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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Current Menstrual State and Menstrual History

mchq

01

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectsubject_id
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fielddate_ctq, v2_ctq_date
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.v2_ctq_age
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
hysterecIntegerRecommendedhysterectomy
0;1;-7; 888; 999
0=No; 1=Yes; -7=Refused; 888=N/A; 999=missing datamchq_1
hystageIntegerRecommendedage at hysterectomy888=N/A; 999=missing datamchq_2
mchq_3IntegerRecommendedRemoval of one or both ovaries?1;2; 888; 9991=Yes; 2=No; 888=N/A; 999=missing data
mchq_4IntegerRecommendedRemoval of one or both ovaries - Age of Surgery1::100; 888; 999888=N/A; 999=missing data
mchq_5IntegerRecommendedPolycystic Ovary Disease (Stein-Leventhal Syndrome)
1;2; 888; 999
1=Yes; 2=No; 888=N/A; 999=missing datagynecological_hist_4a
mchq_6IntegerRecommendedPolycystic Ovary Disease (Stein-Leventhal Syndrome) - Age of Onset1::100; 888; 999888=N/A; 999=missing data
mchq_7IntegerRecommendedAbnormal pap smear?1;2; 888; 9991=Yes; 2=No; 888=N/A; 999=missing data
mchq_8IntegerRecommendedAbnormal pap smear - Age of Onset1::100; 888; 999888=N/A; 999=missing data
endomsisIntegerRecommendedendometriosis
0;1;-7; 888;999
0=No; 1=Yes; -7=Refused; 888=N/A; 999=missing datamchq_9
mchq_10IntegerRecommendedEndometriosis - Age of Onset1::100; 888; 999888=N/A; 999=missing data
mchq_11IntegerRecommendedPelvic Inflammatory Disease (infection of your womb tubes)?1;2; 888; 9991=Yes; 2=No; 888=N/A; 999=missing data
mchq_12IntegerRecommendedPelvic Inflammatory Disease (infection of your womb tubes) - Age of Onset1::100; 888; 999888=N/A; 999=missing data
mchq_13IntegerRecommendedAmenorrhea (? 3 months without a period when not pregnant)?
1;2; 888; 999
1=Yes; 2=No; 888=N/A; 999=missing datagynecological_hist_4c
mchq_14IntegerRecommendedAmenorrhea (? 3 months without a period when not pregnant) - Age of Onset1::100; 888; 999888=N/A; 999=missing data
scq_23_spString100RecommendedSpecify any other gynecological problemmchq_15
mchq_16IntegerRecommendedOther Gynecological condition - Age of Onset1::100; 888; 999888=N/A; 999=missing data
mchq_17IntegerRecommendedDo you have regular menstrual cycles?1;2; 888; 9991=Yes; 2=No; 888=N/A; 999=missing data
mchq_18String100RecommendedDo you have regular menstrual cycles. If no, explain
femenstFloatRecommendedAge (in years) at First Menstrual Period1::100; 888; 999888=N/A; 999=missing datagynecological_hist_9, mchq_19
mchq_20IntegerRecommendedAt what age did your mother have her very first period?1::100; 888; 999888=N/A; 999=missing data
mchq_21IntegerRecommendedAbout how long is your entire cycle?1; 2; 31= less than every 25 days; 2= between 25-35 days; 3= more than every 35 days
mchq_23DateRecommendedWhen was the previous menstrual period (before the last menstrual period
mchq_24IntegerRecommendedDo you remember when you first started developing breasts (age)?1::100; 888; 999888=N/A; 999=missing data
mchq_25IntegerRecommendedIf you are not having regular periods: At what age did your periods become irregular1::100; 888; 999888=N/A; 999=missing data
mchq_26IntegerRecommendedIf you are not getting your periods: at what age did they stop1::100; 888; 999888=N/A; 999=missing data
mchq_27IntegerRecommendedIf your periods were irregular before the age of 15, how many periods per year on average have you had from the age at your first period to 15 years0 :: 1260; 888; 999888=N/A; 999=missing data
mchq_28IntegerRecommendedIf your periods were irregular during ages 16-18, how many periods per year on average have you had from 16-18 years old0 :: 1260; 888; 999888=N/A; 999=missing data
mchq_29IntegerRecommendedIf your periods were irregular during ages 19-21, how many periods per year on average have you had from 19-21 years old0 :: 1260; 888; 999888=N/A; 999=missing data
mchq_30IntegerRecommendedIf your periods were irregular during ages 22-25, how many periods per year on average have you had from 22-25 years old0 :: 1260; 888; 999888=N/A; 999=missing data
mchq_31String100RecommendedWhat kind of sports activities (team or solo) are you engaged in?
