|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
crcid |
String |
40
|
Recommended |
CRC ID/ROA ID |
|
|
roaid |
|
level |
String |
10
|
Recommended |
Treatment level |
|
|
|
Query
|
month |
Integer |
|
Recommended |
Month in Follow-Up |
|
|
|
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
date |
Query
|
time_point |
Integer |
|
Recommended |
Assessment time point |
|
1=Baseline (STARD); 2=Level exit (STARD); 3= Quarterly follow up (STARD);5= Screening; 10= Baseline; 21, 22, 23 = Mid-point 1, 2, 3; 30= End-of-treatment; 41, 42, 43= Follow-up1, 2, 3 etc.; 601 = 6 Month Reassessment ; 602 = 12 Month Reassessment ; 603 = 18 Month Reassessment
|
timept |
Query
|
update |
Integer |
|
Recommended |
Updated form |
0;1
|
1= yes; 0= no
|
|
Query
|
lang_visit |
Integer |
|
Recommended |
Language during visit |
0;1
|
1=Spanish; 0=English
|
lang_idssr, spanish |
Query
|
isoin |
Float |
|
Recommended |
Sleep onset insomnia |
0::3; -99
|
0=Never takes longer than 30 minutes to fall asleep; 1=Takes at least 30 minutes to fall asleep less than half the time; 2=Takes at least 30 minutes to fall asleep more than half the time; 3=Takes more than 60 minutes to fall asleep more than half the time; -99=missing
|
fallasleep, fallslp, ids_insomnia, idssr1, isrfa, onsetinsom_ids, sleepo |
Query
|
imnin |
Float |
|
Recommended |
Mid-Nocturnal insomnia |
0::3; -99
|
0=Does not wake up at night; 1=Restless light sleep with few awakenings; 2=Wakes up at least once a night but goes back to sleep easily; 3=Awakens more than once a night and stays awake for 20 minutes or more more than half the time; -99=missing
|
ids_noc_insomnia, idssr2, isrsdn, midinsom_ids, nocturn, sleepnight, slpnight |
Query
|
iemin |
Float |
|
Recommended |
Early morning insomnia |
0::3; -99
|
0=Less than half the time awakens no more than 30 minutes before necessary; 1=More than half the time awakens more than 30 minutes before need be; 2=Awakens at least one hour before need be more than half the time; 3=Awakens at least two hours before need be more than half the time; -99=missing
|
earlyinsom_ids, earlywak, ids_early_insomnia, idssr3, isrwute, morning, wakeearly |
Query
|
ihysm |
Float |
|
Recommended |
Hypersomnia |
0::3; -99
|
0=Sleeps no longer than 7-8 hours per night without naps; 1=Sleeps no longer than 10 hours in a 24 hour period including naps; 2=Sleeps no longer than 12 hours in a 24 hour period including naps; 3=Sleeps longer than 12 hours in a 24 hour period including naps; -99=missing
|
hyperinsom_ids, hyperso, ids_hypersomnia, idssr4, isrstm, sleepmuch, slp2much |
Query
|
imdsd |
Float |
|
Recommended |
Mood (sad) |
0::3; -99
|
0=Does not feel sad; 1=Feels sad less than half the time; 2=Feels sad more than half the time; 3=Feels intensely sad virtually all of the time; -99=missing
|
feelsad, ids_sad, idssr5, isrfs, moods, sad_ids |
Query
|
ianx |
Float |
|
Recommended |
Mood (anxious) |
0::3; -99
|
0=Does not feel anxious or tense; 1=Feels anxious or tense less than half the time; 2=Feels anxious or tense more than half the time; 3=Feels extremely anxious or tense virtually all of the time; -99=missing
|
anxious, anxious_ids, feeltense, ids_anxious, idssr7, isrfanx, mooda |
Query
|
ipanc |
Float |
|
Recommended |
Panic/phobic symptoms |
0::3; -99
|
0=Has neither panic episodes nor phobic symptoms; 1=Has mild panic episodes or phobias that do not usually alter behavior or incapacitate; 2=Has significant panic episodes or phobias that modify behavior but do not incapacitate; 3=Has incapacitating panic episodes at least once a week or severe phobias that lead to complete and regular avoidance behavior; -99=missing
|
ids_panic, idssr27, isrpps, panic, panic_ids, panicphobic |
Query
|
iirtb |
Float |
|
Recommended |
Mood (irritable) |
0::3; -99
|
0=Does not feel irritable; 1=Feels irritable less than half the time; 2=Feels irritable more than half the time; 3=Feels extremely irritable virtually all of the time; -99=missing
