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Frequently Asked Questions


NDA Help Center

Filter Cart

The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions



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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectid, pid, stepid
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired fieldadate
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subject
M = Male; F = Femalegender
daysrzIntegerRecommendeddays since randomization
visitString50RecommendedVisit nameo3visit, timept
lperdaysIntegerRecommendedlast period days from randomization
cryeaslyIntegerRecommendedcry easily0;1;-70=No; 1=Yes; -7=Refused
iritangrIntegerRecommendedirritability anger0;1;-70=No; 1=Yes; -7=Refusedirrit
deprsionIntegerRecommendeddepression0;1;-70=No; 1=Yes; -7=Refusedmoodeprs
foodcravIntegerRecommendedfood cravings0;1;-70=No; 1=Yes; -7=Refused
anxtensIntegerRecommendedanxiety tension0;1;-70=No; 1=Yes; -7=Refusedanx
hypersomIntegerRecommendedinsomnia hypersomnia0;1;-70=No; 1=Yes; -7=Refused
bloatingIntegerRecommendedbloating yes no0;1;-70=No; 1=Yes; -7=Refused
abdompanIntegerRecommendedabdominal pain0;1;-70=No; 1=Yes; -7=Refused
brestendIntegerRecommendedbreast tenderness0;1;-70=No; 1=Yes; -7=Refused
lackengyIntegerRecommendedlack of energy0;1;-70=No; 1=Yes; -7=Refused
moodswngIntegerRecommendedmood swings0;1;-70=No; 1=Yes; -7=Refused
overwhelIntegerRecommendedfeeling overwhelmed0;1;-70=No; 1=Yes; -7=Refused
decinterIntegerRecommendedinterest in activities0;1;-70=No; 1=Yes; -7=Refused
othsymptIntegerRecommendedother menstrual symptoms0;1;-70=No; 1=Yes; -7=Refusedothsx
sxworkIntegerRecommendedinterfere with work or school0;1;-70=No; 1=Yes; -7=Refused
daycycleIntegerRecommendednumber of days between cycles
uterusIntegerRecommendedsurgery on uterus0;1;-70=No; 1=Yes; -7=Refused
usurdaysIntegerRecommendeduterus surg days from randomization/consentsurgdays
usingbcIntegerRecommendedcurrently using birth control0;1;-70=No; 1=Yes; -7=Refusedoralpill
txinfertIntegerRecommendedtreatment for infertility0;1;-70=No; 1=Yes; -7=Refused
pregIntegerRecommendedpatient become pregnant0;1;-70=No; 1=Yes; -7=Refusedptpreg
pregnantIntegerRecommendedPatient is currently pregnant0::2;-7; 9990=No; 1=Yes;2=DK;-7= Refused; 999=Legimately skipped
duedaysIntegerRecommendeddue date days from randomization/consent
hadmiscrIntegerRequiredhad recent miscarriage0;1;-7;9990=No; 1=Yes; -7=Refused
mscrdaysIntegerRecommendedmiscarr days from o3 rz
voltermIntegerRecommendedvoluntary termination0;1;-70=No; 1=Yes; -7=Refused
termdaysIntegerRecommendedvol termin days from o3 rz
siteString101RecommendedSiteStudy Sitesite_id, siteid
daysconsIntegerRecommendeddays since consent
usnddoneIntegerRecommendedtype of ultrasound performed1;21=Transvaginally; 2=Transabdominally
rovlenFloatRecommendedright ovary length
rovhtFloatRecommendedright ovary height
rovwidthFloatRecommendedright ovary width
rovcystsIntegerRecommendedcysts in right ovary0;1;-70=No; 1=Yes; -7=Refused
numrovcyIntegerRecommendedmax number right ovary cysts
rovcygt8IntegerRecommendedcysts gt8mm right ovary0;1;-70=No; 1=Yes; -7=Refused
rovcydiaString250Recommendeddiameter r ovary cysts gt8mm
lovlenFloatRecommendedleft ovary length
lovhtFloatRecommendedleft ovary height
lovwidthFloatRecommendedleft ovary width
lovcystsIntegerRecommendedcysts in left ovary0;1;-70=No; 1=Yes; -7=Refused
numlovcyIntegerRecommendedmax number left ovary cysts
lovcygt8IntegerRecommendedcysts gt8mm left ovary0;1;-70=No; 1=Yes; -7=Refused
lovcydiaString250Recommendeddiameter l ovary cysts gt8mm
maxendoFloatRecommendedmaximum endometrium thickness
ge10cystIntegerRecommendedge10 cysts in 1 plane0;1;-70=No; 1=Yes; -7=Refused
consreadIntegerRecommendedconsis centr and local read0;1;-70=No; 1=Yes; -7=Refused
interdifString250Recommendedultrasound interp diff
pcomorphIntegerRecommendedpco morphology
certcodeIntegerRecommendedstepbd certification code
