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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters). Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Interval History Form

870 Shared Subjects

N/A
Clinical Assessments
Med History
09/13/2016
ihf01
07/12/2019
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01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query ihf_1 Integer Recommended My childs ability to pay attention has been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse ability2payattention
Query ihf_2 Integer Recommended My childs ability to understand and make choices has been 1::5 1=Much better; 2=Better; 3=Same; 4=Worse; 5=Much worse ability2understand
Query ihf_3 Integer Recommended My childs ability to get around has been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse abilitytogetaround
Query ihf_4 Integer Recommended My child has demonstrated the ability to sit 1::4 1=With some help; 2=Without help; 3=My child cannot sit alone; 4=My child cannot stand alone abilitytosit
Query ihf_5 Integer Recommended My child has demonstrated the ability to stand 1::4 1=With some help; 2=Without help; 3=My child cannot sit alone; 4=My child cannot stand alone abilitytostand
Query ihf_6 Integer Recommended My child has been able to walk 1::3 1=Independently; 2=Only with support; 3=My child cannot walk alone or with help abilitytowalk
Query ihf_7 Integer Recommended My child has been aggressive and abusive to others hitting biting spitting 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never aggressivechild
Query ihf_8 Integer Recommended My child has been anxious or nervous 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never anxiousornervous
Query ihf_9 Integer Recommended Applied Behavioral ABA 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month appliedbehavioral
Query ihf_10 Integer Recommended Augmentative Communication for the visually impaired 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month augmentativecommunication
Query ihf_11 Integer Recommended Augmentative Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month augmentativetherapy
Query ihf_12 Integer Recommended Biggest Problem 1::19 1=Lack of effective chewing or swallowing; 2=Seizures;3= Lack of effective communication; 4=Air swallowing/Bloating/Excessive Gas; 5=Teeth Grinding (while awake); 6=Lack of hand use; 7=Scoliosis (curvature of the spine); 8=Constipation; 9=Gastroesophageal reflux; 10=Screaming episodes; 11=Vision; 12=Abnormal Walking/Balance Issues; 13=Rapid breathing or breath holding while awake; 14=Problems with sleep;15= Repetitive hand movements (wringing, mouthing); 16=Poor weight gain;17= Frequent infections; 18=Aggressiveness towards others; 19=Self-ab biggestproblem
Query ihf_13 Integer Recommended For the past 6 months the following single statement best describes my childs feeding abilities CHOOSE ONLY 1 ANSWER If 2 answers apply choose the most severe category Answers are ranked from less to more severe 1::5 1=H.9.a. No difficulties with chewing or swallowing; 2=H.9.b. Occasional choking and/or gagging; 3=H.9.c. Largest meal of the day by mouth takes greater than 30 minutes; 4=H.9.d. Both eats by mouth and by gastrostomy; 5=H.9.e. Is fed by gastrostomy only childfeedingabilities
Query ihf_14 Integer Recommended What type of school or day program does your child currently attend 1::4 1=Attends a day-program or vocational program; 2=Does not attend school or day program; 3=Attends school full-time; 4=Attends school part-time childschool
Query ihf_15 Integer Recommended How often has your child turned blue lips toes fingers 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never childturnedblue
Query ihf_16 Integer Recommended Over the past 6 months my childs hand use has been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse childshanduse
Query ihf_17 Integer Recommended Regarding my childs mood on an average day shehe has been 1::5 1=Very content; 2=Calm and/or content most of the day; 3=Calm and/or content about half the day; 4=Calm and/or content less than half the day; 5=Rarely calm or content childsmood
Query ihf_18 Integer Recommended How would you describe your childs overall function 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse childsoverallfunction
Query ihf_19 Integer Recommended My child has demonstrated choosing between objects presented 1::5 1=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Never choosingbtwobjects
Query schoolotr_classroom String 100 Recommended Other specify Type of classroom Inclusion Classroom; Special Ed Classroom; Mixed Inclusion and Special Ed Classroom; Home schooled; Not applicable; Regular ESE; Gifted/Advanced; Other classroom
Query ihf_21 Integer Recommended Combined Household Income 0::8 0=Declined; 1=Less than $20,000; 2=$20,000 - $39,999; 3=$40,000 - $59,999; 4=$60,000 - $79,999; 5=$80,000 - $99,999; 6=$100,000 or more; 7=$60,000 - $99,000; 8=Refused combinedhouseholdincome
Query ihf_22 Integer Recommended My child has communicated using waving pointing or body gestures 1::4 1=Normally; 2=With difficulty; 3=With great difficulty; 4=Not at all commwthbodygestures
Query ihf_23 Integer Recommended My child has communicated using eye gaze 1::4 1=Normally; 2=With difficulty; 3=With great difficulty; 4=Not at all commwtheyegaze
