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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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KAPS-Provider Survey

kap

01

Healthcare provider self-reported suicide knowledge, screening, and management practices was assessed before and after the implementation of universal screening

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubjid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fielddate
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender, q01
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.q02
completedIntegerRecommendedChecks if completed0::30=No; 1=Yes; 2=Yes, lost; 3=Unverifiedsurvey_complete
hispanicIntegerRecommendedIs subject of Hispanic, Latino, or Spanish origin?0; 1; 9990 = No; 1 = Yes; 999= missingq03
raceString30RecommendedRace of study subjectAmerican Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
ethnic_groupString255RecommendedEthnic groupq04a
q05IntegerRecommendedWhat is your current clinical position?1::4; -888; -9991=Nurse; 2=Staff/Attending physician; 3=Resident physician; 4=Other; -888=Not Applicable; -999=Missing;
q06String50RecommendedIf other, please describe
q07IntegerRecommendedHow many years have you been working in medicine/healthcare, excluding training (e.g., medical, nursing, or professional school)?
q07aIntegerRecommendedOn average, how many suicidal patients do you typically see in a month? Please insert a whole number, not a range.
q07bIntegerRecommendedOver the past month, how often did you use the patient safety secondary screener (a tool designed to help you decide whether to consult mental health)?1::5; -888; -9991=Hardly ever; 2=Sometimes; 3=Often; 4=Almost always; 5=Not familiar with this tool; -888=Not Applicable; -999=Missing;
q08IntegerRecommendedI am confident that I have the skills needed to screen patients for suicidality.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q09IntegerRecommendedI am confident in my ability to further assess a patients suicide risk severity.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q10IntegerRecommendedI know how to provide brief counseling to suicidal patients.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q11IntegerRecommendedI am confident in my ability to help patients at risk for suicide create a personalized safety plan.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q12IntegerRecommendedI am confident in my ability to help find referral resources for suicidal patients.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q13IntegerRecommendedUniversal screening for suicide will result in increased psychiatric evaluations.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q14IntegerRecommendedUniversal screening for suicide will slow down clinical care.1::5; -888; -9991=Strongly Disagree; 2=Disagree; 3=Uncertain; 4=Agree; 5=Strongly Agree; -888=Not Applicable; -999=Missing;
q15IntegerRecommendedWhat proportion of suicides do you consider preventable?1::5; -888; -9991=None; 2=A Few; 3=Some; 4=Most; 5=All; -888=Not Applicable; -999=Missing;
q16IntegerRecommendedWhat proportion of patients do you screen for suicide ideation?1::5; -888; -9991=None; 2=A Few; 3=Some; 4=Most; 5=All; -888=Not Applicable; -999=Missing;
q17IntegerRecommendedOf patients who are suicidal, what proportion do you assess for risk severity?1::5; -888; -9991=None; 2=A Few; 3=Some; 4=Most; 5=All; -888=Not Applicable; -999=Missing;
q18IntegerRecommendedOf patients who are suicidal, what proportion do you create a safety plan for?1::5; -888; -9991=None; 2=A Few; 3=Some; 4=Most; 5=All; -888=Not Applicable; -999=Missing;
q19IntegerRecommendedOf patients who are suicidal, what proportion do you briefly counsel?1::5; -888; -9991=None; 2=A Few; 3=Some; 4=Most; 5=All; -888=Not Applicable; -999=Missing;
q20IntegerRecommendedOf patients who are suicidal, what proportion do you provide referrals to outpatient or community resources for?1::5; -888; -9991=None; 2=A Few; 3=Some; 4=Most; 5=All; -888=Not Applicable; -999=Missing;
q22IntegerRecommendedWhen the patient reports sometimes feeling suicidal in past month, but is not suicidal now.1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q23IntegerRecommendedWhen the patient reports feeling suicidal today, but has no suicide plans.1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q24IntegerRecommendedWhen the patient has a suicide plan, but the plan does not involve a gun.1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q25IntegerRecommendedWhen the patient has a suicide plan that does involve a gun.1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q26IntegerRecommendedWhen the patient is in the ED for multi-drug ingestion, but no longer feels suicidal.1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q27IntegerRecommendedWhen the patient is in the ED for unintentional overdose and reveals feeling depressed, but is not suicidal.1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q28IntegerRecommendedHow often do you personally counsel patients or their families to remove or lock up any guns at home?1::5; -888; -9991=Almost always; 2=Often; 3=Sometimes; 4=Hardly ever; -888=Not Applicable; -999=Missing;