age18t45IntegerRecommendedcurrent age 18 to 450;1;-70=No; 1=Yes; -7=Refused
onreqmedIntegerRecommendedtaking req med ge 6mo0;1;-70=No; 1=Yes; -7=Refused
nobadmedIntegerRecommendednot taking specific other meds0;1;-70=No; 1=Yes; -7=Refused
nohormIntegerRecommendednot taking hormonal meds0;1;-70=No; 1=Yes; -7=Refused
stophormIntegerRecommendednot stopped hormonal meds(2mo)0;1;-70=No; 1=Yes; -7=Refused
nobcshotIntegerRecommendedno depoprovera norplant 12mo0;1;-70=No; 1=Yes; -7=Refused
pregnsIntegerRecommendedpatient not preg or unsure0;1;-70=No; 1=Yes; -7=Refused
nobir6moIntegerRecommendedno birth in past 6mo0;1;-70=No; 1=Yes; -7=Refused
premmenoIntegerRecommendedno premature menopause0;1;-70=No; 1=Yes; -7=Refused
hysterecIntegerRecommendedhysterectomy0;1;-7; 888; 9990=No; 1=Yes; -7=Refused; 888=N/A; 999=missing data
bothovarIntegerRecommendedboth ovaries removed0;1;-70=No; 1=Yes; -7=Refused
anervcIntegerRecommendedanorexia nervosa current0;1;-7; -90=No; 1=Yes; -7=Refused; -9 =unknown
ptconIntegerRecommendedPatient consented
0=No; 1=Yesconsent
consdayIntegerRecommendedconsent day
pcoseligIntegerRecommendedeligible for pcos study0;1;-70=No; 1=Yes; -7=Refused
pregnanIntegerRecommendedpregnancy test0::5;-7;90=Negative; 1=Positive; 2=Test not conducted; -7=Refused; 9=NA;3=Not pregnant (per pregnancy test); 4=Not pregnant (has not reached menarche); 5=Pregnancy suspected, but not confirmed
usndcnstIntegerRecommendedultrasound consent signed0;1;-70=No; 1=Yes; -7=Refused
usndtypeIntegerRecommendedtype of ultrasound consented1;21=Transvaginally; 2=Transabdominally
mencycleIntegerRecommendedtype of menstrual cycle1::31=Regular; 2=Irregular; 3=Not occurred for 3 months
medication1_nameString500RecommendedName first medication that the participant has taken0 = No medication; 999= Legitimately skippedmed1
medcur1String50Recommendedcurrent medication 1medsp1
medication1_dosageString100RecommendedFirst medication dosage0 = No medication; 999 = Missingmdose1
medication1_frequencyString50RecommendedFirst medication frequencymedfreq1
medication2_nameString200RecommendedName second medication that the participant has taken0 = No medication; 999= Legitimately skippedmed2
medcur2String50Recommendedcurrent medication 2medsp2
medication2_dosageString100RecommendedSecond medication dosage0 = No medication; 999 = Missingmdose2
medication2_frequencyString50RecommendedSecond medication frequencymedfreq2
medication3_nameString150RecommendedName third medication that the participant has taken0 = No medication; 999= Legitimately skippedmed3
medcur3String50Recommendedcurrent medication 3medsp3
medication3_dosageString100RecommendedThird medication dosage0 = No medication; 999 = Missingmdose3
medication3_frequencyString50RecommendedThird medication frequencymedfreq3
medication4_nameString100RecommendedName fourth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed4
medcur4String50Recommendedcurrent medication 4medsp4
medication4_dosageString100RecommendedFourth medication dosage0 = No medication; 999 = Missingmdose4
medication4_frequencyString50RecommendedFourth medication frequencymedfreq4
medication5_nameString500RecommendedName fifth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed5
medsp5String50Recommendedother current treatment5
medication5_dosageString100RecommendedFifth medication dosage0 = No medication; 999 = Missingmdose5
medication5_frequencyString50RecommendedFifth medication frequencymedfreq5
medication6_nameString500RecommendedName sixth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed6
medsp6String50Recommendedother current treatment6
medication6_dosageString100RecommendedSixth medication dosage0 = No medication; 999 = Missingmdose6
medication6_frequencyString50RecommendedSixth medication frequencymedfreq6
medication7_nameString100RecommendedName seventh medication that the participant has taken0 = No medication; 999= Legitimately skippedmed7
medsp7String50Recommendedother current treatment7
