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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Peds - Demographics

651 Shared Subjects

Demographics as defined by the NIH Pediatric MRI Project
Clinical Assessments
Demographics
03/08/2010
peds_demographics01
08/16/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
Query fs_v1_q50b_nr_bioparent_race_ String 80 Recommended Full Screener (Visit 1): Q50b nonrespondent biological parent race (Choices are - American Indian/Alaskan Native; African American/Black; Asian; Native Hawaiian/other Pacific Islander; White; Not provided) American Indian/Alaskan Native; African American/Black; Asian; Native Hawaiian/other Pacific Islander; White; Not provided FullScreen_V1_Q50b_NonRespondent_BioParent_Race
Query mother_race_ String 80 Recommended Mother race (choices are American Indian/Alaskan Native; African American/Black; Asian; Native Hawaiian/other Pacific Islander; White; Not provided) American Indian/Alaskan Native; African American/Black; Asian; Native Hawaiian/other Pacific Islander; White; Not provided Mother_Race
Query father_race_ String 80 Recommended Father race (choices are American Indian/Alaskan Native; African American/Black; Asian; Native Hawaiian/other Pacific Islander; White; Not provided) American Indian/Alaskan Native; African American/Black; Asian; Native Hawaiian/other Pacific Islander; White; Not provided Father_Race
Query subject_gender String 10 Recommended Subject: gender Male;Female
Query mother_ethnicity String 30 Recommended Mother ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino) Hispanic or Latino;Not Hispanic or Latino;Not Provided
Query mother_education String 30 Recommended Mother education level Less Than 6th Grade;Less Than High School;High School;Some College;College;Some Graduate Level;Graduate Level;NA NA = Not available
Query hand_used_to_write_with String 1 Recommended Hand used to write with. R;L;B R = Right; L = Left; B = Both/bimanual
Query fs_v1_household_income String 20 Recommended Full Screener (Visit 1): Q52 combined income all adults in home Zero to 5000;5001 to 10000;10001 to 15000;15001 to 25000;25001 to 35000;35001 to 50000;50001 to 75000;75001 to 100000;100001 to 150000;over 150000;No Answer In dollars FullScreen_V1_Household_Income
Query child_race_ String 80 Recommended Child race derived from both parent races African American or Black; American Indian or Alaskan Native; Asian; Native Hawaiian or Other Pacific Islander; White; Not Provided. Multiple races may be listed.
Query father_ethnicity String 30 Recommended Father ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino) Hispanic or Latino;Not Hispanic or Latino;Not Provided
Query father_education String 30 Recommended Father education level Less Than 6th Grade;Less Than High School;High School;Some College;College;Some Graduate Level;Graduate Level;NA NA = Not available
Query child_ethnicity_ String 30 Recommended Child ethnicity derived from both parent ethnicities Hispanic or Latino;Part Hispanic or Latino;Not Hispanic or Latino
Query family_bio_coi_total_house_inc String 30 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question ID2 Total Income for Child of Interest (COI) Household at brain scan timepoint Zero to 5000;5001 to 10000;10001 to 15000;15001 to 25000;25001 to 35000;35001 to 50000;50001 to 75000;75001 to 100000;100001 to 150000;over 150000;No Answer In dollars Family_Bio_ID2_COI_Family_Total_Household_Income
Query family_bio_coi_biol_father_ed String 30 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IB6 Child of Interest (COI) Biological Father education at brain scan timepoint Less than High School;High School Degree;Some College;College Degree;Some Graduate Work;Graduate Degree;No Answer Family_Bio_IB6_COI_Biol_Father_Education
Query family_bio_coi_biol_fathr_race String 50 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IB5 Child of Interest (COI) Biological Father Race (American Indian or Alaska Native, African American or Black, Asian, Native Hawaiian or Other Pacific Islander, White, No Answer) American Indian or Alaska Native;African American or Black;Asian;Native Hawaiian or Other Pacific Islander;White;No Answer Family_Bio_IB5_COI_Biol_Father_Race
