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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

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Medical Demographics

857 Shared Subjects

Medical Demographics
Clinical Assessments
Med History
12/19/2012
meddem01
07/05/2019
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01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project sample_id_original
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field medhist_date, visit_survey_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
Query strdatapt String 10 Recommended Which datapoint is this test to be counted as? Pre;Post;Post-Post
Query child_residence String 55 Recommended Child lives with 1. Both biological mother and father;2. Biological mother only;3. Biological father only;4. Biological mother and stepfather;5. Biological father and stepmother;6. Adoptive parents;7. Foster parents;8. Relatives;9. Other please specify; 10. Refused; Both natural parents; Natural father only; Natural father and stepmother; Natural mother only; Natural mother and stepfather; Adoptive or foster parents; Relatives - please specify; Institution - please specify strFamilyBackground
liveswithother String 50 Recommended Child lives with other, specify strLivesWithOther
Query strrelchild1 String 50 Recommended Relationship to the child of other person living in the home
Query strrelchild2 String 50 Recommended Relationship to the child of other person living in the home
strrelchild3 String 50 Recommended Relationship to the child of other person living in the home
strrelchild4 String 50 Recommended Relationship to the child of other person living in the home
strrelchild5 String 50 Recommended Relationship to the child of other person living in the home
strrelchild6 String 50 Recommended Relationship to the child of other person living in the home
Query bio_mother_occupation String 100 Recommended Biological Mother Occupation mother_job, strMomOccupation
Query mother_edu String 55 Recommended Mother's Education No formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School; Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional Training; Some Grade School strMomEducationLevel
Query bio_father_occupation String 100 Recommended Biological Father Occupation father_job, strFatherOccupation
Query father_edu String 55 Recommended Father's Education No formal schooling completed; Nursery school to 4th grade; 5th or 6th grade; 7th or 8th grade; 9th grade; 10th grade;11th grade; 12th grade, no diploma; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelors's degree; Master's degree; Professional degree; Doctorate degree;Refused; Some elementary; Elementary; Some Middle School; Middle School; Some High School; GED; High School; Trade School/Certification Program; Some College; Undergraduate Degree; Some Graduate School;Less than 7th grade; Junior High; Some High School; High School Graduate; Some College; Special Training After High School; College Graduate; Graduate/Professional Training;Some Grade School strFatherEducationLevel
Query ques_age1 Integer Recommended Age -Sibling 1(in months) 0 :: 1200 strAgeChild1
Query ques_gender1 String 50 Recommended Gender -Sibling 1
M;F;T
M = Male; F = Female; T =Transgender strSexChild1
Query ques_gradal1 String 50 Recommended Last grade completed -Sibling 1 strGradeLvlChild1
Query strdiagconcernschild1 String 50 Recommended First sibling diagnoses or Concerns
Query ques_age2 Integer Recommended Age -Sibling 2(in months) 0 :: 1200 strAgeChild2
Query ques_gender2 String 50 Recommended Gender -Sibling 2
M;F
M = Male; F = Female strSexChild2
Query ques_gradal2 String 50 Recommended Last grade completed -Sibling 2 strGradeLvlChild2
Query strdiagconcernschild2 String 50 Recommended Second sibling diagnoses or Concerns
Query ques_age3 Integer Recommended Age -Sibling 3(in months) 0 :: 1200 strAgeChild3
Query ques_gender3 String 50 Recommended Gender -Sibling 3
M;F
M = Male; F = Female strSexChild3
ques_gradal3 String 50 Recommended Last grade completed -Sibling 3 strGradeLvlChild3
strdiagconcernschild3 String 50 Recommended Third sibling diagnoses or Concerns
Query ques_age4 Integer Recommended Age -Sibling 4(in months) 0 :: 1200 strAgeChild4
Query ques_gender4 String 50 Recommended Gender -Sibling 4
M;F
M = Male; F = Female strSexChild4
ques_gradal4 String 50 Recommended Last grade completed -Sibling 4 strGradeLvlChild4
strdiagconcernschild4 String 50 Recommended Fourth sibling diagnoses or Concerns
Query ques_age5 Integer Recommended Age -Sibling 5(in months) 0 :: 1200 strAgeChild5
Query ques_gender5 String 50 Recommended Gender -Sibling 5
M;F
M = Male; F = Female strSexChild5
ques_gradal5 String 50 Recommended Last grade completed -Sibling 5 strGradeLvlChild5
strdiagconcernschild5 String 50 Recommended Fifth sibling diagnoses or Concerns
Query ques_age6 Integer Recommended Age -Sibling 6(in months) 0 :: 1200 strAgeChild6
Query ques_gender6 String 50 Recommended Gender -Sibling 6
M;F
M = Male; F = Female strSexChild6
ques_gradal6 String 50 Recommended Last grade completed -Sibling 6 strGradeLvlChild6
strdiagconcernschild6 String 50 Recommended Sixth sibling diagnoses or Concerns
Query strconaut String 5 Required Does the child have Autism, PDD, Asperger's?
Yes; No;999
Query strotherfamdiag String 255 Recommended Any other Family members diagnosed on EITHER side? Please specify
Query treatment_name String 200 Recommended treatment name strTxReceivedAut
Query child_seizure String 50 Required Has she/he ever been to a doctor for any of these things…Epilepsy or Seizures /Epilepsia o convulsiones
Yes;No;999
Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life. medhx_3, strConSeizures
Query strseizuresinfancy String 5 Required Seizures, convulsions, epilepsy: Infancy only? Yes; No;999
Query rev_headfebseiz String 50 Recommended Febrile Seizures
Yes; No; NK; NS
NK= Not known; NS = Not sure strSeizuresFebrile
Query strseizurestreat String 5 Recommended Seizures, convulsions, epilepsy: Treated and resolved? Yes; No
Query strseizuresongoing String 5 Required Seizures, convulsions, epilepsy: Ongoing issue? Yes; No;999
strtxreceivedseizures String 255 Recommended What treatment was/is received?
Query child_cerpalsy String 50 Required Does (did) the Child have Cerebral Palsy?
Yes; No; NK; NS
NK= Not known; NS = Not sure strConCPalsy
strcpalsyadditional String 50 Recommended Additional Information
strtxreceivedcpalsy String 255 Recommended What treatment was/is received?
Query child_cancer String 50 Recommended Does the Child have Cancer?
Yes;No
medhx_14, strConCancer
child_cancer_cmt String 255 Recommended Specify Child's Cancer type medhx_14_txt, strCancerAdditional
strtxreceivedcancer String 255 Recommended What treatment was/is received?
Query strconmuscularweak String 5 Recommended Does the child have Muscular Weakness?
Yes; No
strmuscularweakadditional String 50 Recommended Additional Information
strtxreceivedmuscularweak String 255 Recommended What treatment was/is received?
Query strconmotordelay String 5 Recommended Does the child have motor delays or slow motor development?
Yes; No
strmotordelayadditional String 50 Recommended Additional Information
strtxreceivedmotordelay String 255 Recommended What treatment was/is received?
Query chi_def Integer Recommended please indicate if your child has any deformity
0; 1
0 = No; 1 = Yes strConDeformities
strdeformitiesadditional String 50 Recommended Additional Information
strtxreceiveddeformities String 255 Recommended What treatment was/is received?
