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subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
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Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
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Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
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M = Male; F = Female; O=Other; NR = Not reported
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gender |
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vitd_done |
Integer |
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Recommended |
Vitamin D test completed? |
0;1
|
0= No; 1= Yes
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mhf_23 |
Integer |
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Recommended |
Checks if physical exam was administered |
0;1
|
0=No; 1=Yes
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pe_done |
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ekg_done |
Integer |
|
Recommended |
EKG Completed? |
0;1
|
0= No; 1= Yes
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blood_tests_done |
Integer |
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Recommended |
Protocol Blood Tests completed? |
0;1
|
0= No; 1= Yes
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vitamind_orig_result |
Float |
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Recommended |
Vitamin D at Original Screening |
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vitamind_date |
Date |
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Recommended |
Date of Vitamin D Test |
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vitamind_result |
Float |
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Recommended |
Vitamin D Test Result |
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vitamind_normal |
Integer |
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Recommended |
Vitamin D Test Normal |
0;1
|
0= No; 1= Yes
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vitamind_dose |
Integer |
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Recommended |
Dose of Vitamin D recommended to increase level |
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vitamind_meal |
Integer |
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Recommended |
Was dose taken with a fatty meal? |
0;1
|
0= No; 1= Yes
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vitamind_cs |
Integer |
|
Recommended |
Vitamin D Treatment Required? |
0;1
|
0= No; 1= Yes
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pex011a |
Integer |
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Recommended |
Evaluation: General appearance |
1::7; -9
|
1=Normal; 2=Abnormal, NOT clinically significant; 3=Abnormal, clinically significant; 4=Abnormal; 5=Abnormal Excludes; 6=Abnormal Does not Exclude; 7=Other; -9=Not Evaluated
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system_gen |
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system_hair |
Integer |
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Recommended |
Hair texture |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_nose |
Integer |
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Recommended |
Nose and Sinuses |
1::3;98
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1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_mouth |
Integer |
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Recommended |
Mouth and Throat |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_ears |
Integer |
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Recommended |
Ears |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_eyes |
Integer |
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Recommended |
Eyes |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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pex004a |
Integer |
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Recommended |
Evaluation: Lungs |
1::6; -9
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1=Normal;2=Abnormal, NOT clinically significant;3=Abnormal, clinically significant; 4=Abnormal;5=Abnormal Excludes; 6=Abnormal Does Not Exclude; -9=Not Evaluated
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system_lungs |
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system_heart |
Integer |
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Recommended |
Heart |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_vasc |
Integer |
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Recommended |
Vascular |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_abd |
Integer |
|
Recommended |
Abdomen |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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phex_q42 |
Integer |
|
Recommended |
Genitourinary Result |
1::7; -9
|
1=Normal; 2=Abnormal, NOT clinically significant; 3=Abnormal, clinically significant; 4=Abnormal; 5=Abnormal; Excludes from Study; 6=Abnormal, Dos Not Exclude from Study; 7=Other; -9=Not Evaluated
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system_gs |
|
system_endo |
Integer |
|
Recommended |
Endocrine and Metabolic |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_skel |
Integer |
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Recommended |
Musculoskeletal |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_skin |
Integer |
