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Frequently Asked Questions


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Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Data Structures with shared data
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Medication Tracking Log

101 Shared Subjects

Clinical Assessments
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Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project subject_id
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. intvage
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY Required field intvdate, t_date
sex String 20 Required Sex of the subject M;F M = Male; F = Female gender
date_meds1 Date Recommended Date medication 1 recorded meddate
medication_name String 255 Recommended Name of medication medname
Query meddosemg Integer Recommended Dosage of medication in mg
medication_start Date Recommended Start date of medication medstartdate
Query trqa_13c Integer Recommended Number of times taken daily timesofday
Query medfrequse Integer Recommended Frequency of use in days per week medication is used 0::7; 99 ; -9 0 = 0; 2 = 2; 3 = 3; 4 = 4; 5 = 5; 6 = 6; 7 = 7; 5 = M-F; 7= Daily ; 99 = as needed; -9 = missing or not reported
meduseint String 300 Recommended Medication Intended use Enter as is written
Query medmisseddos Integer Recommended Missed doses in the past week. Original medication
Query medalertse Integer Recommended Alerting side effects. Original medication 0::1 ; -7; -9 0 = No(N) ; 1 = Yes(Y) ; -7 = N/A ; -9 = missing or not reported
Query medsedse Integer Recommended Sedating side effects. Original medication 0::1 ; -7; -9 0 = No(N) ; 1 = Yes(Y) ; -7 = N/A ; -9 = missing or not reported
Query mssess Integer Recommended Session number this measure was based on 0::26 ; 55 0 = Pre; 1 = Session 1; 2 = Session 2; 3 = Session 3; 4 = Session 4; 5 = Session 5; 6 = Session 6; 7 = Session 7; 8 = Session 8; 9 = Session 9; 10 = Session 10; 11 = Session 11; 12 = Session 12; 13 = Session 13; 14 = Session 14; 15 = Session 15; 16 = Session 16; 17 = Session 17; 18 = Session 18; 19 = Session 19; 20 = Session 20; 21 = Session 21; 22 = Session 22; 23 = Session 23; 24 = Session 24; 25 = Session 25; 26 = Session 26; 55 = Post medcsess
change_dos String 15 Recommended Any change in medication usage?
psysoc_52 Date Recommended Date of last medication change: change_date
Query medication_dosage Float Recommended Dosage/quantity of medication
change_reason String 100 Recommended Reason for change original medication
Query missed_dos Integer Recommended Missed doses in the past week new medication
Query freq_use_per_week Integer Recommended Frequency of use in days per week new medication is used
time_of_day String 4 Recommended Time of day new medication is used AM; PM; BOTH
Query alert_sideffects Integer Recommended Alerting side effects. New medication 0::3 ; -7 ; -9 0 = None; 1 = Mild; 2 = Moderate; 3 = Severe; -7 N/A; -9 = missing or not reported
Query sed_sideffects Integer Recommended Sedating side effects. New medication 0::3 ; -7 ; -9 0 = None; 1 = Mild; 2 = Moderate; 3 = Severe; -7 N/A; -9 = missing or not reported
notes String 200 Recommended Any additional notes change_notes
visit String 50 Recommended Visit name
ldosetm String 10 Recommended Time of last dose cdr002
ma3_reason String 500 Recommended Reason Medication Was Not Taken As Prescribed or How Dose Was Lost cdr001a
Query cdr001 Integer Recommended Was the AM study medication dose taken in clinic? 0;1 0 = No; 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.