Query ihf_24 Integer Recommended My childs ability to communicate with spoken language or sounds has been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse commwthspokenlangsounds
Query ihf_25 Integer Recommended In the past 6 months my childs ability to communicate without spoken language or sounds has been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse commwthoutspokenlangsounds
Query ihf_26 Integer Recommended My child has had cool hands or feet 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never coolhandsorfeet
Query ihf_27 Integer Recommended How cool or cold 1::5 1=Warm hands or feet; 2=Cool hands or feet; 3=Cold hands and feet;4= Cold, blue hands or feet; 5=Cold, blue hands and feet coolorcold
Query ihf_28 Integer Recommended What is the degree of your childs scoliosis degreeofscoliosis
Query ihf_29 Integer Recommended What is the degree of your childs scoliosis Unknown 0; 1 0 = unchecked box; 1 = checked box degreeofscoliosisunknown
Query ihf_30 Integer Recommended Has your childs teeth grinding led to dental work in the past 6 months 0::2 0=No; 1=Minor dental work; 2=Major dental work dentalwork
Query ihf_31 Integer Recommended In the past 6 months my childs difficult behaviors have been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse difficultbehaviors
Query ihf_32 Integer Recommended My child has had difficulty falling asleep in the past 6 months 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never difficultysleeping
Query ihf_33 Integer Recommended In the past 6 months has your child been treated for difficulty falling asleep 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled difficultysleepingtremt
Query ihf_34 Integer Recommended My child has difficulty staying asleep in the past 6 months 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never difficultystayingasleep
Query ihf_35 Integer Recommended In the past 6 months has your child been treated for difficulty staying asleep 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled difficultystayingasleeptremt
Query ihf_36 Integer Recommended My child has had difficulty staying awake and alert during the day 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never difficultystayingawaking
Query ihf_37 Integer Recommended My child has had difficulty waking up in the morning in the past 6 months 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never difficultywakingup
Query ihf_38 Integer Recommended My child has been drooling 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never drooling
Query ihf_39 Integer Recommended Father Employment 1::7 1=Employed; 2=Homemaker; 3=Student; 4=Retired; 5=Disabled; 6=Unemployed; 7=Unknown fatheremploymentstatus
Query ihf_40 Integer Recommended Father Highest education 1::8 1=No high school diploma or GED; 2=High school diploma or GED; 3=Some college, no bachelor's degree; 4=Bachelor's degree; 5=Advanced degree; 6=Unknown; 7=Declined; 8=Not applicable fatherhighesteducation
Query ihf_41 Integer Recommended Father Occupation 1::17 1=Never employed; 2=Management; 3=Business and Financial Operation; 4=Computer and Mathematical; 5=Architectural and Engineering; 6=Life, Physical and Social Science; Community and Social Service; 7=Legal; 8=Education, Training and Library; 9=Arts, Design, Entertainment, Sports, and Media; 10=Healthcare Practioners and Technical; 11=Healthcare Support; 12=Protective Service; 13=Food Preparation and Service Related; 14=Building and Grounds Cleaning and Maintenance;15= Personal Care and Service; 16=Sales and Related Occupations; 17=Office fatheroccupation
Query ihf_42 Integer Recommended Feed themself 1;2 1=alone; 2=hand-over-hand only feedthemself
Query ihf_43 Integer Recommended My child has followed a spoken command when I use a gesture 1::5 1=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Never followwthgesture
Query ihf_44 Integer Recommended My child has followed a spoken command when I do not use a gesture 1::5 1=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Never followwthoutgesture
Query ihf_45 Integer Recommended Point or gesture with their finger 1;2 1=alone; 2=hand-over-hand only gesturewithfinger
Query ihf_46 Integer Recommended Point or gesture with their hand 1;2 1=alone; 2=hand-over-hand only gesturewithhand
Query ihf_47 Integer Recommended Get Around Without Walk: Crawls 0; 1 0 = unchecked box; 1 = checked box getaroundwithoutwalk_crawls
Query ihf_48 Integer Recommended Get Around Without Walk: Creeps on belly (pulls self) 0; 1 0 = unchecked box; 1 = checked box getaroundwithoutwalk_creepsonbel
Query ihf_49 Integer Recommended Get Around Without Walk: Rolls 0; 1 0 = unchecked box; 1 = checked box getaroundwithoutwalk_rolls
Query ihf_50 Integer Recommended Get Around Without Walk: Scoots on bottom 0; 1 0 = unchecked box; 1 = checked box getaroundwithoutwalk_scootsonbot
Query ihf_51 Integer Recommended Get Around Without Walk: Unable to do any of these 0; 1 0 = unchecked box; 1 = checked box getaroundwithoutwalk_unabletodoa
Query ihf_52 Integer Recommended Hand Movements: 0; 1 0 = unchecked box; 1 = checked box handmovements
Query ihf_53 Integer Recommended Hand Movements: Chewing/licking 0; 1 0 = unchecked box; 1 = checked box handmovements_chewinglicking
Query ihf_54 Integer Recommended Hand Movements: Clapping 0; 1 0 = unchecked box; 1 = checked box handmovements_clapping
Query ihf_55 Integer Recommended Hand Movements: Finger rubbing 0; 1 0 = unchecked box; 1 = checked box handmovements_fingerrubbing