Query rev_eyeimpair String 50 Recommended Visual impairments
Yes;No;NK
NK = Not known strConSevVisImp
Query strsevvisimpadditional String 10 Recommended Additional Information Born with;Acquired
strtxreceivedsevvisimp String 255 Recommended What treatment was/is received?
Query hear_loss String 10 Required Deafness or significant hearing loss
Yes;No;NK
NK = Not known strConHearLoss
Query strhearlossadditional String 10 Recommended Additional Information Born with;Acquired
strtxreceivedhearloss String 255 Recommended What treatment was/is received?
Query child_speechdelay String 50 Recommended Does (did) the Child have a Speech/Language Delay?
Yes; No; NK; NS
NK= Not known; NS = Not sure strConSpeechProb
strspeechprobadditional String 50 Recommended Additional Information
Query strtxreceivedspeechprob String 255 Recommended What treatment was/is received?
Query strconsigcogdelay String 5 Recommended Does the child have significant cognitive delays?
Yes; No
strsigcogdelayadditional String 50 Recommended Additional Information
strtxreceivedsigcogdelay String 255 Recommended What treatment was/is received?
Query strconbraindamage String 5 Recommended Does the child have brain damage?
Yes; No
Query strbraindamageadditional String 10 Recommended Additional Information Born with;Acquired
strtxreceivedbraindamage String 255 Recommended What treatment was/is received?
Query ques_devdelaya String 50 Recommended Had or has a developmental delay -Child with Autism/Study Participant
Yes;No;NA
NA = Not answered strConDevDelay
strdevdelayadditional String 50 Recommended Additional Information
Query strtxreceiveddevdelay String 255 Recommended What treatment was/is received?
Query child_learndis String 50 Required Does (did) the Child have a Learning Disability?
Yes; No; NK; NS
NK= Not known; NS = Not sure strConLearnDis
strlearndisadditional String 50 Recommended Additional Information
strtxreceivedlearndis String 255 Recommended What treatment was/is received?
Query condition_emotion String 5 Recommended Emotional Disturbance or Serious Behavioral Difficulities
Yes; No
strConEmoBehaProb
stremobehaprobadditional String 50 Recommended Additional Information
Query strtxreceivedemobehaprob String 255 Recommended What treatment was/is received?
Query attentiondisorder Integer Recommended Does (did) the subject have Attention Deficit Disorder +/- Hyperactivity?
0;1;2
0 = No/False; 1 = Yes/True; 2 = Unknown strConADD
straddadditional String 50 Recommended Additional Information
strtxreceivedadd String 255 Recommended What treatment was/is received?
Query child_otherpsychdis String 50 Recommended Does (did) the Child have a Psychiatric Disorder?
Yes;No
strConPsycDis
child_otherpsychdis_cmt String 255 Recommended Specify Child's Psychiatric Disorder strPsycDisAdditional
strtxreceivedpsycdis String 255 Recommended What treatment was/is received?
Query touret String 10 Required Tourette Syndrome
Yes; No; NK; NS
NK= Not known; NS = Not sure medhist_9c, strConTourette
strtouretteadditional String 50 Recommended Additional Information medhist_9c_desc
strtxreceivedtourette String 255 Recommended What treatment was/is received?
Query strconneurofib String 5 Required Does the child have Neurofibromatosis?
Yes;No;999
999=NA/missing
strneurofibadditional String 50 Recommended Additional Information
strtxreceivedneurofib String 255 Recommended What treatment was/is received?
Query child_tuberscl String 50 Required Does (did) the Child have Tuberous Sclerosis?
Yes; No; NK; NS
NK= Not known; NS = Not sure medhx_4, strConTScler
strtscleradditional String 50 Recommended Additional Information medhx_4_txt
strtxreceivedtscler String 255 Recommended What treatment was/is received?
Query cfmh_chd_fragilex Integer Required Does (did) the Child have Fragile X?
1;0;999
0 = No; 1 = Yes strConFragX
strfragxadditional String 50 Recommended Additional Information
strtxreceivedfragx String 255 Recommended What treatment was/is received?
Query rev_endodiabetes String 50 Required Diabetes
Yes;No;NK
NK = Not known medhist_12a, medhx_11, strConDiabetes
Query rev_endodiabetestype String 50 Required Diabetes: Type I;II;999 medhist_12a_desc, medhx_11_txt, strDiabetesAdditional
strtxreceiveddiabetes String 255 Recommended What treatment was/is received?
Query strconimmuneprob String 5 Recommended Does the child have immune system problems?
Yes; No
strimmuneprobadditional String 50 Recommended Additional Information
strtxreceivedimmuneprob String 255 Recommended What treatment was/is received?
Query child_thyroiddis String 50 Required Does the Child have Thyroid Disease?
Yes;No;999
999=NA/missing strConThyroid
strthyroidadditional String 50 Recommended Additional Information
strtxreceivedthyroid String 255 Recommended What treatment was/is received?
Query strconkidney String 5 Recommended Does the child/patient have kidney disease?
Yes; No
strkidneyadditional String 50 Recommended Additional Information
strtxreceivedkidney String 255 Recommended What treatment was/is received?
Query strconheartdis String 5 Required Does the child/patient have heart disease?
Yes; No;999;Ref
Ref=refused; 999=NA/NK/missing medhx_12
strheartdisadditional String 50 Recommended Additional Information - specify medhx_12_txt
strtxreceivedheartdis String 255 Recommended What treatment was/is received?
Query strconallergies String 5 Recommended Does the subject have allergies?
Yes; No
medhist_1b
strallergiesadditional String 50 Recommended Additional Information - specify medhist_1b_other
strtxreceivedallergies String 255 Recommended What treatment was/is received?
Query strconother String 5 Recommended Other condition?
Yes; No
medhx_20
strotheradditional String 50 Recommended Additional Information - specify medhx_20_txt
strtxreceivedother String 255 Recommended What treatment was/is received?
Query info_gest String 50 Recommended No. Weeks Gestation (G.A.) intGestAge
Query strnicu String 3 Recommended Did the child spend any time in the NICU? Yes; No; NA NA=Not Applicable
Query strnicureasondur String 255 Recommended If yes, please specify the reason for and the duration of the NICU stay.