mchq_32IntegerRecommendedHow many hours per week do you typically spend on this activity?0 :: 200; 888; 999888=N/A; 999=missing data
mchq_33IntegerRecommendedAt what age did this activity begin?1::100; 888; 999888=N/A; 999=missing data
mchq_34IntegerRecommendedIs the activity on going?1;2; 888; 9991=Yes; 2=No; 888=N/A; 999=missing data
mchq_35IntegerRecommendedIf it is not ongoing, when did you stop this activity? (activity age in years)1::100; 888; 999888=N/A; 999=missing data
mchq_36IntegerRecommendedDo you currently use a hormonal contraceptive (oral, implant, patch, or hormone-secreting IUD) or are you on any hormone therapy?1;2; 888; 9991=Yes; 2=No; 888=N/A; 999=missing data
mchq_37String25RecommendedIf yes, please list contraceptive using the code below1=OC's for contraception; 2=OC's primarily for menstrual regulation; 3=Other estradiol for menstrual regulation; 4=progesterone for menstrual regulation; 5=fertility therapy; 6=other; 7=unknown
meau_01bDateRecommendedWhen was the first day of your last menstrual period?mchq_38
mchq_39DateRecommendedCan you approximate, based on your experience, when you expect the onset of your next period?
labsample29String10RecommendedDate of last menstrual periodNA=if male or pre-pubertympdatm
gynecological_hist_2IntegerRecommendedHow many times have you been pregnant including miscarriages or abortions?If this does not apply to you, type "0".
gynecological_hist_3bIntegerRecommendedWhat was this first hormone used for?1::61 = Birth control for contraception ; 2 = Birth control for menstrual regulation ; 3 = Estrogen pill for menstrual regulation ; 4 = Progesterone pill for menstrual regulation ; 5 = Other ; 6 = unknown
gynecological_hist_3cString100RecommendedAt what age did you begin using this first hormone?
gynecological_hist_3dIntegerRecommendedHow many months did you use this first hormone for?Please only write the number of months (i.e., enter "6" for 6 months of use)
gynecological_hist_3eIntegerRecommendedHave you used another female hormone?0;10 = No; 1 = Yes
gynecological_hist_3b_2IntegerRecommendedWhat was this second hormone used for?1::61 = Birth control for contraception ; 2 = Birth control for menstrual regulation ; 3 = Estrogen pill for menstrual regulation ; 4 = Progesterone pill for menstrual regulation ; 5 = Other ; 6 = unknown
gynecological_hist_3c_2String100RecommendedAt what age did you begin using this second hormone?
gynecological_hist_3d_2IntegerRecommendedHow many months did you use this second hormone for?Please only write the number of months (i.e., enter "6" for 6 months of use)
gynecological_hist_3e_2IntegerRecommendedHave you used another female hormone?0;10 = No; 1 = Yes
gynecological_hist_3b_3IntegerRecommendedWhat was this third hormone used for?1::61 = Birth control for contraception ; 2 = Birth control for menstrual regulation ; 3 = Estrogen pill for menstrual regulation ; 4 = Progesterone pill for menstrual regulation ; 5 = Other ; 6 = unknown
gynecological_hist_3c_3String100RecommendedAt what age did you begin using this third hormone?