Query ihf_56 Integer Recommended Hand Movements: Flapping in front of body 0; 1 0 = unchecked box; 1 = checked box handmovements_flappinginfrontofb
Query ihf_57 Integer Recommended Hand Movements: Flapping next to body 0; 1 0 = unchecked box; 1 = checked box handmovements_flappingnexttobody
Query ihf_58 Integer Recommended Hand Movements: Flicking (fingers, lips, etc.) 0; 1 0 = unchecked box; 1 = checked box handmovements_flickingfingerslip
Query ihf_59 Integer Recommended Hand Movements: Flipping (pages) 0; 1 0 = unchecked box; 1 = checked box handmovements_flippingpages
Query ihf_60 Integer Recommended Hand Movements: Hair twirling 0; 1 0 = unchecked box; 1 = checked box handmovements_hairtwirling
Query ihf_61 Integer Recommended Hand Movements: Hand mouthing 0; 1 0 = unchecked box; 1 = checked box handmovements_handmouthing
Query ihf_62 Integer Recommended Hand Movements: Hand wringing/washing 0; 1 0 = unchecked box; 1 = checked box handmovements_handwringingwashin
Query ihf_63 Integer Recommended Hand Movements: Knitting fingers 0; 1 0 = unchecked box; 1 = checked box handmovements_knittingfingers
Query ihf_64 Integer Recommended Hand Movements: None 0; 1 0 = unchecked box; 1 = checked box handmovements_none
Query ihf_65 Integer Recommended Hand Movements: Picking (clothes, body, arms, etc.) 0; 1 0 = unchecked box; 1 = checked box handmovements_pickingclothesbody
Query ihf_66 Integer Recommended Hand Movements: Posturing feet or legs 0; 1 0 = unchecked box; 1 = checked box handmovements_posturingfeetorleg
Query ihf_67 Integer Recommended Hand Movements: Posturing hands or arms 0; 1 0 = unchecked box; 1 = checked box handmovements_posturinghandsorar
Query ihf_68 Integer Recommended Hand Movements: Pulling hair 0; 1 0 = unchecked box; 1 = checked box handmovements_pullinghair
Query ihf_69 Integer Recommended Hand Movements: Rubbing objects 0; 1 0 = unchecked box; 1 = checked box handmovements_rubbingobjects
Query ihf_70 Integer Recommended Hand Movements: Scratching 0; 1 0 = unchecked box; 1 = checked box handmovements_scratching
Query ihf_71 Integer Recommended Hand Movements: Squeezing (hands, body) 0; 1 0 = unchecked box; 1 = checked box handmovements_squeezinghandsbody
Query ihf_72 Integer Recommended Hand Movements: Tapping/hitting (hands, surfaces) 0; 1 0 = unchecked box; 1 = checked box handmovements_tappinghittinghand
Query ihf_73 Integer Recommended Hand Use Skill: Feed themself 0; 1 0 = unchecked box; 1 = checked box handuseskill_feedthemself
Query ihf_74 Integer Recommended Hand Use Skill: Hits switches 0; 1 0 = unchecked box; 1 = checked box handuseskill_hitsswitches
Query ihf_75 Integer Recommended Hand Use Skill: Hold a cup/bottle to drink 0; 1 0 = unchecked box; 1 = checked box handuseskill_holdacupbottletodri
Query ihf_76 Integer Recommended Hand Use Skill: Modified pincer grasp (thumb/multiple fingers) 0; 1 0 = unchecked box; 1 = checked box handuseskill_modifiedpincergrasp
Query ihf_77 Integer Recommended Hand Use Skill: Other 0; 1 0 = unchecked box; 1 = checked box handuseskill_other
Query ihf_78 Integer Recommended Hand Use Skill: Pick up objects and hold them 0; 1 0 = unchecked box; 1 = checked box handuseskill_pickupobjectsandhol
Query ihf_79 Integer Recommended Hand Use Skill: Pick up objects briefly 0; 1 0 = unchecked box; 1 = checked box handuseskill_pickupobjectsbriefl
Query ihf_80 Integer Recommended Hand Use Skill: Pincer grasp (thumb/finger) 0; 1 0 = unchecked box; 1 = checked box handuseskill_pincergraspthumbfin
Query ihf_81 Integer Recommended Hand Use Skill: Point or gesture with their hand 0; 1 0 = unchecked box; 1 = checked box handuseskill_pointorgesturewith1
Query ihf_82 Integer Recommended Hand Use Skill: Point or gesture with their finger 0; 1 0 = unchecked box; 1 = checked box handuseskill_pointorgesturewith2
Query ihf_83 Integer Recommended Hand Use Skill: Use utensils 0; 1 0 = unchecked box; 1 = checked box handuseskill_useutensils
Query ihf_84 Integer Recommended My child has communicated happiness with facial expression 1::4 1=By smiling normally and appropriately; 2=By smiling most of time; 3=By smiling some of time; 4=Never happyfacialexpression
Query ihf_85 Integer Recommended Hippotherapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month hippotherapy
Query ihf_86 Integer Recommended Hits Switches 1;2 1=alone; 2=hand-over-hand only hitsswitches
Query ihf_87 Integer Recommended Hold a cupbottle to drink 1;2 1=alone; 2=hand-over-hand only holdcupbottletodrink
Query ihf_88 Integer Recommended My child has demonstrated rapid or deep breathing while awake hyperventilation 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never hyperventilation
Query ihf_89 Integer Recommended Number of individuals in household dependent of this income individualsinhousehold
Query ihf_90 Integer Recommended IntermittentTherapy: Hippotherapy 0; 1 0 = unchecked box; 1 = checked box intermittenttherapy_hippotherapy
Query ihf_91 Integer Recommended IntermittentTherapy: Other 0; 1 0 = unchecked box; 1 = checked box intermittenttherapy_other
Query ihf_92 Integer Recommended IntermittentTherapy: Swimming Therapy 0; 1 0 = unchecked box; 1 = checked box intermittenttherapy_swimmingther
Query ihf_93 Integer Recommended My child has been irritable whiny or thrown tantrums 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never irritablechild