Query hospitalizations String 200 Recommended has the subject had any hospitalisations medhx_19, strHospital
dtmstarthosp1 String 100 Recommended Date 1st hospitalization began date_nphosp1, date_phosp1
dtmendhosp1 Date Recommended Date 1st hospitalization ended
Query strdurhosp1 String 255 Recommended If dates not given, duration of 1st hospitalization
Query strreasonhosp1 String 50 Recommended Reason for 1st hospitalization. medhx_19_txt
Query stroutcomehosp1 String 50 Recommended Outcome of 1st hospitalization.
dtmstarthosp2 String 100 Recommended Date 2nd hospitalization began date_nphosp2, date_phosp2
dtmendhosp2 Date Recommended Date 2nd hospitalization ended
strdurhosp2 String 255 Recommended If dates not given, duration of 2nd hospitalization
strreasonhosp2 String 50 Recommended Reason for 2nd hospitalization.
stroutcomehosp2 String 50 Recommended Outcome of 2nd hospitalization.
dtmstarthosp3 String 100 Recommended Date 3rd hospitalization began date_nphosp3, date_phosp3
dtmendhosp3 Date Recommended Date 3rd hospitalization ended
strdurhosp3 String 255 Recommended If dates not given, duration of 3rd hospitalization
strreasonhosp3 String 50 Recommended Reason for 3rd hospitalization.
stroutcomehosp3 String 50 Recommended Outcome of 3rd hospitalization.
dtmstarthosp4 String 100 Recommended Date 4th hospitalization began date_nphosp4, date_phosp4
dtmendhosp4 Date Recommended Date 4th hospitalization ended
strdurhosp4 String 255 Recommended If dates not given, duration of 4th hospitalization
strreasonhosp4 String 50 Recommended Reason for 4th hospitalization.
stroutcomehosp4 String 50 Recommended Outcome of 4th hospitalization.
strillness1 String 100 Recommended Date of 1st illness dtmIllness1
strage1 String 50 Recommended Child's age at 1st illness intAge1
Query strtx1 String 250 Recommended Treatment received mtxh_curtreatname1
stroutcome1 String 50 Recommended Outcome
strillness2 String 100 Recommended Date of 2nd illness dtmIllness2
strage2 String 50 Recommended Child's age at 2nd illness intAge2
strtx2 String 50 Recommended Treatment received mtxh_curtreatname2
stroutcome2 String 50 Recommended Outcome
strillness3 String 100 Recommended Date of 3rd illness dtmIllness3
strage3 String 50 Recommended Child's age at 3rd illness intAge3
strtx3 String 50 Recommended Treatment received mtxh_curtreatname3
stroutcome3 String 50 Recommended Outcome
strillness4 String 100 Recommended Date of 4th illness dtmIllness4
strage4 String 50 Recommended Child's age at 4th illness intAge4
strtx4 String 50 Recommended Treatment received mtxh_curtreatname4
stroutcome4 String 50 Recommended Outcome
Query medication1_name String 500 Recommended Name first medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_curmedname1, nonpsych_medname1, psych_medname1, strMed1
strmedstart1 Date Recommended What was the start date? dtmMedStart1, mtxh_curmed_start_mo1
strmedend1 Date Recommended What was the end date? dtmMedEnd1
Query strreason1 String 500 Recommended Reason for prescription 1 nonpsych_purpose1, psych_purpose1
Query strwork1 String 50 Recommended Did it work?
medication2_name String 200 Recommended Name second medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_curmedname2, strMed2
strmedstart2 Date Recommended What was the start date? dtmMedStart2, mtxh_curmed_start_mo2
strmedend2 Date Recommended What was the end date? dtmMedEnd2
Query strreason2 String 350 Recommended Reason for prescription 2
Query strwork2 String 50 Recommended Did it work?
Query medication3_name String 150 Recommended Name third medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_curmedname3, nonpsych_medname3, psych_medname3, strMed3
strmedstart3 Date Recommended What was the start date? dtmMedStart3, mtxh_curmed_start_mo3
strmedend3 Date Recommended What was the end date? dtmMedEnd3
Query strreason3 String 350 Recommended Reason for prescription 3 nonpsych_purpose3, psych_purpose3
strwork3 String 50 Recommended Did it work?
Query medication4_name String 100 Recommended Name fourth medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_curmedname4, nonpsych_medname4, psych_medname4, strMed4
strmedstart4 Date Recommended What was the start date? dtmMedStart4, mtxh_curmed_start_mo4
strmedend4 Date Recommended What was the end date? dtmMedEnd4
Query strreason4 String 255 Recommended Reason for prescription 4 nonpsych_purpose4, psych_purpose4
strwork4 String 50 Recommended Did it work?
Query medication5_name String 500 Recommended Name fifth medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_pastmedname1, nonpsych_medname5, psych_medname5, strMed5
strmedstart5 Date Recommended What was the start date? dtmMedStart5
strmedend5 Date Recommended What was the end date? dtmMedEnd5
Query strreason5 String 255 Recommended Reason for prescription 5 nonpsych_purpose5, psych_purpose5
strwork5 String 50 Recommended Did it work?
medication6_name String 500 Recommended Name sixth medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_pastmedname2, nonpsych_medname6, psych_medname6, strMed6
strmedstart6 Date Recommended What was the start date?
strmedend6 Date Recommended What was the end date?
strreason6 String 500 Recommended Reason for prescription 6 nonpsych_purpose6, psych_purpose6
strwork6 String 50 Recommended Did it work?
medication7_name String 100 Recommended Name seventh medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_pastmedname3, nonpsych_medname7, psych_medname7, strMed7
strmedstart7 Date Recommended What was the start date?
strmedend7 Date Recommended What was the end date?
strreason7 String 500 Recommended Reason for prescription 7 nonpsych_purpose7, psych_purpose7
strwork7 String 50 Recommended Did it work?
medication8_name String 100 Recommended Name eighth medication that the participant has taken 0 = No medication; 999= Legitimately skipped mtxh_pastmedname4, nonpsych_medname8, psych_medname8, strMed8
strmedstart8 Date Recommended What was the start date?
strmedend8 Date Recommended What was the end date?
strreason8 String 500 Recommended Reason for prescription 8 nonpsych_purpose8, psych_purpose8
strwork8 String 50 Recommended Did it work?
Query strviolence String 3 Recommended Has the child ever been exposed to violence, abuse, or neglect? Yes; No
strviolencedesc String 50 Recommended If yes, please describe.
Query strbeginconcern String 50 Recommended When did you first begin to have concerns about the child?