q29_1IntegerRecommendedWhose responsibility do you think it is to ASSESS a patients access to firearms and other lethal means to commit suicide? ED nurse0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q29_2IntegerRecommendedWhose responsibility do you think it is to ASSESS a patients access to firearms and other lethal means to commit suicide? ED physician0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q29_3IntegerRecommendedWhose responsibility do you think it is to ASSESS a patients access to firearms and other lethal means to commit suicide? Psychiatrist0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q29_4IntegerRecommendedWhose responsibility do you think it is to ASSESS a patients access to firearms and other lethal means to commit suicide? Social Worker0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q29_5IntegerRecommendedWhose responsibility do you think it is to ASSESS a patients access to firearms and other lethal means to commit suicide? Psychiatric nurse0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q29_6IntegerRecommendedWhose responsibility do you think it is to ASSESS a patients access to firearms and other lethal means to commit suicide? Other0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q30String100RecommendedIf Other, please describe
q31_1IntegerRecommendedWhose responsibility do you think it is to COUNSEL patients and their families to limit access to firearms and other lethal means to commit suicide? ED nurse0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q31_2IntegerRecommendedWhose responsibility do you think it is to COUNSEL patients and their families to limit access to firearms and other lethal means to commit suicide? ED physician0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q31_3IntegerRecommendedWhose responsibility do you think it is to COUNSEL patients and their families to limit access to firearms and other lethal means to commit suicide? Psychiatrist0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q31_4IntegerRecommendedWhose responsibility do you think it is to COUNSEL patients and their families to limit access to firearms and other lethal means to commit suicide? Social Worker0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q31_5IntegerRecommendedWhose responsibility do you think it is to COUNSEL patients and their families to limit access to firearms and other lethal means to commit suicide? Psychiatric nurse0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q31_6IntegerRecommendedWhose responsibility do you think it is to COUNSEL patients and their families to limit access to firearms and other lethal means to commit suicide? Other0;1;-888;-9990=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing;
q32String100RecommendedIf Other, please describe
q32aIntegerRecommendedEach month in the United States, over 1,000 people die by suicide using firearms. Had a firearm not been accessible to them, how many do you think would have found another way to die by suicide?1::4; -888; -9991=Few; 2=Some; 3=Most; 4=All; -888=NotApplicable; -999=Missing;
q33IntegerRecommendedStaffing by mental health providers is sufficient to handle the patient care load.1::4; -888; -9991=Hardly ever; 2=Sometimes; 3=Often; 4=Almost always; -888=Not Applicable; -999=Missing;
q34IntegerRecommendedED leadership support improvement in interventions for suicidal patients in the ED.1::4; -888; -9991=Hardly ever; 2=Sometimes; 3=Often; 4=Almost always; -888=Not Applicable; -999=Missing;
q35IntegerRecommendedIn providing clinical care, treatment of suicidal patients is a top priority in the ED.1::4; -888; -9991=Hardly ever; 2=Sometimes; 3=Often; 4=Almost always; -888=Not Applicable; -999=Missing;
sitenumIntegerRecommendedSite Number900=Marlborough Hospital; 200=Maricopa Medical Center; 300=Memorial Hospital of Rhode Island; 400=Ohio State University Medical Center; 500=University of Arkansas Medical Center; 600=Beth Israel Deaconess Medical Center; 700=University of Nebraska Medical Center; 800=University of Colorado Hospital; 100=University of Massachusetts Memorial Hospital; -888=Not Applicable; -999=Missing;
studyphaseIntegerRecommendedStudy Phase1::3; -888; -9991=Phase 1: Treatment as Usual(TAU); 2=Phase 2: Screening Only; 3=Phase 3: Intervention; -888=Not Applicable; -999=Missing;
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: kap01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.