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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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MACH15 Demographics

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Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
baseline_b_011 Integer Recommended Do you live alone? 0;1; -888; -999 0=No; 1=Yes; -888=Not Applicable; -999=Missing; livealone
livespou Integer Recommended Living Arrangement: Spouse/Partner 0;1 0= Unchecked, 1= Checked
livechild Integer Recommended Living Arrangement: Child 0;1 0= Unchecked, 1= Checked
livefrnd Integer Recommended Living Arrangement: Friend 0;1 0= Unchecked, 1= Checked
liveothrel Integer Recommended Living Arrangement: Other relative 0;1 0= Unchecked, 1= Checked
liveemp Integer Recommended Living Arrangement: Paid employee 0;1 0= Unchecked, 1= Checked
living_notes String 255 Recommended Living arrangements (specify) liveoth
liverefsd Integer Recommended Refused Living Arrangement 0= Unchecked, 1= Checked
maritalsts Integer Recommended Martial Status 1::7 1= Married/Partnered; 2= Separated; 3= Divorced; 4= Widowed; 5= Never Married; 6= Other (Specify); 7= Refused
marital_status_specify String 255 Recommended Other marital status - Please describe: marstsoth
hlpshppng Integer Recommended Do you need help with: Shopping 0;1 0= Unchecked, 1= Checked
hlpcookng Integer Recommended Do you need help with: Cooking or preparing meals 0;1 0= Unchecked, 1= Checked
hlpmeds Integer Recommended Do you need help with: Managing Medications 0;1 0= Unchecked, 1= Checked
hlptrans Integer Recommended Do you need help with: Driving or arranging transportation 0;1 0= Unchecked, 1= Checked
hlp_phone Integer Recommended Do you need help with: Using a telephone 0;1 0= Unchecked, 1= Checked
hlpwork Integer Recommended Do you need help with: Housework/Yardwork 0;1 0= Unchecked, 1= Checked
hlpfincs Integer Recommended Do you need help with: Managing Finances 0;1 0= Unchecked, 1= Checked
everwrked Integer Recommended How many years of education have you completed? 1::9 1= Did not go to school; 2= Some Grade school (1-5 years); 3= Middle school (6-8 years); 4= Some high school (9-11 years); 5= High school diploma (12 years); 6= Associate Degree (14 years); 7= Bachelor's degree (16 years); 8= Master's degree (18 years); 9= Doctoral degree (JD, PhD, MD) (20 years)
wrktype Integer Recommended What kind of work have you done most of your life? (What was your job called?) 1::18 1 = Administrator/manager; 2= Arts/design/sports/entertainment; 3= Business and finance/small business owner; 4= Clerical (secretary, clerk, mail carrier); 5= Information technology; 6= Education (teacher, professor, librarian); 7= Engineer/architecture; 8= Equipment or vehicle operator (driver, railroad brakeman); 9= Farmer/fishery/forestry; 10= Health care professional (physician, nurse, physical therapist); 11= Hospitality industry (restaurant, hotel); 12= Laborer; 13= Legal (lawyer, paralegal); 14= Member of military; 15= Personal care/service (hairdresser, barber, massage therapist); 16= Protective service (police, firefighter, paramedic); 17= Sales occupations (salesperson, demonstrator, agent, broker); 18= Skill trades (electrician, plumber, carpenter)
eo4 Integer Recommended Are you currently working at a job or business for pay 0;1;9 0=No; 1=Yes; 9 = Missing workvolun
lnghrs Integer Recommended How many hours per week did the client work at that job wrkhrswk
smoke Integer Recommended Have you smoked at least 100 cigarettes (5 packs) in entire life 0;1 0=No; 1=Yes cigs100
smkage Integer Recommended How old when first started smoking cigarettes fairly regularly smokage
cigarette_30day_smoking Integer Recommended Now think about the past 30 days, including today. During the past 30 days, have you smoked part or all of a cigarette? PX030801_30Day_Cigarette_Smoking 1;2;99 1=Yes; 2=No; 99=DK/refused cigs30days
lscigsperday Integer Recommended On average, during the last 30 days, about how many cigarettes a day do you smoke?
quitage Integer Recommended How old were you when you quit smoking cigarettes?
evryday_smoker_qty_1day Integer Recommended Protocol A is used with adults who are Every-Day Smokers. On the average, about how many cigarettes do you now smoke each day? PX030802_Everyday_Smoker_Quantity_1Day 1::99 fcigsperday
secondhnd Integer Recommended During the past year, about how many hours per week were you in close contact with people when they were smoking (e.g, in your home, in a car, at work or other close quarters)? Round up to the nearest hour.
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.