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Recommended |
Skin and Lymphatics |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_neuro |
Integer |
|
Recommended |
Neurological |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_other |
Integer |
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Recommended |
Other Physical system |
1::3;98
|
1- Normal; 2= Abnormal, Clinically Siginificant; 3= Abnormal, Not Clinically Significant
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system_abn_cz |
String |
20
|
Recommended |
Describe other abnormal physical system |
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thyroid_hair |
Integer |
|
Recommended |
Signs of Thyroid Problems: Hair Texture |
0;1
|
0= No; 1= Yes
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thyroid_dtr |
Integer |
|
Recommended |
Signs of Thyroid Problems: DTRs |
0;1
|
0= No; 1= Yes
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thyroid_palpable |
Integer |
|
Recommended |
Signs of Thyroid Problems: Palpable Thyroid |
0;1
|
0= No; 1= Yes
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thyroid_thin |
Integer |
|
Recommended |
Signs of Thyroid Problems: thin skin |
0;1
|
0= No; 1= Yes
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thyroid_coarse |
Integer |
|
Recommended |
Signs of Thyroid Problems: Coarse Skin |
0;1
|
0= No; 1= Yes
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allergy_eyelid |
Integer |
|
Recommended |
Signs of Allergies: puffy eyelids |
0;1
|
0= No; 1= Yes
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allergy_eyes |
Integer |
|
Recommended |
Signs of Allergies: Red eyes |
0;1
|
0= No; 1= Yes
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allergy_congestion |
Integer |
|
Recommended |
Signs of Allergies: Nasal Congestion |
0;1
|
0= No; 1= Yes
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allergy_eczema |
Integer |
|
Recommended |
Signs of Allergies: eczema |
0;1
|
0= No; 1= Yes
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allergy_rash |
Integer |
|
Recommended |
Signs of Allergies: Rash |
0;1
|
0= No; 1= Yes
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allergy_salute |
Integer |
|
Recommended |
Signs of Allergies: allergic salute |
0;1
|
0= No; 1= Yes
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allergy_nose |
Integer |
|
Recommended |
Signs of Allergies: Nose Crease |
0;1
|
0= No; 1= Yes
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q19_a3 |
Integer |
|
Recommended |
Tanner Stage |
1 :: 5
|
1=pre puberty, 2=early puberty, 3=mid puberty, 4=late puberty, 5=post puberty
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tanner_stage |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
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blood_tests_code |
String |
20
|
Recommended |
Blood Lab Test |
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blood_test_abnormal_spfy |
String |
300
|
Recommended |
Describe abnormality of the blood test results |
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blood_tests_result |
|
blood_test_abnormal |
Integer |
|
Recommended |
6a. Were the blood test results ABNORMAL? |
0;1;-7
|
0 = No; 1 = Yes; -7 = Don't Know
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blood_tests_normal |
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blood_tests_significant |
Integer |
|
Recommended |
Was blood test result clinically significant? |
0;1
|
0= No; 1= Yes
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heart_rate |
Integer |
|
Recommended |
heart rate |
|
|
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ekg_abn |
Integer |
|
Recommended |
Was EKG abnomal? |
0::2
|
0= No; 1= Yes, Clinically Significant; 2= Yes, Not Clinically Significant
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ekg_supine |
Integer |
|
Recommended |
Supine 5 minutes? |
0;1
|
0= No; 1= Yes
|
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ekg_rhythm |
Integer |
|
Recommended |
EKG rhythm |
1::3;97
|
1= Normal (including sinus arrythmia); 2= Bradycardia; 3= Tachycardia; 97= Other
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|
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ekg_qt_int_uncorr |
Integer |
|
Recommended |
QT Interval Uncorrected? |
0;1
|
0= No; 1= Yes
|
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ekg_collect_time |
Integer |
|
Recommended |
EKG Collection time |
|
|
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ekg_pr_int |
Integer |
|
Recommended |
EKG PR Interval (in ms) |
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ekg_qr_dur |
Integer |
|
Recommended |
EKG QRs Duration (in ms) |
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ekg_qt_int |
Integer |
|
Recommended |
EKG QT Interval (in ms) |
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ekg_rhythm_other |
String |
200
|
Recommended |
Describe other EKG Rhythm |
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resp_source |
Integer |
|
Recommended |
Respondent Source |
1::6
|
1= subject; 2= parent; 3= clinician; 4= teacher; 5= trainer; 6= fidelity reviewer
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source |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
|
session |
Integer |
|
Recommended |
Session |
|
|
|
|
validity |
String |
13
|
Recommended |
Validity rating |
Yes;No;Questionnable
|
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