Query fsymc String 4,000 Recommended FIRST SYMPTOMS TO AROUSE PARENTAL CONCERN strThingsNoticed
Query diag_ageatdiag Integer Recommended Age at diagnosis(in months)
0 :: 1200
strAgeDiag
Query asd_details String 200 Recommended Details of ASD diagnosis strDiag
Query strdiagchanged String 3 Recommended Has this diagnosis changed since it was orginally given? Yes; No strDiagChanged
current_diagnosis String 255 Recommended Present Classification/Diagnosis strCurDiag
Query milestone_age_mo_smile Integer Recommended Age in which the participant accomplished the following milestone in months: smiled strAgeSmiled
Query milestone_age_mo_walkalone Integer Recommended Age in which the participant accomplished the following milestone in months: walked alone strAgeWalkedAlone
Query stragerodetri Integer Recommended Age at which the child accomplished riding a tricycle.(0=not yet accomplished) in months strAgeRodeTri
Query earlydev_bowel Integer Recommended Acquisition of bowel control (in months) 0 :: 900;993;994;995;996;997;998;999 993 = Achieved bowel control for a period of 12 months but has relapsed and now regularly soils; 994 = Never achieved continence; 995 = Still not reached, i.e., continent for period of less than 12 months; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked strAgeBowelDay
Query stragetiedshoe Integer Recommended Age at which the child accomplished tying shoelaces.(0=not yet accomplished) in months strAgeTiedShoe
stragealpha String 50 Recommended Age at which the child accomplished saying the alphabet in order.(0=not yet accomplished) strAgeAlpha
Query stragesatwosup Integer Recommended Age at which the child accomplished sitting without support. (0=not yet accomplished) in months strAgeSatWOSup
Query stragespoke1st Integer Recommended Age at which the child accomplished speaking 1st words. (0=not yet accomplished) in months strAgeSpoke1st
Query earlydev_drydz Integer Recommended Acquisition of bladder control: Daytime (in months) 0 :: 600;993;994;995;996;997;998;999 993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked strAgeBladderDay
Query earlydev_drynz Integer Recommended Acquisition of bladder control: Night (in months) 0 :: 600;993;994;995;996;997;998;999 993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached, i.e., continent for period of less than 12 months; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked strAgeBladderNight
Query toilet_train_night Integer Recommended 9. Acquisition of bladder control: nighttime 0 :: 120;993;994;995;996;997;998;999 993 = Successfully toilet trained for a period of 12 months but has relapsed and now regularly wets; 994 = Never achieved continence; 995 = Still not reached; 996 = N/K but apparently normal; 997 = N/K but apparently delayed; 998 = N/A; 999 = N/K or not asked strBowelNight
Query stragecolors Integer Recommended Age at which the child accomplished naming colors. (0=not yet accomplished) in months
strageread String 50 Recommended Age at which the child accomplished beginning to read. (0=not yet accomplished) in months
Query milestone_age_mo_crawl Integer Recommended Age in which the participant accomplished the following milestone in months: crawled strAgeCrawled
Query stragesentence Integer Recommended Age at which the child spoke a sentence. (0=not yet accomplished) in months
Query stragebutton Integer Recommended Age at which the child accomplished buttoning clothing. (0=not yet accomplished) in months
Query stragecircle Integer Recommended Age at which the child drew a circle. (0=not yet accomplished) in months
Query stragetrainwheel Integer Recommended Age at which the child rode a bicycle without training wheels. (0=not yet accomplished) in months
Query medhx_sleep_prob String 50 Recommended Does subject have sleep problems?
Yes; No
strSleepProb
Query strsleepagestart Integer Recommended Age when issues began. In months
Query strsleepageend Integer Recommended Age when issues ended. In months
Query medhx_sleep_prob_note String 255 Recommended Note regarding sleep problems strSleepDesc
Query streatprob String 5 Recommended Does your child have issues with eating?
Yes; No
Query streatagestart Integer Recommended Age when issues began. In months
Query streatageend Integer Recommended Age when issues ended.In months
Query streatdesc String 255 Recommended Describe issues eating.
Query strtoiletprob String 5 Recommended Does your child have issues with toilet training?
Yes; No
Query strtoiletagestart Integer Recommended Age when issues began. In months
Query strtoiletageend Integer Recommended Age when issues ended.In months
Query strtoiletdesc String 255 Recommended Describe issues toilet training.
Query strspec1 String 50 Recommended Provider Speciality
Query strspec2 String 50 Recommended Provider Speciality
Query strspec3 String 50 Recommended Provider Speciality
Query strspec4 String 50 Recommended Provider Speciality
Query strspec5 String 50 Recommended Provider Speciality
strspec6 String 50 Recommended Provider Speciality
strschooltype1 String 50 Recommended School Type
Query stryears1 String 50 Recommended Years Attended
Query strgrades1 String 50 Recommended Which Grades?
Query strservices1 String 50 Recommended Services Provided
strschooltype2 String 50 Recommended School Type
Query stryears2 String 50 Recommended Years Attended
Query strgrades2 String 50 Recommended Which Grades?
Query strservices2 String 50 Recommended Services Provided
strschooltype3 String 50 Recommended School Type
Query stryears3 String 50 Recommended Years Attended
Query strgrades3 String 50 Recommended Which Grades?
Query strservices3 String 50 Recommended Services Provided
strschooltype4 String 50 Recommended School Type
stryears4 String 50 Recommended Years Attended
strgrades4 String 50 Recommended Which Grades?
strservices4 String 50 Recommended Services Provided
strschooltype5 String 50 Recommended School Type
stryears5 String 50 Recommended Years Attended
strgrades5 String 50 Recommended Which Grades?
strservices5 String 50 Recommended Services Provided
strschooltype6 String 50 Recommended School Type
stryears6 String 50 Recommended Years Attended
strgrades6 String 50 Recommended Which Grades?
strservices6 String 50 Recommended Services Provided
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data medhist_notes, strNotes
Query sample_taken String 50 Recommended Was a sample taken at this interview/during this project time Yes;No
Query sample_description String 3,500 Recommended Sample description: tissue type, i.e. blood, saliva, brain etc. whole blood; saliva; brain; urine; serum; plasma; CSF; IPS; Fibroblast; Neuronal Progenitor; skin biopsy; temporal cortex; lymphoblastoid cell line; unknown; semen; frontal cortex; parietal cortex; basal ganglia; Placenta; hair; occipital visual cortex; cerebellum; spleen; stool; muscle; kidney; liver; heart
biorepository_name String 100 Recommended Biorepository where sample is stored
patient_id_biorepository String 100 Recommended Biorepository Patient ID
Query race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query efamno String 25 Recommended Study family ID as assigned by Genetic Contributions of Negative Valence Systems to Internalizing Pathways study staff
clcontactid String 20 Recommended Study family ID as assigned by Mid Atlantic Twin Registry staff
Query pair_number Integer Recommended Twin pair birth order
Query relation Integer Recommended Twin individual birth order
version_form String 100 Recommended Form used/assessment name
Query phenotype String 200 Required Phenotype/diagnosis for the subject group
Query phenotype_description String 4,000 Required Description of the phenotype for the subject subgroup
ethnic_group String 255 Recommended Ethnic group ethnicityspec
Query educat Float Recommended Number of years in formal education 999=Unknown/Missing education
grade_highed String 50 Recommended Grade/Highest education 1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo;l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high school ged
