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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

ICAN Demographics

328 Shared Subjects

N/A
Clinical Assessments
Demographics
12/03/2019
icandemo01
03/26/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
demoses05j String 50 Recommended Specify other Gender Identity
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. q3a_race_other_desc
ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown q3b_ethnicity
q4_living_arrange Integer Recommended Child's usual PRIMARY living arrangement 1::6;-9;97 1= Parental Home (at least one parent); 2= Parental Homes (shared custody- 50/50); 3= Relative (other than parents); 4= With unrelated adult(s); 5= Shared apt/residence with parent's friends; 6= Shelter/stree/homeless/transient; -9= unknown; 97= Other (specify)
living_notes String 255 Recommended Living arrangements (specify) q4_living_arrange_desc
q5a_primary_caregiver Integer Recommended In the child's usual living arrangement, who is the PRIMARY caregiver? If equal caregivers, please indicate which one is completing this form 1::12 1= Biological Mother; 2= Step-mother; 3= Adoptive Mother; 4= Foster Mother; 5= Grandmother; 6= Other Relative; 7= Other non-relative; 8= Biological Father; 9= Step-father; 10= Adoptive Father; 11= Grandfather; 12= Foster Father
q5a_relative_gender Integer Recommended Other relative primary caregiver gender 1;2 1= Male; 2= Female
q5a_non_rel_gender Integer Recommended Other non-relative primary caregiver gender 1;2 1= Male; 2= Female
cg1_age Integer Recommended Parent/Caregiver 1 Age, months 0::1200 q5a_pc_age
q5b_second_caregiver Integer Recommended In the child's usual living arrangement, please indicate whether there is a SECOND caregiver. 0::12 0= No Second Caregiver; 1= Biological Mother; 2= Step-mother; 3= Adoptive Mother; 4= Foster Mother; 5= Grandmother; 6= Other Relative; 7= Other non-relative; 8= Biological Father; 9= Step-father; 10= Adoptive Father; 11= Grandfather; 12= Foster Father
q5b_relative_gender Integer Recommended Other relative secondary caregiver gender 1;2 1= Male; 2= Female
q5b_non_rel_gender Integer Recommended Other non-relative secondary caregiver gender 1;2 1= Male; 2= Female
cg2_age Integer Recommended Parent/Caregiver 2 Age, months 0::1200 q5b_sc_age
adults_household Integer Recommended Number adults in household q6_adult_home
fdi_q20b Integer Recommended number of children living in the house q7_child_home
q8a_pc_work Integer Recommended In the current household, PRIMARY caregiver's current (primary) employment status 1::9;97 1= Employed full time (>=35 hrs at one or more jobs); 2= Employed part time (<35 hrs total); 3= Stay-At-Home Parent; 4= Unemployed looking for work; 5= Unemployed not looking for work; 6= Disabled; 7= Retired; 8= Student, full time; 9= Student, part time; 97 = Other (specify)
cg1_occupation String 100 Recommended Caregiver/Parent 1's Occupation q8a_pc_work_oth_desc
q8b_sc_work Integer Recommended In the current household, SECOND caregiver's current (primary) employment status: 0::9;97;98 1= Employed full time (>=35 hrs at one or more jobs); 2= Employed part time (<35 hrs total); 3= Stay-At-Home Parent; 4= Unemployed looking for work; 5= Unemployed not looking for work; 6= Disabled; 7= Retired; 8= Student, full time; 9= Student, part time; 97 = Other (specify); 98= Not in household
cg2_occupation String 100 Recommended Caregiver/Parent 2's Occupation q8b_pc_work_oth_desc
q9a_pc_work_major Integer Recommended In the current household, PRIMARY caregiver's highest occupation: 1::10;-9;97 1= Corporate executive, owner of large company, major professional ; 2= Mid-level executive, such as owner of medium-sized business; 3= Administrative professional, such as owner of small independent business; 4= Clerical or sales worker, technician, part owner of small business ; 5= Skilled manual employee ; 6= Semi-skilled employee, such as machine operator ; 7= Less skilled employee or laborer ; 8= Never worked in paid employment; 10= Licensed professional, such as a nurse, teacher, counselor, etc.; -9= Dont know; 97= Other (specify)
