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Data Structures with shared data
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Brief Illness Perception Questionnaire

220 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/08/2017
ipq01
06/08/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* subject_key
src_subject_id String 20 Required Subject ID how it's defined in lab/project subejct_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
version_form String 121 Recommended Form used/assessment name
Query ipq_1 Integer Recommended How much does your/ your child's illness/developmental concerns affect your life? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_2 Integer Recommended How long do you think your/your child's illness/developmental concerns will continue? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_3 Integer Recommended How much control do you feel you have over your/your child illness/developmental concerns? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_4 Integer Recommended How much do you think your/ your child's treatment can help your/his/her illness/developmental concerns? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_5 Integer Recommended How much do you/your child experience symptoms from your/your child's illness/developmental concerns? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_6 Integer Recommended How concerned are you about your/your child' illness? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_7 Integer Recommended How well do you feel you understand your/ your child's illness/developmental concerns? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_8 Integer Recommended How much does your/your child's aillness/developmental concerns affect you emotionally? (e.g. does it make you angry, scared, upset, or depressed?) 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_9 Integer Recommended Compared to one year ago, how prepared do you feel to manage your/your child's illness/developmental needs? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Query ipq_10 Integer Recommended How much do you share your/your child's illness/developmental diagnosis with other people such as friends and family members? 0 :: 10; 99 0=no affect at all; 10=severely affects my life; 99=Missing value
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.