Query demo_resp_status Integer Recommended respondent's marital status 1 :: 11 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer marital_status
Query d1b Integer Recommended Number of times legally married including common law times_married
haschildren String 3 Recommended If participant has children N/No = No children, Y/Yes = Yes children
Query numchild Integer Recommended number of children childrennum
demo_income_other String 100 Recommended Income source: specify occupation
desc_worklength String 100 Recommended Work duration yrs_employed
fammember_sz String 3 Recommended If any family members are diagnosed with schizophrenia N/No = No family members with SZ, Y/Yes = Yes family member(s) with SZ
fammember_sz_spec String 250 Recommended Free response of which family members had schizophrenia
hastwin String 3 Recommended If participant has a twin N/No = Not a twin, Y/Yes = Yes a twin twin
handedness String 29 Recommended handedness
R;L;B;999
R = Right; L = Left; B = Both
dtmstarthosp5 Date Recommended Date 5th hospitalization began date_nphosp5, date_phosp5
date_phosp6 Date Recommended Date of 6th Visit to Hospital for Psychiatric reasons MM/DD/YYYY date_nphosp6
date_phosp7 Date Recommended Date of 7th Visit to Hospital for Psychiatric reasons MM/DD/YYYY date_nphosp7
date_phosp8 Date Recommended Date of 8th Visit to Hospital for Psychiatric reasons MM/DD/YYYY date_nphosp8
nonpsyc_hosp String 3 Recommended If participant has stayed in a hospital overnight for physical complaints N/No = No, Y/Yes = Yes psych_hospital
Query therapist Integer Recommended Have you seen a therapist in the past month? 0;1 0= No; 1= Yes
therapistdatesreason String 250 Recommended Reason for seeking a mental health professional
Query smoker Integer Recommended Smoker? 0;1; 9 0=No; 1=Yes; 9=NK/missing
Query cig_smoking Integer Recommended Have you ever smoked part or all of a cigarette? PX030601_Cigarette_Smoking 1;2;97 1=Yes; 2=No; 97=Don't Know/Refused cigarettes
cigars String 3 Recommended Tobacco product(s) used Y/Yes = smokes cigars, Off = does not smoke cigars
Query first_nicotine_3 Integer Recommended Have you ever used smokeless tobacco like chew, dip, or snus? 1 ; 2 ; 0 1 = Yes; 2 = No; 0 = No chewtobacco
Query smkamt Integer Recommended About how many cigarettes smoke per day num_cigarettes
scid_diagnosis String 250 Recommended Diagnoses according to SCID-V Schizophrenia; Schizophreniform Disorder; Schizoaffective Disorder- Bipolar; Schizoaffective Disorder- Depressive; Delusional Disorder; Brief Psychotic Disorder; Attenuated Psychosis Syndrome; Bipolar I Disorder; Bipolar II Disorder; Cyclothymic Disorder; Paranoid Personality Disorder; Schizotypal Personality Disorder; Schizoid Personality Disorder
diagnosis_severity String 8 Recommended If meets criteria during the past month, indicate current severity Mild; Moderate; Severe severity
symptoms String 20 Recommended If no current symptoms In full remission; Prior history
Query age_1st_sx Integer Recommended Age of onset of psychiatric symptoms (years) onsetage
Query scidmodc13f Integer Recommended C13f. Number of episodes or exacerbations episodes
course_specifier String 50 Recommended Illness course First episode, currently in acute episode; First episode, currently in partial remission; First episode, currently in full remission; Multiple episodes, currently in acute episode; Multiple episodes, currently in partial remission; Multiple episodes, currently in full remission; Continuous; Unspecified; With catatonia
mood_specifier String 20 Recommended Current mood state Depressive; Euthymic; Hypomanic; Manic; Mixed
Query scidv_d4 Integer Recommended Bipolar Disorder; type of current (or most recent) episode 1::4 ; -7; -9 1 = manic; 2 = hypomanic; 3 = major depressive; 4 = unspecified; -7 = N/A; -9 = missing or not reported bipolar_episode
bipolar_specifier String 25 Recommended Bipolar specifier, if diagnosed bipolar N/A; Anxious Distress; Atypical Features; Melancholic Features; Mixed Features; Mood Congruent Psychotic Features; Mood Incongruent Psychotic Features; Peripartum Onset; Rapid Cycling; Seasonal Pattern
bips_course String 25 Recommended If diagnosed as Brief Intermittent Psychotic Syndrome using SIPS interview N/A; Current progression; Current persistence; Current partial remission; Current full remission
apss_course String 25 Recommended If diagnosed as Attenuated Positive Symptom Syndrome using SIPS interview N/A; Current progression; Current persistence; Current partial remission; Current full remission
grd_course String 25 Recommended If diagnosed as Genetic Risk and Deterioration syndrome using SIPS interview N/A; Current progression; Current persistence; Current partial remission; Current full remission
relation1diag String 255 Recommended Likely Diagnosis 1 scid_diagnosis_1
relation2diag String 255 Recommended Likely Diagnosis 2 scid_diagnosis_2
relation3diag String 255 Recommended Likely Diagnosis 3 scid_diagnosis_3
relation4diag String 255 Recommended Likely Diagnosis 4 scid_diagnosis_4
relation5diag String 255 Recommended Likely Diagnosis 5 scid_diagnosis_5
ch_41_04_oth String 250 Recommended Please describe the type of diagnosis they received: ; -7= Skipped or not answered due to skip logic; -7= Skipped or not answered due to skip logic; -8= I don't know the answer to the question; -9= I don't want to answer the question scid_diagnosis_6
cepisp String 500 Recommended Current diagnosis specify scid_diagnosis_7
Query nonpsych_nomed Integer Recommended If participant has no medications prescribed 1 1 = No medications psych_nomed
Query cmd001 Integer Recommended Medication number -9=Unknown nonpsych_medn1, psych_medn1
route1 String 50 Recommended route 1 nonpsych_route1, psych_route1
medication1_dosage String 100 Recommended First medication dosage 0 = No medication; 999 = Missing mtxh_curmeddose1, nonpsych_dosage1, psych_dosage1
medication1_unit String 100 Recommended Units of medication #1: nonpsych_units1, psych_units1
Query freq1 Integer Recommended frequency medication 1 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq1, psych_freq1
Query nonpsych_medn2 Integer Recommended Medication number psych_medn2
route2 String 50 Recommended route 2 nonpsych_route2, psych_route2
medication2_dosage String 100 Recommended Second medication dosage 0 = No medication; 999 = Missing mtxh_curmeddose2, nonpsych_dosage2, psych_dosage2
medication2_unit String 100 Recommended Units of medication #2: nonpsych_units2, psych_units2
Query freq2 Integer Recommended frequency medication 2 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq2, psych_freq2
Query nonpsych_medn3 Integer Recommended Medication number psych_medn3
route3 String 50 Recommended route 3 nonpsych_route3, psych_route3
medication3_dosage String 100 Recommended Third medication dosage 0 = No medication; 999 = Missing mtxh_curmeddose3, nonpsych_dosage3, psych_dosage3
medication3_unit String 100 Recommended Units of medication #3: nonpsych_units3, psych_units3
Query freq3 Integer Recommended frequency medication 3 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq3, psych_freq3
Query nonpsych_medn4 Integer Recommended Medication number psych_medn4
route4 String 50 Recommended route 4 nonpsych_route4, psych_route4
medication4_dosage String 100 Recommended Fourth medication dosage 0 = No medication; 999 = Missing mtxh_curmeddose4, nonpsych_dosage4, psych_dosage4
medication4_unit String 100 Recommended Units of medication #4: nonpsych_units4, psych_units4
Query freq4 Integer Recommended frequency medication 4 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq4, psych_freq4
Query nonpsych_medn5 Integer Recommended Medication number psych_medn5
route5 String 50 Recommended route 5 nonpsych_route5, psych_route5
medication5_dosage String 100 Recommended Fifth medication dosage 0 = No medication; 999 = Missing mtxh_pastmeddose1, nonpsych_dosage5, psych_dosage5
