|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
pguid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
hcpa_id, id, subject, subjectid |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
interview_age_mom |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
date |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
eddep04 |
Integer |
|
Recommended |
In the past 7 days...I felt worthless |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depression30, dsm5_pt_dep_1, dsm5_pt_dep_1_spa, dsm5_sp_dep_1, dsm5_sp_dep_1_spa, eddepsf8b01, promis_dep1, promis_eddep04, t1pro5, worthless |
Query
|
eddep05 |
Integer |
|
Recommended |
In the past 7 days...I felt that I had nothing to look forward to |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depression31, dsm5_pt_dep_2, dsm5_pt_dep_2_spa, dsm5_sp_dep_2, dsm5_sp_dep_2_spa, eddepsf8b02, nothingtolookforward, promis_dep7 |
Query
|
eddep06 |
Integer |
|
Recommended |
In the past 7 days...I felt helpless |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depression32, dsm5_pt_dep_3, dsm5_pt_dep_3_spa, dsm5_sp_dep_3, dsm5_sp_dep_3_spa, eddepsf8b03, helpless, promis_dep2, promis_eddep06, t1pro6 |
Query
|
eddep07 |
Integer |
|
Recommended |
In the past 7 days...I withdrew from other people |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression33 |
Query
|
eddep09 |
Integer |
|
Recommended |
In the past 7 days...I felt that nothing could cheer me up |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depression34, promis_dep8 |
Query
|
eddep14 |
Integer |
|
Recommended |
In the past 7 days...I felt that I was not as good as other people |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression35 |
Query
|
eddep17 |
Integer |
|
Recommended |
In the past 7 days...I felt sad |
1::5;888;999
|
1 = Never; 2 = Rarely or almost never; 3 = Sometimes; 4 = Often; 5 = Always; 888 = N/A; 999 = Incomplete
|
bl_c_promis_ped_v2_dep8a_6, depression36, dsm5_pt_dep_4, dsm5_pt_dep_4_spa, dsm5_sp_dep_4, dsm5_sp_dep_4_spa, eddepsf8b04, pds_06, predd02__2, sad |
Query
|
eddep19 |
Integer |
|
Recommended |
In the past 7 days...I felt that I wanted to give up on everything |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression37 |
Query
|
eddep21 |
Integer |
|
Recommended |
In the past 7 days...I felt that I was to blame for things |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression38 |
Query
|
eddep22 |
Integer |
|
Recommended |
In the past 7 days...I felt like a failure |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depression39, dsm5_pt_dep_5, dsm5_pt_dep_5_spa, dsm5_sp_dep_5, dsm5_sp_dep_5_spa, eddepsf8b05, failure, promis_dep5 |
Query
|
eddep23 |
Integer |
|
Recommended |
In the past 7 days...I had trouble feeling close to people |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression40 |
Query
|
eddep26 |
Integer |
|
Recommended |
In the past 7 days...I felt disappointed in myself |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression41 |
Query
|
eddep27 |
Integer |
|
Recommended |
In the past 7 days...I felt that I was not needed |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression42 |
Query
|
eddep28 |
Integer |
|
Recommended |
In the past 7 days...I felt lonely |
1::5;888;999
|
1 = Never; 2 = Rarely or almost never; 3 = Sometimes; 4 = Often; 5 = Always; 888 = N/A; 999 = Incomplete
|
bl_c_promis_ped_v2_dep8a_5, depression43, pds_05, predd02__12 |
Query
|
eddep29 |
Integer |
|
Recommended |
In the past 7 days...I felt depressed |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depressed, depression44, dsm5_pt_dep_6, dsm5_pt_dep_6_spa, dsm5_sp_dep_6, dsm5_sp_dep_6_spa, eddepsf8b06, promis_dep3, promis_eddep29, promis_eddep41, t1pro7 |
Query
|
eddep30 |
Integer |
|
Recommended |
In the past 7 days...I had trouble making decisions |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression45 |
Query
|
eddep31 |
Integer |
|
Recommended |
In the past 7 days...I felt discouraged about the future |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression46 |