medication7_dosageString100RecommendedSeventh medication dosage0 = No medication; 999 = Missingmdose7
medication7_frequencyString50RecommendedSeventh medication frequencymedfreq7
medication8_nameString100RecommendedName eighth medication that the participant has taken0 = No medication; 999= Legitimately skippedmed8
medsp8String50Recommendedother current treatment8
medication8_dosageString100RecommendedEighth medication dosage0 = No medication; 999 = Missingmdose8
medication8_frequencyString50RecommendedEighth medication frequencymedfreq8
medication9_nameString100RecommendedName ninth medication that the participant has takenmed9
medsp9String50Recommendedother current treatment9
medication9_dosageString100RecommendedNinth medication dosagemdose9
medication9_frequencyString50RecommendedNinth medication frequencymedfreq9
medchangIntegerRecommendedany med changes since screen0;1;-70=No; 1=Yes; -7=Refused
chgmed1String50Recommendedmedication 1 stopped or started
q52_17_s52String255RecommendedOther 1: Specifydrug, othsp
chng1IntegerRecommendedmed1 change type0;10=Stopped; 1=Started
chnglen1IntegerRecommendedmed1 change num months
chgmed2String50Recommendedmedication 2 stopped or started
q52_17_s55String255RecommendedOther 2: Specifyothsp2
chng2IntegerRecommendedmed2 change type0;10=Stopped; 1=Started
chnglen2IntegerRecommendedmed2 change num months
chgmed3String50Recommendedmedication 3 stopped or started
q52_17_s58String255RecommendedOther 3: Specifyothsp3
chng3IntegerRecommendedmed3 change type0;10=Stopped; 1=Started
chnglen3IntegerRecommendedmed3 change num months
bipdiagIntegerRecommendedage diagnosed bipolar
firstmanIntegerRecommendedage at first manic episode
firstdepIntegerRecommendedage at first depressive episod
depaeverIntegerRecommendedever taken depakote0;1;-70=No; 1=Yes; -7=Refused
depaageIntegerRecommendedage started taking depakote
depatimeIntegerRecommendednum months using depakote
depa12moIntegerRecommendedtaken depakote in past 12month0;1;-70=No; 1=Yes; -7=Refused
depastopIntegerRecommendednum months ago stop depakote
litheverIntegerRecommendedever taken lithium0;1;-70=No; 1=Yes; -7=Refused
lithageIntegerRecommendedage started taking lithium
lithtimeIntegerRecommendednum months taking lithium
lith12moIntegerRecommendedtaken lithium in past 12months0;1;-70=No; 1=Yes; -7=Refused
lithstopIntegerRecommendednum months ago stopped lithium
depalithIntegerRecommendeddepakote lithium simultaneous0;1;-70=No; 1=Yes; -7=Refused
dltimeIntegerRecommendednum months depa lith simultan
clozarilIntegerRecommendedclozaril clozapine0;1;-70=No; 1=Yes; -7=Refused
cloztimeIntegerRecommendedclozril clozapine num months
geodonIntegerRecommendedgeodon ziprasidone0;1;-70=No; 1=Yes; -7=Refused
geodtimeIntegerRecommendedgeodon ziprasideon num months
haldolIntegerRecommendedhaldol haloperidol0;1;-70=No; 1=Yes; -7=Refused
haldtimeIntegerRecommendedhaldol haloperidol num months
loxitaneIntegerRecommendedloxitane loxipine0;1;-70=No; 1=Yes; -7=Refused
loxitimeIntegerRecommendedloxitane loxipine num months
mobanIntegerRecommendedmoban molindone0;1;-70=No; 1=Yes; -7=Refused
mobntimeIntegerRecommendedmoban molidone num months
navaneIntegerRecommendednavane thiothixene0;1;-70=No; 1=Yes; -7=Refused
navntimeIntegerRecommendednavane thiothixene num months
zyprexaIntegerRecommendedzyprexa olanzapine0;1;-70=No; 1=Yes; -7=Refused
zyprtimeIntegerRecommendedzyprexa olanzapine num months
prolixinIntegerRecommendedprolixin fluphenazine0;1;-70=No; 1=Yes; -7=Refused
proltimeIntegerRecommendedprolixin fluphenazine num mnth
risperdlIntegerRecommendedrisperdal risperidone0;1;-70=No; 1=Yes; -7=Refused
risptimeIntegerRecommendedrisperdal risperidone num mnth
serentilIntegerRecommendedserentil mesoridazine0;1;-70=No; 1=Yes; -7=Refused
serntimeIntegerRecommendedserentil mesoridazine num mnth
seroquelIntegerRecommendedseroquel quetiapine0;1;-70=No; 1=Yes; -7=Refused
serotimeIntegerRecommendedseroquel quetiapine num months