medication5_unit String 100 Recommended Units of medication #5: nonpsych_units5, psych_units5
Query freq5 Integer Recommended frequency medication 5 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq5, psych_freq5
Query nonpsych_medn6 Integer Recommended Medication number psych_medn6
route6 String 50 Recommended route 6 nonpsych_route6, psych_route6
medication6_dosage String 100 Recommended Sixth medication dosage 0 = No medication; 999 = Missing mtxh_pastmeddose2, nonpsych_dosage6, psych_dosage6
medication6_unit String 100 Recommended Units of medication #6: nonpsych_units6, psych_units6
Query freq6 Integer Recommended frequency medication 6 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq6, psych_freq6
Query nonpsych_medn7 Integer Recommended Medication number psych_medn7
route7 String 50 Recommended route 7 nonpsych_route7, psych_route7
medication7_dosage String 100 Recommended Seventh medication dosage 0 = No medication; 999 = Missing mtxh_pastmeddose3, nonpsych_dosage7, psych_dosage7
rx7dosu String 100 Recommended Prescription 7, dosage units nonpsych_units7, psych_units7
Query freq7 Integer Recommended frequency medication 7 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq7, psych_freq7
Query nonpsych_medn8 Integer Recommended Medication number psych_medn8
route8 String 50 Recommended route 8 nonpsych_route8, psych_route8
medication8_dosage String 100 Recommended Eighth medication dosage 0 = No medication; 999 = Missing mtxh_pastmeddose4, nonpsych_dosage8, psych_dosage8
rx8dosu String 100 Recommended Prescription 8, dosage units nonpsych_units8, psych_units8
Query freq8 Integer Recommended frequency medication 8 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq8, psych_freq8
Query nonpsych_medn9 Integer Recommended Medication number psych_medn9
medication9_name String 100 Recommended Name ninth medication that the participant has taken nonpsych_medname9, psych_medname9
strreason9 String 255 Recommended Reason for prescription 9 nonpsych_purpose9, psych_purpose9
route9 String 50 Recommended route 9 nonpsych_route9, psych_route9
medication9_dosage String 100 Recommended Ninth medication dosage nonpsych_dosage9, psych_dosage9
medication9_unit String 100 Recommended Units of medication #9 nonpsych_units9, psych_units9
Query freq9 Integer Recommended frequency medication 9 10;71::73;91::93 10 = Taken Daily; 71 = Q2wk, every 2 weeks; 72 = Q3wk, every 3 weeks; 73 = Q4wk, every 4 weeks; 91 = QOD, every other day; 92 = PRN, as needed; 93 = Other nonpsych_freq9, psych_freq9
Query tbi1 Integer Recommended Have you ever had a head injury or concussion? 0;1 1=Yes; 0=No medhist_10, medhx_1a
medhistory_1a_txt String 250 Recommended Description of head injury or concussion medhist_10_desc, medhx_1a_txt
Query tbi4 Integer Recommended Did you receive any kind of medical attention/treatment for a head injury? 0;1 1=Yes; 0=No medhx_1b
medhistory_1b_txt String 250 Recommended Description of treatment for head injury medhx_1b_txt
Query tbi2 Integer Recommended Did you ever get knocked out or lose consciousness as a result of a head injury? 0;1 1=Yes; 0=No medhx_1c
medhistory_1c_txt String 250 Recommended Description of consciousness loss as a result of head injury medhx_1c_txt
Query medhistory_1d Integer Recommended If so, for how long (knocked out or lose consciousness as a result of a head injury)? medhx_1d
Query medhistory_1e Integer Recommended Did you experience any headaches or other side effects? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_1e
medhistory_1e_txt String 250 Recommended Description of headache or other side effects medhx_1e_txt
Query medhistory_1f Integer Recommended If so, for how long (experience any headaches or other side effects)? medhx_1f
Query medhistory_1g Integer Recommended How much work or school did you miss? medhx_1g
Query seizures Integer Recommended Does (did) the subject have Seizures? 0;1;2;999 0 = No; 1 = Yes; 2 = Unknown; 999 =NA/missing medhx_2
medhistory_2_txt String 250 Recommended Description of fits or seizures medhist_9a, medhx_2_txt
medhistory_3_txt String 250 Recommended Description of seizure disorder/ epilepsy medhist_9a_desc, medhx_3_txt
Query mh_park Integer Recommended Parkinson's disease 0; 1 0=No; 1=Yes medhx_5
medhistory_5_txt String 250 Recommended Description of Parkinson's disease medhx_5_txt
Query exalz Integer Recommended Current diagnosis of dementia Alzheimer 0;1 0=No;1=Yes medhist_9b, medhx_6
medhistory_6_txt String 250 Recommended Description of Alzheimer's disease medhist_9b_desc, medhx_6_txt
Query baseline_k_006 Integer Recommended Stroke 0;1; -888; -999 0=No; 1=Yes; -888=Not Applicable; -999=Missing; medhx_7
medhistory_7_txt String 250 Recommended Description of stroke medhx_7_txt
Query medhistory_8 Integer Recommended Brain tumor 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_8
medhistory_8_txt String 250 Recommended Description of brain tumor medhx_8_txt
Query aaq_5e Integer Recommended Dizziness 0;1 0=No; 1=Yes medhx_9
medhistory_9_txt String 250 Recommended Description of dizziness medhx_9_txt
Query medhistory_10 Integer Recommended High blood sugar 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_10
medhistory_10_txt String 250 Recommended Description of high blood sugar medhx_10_txt
quesmoth_probhighbp String 50 Recommended Hypertension (High blood pressure) Yes;No;Don't Know medhist_3b, medhistory_13, medhx_13
sshbpr00_spec String 20 Recommended High blood pressure comments medhist_3b_desc, medhistory_13_txt, medhx_13_txt
rev_headmeningitis String 50 Recommended Meningitis
Yes; No; NK; NS
NK= Not known; NS = Not sure medhx_15
medhistory_15_txt String 250 Recommended Description of meningitis medhx_15_txt
rev_headencephalitis String 50 Recommended Encephalitis
Yes; No; NK; NS
NK= Not known; NS = Not sure medhx_16
medhistory_16_txt String 250 Recommended Description of encephalitis medhx_16_txt
Query midihist_026 Integer Recommended Infectious Disease 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_16, medhx_17
medhistory_17_txt String 250 Recommended Description of infectious disease medhx_17_txt
Query medhistory_18 Integer Recommended Been diagnosed with sleep apnea? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_18
medhistory_18_txt String 250 Recommended Description of sleep apnea medhx_18_txt
Query medhistory_20a Integer Recommended Have you ever participated in a Transcranial Magnetic Stimulation (TMS) study? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_20a
medhistory_20a_txt String 250 Recommended Description of Transcranial Magnetic Stimulation study medhx_20a_txt
Query medhistory_20b Integer Recommended If yes, how long ago (been in a TranscranialMagnetic Stimulation (TMS) study)? medhx_20b
Query medhistory_21a Integer Recommended (Control participants only) Do you currently have a condition or have ever had a condition that required treatment with antidepressant, anti-anxiety, or antipsychotic medications? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_21a
medhistory_21a_txt String 250 Recommended Description of condition that required antidepressant, anti-anxiety, or antipsychotic medications medhx_21a_txt
medication_name String 255 Recommended Name of medication medhistory_21b, medhx_21b
medhistory_21b_txt String 250 Recommended Description of antidepressant, anti-anxiety, or antipsychotic medications medhx_21b_txt
Query medhistory_21c Integer Recommended Are you currently taking the medication? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_21c
medhistory_21d String 250 Recommended When did you most recently take the medication? medhx_21d
Query scidv_pdepre Integer Recommended Has there ever been another time when you were feeling depressed or down most of the day nearly every day? 0;1 1 = Yes; 0 = No medhx_21e
medhistory_21e_txt String 250 Recommended Description of time when you were feeling depressed or down most of the day nearly every day medhx_21e_txt