Query
|
eddep35 |
Integer |
|
Recommended |
In the past 7 days...I found that things in my life were overwhelming |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression47 |
Query
|
eddep36 |
Integer |
|
Recommended |
In the past 7 days...I felt unhappy |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
bl_c_promis_ped_v2_dep8a_7, depression48, dsm5_pt_dep_7, dsm5_pt_dep_7_spa, dsm5_sp_dep_7, dsm5_sp_dep_7_spa, eddepsf8b07, pds_07, predd02__13, promis_dep6, unhappy |
Query
|
eddep39 |
Integer |
|
Recommended |
In the past 7 days...I felt I had no reason for living |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression49 |
Query
|
eddep41 |
Integer |
|
Recommended |
In the past 7 days...I felt hopeless |
1::5;-5;-999
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always; -5= Item seen but not answered; -999= Data not submitted (incomplete, item not seen)
|
depression50, dsm5_pt_dep_8, dsm5_pt_dep_8_spa, dsm5_sp_dep_8, dsm5_sp_dep_8_spa, eddepsf8b08, hopeless, promis_dep4, t1pro8 |
Query
|
eddep42 |
Integer |
|
Recommended |
In the past 7 days...I felt ignored by people |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression51 |
Query
|
eddep44 |
Integer |
|
Recommended |
In the past 7 days...I felt upset for no reason |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression52 |
Query
|
eddep45 |
Integer |
|
Recommended |
In the past 7 days...I felt that nothing was interesting |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression53, nothinginterest |
Query
|
eddep46 |
Integer |
|
Recommended |
In the past 7 days...I felt pessimistic |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression54 |
Query
|
eddep48 |
Integer |
|
Recommended |
In the past 7 days...I felt that my life was empty |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression55 |
Query
|
eddep50 |
Integer |
|
Recommended |
In the past 7 days...I felt guilty |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression56 |
Query
|
eddep54 |
Integer |
|
Recommended |
In the past 7 days...I felt emotionally exhausted |
1::5
|
1=Never; 2=Rarely; 3=Sometimes; 4=Often; 5=Always
|
depression57 |
Query
|
edd_rs |
Integer |
|
Recommended |
Emotional Distress Depression raw score |
|
999=missing/NK
|
rawscore, t1prodep |
Query
|
add_ts |
Float |
|
Recommended |
Emotional Distress Depression T score |
|
999=missing/NK
|
edd_ts, promis_sf_v10_depression_4a_tscore, t1prodept, tscore |
Query
|
add_se |
Float |
|
Recommended |
Emotional Distress Depression standard error |
|
999=missing/NK
|
edd_se, promis_sf_v10_depression_4a_std_error, se, t1prodepse |
Query
|
add_theta |
Float |
|
Recommended |
Emotional Distress Depression theta |
|
999=missing/NK
|
edd_theta, t1prodepth, theta |
Query
|
pedrepdep39 |
Integer |
|
Recommended |
In the past 7 days; I felt alone |
1::5
|
1=Never; 2=Almost Never; 3=Sometimes; 4=Often; 5=Almost Always
|
bl_c_promis_ped_v2_dep8a_2, pds_02, predd02__5 |
Query
|
pedrepdep41 |
Integer |
|
Recommended |
In the past 7 days; I could not stop feeling sad |
1::5
|
1=Never; 2=Almost Never; 3=Sometimes; 4=Often; 5=Almost Always
|
bl_c_promis_ped_v2_dep8a_1, pds_01, predd02__6 |
Query
|
pedrepdep34 |
Integer |
|
Recommended |
In the past 7 days; I felt like I couldn't do anything right |
1::5
|
1=Never; 2=Almost Never; 3=Sometimes; 4=Often; 5=Almost Always
|
bl_c_promis_ped_v2_dep8a_4, pds_04, predd02__7 |
Query
|
pedrepdep35 |
Integer |
|
Recommended |
In the past 7 days; I felt everything in my life went wrong |
1::5
|
1=Never; 2=Almost Never; 3=Sometimes; 4=Often; 5=Almost Always
|
bl_c_promis_ped_v2_dep8a_3, pds_03, predd02__8 |
Query
|
predd02__1 |
Integer |
|
Recommended |
I didn't care about anything |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
|
Query
|
predd02__3 |
Integer |
|
Recommended |
I wanted to be by myself. |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
|
Query
|
predd02__4 |
Integer |