stelzineIntegerRecommendedstelazine trifluoperazine0;1;-70=No; 1=Yes; -7=Refused
steltimeIntegerRecommendedstelazine trifluoperazine
thorazinIntegerRecommendedthorazine chlorpromazine0;1;-70=No; 1=Yes; -7=Refused
thortimeIntegerRecommendedthorazine chlorprom num mnths
trilafonIntegerRecommendedtrilafon perphenazine0;1;-70=No; 1=Yes; -7=Refused
triltimeIntegerRecommendedtrilafon perphanazine num mnth
stopmd3IntegerRecommendedstopped meds past 3mo0;1;-70=No; 1=Yes; -7=Refused
specstopString250Recommendedspecify meds stopped past3mo
skipmilkIntegerRecommendedskipped period milk leakage0;1;-70=No; 1=Yes; -7=Refused
numperdIntegerRecommendednumber periods past 12months
age1stmpIntegerRecommendedfirst menstrual period999= NA
weight_stdFloatRecommendedWeight - Standard Unit-1 = Not knownweight
height_stdFloatRecommendedHeight - Standard Unit-1 = Not knownheight
termpregIntegerRecommendednumber pregnancies to term
breastfdIntegerRecommendedcurrently breast feeding0;1;-7; 9990=No; 1=Yes;-7= Refused; 999=Legimately skipped
birthmnsIntegerRecommendedgave birth num months ago
cycle22IntegerRecommendedcycle shorter than 22days0;1;-70=No; 1=Yes; -7=Refused
bleed10IntegerRecommendedcontinuous bleed spot 10days0;1;-70=No; 1=Yes; -7=Refused
pcosIntegerRecommendeddiagnosed pcos0;1;-7; -9; -80=No; 1=Yes; -7=Refused; -9=unknown; -8=NA
pcosageIntegerRecommendedage pcos diagnosed
depakoteIntegerRecommendeddepakote depakene0;1;-70=No; 1=Yes; -7=Refused
depstageIntegerRecommendedage stopped depakote
depasttmIntegerRecommendednum mon depa stop dt irreg per
lamictalIntegerRecommendedlamotrigine lamictal0;1;-70=No; 1=Yes; -7=Refused
lamstageIntegerRecommendedage stopped lamictal
lamitimeIntegerRecommendednum months taking lamictal
lithobidIntegerRecommendedlithium lithobid0;1;-70=No; 1=Yes; -7=Refused
litstageIntegerRecommendedage stopped lithium
lithsttmIntegerRecommendednum mon lith stop dt irreg per
gbpentinIntegerRecommendedgabapentin neurontin0;1;-70=No; 1=Yes; -7=Refused
gabstageIntegerRecommendedage stopped gabapentin
gbpntimeIntegerRecommendednum months taking gabapentin
tegretolIntegerRecommendedtegretol carbamazepine0;1;-70=No; 1=Yes; -7=Refused
tegstageIntegerRecommendedage stopped tegretol
tegrtimeIntegerRecommendednum months taking tegretol
topimaxIntegerRecommendedtopimax topiramate0;1;-70=No; 1=Yes; -7=Refused
topstageIntegerRecommendedage stopped topamax
topitimeIntegerRecommendednum months taking topimax
bcpeverIntegerRecommendedever taken birth control pills or progesterone0;1;-70=No; 1=Yes; -7=Refused
bcpageIntegerRecommendedage started birth control pill
bcptimeIntegerRecommendednum months taking birth ctrl
bcp12moIntegerRecommendedtaken birth ctrl pills past12m0;1;-70=No; 1=Yes; -7=Refused
bcpstopIntegerRecommendednum months ago stopped bc pill
bcpdepIntegerRecommendedever simultaneous bcp depakote0;1;-70=No; 1=Yes; -7=Refused
bcdeptimIntegerRecommendednum months simult bcp depa
bcplithIntegerRecommendedever simultaneous bcp lithium0;1;-70=No; 1=Yes; -7=Refused
bclithtmIntegerRecommendednum monts simult bcp lithium
allthreeIntegerRecommendedsimultan bcp lithium depakote0;1;-70=No; 1=Yes; -7=Refused
all3timeIntegerRecommendednum months bcp lith depa
bctoregIntegerRecommendedever used bcp regulate periods0;1;-70=No; 1=Yes; -7=Refused
bcdeprIntegerRecommendedbcp make your more depressed0;1;-70=No; 1=Yes; -7=Refused
bcdepageIntegerRecommendedage bcp made more depressed
bcmanicIntegerRecommendedbcp ever caused manic episode0;1;-70=No; 1=Yes; -7=Refused
bcmanageIntegerRecommendedage bcp caused manic episode
lt10everIntegerRecommendedever lt10 periods per yr0;1;-70=No; 1=Yes; -7=Refused
lt10ageIntegerRecommendedfirst age lt10 periods per yr
lt10timeIntegerRecommendednum years lt10 periods per yr
lt10ptyrIntegerRecommendedlt10 periods in past year0;1;-70=No; 1=Yes; -7=Refused
agell10IntegerRecommendedage last had lt10 periods yr