Query ihf_94 Integer Recommended Since the last visit or in last year what is the primary place your child has lived 1::3 1=Home; 2=Group Home; 3=Institution lastplacelived
Query ihf_95 Integer Recommended Lives With Child: Adoptive Father 0; 1 0 = unchecked box; 1 = checked box liveswithchild_adoptivefather
Query ihf_96 Integer Recommended Lives With Child: Adoptive Mother 0; 1 0 = unchecked box; 1 = checked box liveswithchild_adoptivemother
Query ihf_97 Integer Recommended Lives With Child: Biological Father 0; 1 0 = unchecked box; 1 = checked box liveswithchild_biologicalfather
Query ihf_98 Integer Recommended Lives With Child: Biological Mother 0; 1 0 = unchecked box; 1 = checked box liveswithchild_biologicalmother
Query ihf_99 Integer Recommended Lives With Child: Extended family 0; 1 0 = unchecked box; 1 = checked box liveswithchild_extendedfamily
Query ihf_100 Integer Recommended Lives With Child: Siblings 0; 1 0 = unchecked box; 1 = checked box liveswithchild_siblings
Query ihf_101 Integer Recommended Lives With Child: Step Father 0; 1 0 = unchecked box; 1 = checked box liveswithchild_stepfather
Query ihf_102 Integer Recommended Lives With Child: Step Mother 0; 1 0 = unchecked box; 1 = checked box liveswithchild_stepmother
Query ihf_103 Integer Recommended My childs activity is low for her/his age 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never lowactivityforage
Query ihf_104 Integer Recommended Considering normal understanding for a typical individual my childs age my childs ability to understand and make choices has been 1::4 1=Normal; 2=Mildly impaired; 3=Moderately impaired; 4=Severely impaired makechoices
Query ihf_105 Integer Recommended In the past 6 months has your child been medicated for being sad miserable or uncomfortable 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medforsaddays
Query ihf_106 Integer Recommended In the past 6 months has your child been medicated for being aggressive or abusive to others 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforaggression
Query ihf_107 Integer Recommended In the past 6 months has your child been medicated for being anxious or nervous 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforbeinganxious
Query ihf_108 Integer Recommended In the past 6 months has your child been medicated for constipation 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforconstipation
Query ihf_109 Integer Recommended In the past 6 months has your child been medicated for diarrhea 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsfordiarrhea
Query ihf_110 Integer Recommended In the past 6 months has your child been medicated for drooling 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsfordrooling
Query ihf_111 Integer Recommended In the past 6 months has your child been medicated for gastroesophageal reflux 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforgasreflux
Query ihf_112 Integer Recommended In the past 6 months has your child been medicated for being irritable 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforirritability
Query ihf_113 Integer Recommended In the past 6 months has your child been medicated for having a low level of activity 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforlowactivity
Query ihf_114 Integer Recommended In the past 6 months has your child been medicated for being excessively active 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforoveractive
Query ihf_115 Integer Recommended In the past 6 months has your child been medicated for slow movements 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforslowmovements
Query ihf_116 Integer Recommended In the past 6 months has your child been medicated for stiffness 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsforstiffness
Query ihf_117 Integer Recommended In the past 6 months has your child been medicated for tremoring or trembling 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled medsfortrembling
Query ihf_118 Integer Recommended In the past 6 months has your child been treated for rapid changes in mood 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled moodchangetremnt
Query ihf_119 Integer Recommended Single most severeproblematic self abusive behaviors 0::11 1=SlappingFace; 2=Biting/chewing self; 3=Banging head; 4=Pulling hair; 5=Picking self;6= Rubbing or pinching self; 7=Touching genital area; 0=None; 8=Other;9= Hitting/slapping other parts of head;10= Hitting/slapping other body parts; 11=Scratching/digging self mostseverebehavior
Query ihf_120 Integer Recommended Single Most Severe hand movement 0::19 1=Hand wringing/washing; 2=Clapping; 3=Tapping/hitting (hands, surfaces); 4=Squeezing (hands, body); 5=Flicking (fingers, lips, etc.); 6=Posturing hands or arms; 7=Posturing feet or legs; 8=Hand mouthing; 9=Pulling hair; 10=Finger rubbing; 11=Knitting fingers;12= Hair twirling; 13=Picking (clothes, body, arms, etc.); 14=Flapping next to body; 15=Flapping in front of body; 16=Scratching; 17=Chewing/licking; 18=Flipping (pages);19= Rubbing objects; 0=None mostseverehandmovement
Query ihf_121 Integer Recommended Mother Employment status 1::7 1=Employed; 2=Homemaker; 3=Student; 4=Retired; 5=Disabled; 6=Unemployed; 7=Unknown motheremploymentstatus
Query ihf_122 Integer Recommended Mother Highest education 1::8 1=No high school diploma or GED; 2=High school diploma or GED; 3=Some college, no bachelor's degree; 4=Bachelor's degree; 5=Advanced degree; 6=Unknown; 7=Declined; 8=Not applicable motherhighesteducation