Query family_bio_coi_biol_fathr_ethn String 30 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IB4 Child of Interest (COI) Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer) Hispanic or Latino;Not Hispanic or Latino;No Answer Family_Bio_IB4_COI_Biol_Father_Ethnicity
Query family_bio_coi_biol_mother_ed String 30 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IA5 Child of Interest (COI) Biological Mother education at brain scan timepoint Less than High School;High School Degree;Some College;College Degree;Some Graduate Work;Graduate Degree;No Answer Family_Bio_IA5_COI_Biol_Mother_Education
Query family_bio_coi_biol_mothr_race String 50 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IA4 Child of Interest (COI) Biological Mother Race (American Indian or Alaska Native, African American or Black, Asian, Native Hawaiian or Other Pacific Islander, White, No Answer) American Indian or Alaska Native;African American or Black;Asian;Native Hawaiian or Other Pacific Islander;White;No Answer Family_Bio_IA4_COI_Biol_Mother_Race
Query family_bio_coi_biol_mothr_ethn String 30 Recommended Family Biographical History Form (0:0 to 4:5 y:m) Question IA3 Child of Interest (COI) Biological Mother Ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer) Hispanic or Latino;Not Hispanic or Latino;No Answer Family_Bio_IA3_COI_Biol_Mother_Ethnicity
Query adjusted_family_income Integer Recommended Income adjusted for family size and geographical region using HUD data In dollars
Query timepoint_label String 50 Recommended Timepoint/visit label
src_subject_id String 20 Required Subject ID how it's defined in lab/project Subject_ID
Query site_id Integer Recommended Number assigned to site Site_Location
Query household_income_level Integer Recommended Combined income all adults in home 1::26;77 1 = $0-$5,000; 2 = $5,001-$10,000; 3 = $10,001-$15,000; 4 = $15,001-$25,000; 5 = $25,001-$35,000; 6 = $35,001-$50,000; 7 = $50,001-$75,000; 8 = $75,001-$100,000; 9 = $100,001-$150,000; 10 = Over $150,000; 11 = Less than $10,000; 12 = $15,000-$20,000; 13 = $20,000-$25,000; 14 = $25,000-$30,000; 15 = $30,000-$35,000; 16 = $35,000-$40,000; 17 = $40,000-$45,000; 18 = $45,000-$50,000; 19 = $50,000-$55,000; 20 = $55,000-$60,000; 21 = Above $60,000; 23=$60, 001 - $65, 000; 24=65, 001 - $70, 000 ;25=$70, 001 - $75, 000; 26=More than $75, 000; 77=Rather not say
Query age_years_dov_to_dob Integer Recommended Age in years obtained by subtracting the date of birth from the date of visit (Calculation is based on 1 year = 365.25 days). Age_Years_Date_of_Visit_to_DOB
Query age_months_dov_to_dob Integer Recommended Age in months obtained by subtracting the date of birth from the date of visit (Calculation is based on 1 month = 30 days). Age_Months_Date_of_Visit_to_DOB
Query age_days_dov_to_dob Integer Recommended Age in days at Visit (DoV-DoB), same as age of scan if obtained Age_Days_Date_of_Visit_to_DOB
ac_info02 String 20 Recommended Alternative Caregiver (AC) Gender: M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
tc_service04 Integer Recommended Speech Therapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service05 Integer Recommended In the last 6 months: Did child (TC) receive Occupational Therapy 0;1 0= No; 1= Yes
tc_service06 Integer Recommended Occupational Therapy: Number of Sessions per Month Number of Sessions per Month
tc_service07 Integer Recommended Occupational Therapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service08 Integer Recommended In the last 6 months: Did child (TC) receive Sensory Integration 0;1 0= No; 1= Yes
tc_service09 Integer Recommended Sensory Integration: Number of Sessions per Month Number of Sessions per Month
tc_service10 Integer Recommended Sensory Integration: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service11 Integer Recommended In the last 6 months: Did child (TC) receive Physical Therapy 0;1 0= No; 1= Yes