lt7everIntegerRecommendedever lt7 periods per yr0;1;-70=No; 1=Yes; -7=Refused
lt7ageIntegerRecommendedfirst age lt7 periods per yr
lt7timeIntegerRecommendednum years lt7 periods per yr
lt7ptyrIntegerRecommendedlt7 periods in past year0;1;-70=No; 1=Yes; -7=Refused
agellt7IntegerRecommendedage last had lt7 periods yr
depa10IntegerRecommendeddepakote use when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
dep10preIntegerRecommendedlt10 periods pre depakote0;1;-70=No; 1=Yes; -7=Refused
dep10monIntegerRecommendednum mon depakote before lt10
lam10IntegerRecommendedlamotrigine while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lam10preIntegerRecommendedlt10 periods pre lamotrigine0;1;-70=No; 1=Yes; -7=Refused
lam10monIntegerRecommendednum mon lamotrigine pre lt10
lith10IntegerRecommendedlithium use while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lth10preIntegerRecommendedpre lithium use lt 10 periods0;1;-70=No; 1=Yes; -7=Refused
lth10monIntegerRecommendednum mon lith before lt10 per
gab10IntegerRecommendedgabapentin use when lt10 perio0;1;-70=No; 1=Yes; -7=Refused
gab10preIntegerRecommendedgabapen use pre lt10 periods0;1;-70=No; 1=Yes; -7=Refused
gab10monIntegerRecommendednum mon gabap use pre lt10 per
teg10IntegerRecommendedtegretol while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
teg10preIntegerRecommendedtegretol pre lt10 periods0;1;-70=No; 1=Yes; -7=Refused
teg10monIntegerRecommendednum months tegretol pre lt10
topa10IntegerRecommendedtopamax while lt10 periods0;1;-70=No; 1=Yes; -7=Refused
top10preIntegerRecommendedtopamax pre lt10 periods0;1;-70=No; 1=Yes; -7=Refused
top10monIntegerRecommendednum mon topimax pre lt10
clozlt10IntegerRecommendedclozaril when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
clozpreIntegerRecommendedlt10 periods pre clozaril0;1;-70=No; 1=Yes; -7=Refused
geodlt10IntegerRecommendedgeodon when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
geodpreIntegerRecommendedlt10 periods pre geodon0;1;-70=No; 1=Yes; -7=Refused
haldlt10IntegerRecommendedhaldol when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
haldpreIntegerRecommendedlt10 periods pre haldol0;1;-70=No; 1=Yes; -7=Refused
loxilt10IntegerRecommendedloxitane when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
loxipreIntegerRecommendedlt10 periods pre loxitane0;1;-70=No; 1=Yes; -7=Refused
mobalt10IntegerRecommendedmoban when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
mobanpreIntegerRecommendedlt10 periods pre moban0;1;-70=No; 1=Yes; -7=Refused
navalt10IntegerRecommendednavane when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
navapreIntegerRecommendedlt10 periods pre navane0;1;-70=No; 1=Yes; -7=Refused
olanlt10IntegerRecommendedolanzapine when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
olanpreIntegerRecommendedlt10 periods pre olanzapine0;1;-70=No; 1=Yes; -7=Refused
prollt10IntegerRecommendedprolixin when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
prolpreIntegerRecommendedlt10 periods pre prolixin0;1;-70=No; 1=Yes; -7=Refused
risplt10IntegerRecommendedrisperdal when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
risppreIntegerRecommendedlt10 periods pre risperdal0;1;-70=No; 1=Yes; -7=Refused
serelt10IntegerRecommendedserentil when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
serepreIntegerRecommendedlt10 periods pre serentil0;1;-70=No; 1=Yes; -7=Refused
serolt10IntegerRecommendedseroquel when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
seropreIntegerRecommendedlt10 periods pre seroquel0;1;-70=No; 1=Yes; -7=Refused
stellt10IntegerRecommendedstelazine when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
stelpreIntegerRecommendedlt10 periods pre stelazine0;1;-70=No; 1=Yes; -7=Refused
thorlt10IntegerRecommendedthorazine when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
thorpreIntegerRecommendedlt10 periods pre thorazine0;1;-70=No; 1=Yes; -7=Refused
trillt10IntegerRecommendedtrilafon when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