|
feelirritable, ids_irritable, idssr6, irritabl, irritable_ids, isrfi, moodi |
Query
|
irct |
Float |
|
Recommended |
Reactivity of mood |
0::3; -99
|
0=Mood brightens to normal level and lasts several hours when good events occur; 1=Mood brightens but does not feel like normal self when good events occur; 2=Mood brightend only somewhat with few selected and extremely desired events; 3=Mood does not brighten at all even when very good or desired events occur; -99=missing
|
events, ids_reactivity_mood, idssr8, isrrge, moodevents, react_ids, rmood |
Query
|
ivrtn |
Float |
|
Recommended |
Mood variation |
0::3; -99
|
0=Notes no regular relationship between mood and time of day; 1=Mood often relates to time of day due to environmental circumstances; 2=For most of the week mood appears more related to time of day than to events; 3=Mood is clearly predictably better or worse at a fixed time each day; -99=missing
|
ids_mood_variation, idssr9, isrmvtod, moodtime, moodv, moodvari_ids, timeofday |
Query
|
iwrse |
String |
20
|
Recommended |
Mood worse in |
|
|
ids_mood_variation_9a, idssr9a, isrmwi, mdworse, moodampm, mworse |
Query
|
ienv |
String |
10
|
Recommended |
Mood attributed to environment |
|
|
ids_mood_variation_9b, isrmate, mdenvir, moodvariation, mvariat |
Query
|
iqty |
Float |
|
Recommended |
Quality of mood |
0::3; -7; -99
|
0=Mood is virtually identical to feelings associated with bereavement or is undisturbed; 1=Mood is largely like sadness in bereavement although it may lack explanation or be associated with more anxiety or be much more intense; 2=Less than half the time mood is qualitatively distinct from grief and therefore difficult to explain to others; 3=Mood is qualitatively distinct from grief nearly all of the time; -7=refused; -99=missing
|
ids_mood_quality, idssr10, isrqm, mdqual, moodqual_ids, moodquality, qmood |
Query
|
iapdc |
Float |
|
Recommended |
Appetite (decreased) |
0::3; -99
|
0=No change from usual appetite; 1=Eats somewhat less often and/or lesser amounts than usual; 2=Eats much less than usual and only with personal effort; 3=Eats rarely within a 24 hour period and only with extreme personal effort or with persuasion by others; -99=missing
|
appdec, appdec_ids, appetd, appetite, ids_dec_appetite, isrda |
Query
|
iapin |
Float |
|
Recommended |
Appetite (increased) |
0::3; -99
|
0=No change from usual appetite; 1=More frequently feels a need to eat than usual; 2=Regularly eats more often and/or greater amounts than usual; 3=Feels driven to overeat at and between meals; -99=missing
|
appeti, appinc_ids, apptinc, ids_app_increase, isria |
Query
|
iwtdc |
Float |
|
Recommended |
Weight (decrease) last 2 weeks |
0::3; -7; -99
|
0=Has experienced no weight change; 1=Feels as if some slight weight loss has occurred; 2=Has lost 2 pounds or more; 3=Has lost 5 pounds or more; -7= refused; -99=missing
|
ids_weight_dec, isrdw, weighd, weight, wghtdec_ids, wgtdec |
Query
|
iwtin |
Float |
|
Recommended |
Weight (increase) last 2 weeks |
0::3; -99
|
0=Has experienced no weight change; 1=Feels as if some slight weight gain has occurred; 2=Has gained 2 pounds or more; 3=Has gained 5 pounds or more; -99=missing
|
ids_weight_inc, isriw, weighi, wghtinc_ids, wgtinc |
Query
|
icntr |
Float |
|
Recommended |
Concentration/decision making |
0::3; -99
|
0=No change in usual capacity to concentrate and decide; 1=Occasionally feels indecicive or notes that affection often wanders; 2=Most of the time struggles to focus attention or make decisions; 3=Cannot concentrate well enough to read or cannot make even minor decisions; -99=missing
|
concent, concentration, decide_ids, decision, ids_concentration, idssr15, isrcdm |
Query
|
ivwsf |
Float |
|
Recommended |
Outlook (self) |
0::3; -7; -99
|
