signs of affection.; 6 = Usually has satisfying relationships, emotionally rich and intimate and appropriate sexual expression and physical sign of expression.
Query q09_extent_occ_role Integer Recommended 9. Extent of occupational role functioning 0::6 0 = Virtually no role functioning; 2 = Less than half time; 4 = Half-time or more, but less than full-time; 6 = Full-time or more 10_0percent_mntmt, 20_0percent_mntmt, 2_5percent_mntmt, 50_0percent_mntmt, 5_0percent_mntmt, extent, occupation, qls_03, totalpercent_mntmt
Query q10_accomplish Integer Recommended 10. Level of accomplishment 0::6 0 = Attempting no role function or performing at level so poor as to imminently threaten the ability to continue in that role; 2 = Functioning just well enough to keep position with very low level of accomplishment; 4 = Generally adequate functioning; 6 = Very good functioning with evidence of new or progressive accomplishments and/or very good functioning in some areas
Query q11_underemploy Integer Recommended 11. Degree of underemployment 0::6 0 = Almost complete failure to actualize potentials; 2 = Significant underemployment of abilities or unemployment but looking for work actively; 4 = Somewhat below the person's capacity; 6 = Role functioning commensurate with person's abilities and opportunities
Query q12_sat_occ_role Integer Recommended 12. Satisfaction with occupational role functioning 0::6;8;9 0 = Pervasive unhappiness and dissatisfaction with occupational role; 2 = Little or no definite evidence of unhappiness or dissatisfaction, but role does not provide any positive pleasure or fulfillment. Perhaps boredom is evident; 4 = Little or no discontent and some limited pleasure in work; 6 = Rather consistent sense of fulfillment and satisfaction, perhaps in spite of some limited complaints; 8=missing; 9 = Not applicable if patient not involved in any occupational role functioning
Query q13_purpose Integer Recommended 13. Sense of purpose 0::6 0 = No plans, or plans are bizarre, delusional, or grossly unrealistic; 2 = Has plans, but they are vague, somewhat unrealistic, poorly integrated with one another, or of little consequence to the person's life; 4 = Realistic and concise plans for next year or so but little integration into long-range life plan; 6 = Realistic, concise, and integrated plans, both short, and long-range purpose, qls_04
Query q14_motivation Integer Recommended 14. Degree of motivation 0::6 0 = Lack of motivation significantly interferes with basic routine; 2 = Able to meet basic maintenance demands of life, but lack motivation significantly impairs any progress or new accomplishment; 4 = Able to meet routine demands of life and some new accomplishments, but lack of motivation results in significant underachievement in some areas; 6 = No evidence of significant lack of motivation motiv, motivation, qls_05
Query q15_curiosity Integer Recommended 15. Curiosity 0::6 0 =Very little curiosity or interest in new topics or events; 2 = Some sporadic curiosity, but not pursued in thought or action; 4 = Some curiosity and time thinking about topics of interest and some actual effort to learn more about them; 6 = Curiosity about a number of topics and some effort to learn more about some of them such as reading, asking questions and planned observation curious, qls_06
Query q16_anhedonia Integer Recommended 16. Anhedonia 0::6 0 = Nearly complete inability to experience pleasure or humor; 2 = Some sporadic and limited experiences of pleasure or humor but a predominant lacking of these capacities; 4 = Some regular experiences of pleasure and humor but reduced in extent and intensity; 6 = No evidence of anhedonia or can be explained completely by concurrent depression or anxiety anhed, anhedonia, qls_07
Query q17_time_util Integer Recommended 17. Time utilization 0::6 0 = Spends the vast majority of his day in aimless activity; 2 = Spends about half of his days in aimless activity; 4 = Some excessive aimless inactivity but less than half his day; 6 = No excessive aimless inactivity beyond the normal amount required for relaxation
Query q18_common_obj Integer Recommended 18. Commonplace objects 0::6 0 = Absence of nearly all commonplace objects (0 items); 2 = Major deficit of commonplace objects(3-4 items); 4 = 4. Moderate deficit (7-8 items); 6 = Little or no deficit (11-12 items) objects, qls_08
Query q19_common_act Integer Recommended 19. Commonplace activities 0::6 0 = Absence of nearly all commonplace objects (0 items); 2 = Major deficit (3-4 items); 4 = Moderate deficit (7-8 items); 6 = Little or no deficit
Query q20_empathy Integer Recommended 20. Capacity for empathy 0::6 0 = Shows no capacity to consider the views and feelings of others; 2 = Shows little capacity to consider the views and feelings of others; 4 = He can consider other people's views and feelings but tends to be caught up in his own world; 6 = He spontaneously considers the other person's situation in most instances, can intuit the other person's affective responses, and uses this knowledge to adjust his own responses empathy, qls_09
Query q21_engagement Integer Recommended 21. Engagement and emotional interaction with interviewer 0::6 0 = Interviewer feels virtually ignored with essentially no sense of engagement, with very little reactivity; 2 = Very limited engagement; 4 = 4. Engagement somewhat limited or present erratically; 6 = Consistently good engagement and reactivity
Query t1wk Integer Recommended Weeks since Treatment Session 1 tpt
Query qol_p_total Integer Recommended Quality of life total score 888 = not applicable; 999 = missing
Query aescode Integer Recommended Staff code number of person completing this form rater
Query dode String 10 Recommended Date of Data Entry date_of_entry
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data notes
study String 100 Recommended Study; The code for each individual study
version_form String 121 Recommended Form used/assessment name
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.