trilpreIntegerRecommendedlt10 periods pre trilafon0;1;-70=No; 1=Yes; -7=Refused
lt10acneIntegerRecommendedacne problem when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10hairIntegerRecommendedexcessive hair when lt10 perio0;1;-70=No; 1=Yes; -7=Refused
lt10baldIntegerRecommendedbalding when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10exerIntegerRecommendedexcess exer when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10wghtFloatRecommendedweight when lt10 periods
lt10hghtFloatRecommendedheight when lt10 periods
lt10wtlsIntegerRecommendedweight loss when lt10 periods0;1;-70=No; 1=Yes; -7=Refused
lt10wtamFloatRecommendedweight lost when lt10 periods
lt10pregIntegerRecommendedlt10 periods dt preg postp bfd0;1;-70=No; 1=Yes; -7=Refused
hypothyIntegerRecommendedhypothyroidism underactive thy
0;1;-7; 9; -999
0=No; 1=Yes; -7=Refused;9=Not evaluated; -999= Don't know/Missing Data
hypoageString50Recommendedage diagnosed hypothyroidism
hyperthyIntegerRecommendedhyperthyroidism overactive thy
0;1;-7; 9; -999
0=No; 1=Yes; -7=Refused; 9=Not evaluated; -999= Don't know/Missing Data
hyperageString50Recommendedage diagnosed hyperthyroidism
prolactIntegerRecommendedprolactinoma pituitary tumor0;1;-70=No; 1=Yes; -7=Refused
prolageIntegerRecommendedage diagnosed prolactinoma
conghyprIntegerRecommendedcongenital adrenal hyperplasia0;1;-70=No; 1=Yes; -7=Refused
cngahageIntegerRecommendedage dx congen adrenal hyperpla
ovarcancIntegerRecommendedovarian cancer0;1;-70=No; 1=Yes; -7=Refused
cancageIntegerRecommendedage dx ovarian cancer
chemoradIntegerRecommendedchemo or radiation stop period0;1;-70=No; 1=Yes; -7=Refused
chemoageIntegerRecommendedage chemo rad stopped periods
anornervIntegerRecommendedanorexia nervosa0;1;-70=No; 1=Yes; -7=Refused
anorxageIntegerRecommendedage dx anorexia nervosa
bulinervIntegerRecommendedbulimia nervosa0;1;-70=No; 1=Yes; -7=Refusedbulimia
bulimageIntegerRecommendedage dx bulimia nervosa
lovremIntegerRecommendedsurgical removal left ovary0;1;-70=No; 1=Yes; -7=Refused
lovrmageIntegerRecommendedage left ovary removed
rovremIntegerRecommendedsurgical removal right ovary0;1;-70=No; 1=Yes; -7=Refused
rovrmageIntegerRecommendedage right ovary removed
diabetesIntegerRequiredDiabetes, or problems with blood sugar levels, if so are you insulin dependant1::4;9991 = No; 2 = Yes, in the past; 3 = Yes, currently; 4 = Under doctor's care now
diabageIntegerRecommendedage dx diabetes
othrlossIntegerRecommendedloss menst period other0;1;-70=No; 1=Yes; -7=Refused
othlsageIntegerRecommendedage other cause lost period
tryconc1IntegerRecommendedunable conceive gt 1year0;1;-70=No; 1=Yes; -7=Refused
dayflushIntegerRecommendedhot flushes past month0;1;-70=No; 1=Yes; -7=Refused
numdayflIntegerRecommendednum days per week hot flushes
ntflushIntegerRecommendednight hot flushes past month0;1;-70=No; 1=Yes; -7=Refused
numntflIntegerRecommendednum days per week night flush
bodyhairIntegerRecommendedexcessive body hair0;1;-70=No; 1=Yes; -7=Refused
hairageIntegerRecommendedage first excess hair growth
hairremvIntegerRecommendedremove excess hair0;1;-70=No; 1=Yes; -7=Refused
numhrrmvIntegerRecommendednum times year remove hair
ultsndevIntegerRecommendedever had ultrasound of ovaries0;1;-70=No; 1=Yes; -7=Refused
pcovarIntegerRecommendedultrasnd showed polycystic ov0;1;-70=No; 1=Yes; -7=Refusedpolyovar
agecystsIntegerRecommendedage first ultrasnd showed cyst
seizdiagIntegerRecommendedeeg dx seizure disorder epilep0;1;-70=No; 1=Yes; -7=Refusedseizure
seizmonIntegerRecommendedhad seizures past 3months0;1;-70=No; 1=Yes; -7=Refused
famirrpdIntegerRecommendedfam mem irregular periods0;1;-70=No; 1=Yes; -7=Refused
famxhairIntegerRecommendedfam mem excess hair growth0;1;-70=No; 1=Yes; -7=Refused
fampcosIntegerRecommendedfam mem pcos0;1;-70=No; 1=Yes; -7=Refused
faminferIntegerRecommendedfam mem infertility0;1;-70=No; 1=Yes; -7=Refused