0=Sees self as equally worthwhile and deserving as others; 1=Is more self blaming than usual; 2=Largely believes that he/she causes problems for others; 3=Ruminates over major and minor defects in self; -7=refused; -99=missing
|
ids_outlook_self, idssr16, isrvm, outlooks, selfview_ids, viewself, vwself |
Query
|
ivwfr |
Float |
|
Recommended |
Outlook (future) |
0::3; -99
|
0=Views future with usual optimism; 1=Occasionally has pessimistic outlook that can be displaced by others or events; 2=Largely pessimistic for the near future; 3=Sees no hope for self or situation anytime in the future; -99=missing
|
ids_outlook_future, idssr17, isrvmf, outlook_ids, outlookf, viewfuture, vwfuture |
Query
|
isuic |
Float |
|
Recommended |
Suicidal Ideation |
0::3; -99
|
0=Does not think of suicide or death; 1=Feels life is empty or is not worth living; 2=Thinks of suicide/death several times a week for several minutes; 3=Thinks of suicide/death several times a day in depth or has made specific plans or attempted suicide; -99=missing
|
ids_suicidal_ideate, idssr18, isrtds, suicid, suicidal_ids, thoughtdeath, thoughts |
Query
|
iintr |
Float |
|
Recommended |
Involvement |
0::3; -99
|
0=No change from usual level of interest in other people and activities; 1=Notices a reduction in former interests/activities; 2=Finds only one or two former interests remain; 3=Has virtually no interest in formerly pursued activities; -99=missing
|
generalinterest, ids_involvement, idssr19, interest, interests_ids, involve, isrgi |
Query
|
iplsr |
Float |
|
Recommended |
Pleasure/enjoyment |
0::3; -99
|
0=Participates in and derives usual sense of enjoyment from pleasurable activities; 1=Does not feel usual enjoyment from pleasurable activities; 2=Rarely derives pleasure from any activities; 3=Is unable to register any sense of pleasure or enjoyment from anything; -99=missing
|
capactiyenjoyment, enjoymt, ids_pleasure, idssr21, isrel, pleasure, pleasure_ids |
Query
|
iengy |
Float |
|
Recommended |
Energy/fatigability |
0::3; -99
|
0=No change in usual level of energy; 1=Tires more easily than usual; 2=Makes significant personal effort to maintain usual daily activities; 3=Unable to carry out most of usual daily activities due to lack of energy; -99=missing
|
energy_ids, energyf, energylevel, enerlvl, ids_energy_fatigability, idssr20, isrcfp |
Query
|
isex |
Float |
|
Recommended |
Sexual interest |
0::3; -7; -99
|
0=Has usual interest in or derives usual pleasure from sex; 1=Has near usual interest in or derives some pleasure from sex; 2=Has little desire for or rarely derives pleasure from sex; 3=Has absolutely no interest in or derives no pleasure from sex; -7=refused; -99=missing
|
ids_sexual_interest, idssr22, interestsex, intsex, isriis, sexual, sexual_ids |
Query
|
islow |
Float |
|
Recommended |
Psychomotor slowing |
0::3; -99
|
0=Normal speed of thinking/gesturing/speaking; 1=Patient notes slowed thinking and voice modulation is reduced; 2=Takes several seconds to respond to most questions and reports slowed thinking; 3=Is largely unresponsive to most questions without strong encouragement; -99=missing
|
feelingslow, ids_psychomotor, idssr23, isrfsd, pmslow_ids, psycslow, slowdown |
Query
|
iagit |
Float |
|
Recommended |
Psychomotor agitation |
0::3; -99
|
0=No increased speed or disorganization in thinking or gesturing; 1=Fidgets and wrings hands and shifts positions often; 2=Describes impulse to move about and displays motor restlessness; 3=Unable to stay seated and paces about with or without permission; -99=missing
|
feelingrestless, ids_psychomotor_agitation, idssr24, isrfr, pmrestless_ids, psycagit, restless |
Query
|
ismtc |
Float |
|
Recommended |
Somatic complaints |
0::3; -7; -99
|
0=States there is no feeling of limb heaviness or pains; 1=Complains of headaches/abdominal/back/joint pains that are intermittent and not disabling; 2=Complains that the above pains are present most of the time; 3=Functional impairment results from above; -7=refused; -99=missing
|