Query ihf_123 Integer Recommended Mother Occupation 1::17 1=Never employed; 2=Management; 3=Business and Financial Operation; 4=Computer and Mathematical; 5=Architectural and Engineering; 6=Life, Physical and Social Science; Community and Social Service; 7=Legal; 8=Education, Training and Library; 9=Arts, Design, Entertainment, Sports, and Media; 10=Healthcare Practioners and Technical; 11=Healthcare Support; 12=Protective Service; 13=Food Preparation and Service Related; 14=Building and Grounds Cleaning and Maintenance;15= Personal Care and Service; 16=Sales and Related Occupations; 17=Office motheroccupation
Query ihf_124 Integer Recommended Music Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month musictherapy
Query ihf_125 Integer Recommended Select all repetitive hand movements observed in the past 6 months None 0; 1 0 = unchecked box; 1 = checked box nohandmovements
Query ihf_126 Integer Recommended Hand use over past 6 months None 0; 1 0 = unchecked box; 1 = checked box nohanduse
Query ihf_127 Integer Recommended Type and frequency of intermittent therapy for the past year None 0; 1 0 = unchecked box; 1 = checked box nointermittenttherapy
Query ihf_128 Integer Recommended Type and frequency of routine therapy for the past year None 0; 1 0 = unchecked box; 1 = checked box noroutinetherapy
Query ihf_129 Integer Recommended Select all selfabusive behaviors observed for the last 6 months None 0; 1 0 = unchecked box; 1 = checked box noselfabusivebehaviors
Query ihf_130 Integer Recommended Indicate below number of words in total current vocabulary 1::6 1=1 word; 2=2 words; 3=3-5 words; 4=6-10 words; 5=11-20 words; 6=>20 words numofwords
Query ihf_131 Integer Recommended Occupational Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month occupationaltherapy
Query ihf_132 Integer Recommended Other Behavioral Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othbehavioraltherapy
Query ihf_133 Integer Recommended Other Intermittent Therapy Frequency 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othintermittenttherfreq1_1
Query ihf_134 String 50 Recommended Other Intermittent Therapy Specify othintermittenttherapyspeci1_1
Query ihf_135 Integer Recommended Other Routine Therapy Frequency 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othroutinetherfreq1_1
Query ihf_136 Integer Recommended Other Routine Therapy Frequency 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othroutinetherfreq2_1
Query ihf_137 Integer Recommended Other Routine Therapy Frequency 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othroutinetherfreq3_1
Query ihf_138 Integer Recommended Other Routine Therapy Frequency 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othroutinetherfreq4_1
ihf_139 String 150 Recommended Other Routine Therapy Specify othroutinetherapyspecify1_1
Query ihf_140 String 50 Recommended Other Routine Therapy Specify othroutinetherapyspecify2_1
Query ihf_141 String 50 Recommended Other Routine Therapy Specify othroutinetherapyspecify3_1
ihf_142 String 50 Recommended Other Routine Therapy Specify othroutinetherapyspecify4_1
Query ihf_143 String 100 Recommended Other selfabusive behavior othselfabusivebehavior
Query ihf_144 String 150 Recommended If you answered any of the other options please select ONE feature from the list below that MOST influenced your answer in the question above about your childs overall function in the past 6 months Other otheroverallfunctionreason
Query ihf_145 String 100 Recommended Other scoliosis treatment otherscoliosistrtmnt
Query ihf_146 Integer Recommended Other Skill How Performed 1;2 1=alone; 2=hand-over-hand only otherskillperformed1_1
Query ihf_147 Integer Recommended Other Skill How Performed 1;2 1=alone; 2=hand-over-hand only otherskillperformed2_1
ihf_148 String 100 Recommended Other Skill otherskillspecify1_1
Query ihf_149 String 100 Recommended Other Skill otherskillspecify2_1
Query ihf_150 Integer Recommended My child has been overactive for herhis age 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never overactiveforage
Query ihf_151 Integer Recommended My childs overall communication eye gaze spoken language sounds pointing gestures has been 1::4 1=Normal; 2=Mildly impaired; 3=Moderately impaired; 4=Severely impaired overallcommunication
Query ihf_152 Integer Recommended If you answered any of the other options please select ONE feature from the list below that MOST influenced your answer in the question above about your childs overall function in the past 6 months 1::11 1=Effective communication; 2=Hand stereotypies; 3=Air swallowing; 4=Gastro-esophageal reflux; 5=Aggressiveness towards others; 6=Screaming episodes; 7=Self-abusive behavior; 8=Effective chewing and swallowing; 9=Constipation; 10=Vision; 11=Involuntary movements overallfunctionreason
Query ihf_153 Integer Recommended Overall my child has repetitive hand movements 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never overallhandmovements
Query ihf_154 Integer Recommended How has your childs overall health been in the past 6 months 1::5 1=Very poor; 2=Poor; 3=Fair; 4=Good; 5=Very good overallhealth
Query ihf_155 Integer Recommended My child has been able to pay attention watch a movie listen to a story or discussion 1::6 1=For a short time (5-14 minutes); 2=Briefly (1-4 minutes); 3=Very briefly (less than 1 minute); 4=Never; 5=For a long time (greater than 30 minutes); 6=For a moderate amount of time (15-30 minutes) payattention