famprempIntegerRecommendedfam mem premature menopause0;1;-70=No; 1=Yes; -7=Refused
famdiabIntegerRecommendedfam mem diabetes0;1;-70=No; 1=Yes; -7=Refused
famseizIntegerRecommendedfam mem seizure disorder0;1;-70=No; 1=Yes; -7=Refused
took4wksIntegerRecommendedtook stopped med 4weeks0;1;-70=No; 1=Yes; -7=Refused
estrogenIntegerRecommendedhormone replacement therapy0;1;-70=No; 1=Yes; -7=Refused
depoprovIntegerRecommendeddepo provera shots0;1;-70=No; 1=Yes; -7=Refused
norplantIntegerRecommendednorplant0;1;-70=No; 1=Yes; -7=Refused
clomidIntegerRecommendedclomid or infertility meds0;1;-70=No; 1=Yes; -7=Refused
testostIntegerRecommendedtestosterone0;1;-70=No; 1=Yes; -7=Refused
prednisIntegerRecommendedprednisone or steroid pills0;1;-70=No; 1=Yes; -7=Refused
stoppillIntegerRecommendedstopped birth conrol pill 2mo0;1;-70=No; 1=Yes; -7=Refused
stopestrIntegerRecommendedstopped estrogen past 2mo0;1;-70=No; 1=Yes; -7=Refused
stopclomIntegerRecommendedstopped clomid past 2mo0;1;-70=No; 1=Yes; -7=Refused
stoptestIntegerRecommendedstopped testosterone past 2mo0;1;-70=No; 1=Yes; -7=Refused
stoppredIntegerRecommendedstopped prednisone past 2mo0;1;-70=No; 1=Yes; -7=Refused
dprov12mIntegerRecommendeddepo provera shot in past 12mo0;1;-70=No; 1=Yes; -7=Refused
norpl12mIntegerRecommendednorplant implant past 12mo0;1;-70=No; 1=Yes; -7=Refused
birth6moIntegerRecommendedgiven birth in past 6mo0;1;-70=No; 1=Yes; -7=Refused
birnummoIntegerRecommendednum months ago gave birth
pmenopsIntegerRecommendedpremature menopause0;1;-70=No; 1=Yes; -7=Refused
hystageIntegerRecommendedage at hysterectomy888=N/A; 999=missing data
bthovageIntegerRecommendedage when both ovaries removed
irregcycIntegerRecommendedirregular periods in past 3mo0;1;-70=No; 1=Yes; -7=Refused
cycle35IntegerRecommendedcycle gt 35days in past 3mo0;1;-70=No; 1=Yes; -7=Refused
miss3moIntegerRecommendedmissed menst period in past 3m0;1;-70=No; 1=Yes; -7=Refused
stopdepaIntegerRecommendedstopped depakote past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoplamiIntegerRecommendedstopped lamicatal past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoplithIntegerRecommendedstopped lithium past 3mo0;1;-70=No; 1=Yes; -7=Refused
stopneurIntegerRecommendedstopped neurontin past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoptegrIntegerRecommendedstopped tegretol past 3mo0;1;-70=No; 1=Yes; -7=Refused
stoptopiIntegerRecommendedstopped topimax past 3mo0;1;-70=No; 1=Yes; -7=Refused
numpregIntegerRecommendednumber of pregnancies
numchildIntegerRecommendednumber of children
miss2moIntegerRecommendedmissed your menstrual period0;1;-70=No; 1=Yes; -7=Refused
missdurFloatRecommendedduration miss menstrual period
missageIntegerRecommendedmenstrual period missed age
mpstartIntegerRecommendedrecent mens days from consent
length10IntegerRecommendedcurrent cycle 10 days0;1;-70=No; 1=Yes; -7=Refused
mpsxIntegerRecommendedsymptoms around period0;1;-70=No; 1=Yes; -7=Refused
diffconcIntegerRecommendeddifficulties concentrating0;1;-70=No; 1=Yes; -7=Refused
sxpregIntegerRecommendedsevere mood symptoms0;1;-70=No; 1=Yes; -7=Refused
sxppartIntegerRecommendedsevere mood symptom postpartum0;1;-70=No; 1=Yes; -7=Refused
sxpillIntegerRecommendedsevere mood symptoms on birth control0;1;-70=No; 1=Yes; -7=Refused
endomsisIntegerRecommendedendometriosis0;1;-7; 888;9990=No; 1=Yes; -7=Refused; 888=N/A; 999=missing data
txacneIntegerRecommendedtreatment for acne0;1;-70=No; 1=Yes; -7=Refused
breastcaIntegerRecommendedbreast cancer0;1;-70=No; 1=Yes; -7=Refused
abpapIntegerRecommendedmultiple abnormal pap smear s0;1;-70=No; 1=Yes; -7=Refused
fibuterIntegerRecommendedfibroid uterus0;1;-70=No; 1=Yes; -7=Refused
fibcystIntegerRecommendedfibroid cystic breast disease0;1;-70=No; 1=Yes; -7=Refused
cycle10IntegerRecommendedcycle lengths predictable0;1;-70=No; 1=Yes; -7=Refused
dayflowIntegerRecommendedperiod usually flow
mensflowIntegerRecommendedtotal amount of menstrual f low1::4;-71=Light; 2=Moderate; 3=Moderately heavy; 4=Heavy; -7=Refused