tc_service12 Integer Recommended Physical Therapy: Number of Sessions per Month Number of Sessions per Month
tc_service13 Integer Recommended Physical Therapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
ac_info03 String 20 Recommended Alternative Caregiver (AC) Relationship to child (TC): ie mother father legal guardian sibling aunt uncle etc
tc_service14 Integer Recommended In the last 6 months: Did child (TC) receive Clinic to Based Behavior Therapy 0;1 0= No; 1= Yes
tc_service15 Integer Recommended Clinic to Based Behavior Therapy: Number of Sessions per Month Number of Sessions per Month
tc_service16 Integer Recommended Clinic to Based Behavior Therapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service17 Integer Recommended In the last 6 months: Did child (TC) receive Adaptive PE 0;1 0= No; 1= Yes
tc_service18 Integer Recommended Adaptive PE: Number of Sessions per Month Number of Sessions per Month
tc_service19 Integer Recommended Adaptive PE: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service20 Integer Recommended In the last 6 months: Did child (TC) receive Play Therapy 0;1 0= No; 1= Yes
tc_service21 Integer Recommended Play Therapy: Number of Sessions per Month Number of Sessions per Month
tc_service22 Integer Recommended Play Therapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service23 Integer Recommended In the last 6 months: Did child (TC) receive Psychotherapy 0;1 0= No; 1= Yes
ac_info04 Integer Recommended How long has child (TC) lived with Alternative Caregiver (AC): Number of years; Number of months
tc_service24 Integer Recommended Psychotherapy: Number of Sessions per Month Number of Sessions per Month
tc_service25 Integer Recommended Psychotherapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service26 Integer Recommended In the last 6 months: Did child (TC) receive In to home Behavior Therapy 0;1 0= No; 1= Yes
tc_service27 Integer Recommended In to home Behavior Therapy: Number of Sessions per Month Number of Sessions per Month
tc_service28 Integer Recommended In to home Behavior Therapy: Number of Months of Services (only within the last 6 months) Number of Months of Services
tc_service29 Integer Recommended In the last 6 months: Did child (TC) receive Other 0;1 0= No; 1= Yes
tc_service30 String 500 Recommended Please specify what other services are received:
tc_service31 Integer Recommended Other: Number of Sessions per Month Number of Sessions per Month
tc_service32 Integer Recommended Other: Number of Months of Services (only within the last 6 months) Number of Months of Services
ser_satis_01 Integer Recommended Overall, how satisfied are you with the services you and your child receives? 0 :: 4;9 0= Very Dissatisfied; 1= Dissatisfied; 2= Neutral; 3= Satisfied; 4= Very Satisfied; 9= NA
ac_info05 Integer Recommended Is the Alternative Caregiver (AC) currently living in the home? 0;1 0= No; 1= Yes
ser_satis_02 Integer Recommended How satisfied are you with the number of hours of services you receive? 0 :: 4;9 0= Very Dissatisfied; 1= Dissatisfied; 2= Neutral; 3= Satisfied; 4= Very Satisfied; 9= NA
ser_satis_03 Integer Recommended How satisfied are you with your service providers? 0 :: 4;9 0= Very Dissatisfied; 1= Dissatisfied; 2= Neutral; 3= Satisfied; 4= Very Satisfied; 9= NA
ser_satis_04 Integer Recommended How satisfied are you with your involvement in your childs services? 0 :: 4;9 0= Very Dissatisfied; 1= Dissatisfied; 2= Neutral; 3= Satisfied; 4= Very Satisfied; 9= NA
ser_satis_05 Integer Recommended How satisfied are you with your access to services (eg, how easy of difficult was it to secure services)? 0 :: 4;9 0= Very Dissatisfied; 1= Dissatisfied; 2= Neutral; 3= Satisfied; 4= Very Satisfied; 9= NA
ser_satis_06 Integer Recommended I would recommend the services I have to others 0 :: 4;9 0= Definitely not recommend; 1= Probably not recommend; 2= Not sure if I would recommend; 3= Recommend; 4= Highly recommend; 9= NA
tc_lang01 String 25 Recommended What is your childs first language? English; Spanish; Other (specify)