Query ihf_156 Integer Recommended Physical Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month physicaltherapy
Query ihf_157 Integer Recommended Pick up objects and hold them 1;2 1=alone; 2=hand-over-hand only pickupobjectsandhold
Query ihf_158 Integer Recommended Pick up objects briefly 1;2 1=alone; 2=hand-over-hand only pickupobjectsbriefly
Query ihf_159 Integer Recommended Pincer grasp thumbfinger 1;2 1=alone; 2=hand-over-hand only pincergraspthumbfinger
Query ihf_160 Integer Recommended Modified pincer grasp thumbmultiple fingers 1;2 1=alone; 2=hand-over-hand only pincergraspthumbmultiplefinger
Query ihf_161 Integer Recommended My child has puffed air or blown raspberries 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never puffedair
Query ihf_162 Integer Recommended My child has had rapid mood changes 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never rapidmoodchanges
Query ihf_163 Integer Recommended Routine Therapy: Applied Behavioral (ABA) 0; 1 0 = unchecked box; 1 = checked box routinetherapy_appliedbehavioral
Query ihf_164 Integer Recommended Routine Therapy: Augmentative Communication 0; 1 0 = unchecked box; 1 = checked box routinetherapy_augmentativecomm1
Query ihf_165 Integer Recommended Routine Therapy: Augmentative Communication for the visually impaired 0; 1 0 = unchecked box; 1 = checked box routinetherapy_augmentativecomm2
Query ihf_166 Integer Recommended Routine Therapy: Music Therapy 0; 1 0 = unchecked box; 1 = checked box routinetherapy_musictherapy
Query ihf_167 Integer Recommended Routine Therapy: Occupational Therapy 0; 1 0 = unchecked box; 1 = checked box routinetherapy_occupationalthera
Query ihf_168 Integer Recommended Routine Therapy: Other 0; 1 0 = unchecked box; 1 = checked box routinetherapy_other
Query ihf_169 Integer Recommended Routine Therapy: Other Behavioral Therapy 0; 1 0 = unchecked box; 1 = checked box routinetherapy_otherbehavioralth
Query ihf_170 Integer Recommended Routine Therapy: Physical Therapy 0; 1 0 = unchecked box; 1 = checked box routinetherapy_physicaltherapy
Query ihf_171 Integer Recommended Routine Therapy: Speech Therapy 0; 1 0 = unchecked box; 1 = checked box routinetherapy_speechtherapy
Query ihf_172 Integer Recommended Routine Therapy: Vision Therapy 0; 1 0 = unchecked box; 1 = checked box routinetherapy_visiontherapy
Query ihf_173 Integer Recommended My child has had days when shehe is sad miserable and uncomfortable 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never saddays
Query ihf_174 Integer Recommended My child has communicated sadness with facial expression 1::4 1=By frowning or crying normally and appropriately; 2=By frowning or crying most of time; 3=By frowning or crying some of time; 4=Never sadfacialexpression
Query neck_scoliosis String 50 Recommended Is there scoliosis (curvature of the spine)? Yes;No;NK NK = Not known scoliosis
Query ihf_176 Integer Recommended Scoliosis Treatmnt: Bracing (DMO or TSLO) 0; 1 0 = unchecked box; 1 = checked box scoliosistremnt_bracingdmoortslo
Query ihf_177 Integer Recommended Scoliosis Treatmnt: No treatment 0; 1 0 = unchecked box; 1 = checked box scoliosistremnt_notreatment
Query ihf_178 Integer Recommended Scoliosis Treatmnt: Other 0; 1 0 = unchecked box; 1 = checked box scoliosistremnt_other
Query ihf_179 Integer Recommended Scoliosis Treatmnt: Physical therapy 0; 1 0 = unchecked box; 1 = checked box scoliosistremnt_physicaltherapy
Query ihf_180 Integer Recommended Scoliosis Treatmnt: Serial casting 0; 1 0 = unchecked box; 1 = checked box scoliosistremnt_serialcasting
Query ihf_181 Integer Recommended Scoliosis Treatmnt: Surgery 0; 1 0 = unchecked box; 1 = checked box scoliosistremnt_surgery
Query ihf_182 Integer Recommended My child has had episodes of screaming 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never screamingepisodes
Query ihf_183 Integer Recommended In the past 6 months has your child been medicated for screaming episodes 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled screamingepisodesmeds
Query ihf_184 Integer Recommended If yes when have these screaming episodes occurred 1::3 1=Daytime only; 2=Nighttime only; 3=Both daytime and nighttime screamingepisodestime
Query ihf_185 Integer Recommended In the past 6 months has your child been medicated for self abusive behaviors 0::2 0=No; 1=Yes, my child is treated for this and it is well controlled; 2=Yes, my child is treated for this but it is poorly controlled selfabusivebehaviormeds
Query ihf_186 Integer Recommended My child has demonstrated some self abusive behaviors slapping biting head banging 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never selfabusivebehaviors
Query ihf_187 Integer Recommended Self Abusive Behaviors: 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_
Query ihf_188 Integer Recommended Self Abusive Behaviors: Banging head 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_banginghead
Query ihf_189 Integer Recommended Self Abusive Behaviors: Biting/chewing self 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_bitingchewi
Query ihf_190 Integer Recommended Self Abusive Behaviors: Hitting/slapping other parts of head 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_hittingsla1