painmpIntegerRecommendedhow much pain with periods0::30=No pain; 1=Mild cramps; 2=Moderate cramps; 3=Severe cramps; -7=Refused
daysmpIntegerRecommendedusual number of days pain
ovarcystIntegerRecommendedovarian cyst0;1;-70=No; 1=Yes; -7=Refused
asstypIntegerRecommendedAssessment type1::201=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
stageIntegerRecommendedStudy stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
bsit0FloatRecommendedWeeks from Time 0/baseline to assessmentfmct0
fmc1IntegerRecommendedHistory of menstruation0::20 = No; 1 = Yes; 2=NA - subject is Male
mpt0FloatRecommendedWeeks from Time 0 (randomization) to date of last menstrual period
fmc3IntegerRecommendedIf history of menstruation, consistency of menstrual cycles over the last 3 months0;10 = Irregular menstrual cycle; 1 = Regular menstrual cycle
fmc4aIntegerRecommendedIf history of menstruation, days between start of each menstrual period (regular cycle)[Caution: Beware of extreme outliers]
fmc4bIntegerRecommendedIf history of menstruation, lower number of days between start of each menstrual period (irregular)[Caution: Beware of extreme outliers]
fmc4cIntegerRecommendedIf history of menstruation, upper number of days between start of each menstrual period (irregular)[Caution: Beware of extreme outliers]
fmc5IntegerRecommendedIf history of menstruation, did you "miss" your last menstrual period?0;10 = No; 1 = Yesfmc5a
fmc6IntegerRecommendedIf history of menstruation, is teenager currently pregnant?0::40 = Not Pregnant; 1 = Pregnancy suspected, but not confirmed; 2 = Pregnancy confirmed; 3=Not pregnant(per pregnancy test); 4=Not pregnant(has not reached menarche)  
visdayIntegerRecommendedNumber of days from study baseline to date of visitdayfmc
fmc2_dIntegerRecommendedDays Since Last Menstrual Period
fmc4b1IntegerRecommendedStart point of range in days if irregular cycle
fmc4b2IntegerRecommendedEnd point of range in days if irregular cycle
fmc5bIntegerRecommendedIf last menstrual period missed: how many days late are you?
pregtestIntegerRecommendedPregnancy test done?0;10 = No;1 = Yes
fmc7IntegerRecommendedIf sexually active, what form of contraception is being used?1::61 = Hormonal;2 = Spermicide;3 = Barrier;4 = Barrier & Spermicide;5=Not Applicable/Not Active; 6=Hormonal and Barrier
regmenseIntegerRecommendedRegular menstrual periods0;1; 9990=No;1=Yes; 999=NA
premenstIntegerRecommendedMedical history and physical development - If female: Current premenstrual?0::20=N/A (male); 1=no; 2=yes
menarcheString50RecommendedMenarche cycle
version_formString100RecommendedForm used/assessment name
surg_surgtype1String255RecommendedTYPE OF SURGERY 1surgery
inter_othercondString50RecommendedCLIENTS MEDICAL STATUS: Otherother
pu_menstrcdIntegerRecommendedMenstrual status code0::141= Regular cycle (periods occur regularly); 2= Irregular cycles and/or bleeding (eg periods occur irregularly, spotting, heavy or prolonged bleeding); 3= Menopause; 4= Surgery (hysterectomy); 5= Hormone imbalance (weight loss, anorexia, strenuous physical activity, stress, decreased body fat); 6= Pharmacologic suppression...(eg depo; 7= Pregnancy (includes three months post; 8= Other reason for Amenorrhea (specify by notation); 9= Unknown; 0 = Not applicable, patient is male; 10 = Not applicable; child/adolescent has not started menstration; 11 = Amenorrheic due to bilateral oophorectomy (ovaries surgically removed); 12 = Amenorrheic due to other surgical procedure -- specify surgery; 13 = 0 to 6 weeks post partum; 14 = More than 6 weeks to 8 months post partummenstat
bsimoFloatRecommendedMonths from Time 0 to assessmentmonfol
days_baselineIntegerRecommendedDays since baseline
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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Distribution for DataStructure: mhu01 and Element:
Chart Help

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