achepain, achepains, ids_somatic, idssr25, israap, pains_ids, somatic |
Query
|
isymp |
Float |
|
Recommended |
Sympathetic arousal |
0::3; -7; -99
|
0=Reports no palpitations/tremors/blurred vision/tinnitus/increased sweating/dyspnea/hot and cold flashes/chest pain; 1=The above are mild and only intermittently present; 2=The above are moderate and present more than half the time; 3=The above result in functional impairment; -7=refused; -99=missing
|
ids_sympathetic_arouse, idssr26, isrobs, otherbodysympts, othersx, sympath, symptoms_ids |
Query
|
igas |
Float |
|
Recommended |
Gastrointestinal |
0::3; -99
|
0=Has no change in usual bowel habits; 1=Has intermittent constipation and/or diarrhea that is mild; 2=Has diarrhea and/or constipation most of the time that does not impair functioning; 3=Has intermittent presence of constipation and/or diarrhea that requires treatment or causes functional impairment; -99=missing
|
constip, diarrhea, gastro, gastro_ids, ids_gastrointest, idssr28, isrcod |
Query
|
iintp |
Float |
|
Recommended |
Interpersonal sensitivity |
0::3; -99
|
0=Has not felt easily rejected/slighted/criticized/hurt by others at all; 1=Occasionally feels rejected/slighted/criticized/hurt by others; 2=Often feels rejected/slighted/criticized/hurt by others but with only slight effects on social/occupational functioning; 3=Often feels rejected/slighted/criticized/hurt by others that results in impaired social/occupational functioning; -99=missing
|
ids_interpersonal_sens, idssr29, intersensitvity, isriss, sensit, sensitive, sensitive_ids |
Query
|
ildn |
Float |
|
Recommended |
Leaden paralysis/physical energy |
0::3; -99
|
0=Does not experience the physical sensation of feeling weighted down without physical energy; 1=Occasionally experiences periods of feeling physically weighted down and without physical energy but without a negative effect on work/school/activity level; 2=Feels physically weighted down without physical energy more than half the time; 3=Feels physically weighted down without physical energy most of the time for several hours per day for several days per week; -99=missing
|
ids_leaden_paralysis, idssr30, isrlppe, paral, paralysis, paralysis_ids, phenergy |
Query
|
ictot |
Float |
|
Recommended |
IDS total score |
|
|
ids30, ids_total_score, idssrtotal, score_ids |
Query
|
qstot |
Float |
|
Recommended |
QIDS total score |
|
|
ids16, qidssrtot |
Query
|
phase |
Integer |
|
Recommended |
Phase |
|
9 =follow up
|
|
Query
|
week |
Float |
|
Recommended |
Week in level/study |
|
99=week 10-week 14
|
week1 |
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
siteid |
Query
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
Query
|
sleepsum |
Integer |
|
Recommended |
Sleep variable summary |
|
There are times when I feel "empty" inside.
|
|
Query
|
vis_type |
Integer |
|
Recommended |
Visit type |
0::2
|
1=Phone/remote; 0=doctor's office/In person; 2=No, not phone interview
|
phone |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
easy_item |
String |
10
|
Recommended |
Which 3 items (questions) were the easiest to understand |
|
|
|
Query
|
mssess |
Integer |
|
Recommended |
Session number this measure was based on |
0::26 ; 55; 56;57; -9
|
0 = Pre; 1 = Session 1; 2 = Session 2; 3 = Session 3; 4 = Session 4; 5 = Session 5; 6 = Session 6; 7 = Session 7; 8 = Session 8; 9 = Session 9; 10 = Session 10; 11 = Session 11; 12 = Session 12; 13 = Session 13; 14 = Session 14; 15 = Session 15; 16 = Session 16; 17 = Session 17; 18 = Session 18; 19 = Session 19; 20 = Session 20; 21 = Session 21; 22 = Session 22; 23 = Session 23; 24 = Session 24; 25 = Session 25; 26 = Session 26; 55 = Post; 56 = 6 month follow-up; 57 = 12 month follow-up
|
isrsess |
|
sample |
Integer |
|
Recommended |
Training or randomized case |
1::5
|
1 = randomized; 2 = training; 3=randomized-control; 4=randomized-intervention; 5=concurrent cohort-intervention
|
|