Query medhistory_21f Integer Recommended If Yes, did it last as long as 2 wks (feeling depressed or down most of the day nearly every day)? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_21f
Query medhistory_21g Integer Recommended What about losing interest or pleasure in things you usually enjoyed? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_21g
medhistory_21g_txt String 250 Recommended Description of lost interest or pleasure in things you usually enjoyed medhx_21g_txt
Query medhistory_21h Integer Recommended If Yes, did it last as long as 2 wks (losing interest or pleasure in things you usually enjoyed)? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_21h
Query medhistory_22 Integer Recommended When you were in school, were you in special education classes? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_22
Query medhistory_23 Integer Recommended Do you have a learning disability or dyslexia? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_23
medhistory_23_txt String 250 Recommended Description of learning disability or dyslexia medhx_23_txt
Query cast39_adhd Integer Recommended Has s/he ever been diagnosed with hyperactivity/attention deficit disorder (ADHD)? 0; 1;999 0 = No; 1 = Yes medhx_24
medhistory_24_txt String 250 Recommended Description of hyperactivity/ attention deficit disorder medhx_24_txt
Query clrblind Integer Recommended Is the participant colorblind 0;1 0=No; 1=Yes medhistory_25, medhx_25
medhistory_25_txt String 250 Recommended Description of colorblindness medhx_25_txt
Query medhistory_26a Integer Recommended Do you need glasses or contacts to see the computer screen? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_26a
medhistory_26a_txt String 250 Recommended Description visual impairment medhx_26a_txt
Query medhistory_26b Integer Recommended Do you have glasses or contacts with you 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_26b
medhistory_26b_txt String 250 Recommended Description of glasses or contacts medhx_26b_txt
Query eyel Float Recommended Visual acuity left eye 20/_ medhx_26c
Query eyer Float Recommended Visual acuity right eye 20/_ medhx_26d
Query mri_metfr Integer Recommended Presence of: Any metallic fragment or foreign body 0;1 0=No; 1=Yes medhx_27
medhistory_27_txt String 250 Recommended Description of metallic object in body medhx_27_txt
Query q21_8a Integer Recommended Drink alcohol 0; 1; -7; -8; -9; 999 Field should not be left blank. If missing, please use -7, 8, -9. medhx_28a
Query combod1 Integer Recommended During the past 30 days; how many days per week or per month did you have at least one drink of any alcoholic beverage? 1::30 medhx_28b
Query yrbs16_total Integer Recommended How many total times have you had a drink of alcohol? medhx_28c
medhistory_28d String 20 Recommended What type of alcohol did you drink? medhx_28d
Query medhistory_28e Integer Recommended Is this typical of your usual pattern of alcohol use in the past 6 months? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_28e
Query medhistory_29a Integer Recommended Sometimes people take medicines like amphetamines, barbiturates, psychedelics, methadone, heroin, codeine, cocaine, marijuana, or other drugs just to see how they work or enjoy the feeling. Have you used any of these in the past 6 months? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_29a
medhistory_29b String 250 Recommended If yes, which have you tried (drugs)? medhx_29b
medhistory_29c String 20 Recommended When was the last time you used one of these drugs? medhx_29c
Query medhistory_29d Integer Recommended How many times per month do you use one of these drugs? medhx_29d
Query medhistory_29e Integer Recommended Is this typical of your usual pattern of drug use in the past 6 months? 0;1;9 0 = No; 1 = Yes; 9 = Not evaluated medhx_29e
Query q19_a1d Integer Recommended Height: Centimeters 61 :: 198; -7; -8; -9 Field should not be left blank. If missing, please use -7,8, -9.
Query q53_a3c Integer Recommended Weight kgs -7;-8;-9; 9 :: 113 Field should not be left blank. If missing, please use -7,8, -9.
Query ccc2english Integer Recommended Does the subject speak English as a primary language? 0;1;-9 0 = No; 1 = Yes; -9 = Missing value
Query demo_learn_eng_age Integer Recommended If English is not your first language, age that you learned English -9=N/A
Query hosp_mh Integer Recommended 32. Has your child ever been hospitalized for: (choice=Mental Health) 0;1 0=Unchecked; 1=Checked
thi_a9admitdate2 Date Recommended Last Hospitalization (overall) - Admission Date
Query psych_family Integer Recommended Do you have a history of psychological problems in your family? 0;1 0= No; 1= Yes
psych_family_describe String 100 Recommended Describe psychological problems.
Query phys_family Integer Recommended Do you have any physical problems (e.g. high blood pressure, high cholesterol, diabetes, etc.)? 0;1 0= No; 1= Yes
phys_family_describe String 100 Recommended Describe physical problems.
Query psdem16 Integer Recommended Have you ever had any neurological problems (e.g. epileptic seizures or coma) 0;1 0=No; 1=Yes
medhx19a String 100 Recommended If yes, please describe neurological problems:
Query atrq_02ect Integer Recommended Electro-convulsive treatment (ECT) 0;1 0=No; 1=Yes
Query shock_treat_list Integer Recommended List the total number of shock treatments that you've received
shock_treat_date Date Recommended Give the date of the most recent shock treatment that you've received MM/DD/YYYY
hear_prob_spfy String 255 Recommended Notes about hearing
Query want_participate Integer Recommended Do you have a parent, child, or sibling that might also be interested in participating in research studies? 0;1 0= No; 1= Yes
Query pot_mentalhealth Integer Recommended If so, have these individuals been diagnosed with any mental health conditions? 0;1 0= No; 1= Yes
mhcomm String 100 Recommended Mental Health Other/Comments
Query txmeds Integer Recommended taken prescription medication 0;1;-7 0=No; 1=Yes; -7=Refused
med1_time String 10 Recommended medication 1 time taken HH:MM military time
med2_time String 10 Recommended medication 2 time taken HH:MM military time
med3_time String 10 Recommended medication 3 time taken HH:MM military time
med4_time String 10 Recommended medication 4 time taken HH:MM military time
med5_time String 10 Recommended medication 5 time taken HH:MM military time
stim1_name String 50 Recommended Name of Stimulant 1
stim2_name String 50 Recommended Name of Stimulant 2
stim3_name String 50 Recommended Name of Stimulant 3
stim4_name String 50 Recommended Name of Stimulant 4
stim5_name String 50 Recommended Name of Stimulant 5
Query stim1_amount Integer Recommended Amount taken of Stimulant 1 in ounces
Query stim2_amount Integer Recommended Amount taken of Stimulant 2 in ounces
Query stim3_amount Integer Recommended Amount taken of Stimulant 3 in ounces
Query stim4_amount Integer Recommended Amount taken of Stimulant 4 in ounces
Query stim5_amount Integer Recommended Amount taken of Stimulant 5 in ounces
stim1_time String 10 Recommended Time taken for Stimulant 1 HH:MM military time
stim2_time String 10 Recommended Time taken for Stimulant 2 HH:MM military time
stim3_time String 10 Recommended Time taken for Stimulant 3 HH:MM military time
stim4_time String 10 Recommended Time taken for Stimulant 4 HH:MM military time
stim5_time String 10 Recommended Time taken for Stimulant 5 HH:MM military time
Query prescan_008 Integer Recommended Have you consumed alcohol in the last 24 hours?
cbcl1_2_text String 500 Recommended Describe alcohol use Touching in patterns (Current)
marital_status_specify String 255 Recommended Other marital status - Please describe:
respondent String 20 Recommended Respondent Mother;Father;Both; Child; Other; Parent medhist_relation
medhist_relation_other String 250 Recommended What is the relationship?