|
Recommended |
It was hard for me to have fun. |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
bl_c_promis_ped_v2_dep8a_8, pds_08 |
Query
|
predd02__9 |
Integer |
|
Recommended |
I felt stressed. |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
|
Query
|
predd02__10 |
Integer |
|
Recommended |
Being sad made it hard for me to do things with my friends. |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
|
Query
|
predd02__11 |
Integer |
|
Recommended |
I felt sad for no reason |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
|
Query
|
predd02__14 |
Integer |
|
Recommended |
I felt too sad to eat. |
1 :: 5
|
1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Often; 5 = Always
|
|
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
siteid |
Query
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
timepoint |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
nih_pin |
String |
25
|
Recommended |
PIN number assigned by the NIH Toolbox |
|
|
pin |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
assessment_name |
|
wcst_ni |
Integer |
|
Recommended |
Number of Items |
|
|
itmcnt |
|
interview_language |
String |
255
|
Recommended |
Language Used in the Interview |
|
|
language |
|
edan_7 |
Integer |
|
Recommended |
|
|
|
|
|
comqother |
String |
255
|
Recommended |
Respondent - Other (text) |
|
|
respondent |
|
fneproc |
String |
20
|
Recommended |
name of trial procedure being run |
|
|
|
|
prom_dep8b_t |
Float |
|
Recommended |
PROMIS Depression - T-score, standardized with mean 50, SD 10 |
37.1::81.1
|
Higher score indicates more depressive symptoms
|
|
|
prom_dep8b_t_imputed_f1b |
Float |
|
Recommended |
PROMIS Depression - T-score, standardized with mean 50, SD 11; imputed dataset for Freeze 1B cohort |
37.1::81.1
|
Higher score indicates more depressive symptoms, imputed based on F1B cohort
|
|
|
prom_dep8b |
Integer |
|
Recommended |
PROMIS Depression Indicator, when the T-score greater than or equal to 60 |
0;1
|
0 = Indicating no symptom; 1 = indicates presence of depressive symptoms
|
|
|
prom_dep8b_imputed_f1b |
Integer |
|
Recommended |
PROMIS Depression Indicator, when the imputed F1B T-score greater than or equal to 60 |
0;1
|
0 = Indicating no symptom; 1 = indicates presence of depressive symptoms
|
|
|
timepoint_label |
String |
50
|
Recommended |
Timepoint/visit label |
|
|
|
|
pdep8b_unhappy |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Unhappy (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_hopeless |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Hopeless (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
prom_dep8b_rs |
Integer |
|
Recommended |
PROMIS Depression - Mean Raw score |
8::40
|
Higher score indicates more depressive symptoms
|
|
|
prom_dep8b_se |
Float |
|
Recommended |
PROMIS Depression - Standard Error for the T score |
1.8::5.5
|
SE error of T score
|
|
|
pdep8b_nothinginterest |
Integer |
|
Recommended |
PROMIS Depress 8b: Nothing Interesting (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_worthless |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Worthless (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_nothingtolookforward |
Integer |
|
Recommended |
PROMIS Depress 8b: Nothing Look Forward (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_helpless |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Helpless (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_sad |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Sad (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_failure |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Like Failure (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|
|
pdep8b_depressed |
Integer |
|
Recommended |
PROMIS Depress 8b: Feel Depressed (30 days) |
1::5;-5;-7;-8
|
1=None of the time; 2=A little of the time; 3=Some of the time; 4=Most of the time; 5=All or almost all of the time; -8=DON''T KNOW; -7=REFUSED; -5=Presented, not answered
|
|