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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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PROMIS Social Isolation

1,719 Shared Subjects

N/A
Clinical Assessments
Loneliness
08/01/2016
prsi01
04/01/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project hcpa_id, subject
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY asrsdate
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query cares23x Integer Recommended I find that friends or relatives have difficulty talking with me about my health 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query iso_caps1 Integer Recommended I feel isolated even when I am not alone 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query iso_caps2 Integer Recommended I feel that people avoid talking to me 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query iso_caps3 Integer Recommended I feel detached from other people 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query iso_caps9 Integer Recommended I feel like a stranger to those around me 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query scsc2x3 Integer Recommended People get the wrong idea about my situation 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query scsc3x2 Integer Recommended I feel that some of my friends avoid me 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query ss10x Integer Recommended I feel that some of my family members avoid me 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query ucla11x2 Integer Recommended I feel left out 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always prsi_leftout
Query ucla13x3 Integer Recommended I feel that people barely know me 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always prsi_barelyknow
Query ucla14x2 Integer Recommended I feel isolated from others 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always prsi_isolated
Query ucla18x2 Integer Recommended I feel that people are around me but not with me 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always prsi_withme
Query ucla7x2 Integer Recommended I feel that I am no longer close to anyone 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always soc255
Query ucla8x3 Integer Recommended I feel that I am alone in my interests and ideas 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query soil_rs Integer Required Social Isolation raw score 999=NA/NK/missing lon_score, rawscore
Query soil_ts Float Required Social Isolation T score 999=NA/NK/missing lon_t_score, tscore
Query soil_se Float Required Social Isolation standard error 999=NA/NK/missing lon_se_score, se
nih_pin String 25 Recommended PIN number assigned by the NIH Toolbox pin
Query soc252 Integer Recommended In the past month, please describe how often: I feel that I have nobody to talk to. 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query soc253 Integer Recommended In the past month, please describe how often: I feel alone and apart from others. 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always asrs4a
Query soc258 Integer Recommended In the past month, please describe how often: I feel that I don't have any friends. 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always
Query soc259 Integer Recommended In the past month, please describe how often: I feel that there is no one I can go to when I need help. 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always asrs4b
Query soc260 Integer Recommended In the past month, please describe how often: I feel alone. 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always asrs4d
Query soc261 Integer Recommended In the past month, please describe how often: I feel lonely. 1::5 1=Never; 2=Rarely; 3=Sometimes; 4=Usually; 5=Always asrs4e
Query nih_tlbx_theta Float Recommended Theta 999=NA/NK/missing lon_theta_score, loneliness8_17, theta
Query soc252_theta Float Recommended soc252 Theta
Query soc252_tscore Float Recommended soc252 T Score
Query soc252_se Float Recommended soc252 SE
Query soc253_theta Float Recommended soc253 Theta
Query soc253_tscore Float Recommended soc253 T Score
Query soc253_se Float Recommended soc253 SE
Query soc254 Integer Recommended In the past month, please descrbe how often I feel left out. 1::5 1= Never, 2= Rarely, 3= Sometimes, 4= Usually, 5= Always
Query soc254_theta Float Recommended soc254 Theta
Query soc254_tscore Float Recommended soc254 T Score
Query soc254_se Float Recommended soc254 SE
Query soc258_theta Float Recommended soc258 Theta
Query soc258_tscore Float Recommended soc258 T Score
Query soc258_se Float Recommended soc258 SE
Query soc259_theta Float Recommended soc259 Theta
Query soc259_tscore Float Recommended soc259 T Score
Query soc259_se Float Recommended soc259 SE
Query soc260_theta Float Recommended soc260 Theta
Query soc260_tscore Float Recommended soc260 T Score
Query soc260_se Float Recommended soc260 SE
Query soc261_theta Float Recommended soc261 Theta
Query soc261_tscore Float Recommended soc261 T Score
Query soc261_se Float Recommended soc261 SE
Query aescode Integer Recommended Staff code number of person completing this form 999= Missing Data asrsra
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data notes
Query asrs4c Integer Recommended Past Month: Loneliness: I feel that I am no longer close to anyone 1::5 1 = Never; 2 = Rarely; 3 = Sometimes; 4 = Usually; 5 = Always
version_form String 121 Recommended Form used/assessment name assessment_name
visit_num Integer Recommended Visit number 1::3 1=Baseline, 2=12 Month, 3=24 Month
interview_language String 255 Recommended Language Used in the Interview language
nih_tlbx_fctsc Float Recommended Fully-Corrected T-Score 0::120 fully_corrected_t_score
wcst_ni Integer Recommended Number of Items itmcnt
comqother String 255 Recommended Respondent - Other (text) respondent
fneproc String 20 Recommended name of trial procedure being run
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.