tc_lang02 String 25 Recommended What language is primarily spoken in the home? English; Spanish; Other (specify)
tc_lang03 Integer Recommended Is your child bilingual? 0;1 0= No; 1= Yes
tc_lang04 String 25 Recommended If Yes, Specify other language spoken:
tc_race Integer Recommended Childs (TC) Race 1 :: 7 1= WhiteCaucasian; 2= BlackAfrican American; 3= HispanicLatino; 4= Asian; 5= Native American; 6= Pacific Islander; 7= Other
pc_race Integer Recommended Primary Caregivers (PC) Race 1 :: 7 1= WhiteCaucasian; 2= BlackAfrican American; 3= HispanicLatino; 4= Asian; 5= Native American; 6= Pacific Islander; 7= Other
ac_race Integer Recommended Alternative Caregivers (AC) Race 1 :: 7 1= WhiteCaucasian; 2= BlackAfrican American; 3= HispanicLatino; 4= Asian; 5= Native American; 6= Pacific Islander; 7= Other
pc_edu Integer Recommended Primary Caregiver (PC): What is the last level of formal education you completed? 1 :: 10 1= No formal schooling; 2= 7th grade or less; 3= Junior high completed; 4= Partial high school (at least one year); 5= High school graduateGED certificate; 6= Partial college (at least one year); 7= Specialized training; 8= Junior collegeAssociates degree (2 years); 9= Standard college or university graduation (4 years); 10= Graduate professional training graduate degree
ac_edu Integer Recommended Alternative Caregiver (AC): What is the last level of formal education your partner (AC) completed? 1 :: 10 1= No formal schooling; 2= 7th grade or less; 3= Junior high completed; 4= Partial high school (at least one year); 5= High school graduateGED certificate; 6= Partial college (at least one year); 7= Specialized training; 8= Junior collegeAssociates degree (2 years); 9= Standard college or university graduation (4 years); 10= Graduate professional training graduate degree
pc_job Integer Recommended Primary Caregiver (PC): What is your employment status? 1 :: 11 1= Self to Employed; 2= Full Time; 3= Part Time; 4= Seasonal; 5= Unemployed; 6= Disabled; 7= Temporary Layoff; 8= Full to Time Homemaker; 9= Retired; 10= Student; 11= Other
pc_job_a String 500 Recommended Primary Caregiver (PC): Job Title
pc_job_b String 4,000 Recommended Primary Caregiver (PC): Job Duties
pc_job_c Integer Recommended Primary Caregiver (PC): How many hours per week: Time in Hours
pc_job_d Integer Recommended Primary Caregiver (PC): How long have you been at this job,profession? Length in Months
ac_job Integer Recommended Alternative Caregiver (AC): What is your partners (AC) employment status? 1 :: 11 1= Self to Employed; 2= Full Time; 3= Part Time; 4= Seasonal; 5= Unemployed; 6= Disabled; 7= Temporary Layoff; 8= Full to Time Homemaker; 9= Retired; 10= Student; 11= Other
ac_job_a String 500 Recommended Alternative Caregiver (AC): Job Title
ac_job_b String 4,000 Recommended Alternative Caregiver (AC): Job Duties
ac_job_c Integer Recommended Alternative Caregiver (AC): How many hours per week: Time in Hours
ac_job_d Integer Recommended Alternative Caregiver (AC): How long have you been at this job,profession? Length in Months
grossinc Integer Recommended Gross Annual Household Income 1 :: 13 1= 4999 or less; 2= 5000 to 9999; 3= 10000 to 14999; 4= 15000 to 19999; 5= 20000 to 24999; 6= 25000 to 29999; 7= 30000 to 39999; 8= 40000 to 49999; 9= 50000 to 59999; 10= 60000 to 69999; 11= 70000 to 79999; 12= 80000 to 89999; 13= 90000 or more
pc_info01 Integer Recommended Primary Caregiver (PC) Age: Age in Years
fam_services Integer Recommended Do you or your family receive any of the following? 1 :: 12 1= Temporary Assistance for Needy Families (TANF)Welfare; 2= Social Security; 3= SSI (Supplemental Security Income); 4= Medi to Cal; 5= CalFresh SNAP Food Stamps; 6= Heating and Electric bill assistance; 7= Unemployment; 8= Child support; 9= WIC (Women Infants and Children); 10= Tribal Insurance; 11= Other; 12= None
sibs_01 Integer Recommended Do you have any other children living in the home? 0;1 0= No; 1= Yes
sibs_02 Integer Recommended How many other children live in the home?
sibs_03 Integer Recommended How many children are you financially supporting?