Query mhx001aa Integer Recommended History of: Allergies - Drugs 1;2; 9 1=No; 2=Yes; 9=not evaluated medhist_1a
mhx001ab String 250 Recommended If YES, Enter onset/resolved date indicate ongoing with treatment or not. If NOT EVALUATED, explain or describe below: Allergies - Drugs medhist_1a_desc
mhx001b String 250 Recommended Allergies. Other (Specify:) medhist_1b_desc
Query mhheente Integer Recommended HEENT Disorder 1::4;-9;9 1=No history 2=Yes, excludes;3=Yes, does not exclude; -9 =unknown;4=Yes; 9=not evaluated medhist_2
midihist_003a String 250 Recommended HEENT Disorder explain or describe medhist_2_desc
Query mhxa1c Integer Recommended Coronary artery disease 0;1; -9 0=No; 1=Yes; -9 =NK medhist_3a
corartdis_desc String 250 Recommended Coronary artery disease description
midihist_010a String 250 Recommended Hypertension describe
rev_cardiomalfunc String 50 Required Cardiac Malformation Yes;No;NK NK = Not known medhist_3c
rev_cardioother String 255 Recommended Cardiac Other/Comments medhist_3c_desc
Query exc_17c Integer Recommended Known history or current episode of syncopal event within the past year 1;2 1=Yes; 2=No medhist_3d
medhx17a String 100 Recommended If yes, please describe problems with fainting: medhist_3d_desc
Query mhx004a Integer Recommended History of: Cardiovascular disorder 1::3;9 1=No; 2=Yes; 3=Yes, Inactive;9=not evaluated medhist_3e
mhx004b String 250 Recommended If YES, Enter onset/resolved date indicate ongoing with treatment or not. If NOT EVALUATED, explain or describe below: Cardiovascular disorder medhist_3e_desc
Query othcarddis Integer Recommended Other Cardiovascular Disorder 0;1 0= No; 1= Yes
othcarddis_name String 250 Recommended Cardiovascular Disorder Name
othcarddis_desc String 250 Recommended Cardiovascular Disorder Describe
Query midihist_012 Integer Recommended Renal Disorder 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_4
midihist_012a String 250 Recommended Renal Disorder describe medhist_4_desc
Query midihist_013 Integer Recommended Hepatic Disorder 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_5
midihist_013a String 250 Recommended Hepatic Disorder describe medhist_5_desc
Query midihist_014 Integer Recommended Pulmonary Disorder 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_6
midihist_014a String 250 Recommended Pulmonary Disorder describe medhist_6_desc
Query midihist_015 Integer Recommended Gastrointestinal Disorder 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_7
midihist_015a String 250 Recommended Gastrointestinal Disorder describe medhist_7_desc
Query midihist_016 Integer Recommended Musculoskeletal Disorder 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_8
midihist_016a String 250 Recommended Musculoskeletal Disorder describe medhist_8_desc
Query medhx_fetalcohol Integer Recommended Fetal Alcohol Syndrome 0::2 0 = No, 1 = Yes, 2 = Not sure medhist_19
fetalalcohol_desc String 250 Recommended Fetal Alcohol Syndrome Describe
Query mhdermae Integer Recommended Dermatologic Disorder 1::3; -9; 9 1=No history 2=Yes, excludes;3=Yes, does not exclude; -9 =unknown; 9=not evaluated medhist_11
midihist_018a String 250 Recommended Dermatologic Disorder describe medhist_11_desc
Query midihist_019 Integer Recommended Hyperlipidemia/hypertriglyceridemia 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_12b
midihist_019a String 250 Recommended Hyperlipidemia/hypertriglyceridemia describe medhist_12b_desc
Query mhmetabe Integer Recommended Metabolic Disorder 1::4;-9;9 1=No history 2=Yes, excludes;3=Yes, does not exclude; -9 =unknown;4=Yes; 9=not evaluated medhist_12c
mhx014b String 250 Recommended If YES, Enter onset/resolved date indicate ongoing with treatment or not. If NOT EVALUATED, explain or describe below: Metabolic disorder medhist_12c_other
mhx011b_1 String 250 Recommended Explain Metabolic disorder history medhist_12c_desc
Query cfmh_othr_sicklecell Integer Recommended Sickle cell anemia 1;0 0 = No; 1 = Yes medhist_13a
cmedhx31a String 100 Recommended Details about anemia medhist_13a_desc
Query mhendoce Integer Recommended Endocrine Disorder 1::3; -9; 9 1=No history 2=Yes, excludes;3=Yes, does not exclude; -9 =unknown; 9=not evaluated medhist_14
endocmt String 250 Recommended Endocrine/Diabetes comments medhist_14_desc
Query midihist_025 Integer Recommended Genitourinary Disorder 1;2;9;-999 1=No History; 2=Yes; 9=Not evaluated; -999= Don't know/Missing Data medhist_15
midihist_025a String 250 Recommended Genitourinary Disorder describe medhist_15_desc
midihist_026a String 250 Recommended Infectious Disease describe medhist_16_desc
Query mhxs_q17a Integer Recommended Other 3 History 1::3 1=No; 2=Yes; 3=Yes, Inactive medhist_17
mhxs_q17 String 30 Recommended Other 3 Name medhist_17_other
mhxs_q17b String 250 Recommended Other 3 Description medhist_17_desc
Query mhxs_q18a Integer Recommended Other 4 History 1::3 1=No; 2=Yes; 3=Yes, Inactive medhist_18
mhxs_q18 String 30 Recommended Other 4 Name medhist_18_other
mhxs_q18b String 250 Recommended Other 4 Description medhist_18_desc
mtxh_pasttreatname1 String 250 Recommended Past Treatment #1 - Name
mtxh_pasttreatname2 String 250 Recommended Past Treatment #2 - Name
mtxh_pasttreatname3 String 250 Recommended Past Treatment #3 - Name
mtxh_pasttreatname4 String 250 Recommended Past Treatment #4 - Name
mtxh_curmedconsistency1 String 250 Recommended Medication 1. In a typical week, on how many days out of 7 does the participant follow his/her dose schedule?
mtxh_curmedconsistency2 String 250 Recommended Medication 2. In a typical week, on how many days out of 7 does the participant follow his/her dose schedule?
mtxh_curmedconsistency3 String 250 Recommended Medication 3. In a typical week, on how many days out of 7 does the participant follow his/her dose schedule?
mtxh_curmedconsistency4 String 250 Recommended Medication 4. In a typical week, on how many days out of 7 does the participant follow his/her dose schedule?
Query mtxh_pasttreatagestopped Integer Recommended At what age was non-medication treatment stopped if it is no longer being received? years
injsev Integer Recommended In your opinion, how severe are your injuries? 1::7 1= Not at all; 7= Extremely
injdes Integer Recommended How distressing was the injury/hospital experience for you? 1::7 1= Not at all; 7= Extremely
injdpar Integer Recommended How distressing was the injury/hospital experience for you parent? 1::7 1= Not at all; 7= Extremely
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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