Query ihf_191 Integer Recommended Self Abusive Behaviors: Hitting/slapping other body parts 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_hittingsla2
Query ihf_192 Integer Recommended Self Abusive Behaviors: None 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_none
Query ihf_193 Integer Recommended Self Abusive Behaviors: Other 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_other
Query ihf_194 Integer Recommended Self Abusive Behaviors: Picking self 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_pickingself
Query ihf_195 Integer Recommended Self Abusive Behaviors: Pulling hair 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_pullinghair
Query ihf_196 Integer Recommended Self Abusive Behaviors: Rubbing or pinching self 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_rubbingorpi
Query ihf_197 Integer Recommended Self Abusive Behaviors: Scratching/digging self 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_scratchingd
Query ihf_198 Integer Recommended Self Abusive Behaviors: SlappingFace 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_slappingfac
Query ihf_199 Integer Recommended Self Abusive Behaviors: Touching genital area 0; 1 0 = unchecked box; 1 = checked box selfabusivebehaviors_touchinggen
Query ihf_200 Integer Recommended Sit without some help 1::3 1=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Briefly sitwithsomehelp
Query ihf_201 Integer Recommended Sit without help 1::3 1=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Briefly sitwithouthelp
Query ihf_202 Integer Recommended My child has had unusually slow movements due to rigidity or stiffness 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never slowmovements
Query ihf_203 Integer Recommended Does anyone in house smoke 0;1 1=Yes; 0=No smokinginhouse
Query ihf_204 String 150 Recommended Second Biggest Problem Other specify specify2ndbiggestproblem
ihf_205 String 100 Recommended Third Biggest Problem Other specify specify3rdbiggestproblem
Query ihf_206 String 50 Recommended Biggest Problem Other specify specifybiggestproblem
Query ihf_207 Integer Recommended Speech Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month speechtherapy
Query ihf_208 Integer Recommended My child has communicated with spoken language or sounds choose single best description 1::9 1=Normally, pretty much the way any child would; 2=With complete sentences that are linked together; 3=With isolated sentences; 4=With phrases; 5=With single words; 6=Echoes words; 7=With sounds that have meaning; 8=Babble sounds; 9=None, except crying or screaming spokenlanguagesounds
Query ihf_209 Integer Recommended Stand with some help 1::3 1=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Briefly standwithsomehelp
Query ihf_210 Integer Recommended Stand without help 1::3 1=Long time (greater than 5 min); 2=Some Time (1-5 minutes); 3=Briefly standwithouthelp
Query ihf_211 Integer Recommended My child has had very stiff arms andor legs 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never stiffarmslegs
Query ihf_212 Integer Recommended My child has stopped breathing or held hisher breath while awake 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never stoppedbreathingwhileawake
Query ihf_213 Integer Recommended My child has swallowed air developed a large airfilled abdomen had excessive gas or had air escape from gtube 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never swallowedair
Query ihf_214 Integer Recommended Swimming Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month swimmingtherapy
Query ihf_215 Integer Recommended My child has had symptoms of constipation 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never sympofconstipation
Query ihf_216 Integer Recommended My child has had symptoms of diarrhea 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never sympofdiarrhea
Query ihf_217 Integer Recommended My child has had symptoms of gastroesophageal reflux sour breath pain after meal spit upvomiting 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never sympofgasreflux
Query ihf_218 Integer Recommended My child has demonstrated teeth grinding when awake 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never teethgrinding
Query ihf_219 Integer Recommended Therapy Location: At a private therapy company 0; 1 0 = unchecked box; 1 = checked box therapylocation_ataprivatetherap
Query ihf_220 Integer Recommended Therapy Location: At home by parents 0; 1 0 = unchecked box; 1 = checked box therapylocation_athomebyparents
Query ihf_221 Integer Recommended Therapy Location: At home by trained therapist 0; 1 0 = unchecked box; 1 = checked box therapylocation_athomebytrainedt
Query ihf_222 Integer Recommended Therapy Location: At school in classroom or modified physical education 0; 1 0 = unchecked box; 1 = checked box therapylocation_atschoolinclassr
Query ihf_223 Integer Recommended Therapy Location: At school in separate therapy area 0; 1 0 = unchecked box; 1 = checked box therapylocation_atschoolinsepara
Query ihf_224 Integer Recommended Therapy Location: Not applicable 0; 1 0 = unchecked box; 1 = checked box therapylocation_notapplicable
Query ihf_225 Integer Recommended My child has demonstrated the following level of toilet training 1::6 1=F.16.a. Purposeful bowel and bladder, can hold urine and stool with no accidents; 2=F.16.b. Can hold urine and stool with no accidents during the day; 3=F.16.c. Can hold either urine or stool during the day; 4=F.16.d. Set times when they are taken to the toilet for both urine and stool, but may have an accident; 5=F.16.e. Set times when they are taken to the toilet for both urine or stool, but may have an accident; 6=F.16.f. Not toilet trained; uses diapers always toilettraining
