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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Maintenance Medication and Related Data

290 Shared Subjects

N/A
Clinical Assessments
Med History
01/22/2015
medse01

View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
site String 101 Recommended Site Study Site sitenum
Query trtname String 10 Recommended Treatment group M;C;P; A; P; L M=Medication only; C=Combined medication and psychosocial; P=Psychosocial only; A = Assessment and Referral; L = LNCG (Local Normative Comparison Group)
Query mmvnum Integer Recommended Maintenance Medication Visit Number 1::14
Query visityn Integer Recommended Did the Maintenance Medication Visit take place? 0;1 0=No; 1=Yes
Query mmday Integer Recommended Maintenance Medication Visit - Days from Baseline Date
mmdrug String 50 Recommended Name of Medication Prescribed at this Visit (i.e., for the next interval)
mmdose String 20 Recommended Dosage Regimen of Above Medication Prescribed (e.g., 10x10x5) Text variable showing how dosage was to be taken each day (e.g. 10x10x5 = 10 mg in the morning; 10 mg midday; 5 mg in the evening)
Query mmdaily Float Recommended Total Daily Dose of Above Medication (in mg) 0::300
asispme String 200 Recommended Specify medication by name mmadded
Query tics5 Integer Recommended Count of tics per 5 minutes 0=Tics present but less than one in 5 minutes
Query vocal Integer Recommended Vocal tic 1;2 1=No; 2=Yes
Query motor Integer Recommended Motor tic 1::3 1=No; 2=Yes; 3=Current
Query simple Integer Recommended Simple tic 1;2 1=No; 2=Yes
Query complex Integer Recommended Complex tic 1;2 1=No; 2=Yes
Query single Integer Recommended Single tic 1;2 1=No; 2=Yes
Query mult Integer Recommended Multiple tics 1;2 1=No; 2=Yes
Query facial Integer Recommended Movement Severity Score-facial and oral Created variable with 20% missing data rule applied: Sum of AIMS01-AIMS04
Query othtic Integer Recommended Other location of tic 1;2 1=No; 2=Yes
Query ptawar Integer Recommended Is patient aware of tic? 1;2 1=No; 2=Yes
Query parawar Integer Recommended Is parent aware of tic? 1;2 1=No; 2=Yes
Query ticsev Integer Recommended Tic severity 1::4 1=Clinically insignificant; 2=Bothersome; 3=Impairing; 4=Handicapping
Query se1anor Integer Recommended Appetite Loss, Anorexia 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se2insom Integer Recommended Trouble Sleeping, Insomnia 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se3sedat Integer Recommended Dull, Tired, Listless, Sedation 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se4irrit Integer Recommended Crabbiness, Irritability 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se5dep Integer Recommended Tearful, Sad, Depressed 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se6worry Integer Recommended Worried, Anxious 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se7tics Integer Recommended Tics (Motor, Buccal-Lingual) 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se8pick Integer Recommended Picking at skin or fingers, Nailbiting, Lip or Cheek chewing 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se9stom Integer Recommended Stomachache, Stomach cramps 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se10head Integer Recommended Headaches 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se11suic Integer Recommended Suicidal or Homicidal ideation 1;4 1=Not present; 4=Prohibitive
Query se12toxc Integer Recommended Toxic confusional state 1;4 1=Not present; 4=Prohibitive
Query se13hall Integer Recommended Hallucinations 1;4 1=Not present; 4=Prohibitive
Query se14oth1 Integer Recommended Other (first) 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query se15oth2 Integer Recommended Other (second) 1::4 1=Not present; 2=Minor/mild/slight; 3=Major/Moderate/Moderate-severe for stomach and headaches; 4=Prohibitive/severe/extreme/intolerable
Query seseris Integer Recommended Compared to other children in this study, how serious have his/her side effects been since the last medication visit? 1::4 1=Not at all; 2=Minimal; 3=Moderate; 4=Marked
Query sedstrs Integer Recommended Compared to other children in this study, how much distress has this child and/or parents expressed or attributed to the side effects? 1::4 1=Not at all; 2=Minimal; 3=Moderate; 4=Marked
Query cmpengag Integer Recommended To what extent do parents seem "engaged" during today's visit? 1::7 1=Not at all; 7=Great deal
Query cmpimple Integer Recommended To what extent have parents implemented last month's treatment plan? 1::7 1=Not at all; 7=Great deal
Query cmpmotiv Integer Recommended To what extent do parents appear motivated to follow this month's treatment plan? 1::7 1=Not at all; 7=Great deal
Query cmpoverl Integer Recommended Rate how well the family is complying with the medication program overall? 1::7 1=Not at all; 7=Great deal
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.