gynecological_hist_3d_3IntegerRecommendedHow many months did you use this third hormone for?Please only write the number of months (i.e., enter "6" for 6 months of use)
gynecological_hist_3e_3IntegerRecommendedHave you used another female hormone?0;10 = No; 1 = Yes
gynecological_hist_3b_4IntegerRecommendedWhat was this fourth hormone used for?1::61 = Birth control for contraception ; 2 = Birth control for menstrual regulation ; 3 = Estrogen pill for menstrual regulation ; 4 = Progesterone pill for menstrual regulation ; 5 = Other ; 6 = unknown
gynecological_hist_3c_4String100RecommendedAt what age did you begin using this fourth hormone?
gynecological_hist_3d_4IntegerRecommendedHow many months did you use this fourth hormone for?Please only write the number of months (i.e., enter "6" for 6 months of use)
gynecological_hist_3e_4IntegerRecommendedHave you used another female hormone?0;10 = No; 1 = Yes
gynecological_hist_3b_5IntegerRecommendedWhat was this fifth hormone used for?1::61 = Birth control for contraception ; 2 = Birth control for menstrual regulation ; 3 = Estrogen pill for menstrual regulation ; 4 = Progesterone pill for menstrual regulation ; 5 = Other ; 6 = unknown
gynecological_hist_3c_5String100RecommendedAt what age did you begin using this fifth hormone?
gynecological_hist_3d_5IntegerRecommendedHow many months did you use this fifth hormone for?Please only write the number of months (i.e., enter "6" for 6 months of use)
gynecological_hist_4bIntegerRecommendedHirsutism (excessive hair growth, especially on face)0;10 = No; 1 = Yes
gynecological_hist_4dIntegerRecommendedGalactorrhea (breast milk production when not pregnant or lactating)0;10 = No; 1 = Yes
gynecological_hist_6IntegerRecommendedAre your menstrual cycles regular now? In other words, is the onset of each period generally predictable within 5 days?0;10 = No; 1 = Yes
gynecological_hist_7IntegerRecommendedOn average, how regularly do you have a period?1::31 = Less than every 25 days ; 2 = Between 25-35 days ; 3 = More than every 35 days
gynecological_hist_8IntegerRecommendedHow many days does your period usually flow?Please write an integer (i.e., write 5 for 5 days)
pregevIntegerRecommendedHave you ever been pregnant0;10=No; 1=Yesgynecological_hist_1
medication1_nameString500RecommendedName first medication that the participant has taken0 = No medication; 999= Legitimately skippedgynecological_hist_3a
medication2_nameString200RecommendedName second medication that the participant has taken0 = No medication; 999= Legitimately skippedgynecological_hist_3a_2
medication3_nameString150RecommendedName third medication that the participant has taken0 = No medication; 999= Legitimately skippedgynecological_hist_3a_3
medication4_nameString100RecommendedName fourth medication that the participant has taken0 = No medication; 999= Legitimately skippedgynecological_hist_3a_4
medication5_nameString500RecommendedName fifth medication that the participant has taken0 = No medication; 999= Legitimately skippedgynecological_hist_3a_5
daylastpdString30RecommendedFirst day of last menstrual period ( in days/months/years ago)gynecological_hist_5, men_start
bcpeverIntegerRecommendedever taken birth control pills or progesterone0;1;-70=No; 1=Yes; -7=Refusedgynecological_hist_3
pds6gIntegerRecommendedGirls only : Have you begun to menstruate?0;10=No; 1=Yesmen_period
regmenseIntegerRecommendedRegular menstrual periods0;1; 9990=No;1=Yes; 999=NAmen_reg
rlhq2q1IntegerRecommendedCurrent use of ORAL contraceptive pills?
1;2
1=Yes; 2=Nomen_contr
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: mchq01 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.