sibs_04 Integer Recommended Sibling 1: Siblings Age Age in Years
sibs_05 String 2 Recommended Sibling 1: Siblings Gender M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
sibs_06 String 25 Recommended Sibling 1: Siblings relationship to child (TC)
sibs_07 String 2 Recommended Sibling 1: relationship code
sibs_08 Integer Recommended Sibling 1: Do they have a learning problem? 0;1 0= No; 1= Yes
sibs_09 String 500 Recommended Sibling 1: If yes, please list learning problems
pc_info02 String 20 Recommended Primary Caregiver (PC) Gender: M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
sibs_10 Integer Recommended Sibling 1: Do they have a behavior problem? 0;1 0= No; 1= Yes
sibs_11 Integer Recommended Sibling 1: Do they have a mental health problem? 0;1 0= No; 1= Yes
sibs_12 Integer Recommended Sibling 1: Do they live in the home? 0;1 0= No; 1= Yes
sibs_13 Integer Recommended Sibling 2: Siblings Age Age in Years
sibs_14 String 2 Recommended Sibling 2: Siblings Gender M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
sibs_15 String 25 Recommended Sibling 2: Siblings relationship to child (TC)
sibs_16 String 2 Recommended Sibling 2: relationship code
sibs_17 Integer Recommended Sibling 2: Do they have a learning problem? 0;1 0= No; 1= Yes
sibs_18 String 500 Recommended Sibling 2: If yes, please list learning problems
sibs_19 Integer Recommended Sibling 2: Do they have a behavior problem? 0;1 0= No; 1= Yes
pc_info03 String 20 Recommended Primary Caregiver (PC) Relationship to child (TC): ie mother father legal guardian sibling aunt uncle etc
sibs_20 Integer Recommended Sibling 2: Do they have a mental health problem? 0;1 0= No; 1= Yes
sibs_21 Integer Recommended Sibling 2: Do they live in the home? 0;1 0= No; 1= Yes
sibs_22 Integer Recommended Sibling 3: Siblings Age Age in Years
sibs_23 String 2 Recommended Sibling 3: Siblings Gender M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
sibs_24 String 25 Recommended Sibling 3: Siblings relationship to child (TC)
sibs_25 String 2 Recommended Sibling 3: relationship code
sibs_26 Integer Recommended Sibling 3: Do they have a learning problem? 0;1 0= No; 1= Yes
sibs_27 String 500 Recommended Sibling 3: If yes, please list learning problems
sibs_28 Integer Recommended Sibling 3: Do they have a behavior problem? 0;1 0= No; 1= Yes
sibs_29 Integer Recommended Sibling 3: Do they have a mental health problem? 0;1 0= No; 1= Yes
pc_info04 Integer Recommended How long has child (TC) lived with PC: Number of years; Number of months
sibs_30 Integer Recommended Sibling 3: Do they live in the home? 0;1 0= No; 1= Yes
sibs_31 Integer Recommended Sibling 4: Siblings Age Age in Years
sibs_32 String 2 Recommended Sibling 4: Siblings Gender M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
sibs_33 String 25 Recommended Sibling 4: Siblings relationship to child (TC)
sibs_34 String 2 Recommended Sibling 4: relationship code
sibs_35 Integer Recommended Sibling 4: Do they have a learning problem? 0;1 0= No; 1= Yes
sibs_36 String 500 Recommended Sibling 4: If yes, please list learning problems
sibs_37 Integer Recommended Sibling 4: Do they have a behavior problem? 0;1 0= No; 1= Yes
sibs_38 Integer Recommended Sibling 4: Do they have a mental health problem? 0;1 0= No; 1= Yes
sibs_39 Integer Recommended Sibling 4: Do they live in the home? 0;1 0= No; 1= Yes
pc_info05 Integer Recommended What is you martial status? 1 :: 6 1= Married; 2= Living Together; 3= Seperated; 4=Divorced; 5= Widowed; 6= Single
famdis_01 Integer Recommended Immediate Family: Does anyone in your childs family have a history of a learning problem? 0;1 0= No; 1= Yes
famdis_02 String 500 Recommended Immediate Family: is Yes, who & what:
famdis_03 Integer Recommended Extended Family: Does anyone in your childs family have a history of a learning problem? 0;1 0= No; 1= Yes
famdis_04 String 500 Recommended Extended Family: is Yes, who & what:
famdis_05 Integer Recommended Immediate Family: Does anyone in your childs family have a history of mental health problems? 0;1 0= No; 1= Yes