q9a_pc_work_major_other String 50 Recommended Specify Primary Caregiver's highest occupation
q9b_sc_work_major Integer Recommended In the current household, Secondary caregiver's highest occupation: 1::10;-9;97; 98 1= Corporate executive, owner of large company, major professional ; 2= Mid-level executive, such as owner of medium-sized business; 3= Administrative professional, such as owner of small independent business; 4= Clerical or sales worker, technician, part owner of small business ; 5= Skilled manual employee ; 6= Semi-skilled employee, such as machine operator ; 7= Less skilled employee or laborer ; 8= Never worked in paid employment; 10= Licensed professional, such as a nurse, teacher, counselor, etc.; -9= Dont know; 97= Other (specify); 98= Not in Household
q9b_sc_work_major_other String 50 Recommended Specify Secondary Caregiver's highest occupation
cg1_education String 100 Recommended Caregiver/Prent 1's Highest Level of Education Some primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree; did not graduate from high school; college graduate; Middle School q10a_pc_educ
cg2_education String 100 Recommended Caregiver/Parent 2's Highest Level of Education Some primary school;Some high school;High school diploma;GED;Some college or technical school;Associate degree;Baccalaureate degree;Graduate or professional degree; did not graduate from high school; college graduate; Middle School q10b_sc_educ
q11_income Integer Recommended Annual Household Income (estimate for last year) 1::7 1= Less than $23,850; 2= $23,851 - $50,000; 3= $50,001 - $100,000; 4= More than $100,000; 5= Welfare; 6= Disability; 7= Social Security
q12a_light_inc_halo Integer Recommended During the hour and a half before bedtime, what percentage of time is your child exposed to the following light sources: Ordinary Light Bulb or Halogen
q12a_unknown_inc_halo String 50 Recommended Unknown amount of time spent exposed to Ordinary or Halogen Light Bulb -9 = I don't know
q12b_light_cfl_led Integer Recommended During the hour and a half before bedtime, what percentage of time is your child exposed to the following light sources: Energy Saving LED lights
q12b_unknown_cfl_led String 50 Recommended Unknown amount of time spent exposed to Energy Saving LED Light Bulbs -9 = I don't know
q13_school_type Integer Recommended Type of educational activity/setting the child attends 1::8;97 1= Regular public school; 2= Regular public school with some special classes; 3= Regular private/parochial school; 4= Regular private/parochial school with some special classes; 5= Special school for children with developmental disabilities; 6= Home school/Cyber Education; 7= Charter School; 8= School for children with emotional/behavioral disturbances; 97= Other (specify)
schspe_mta String 250 Recommended Type of school other specify q13_school_oth_desc
phne_sc_2 String 40 Recommended What is your highest grade completed in school? q14_school_grade
q15_school_gr_rpt Integer Recommended Number of grades repeated since kindergarten
q16_school_changes Integer Recommended Number of school changes since kindergarten
sped1 Integer Recommended Has child ever received services from a program called Special Education? 0;1; 99; 77; 998 0=No; 1=Yes; 99=Don't know; 77=Refused; 998=n/a q17_school_special_ed
q17_school_se_iep Integer Recommended Special Education Service: IEP 0;1 0= No; 1= Yes
q17_school_se_504 Integer Recommended Special Education Service: 504 0;1 0= No; 1= Yes
q17_school_se_accom Integer Recommended Special Education Service: Special Accommodations 0;1 0= No; 1= Yes
q17_school_se_when Integer Recommended When did you receive special education services 1::3;98 1= Current (within past 6 months); 2= Past (prior to 6 months ago); 3= Both; 98= N/A
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
resp_source Integer Recommended Respondent Source 1::6 1= subject; 2= parent; 3= clinician; 4= teacher; 5= trainer; 6= fidelity reviewer source
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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