Query ihf_226 Integer Recommended Has your child had an increased tolerance for pain 1::5 1=H.2.a. Normal or immediate response to pain; 2=H.2.b. Delayed response to minor pain; 3=H.2.c. No response to minor pain, or delayed response to moderate pain; 4=H.2.d. No response to moderate pain, delayed response to major pain; 5=H.2.e. No response to any type of pain toleranceforpain
Query ihf_227 Integer Recommended My child has had tremoringtrembling of handfoothead does not include repetitive hand movements 1::5 1=Occasionally; 2=Frequently; 3=Very Frequently; 4=Constantly; 5=Never tremblinghandfoot
Query ihf_228 Integer Recommended I have been able to understand my childs communication with spoken language or sounds 1::5 1=All the time (100%); 2=More than half the time; 3=About half the time; 4=Less than half the time; 5=Never understandspokenlangsounds
Query ihf_229 Integer Recommended My childs mood and undesirable behaviors have been 1::5 1=Much improved; 2=Improved; 3=Unchanged; 4=Worse; 5=Much worse undesirablebehaviors
Query ihf_230 Integer Recommended Use utensils 1;2 1=alone; 2=hand-over-hand only useutensils
Query ihf_231 Integer Recommended How often has your child used a wheelchairstroller 1::5 1=Never or almost never; 2=Less than half the time; 3=About half the time; 4=More than half the time; 5=All the time usewheelchairstroller
Query ihf_232 Integer Recommended Vision Therapy 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month visiontherapy
Query ihf_233 Integer Recommended If your child can walk alone or with support how far have they been able to walk 1::4 1=About 100 yards or more;2= At least 30 feet; 3=Across a room; 4=Takes a few steps walkingdistance
Query ihf_234 Integer Recommended If your child can walk alone or with support what has been their typical speed 1::3 1=Fast; 2=Average; 3=Slow walkingspeed
Query ihf_235 Integer Recommended Ways Of Communicating: Eye gaze with assistive device 0; 1 0 = unchecked box; 1 = checked box waysofcommunicating_eyegazewitha
Query ihf_236 Integer Recommended Ways Of Communicating: Eye gaze without a device 0; 1 0 = unchecked box; 1 = checked box waysofcommunicating_eyegazewitho
Query ihf_237 Integer Recommended Ways Of Communicating: Gesture with hand/signs 0; 1 0 = unchecked box; 1 = checked box waysofcommunicating_gesturewithh
Query ihf_238 Integer Recommended Ways Of Communicating: No communication without spoken language or sounds 0; 1 0 = unchecked box; 1 = checked box waysofcommunicating_nocommunicat
Query ihf_239 Integer Recommended Ways Of Communicating: Point or gesture with one finger 0; 1 0 = unchecked box; 1 = checked box waysofcommunicating_pointorgestu
Query ihf_240 Integer Recommended Ways Of Communicating: Turns toward object desired 0; 1 0 = unchecked box; 1 = checked box waysofcommunicating_turnstowardo
Query ihf_241 Integer Recommended Second Biggest Problem 1::19 1=Lack of effective chewing or swallowing; 2=Seizures;3= Lack of effective communication; 4=Air swallowing/Bloating/Excessive Gas; 5=Teeth Grinding (while awake); 6=Lack of hand use; 7=Scoliosis (curvature of the spine); 8=Constipation; 9=Gastroesophageal reflux; 10=Screaming episodes; 11=Vision; 12=Abnormal Walking/Balance Issues; 13=Rapid breathing or breath holding while awake; 14=Problems with sleep;15= Repetitive hand movements (wringing, mouthing); 16=Poor weight gain;17= Frequent infections; 18=Aggressiveness towards others; 19=Self-ab u2ndbiggestproblem
Query ihf_242 Integer Recommended Third Biggest Problem 1::19 1=Lack of effective chewing or swallowing; 2=Seizures;3= Lack of effective communication; 4=Air swallowing/Bloating/Excessive Gas; 5=Teeth Grinding (while awake); 6=Lack of hand use; 7=Scoliosis (curvature of the spine); 8=Constipation; 9=Gastroesophageal reflux; 10=Screaming episodes; 11=Vision; 12=Abnormal Walking/Balance Issues; 13=Rapid breathing or breath holding while awake; 14=Problems with sleep;15= Repetitive hand movements (wringing, mouthing); 16=Poor weight gain;17= Frequent infections; 18=Aggressiveness towards others; 19=Self-ab u3rdbiggestproblem
Query ihf_133a Integer Recommended Other Intermittent Therapy Frequency, 2 1::4 1=more than once a week; 2=every other week; 3=once a week; 4=once a month othintermittenttherfreq2_1
Query ihf_134a String 50 Recommended Other Intermittent Therapy Specify, 2 othintermittenttherapyspeci2_1
otherskillspecify3_1 String 100 Recommended Other skill 3
otherskillspecify4_1 String 100 Recommended Other skill 4
Query otherskillperformed3_1 Integer Recommended Other Skill How Performed 3 1;2 1=alone; 2=hand-over-hand only
Query otherskillperformed4_1 Integer Recommended Other Skill How Performed 4 1;2 1=alone; 2=hand-over-hand only
liveswithchild_children Integer Recommended Lives With Child: Children 0;1 0 = unchecked box; 1 = checked box
liveswithchild_noone Integer Recommended Lives With Child: No one 0;1 0 = unchecked box; 1 = checked box
liveswithchild_spouse Integer Recommended Lives With Child: Spouse 0;1 0 = unchecked box; 1 = checked box
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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