famdis_06 String 500 Recommended Immediate Family: is Yes, who & what:
famdis_07 Integer Recommended Extended Family: Does anyone in your childs family have a history of mental health problems? 0;1 0= No; 1= Yes
famdis_08 String 500 Recommended Extended Family: is Yes, who & what:
tcdis_01 Integer Recommended Has child (TC) been identified as having autism spectrum disorder? 0;1 0= No; 1= Yes
tcdis_02 Integer Recommended If No: Has child (TC) been identified as having a developmental delay or concern? 0;1 0= No; 1= Yes
pc_info06 Integer Recommended Do you have a partner in the home? 0;1 0= No; 1= Yes
tcdis_03 Integer Recommended TC: Primary Development Disability: 1 :: 13 1= Developmental Delay; 2= SpeechLanguage Delay; 3= Autism Spectrum Disorder; 4= Cerebral Palsy; 5= Chronic medical illness; 6= Genetic DisorderSyndrome; 7= Sensory Disorder; 8= Learning Disability; 9= Fetal Alcohol Syndrome; 10= Motor Delay; 11= Social to Emotional Delay; 12= DeafHearing; 13= Other
tcdis_04 String 150 Recommended TC: Primary Development Disability (Specify):
tcdis_05 Integer Recommended When was child (TC) identified with this condition? 0 :: 5;9 0= At birth or infancy (0 to 11 months); 1= One to year old (12 to 23 months); 2= Two to years old (24 to 35 months); 3= Three to years old (36 to 47 months); 4= Four to years old (48 to 59 months); 5= Five to years old (60 to 71 months); 9= Unknown
tcdis_06 Integer Recommended Who identified child (TC) with this condition? 1 :: 6;9 1= Primary Care PhysicianPediatrician; 2= Other PhysicianSpecialist (eg neurologist psychiatrist other specialist); 3= Psychologist (eg clinical psychologist school psychologist); 4= Social Worker; 5= Interdisciplinary Team; 6= Other; 9= Unknown
tcdis_07 Integer Recommended Does child (TC) have a secondary condition? 0;1 0= No; 1= Yes
tcdis_08 Integer Recommended TC: Secondary Development Disability: 1 :: 4;9 1= ADHD; 2= Disruptive behavior disorder; 3= Seizure disorder; 4= Other; 9= NA
tcdis_09 String 150 Recommended TC: Secondary Development Disability (Specify):
tcdis_10 Integer Recommended When was child (TC) identified with this secondary condition? 0 :: 6;9 0= At birth or infancy (0 to 11 months); 1= One to year old (12 to 23 months); 2= Two to years old (24 to 35 months); 3= Three to years old (36 to 47 months); 4= Four to years old (48 to 59 months); 5= Five to years old (60 to 71 months); 6= Unknown; 9= NA
tcdis_11 Integer Recommended Who identified child (TC) with this secondary condition? 1 :: 6;9 1= Primary Care PhysicianPediatrician; 2= Other PhysicianSpecialist (eg neurologist psychiatrist other specialist); 3= Psychologist (eg clinical psychologist school psychologist); 4= Social Worker; 5= Interdisciplinary Team; 6= Other; 9= Unknown
tcdis_12 Integer Recommended Does child (TC) have any medical,health problems? 0 :: 2 0= No; 1= Yes; 2= Dont know
ac_info01 Integer Recommended Alternative Caregiver (AC) Age: Age in Years
tcdis_13 String 4,000 Recommended If Yes, Specify Medical,Mental Health problems
tcdis_14 Integer Recommended Is child (TC) seen regularly by a physician? 0;1 0= No; 1= Yes
tcdis_15 Integer Recommended Is child (TC) currently taking any medications? 0;1 0= No; 1= Yes
tcdis_16 String 4,000 Recommended Medication List Note Medication Name; Dosage; and Reason
tc_edu01 Integer Recommended Is child (TC) currently enrolled in a school program? 0;1 0= No; 1= Yes
tc_edu02 String 50 Recommended If Yes, please provide name of school:
tc_edu03 Integer Recommended Is child (TC) enrolled in school with special education eligibility? (ex IEP) 0 :: 2 0= No; 1= Yes; 2= Dont know
tc_service01 Integer Recommended Does child (TC) receive related services for either the primary or secondary diagnosis? 0;1 0= No; 1= Yes
tc_service02 Integer Recommended In the last 6 months: Did child (TC) receive Speech Therapy 0;1 0= No; 1= Yes
tc_service03 Integer Recommended Speech Therapy: Number of Sessions per Month Number of Sessions per Month
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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