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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR"  when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects. 

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access.  Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA).  Without access, you will not be able to obtain individual-level data. 

    Once you have selected data of interest you can:
  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release. 
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected.  Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the fliter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

    Please Note:
  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time. 
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures. 
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.
     

Frequently Asked Questions

  • The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned.  Adding multiple filters to the cart, regardless of type, will AND the result of each filter.  If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in  BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

  • Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.

  • After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.

Glossary

  • Once your filter cart contains the subjects of interest, select Create Data Package/Assign to Data Study which will provide options for accessing item level data and/or assigning to a study.  

  • Once queries have been added to your workspace, the next step is to Submit the Filters in the workspace to the Filter Cart.  This process runs the queries selected, saving the results within a filter cart attached to your account.  

  • The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace. 

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Repetitive Behavior Scales - Early Childhood Supplement

382 Shared Subjects

Repetitive Behavior Scale - Revised (RBS-R) (2000) + Early Childhood Supplement
Clinical Assessments
Behavior
06/29/2010
rbsr_200001
07/23/2019
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY date_taken
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. age_months
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data
Query rbsr_stereo_behavior_endorsed Integer Recommended Stereotyped Behavior (Number of subscale items endorsed) 0::50;-9 -9=NK Stereotyped_Behavior_Endorsed, repetitive_endorsed
Query rbsr_stereo_total Integer Recommended Stereotyped Behavior (Total subscale score) 0::50;-9 -9=NK Stereotyped_Total, repetitive_raw_freq
Query rbsr_self_injurous_endorsed Integer Recommended Self Injurous Behavior (Number of subscale items endorsed) 0 :: 8;-9 -9=NK Self_Injurous_Endorsed, injurious_endorsed
Query rbsr_self_injurous_total Integer Recommended Self Injurous Behavior (Total subscale score) 0 :: 24;-9 -9=NK Self_Injurous_Total, injurious_raw_freq
Query rbsr_compulsive_endorsed Integer Recommended Compulsive Behavior (Number of subscale items endorsed) 0 :: 8;-9 -9=NK Compulsive_Endorsed
Query rbsr_compulsive_total Integer Recommended Compulsive Behavior (Total subscale score) Compulsive_Total
Query rbsr_ritualistic_endorsed Integer Recommended Ritualistic Behavior (Number of subscale items endorsed) 0::10; -9 -9=NK Ritualistic_Endorsed, ritual_endorsed
Query rbsr_ritualistic_total Integer Recommended Ritualistic Behavior (Total subscale score) 0::18;-9 -9=NK Ritualistic_Total, ritual_raw_freq
Query rbsr_sameness_endorsed Integer Recommended Sameness Behavior (Number of subscale items endorsed) 0::12;-9 -9=NK Sameness_Endorsed
Query rbsr_sameness_total Integer Recommended Sameness Behavior (Total subscale score) 0::33;-9 -9=NK Sameness_Total
Query rbsr_restricted_endorsed Integer Recommended Restricted Behavior (Number of subscale items endorsed) 0::8;-9 -9=NK Restricted_Endorsed, restricted_endorsed
Query rbsr_restricted_total Integer Recommended Restricted Behavior (Total subscale score) 0::12;-9 -9=NK Restricted_Total, restricted_raw_freq
Query rbsr_overall_endorsed Integer Recommended Overall number of items endorsed Overall_Endorsed
Query rbsr_overall_total Integer Recommended Overall score Overall_Total
version_form String 121 Recommended Form used/assessment name
site String 101 Recommended Site Study Site
respond_detail_oth_spec String 255 Recommended Respondent details completed_by_other
comments1 String 1,000 Recommended Comments 1 page_2_comments
comments2 String 1,000 Recommended Comments 2 page_3_comments
comments3 String 1,000 Recommended Comments 3 page_4_comments
comments4 String 1,000 Recommended Comments 4 page_6_comments
respond_detail Integer Recommended Respondent detail
1::8;999
1 = Mother; 2 = Father; 3 = Other relative or custodial adult; 4 = Teacher or caregiver; 5 = Other specialist; 6 = Other; 7 = Child; 8= Spouse; 999 = Not available completed_by
repetitive_interference Integer Recommended Repetitive Motor: In total, how often do the above behaviors interfere with other activities or interactions? 0::4 0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
repetitive_mean_freq Float Recommended Repetitive Motor: Mean frequency score
injurious_interference Integer Recommended Self-Directed and Self-Injurious: In total, how often do the above behaviors interfere with other activities or interactions? 0::4 0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
injurious_mean_freq Float Recommended Self-Directed and Self-Injurious: Mean frequency score
restricted_mean_freq Float Recommended Restricted Behavior: Mean frequency score
ritual_interference Integer Recommended Ritual and Routine Behavior: In total, how often do the above behaviors interfere with other activities or interactions? 0::4 0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
ritual_mean_freq Float Recommended Ritual and Routine Behavior: Mean frequency score
composite_endorsed Integer Recommended Composite Score: Number of items endorsed
composite_interference Integer Recommended Composite Score: Interference Rating 0::4 0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
composite_raw_freq Integer Recommended Composite Score: Raw frequency score
composite_mean_freq Float Recommended Composite Score: Mean frequency score
rbs_ecs_q_1 Integer Recommended Repetitive Motor Behavior: Legs 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_1
rbs_ecs_q_2 Integer Recommended Repetitive Motor Behavior: Head 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_2
rbs_ecs_q_3 Integer Recommended Repetitive Motor Behavior: Whole body/Torso 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_3
rbs_ecs_q_4 Integer Recommended Repetitive Motor Behavior: Arms/Hands/Fingers 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_4
rbs_ecs_q_5 Integer Recommended Repetitive Motor Behavior: Arms/Hands/Fingers on surfaces 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_5
rbs_ecs_q_6 Integer Recommended Repetitive Motor Behavior: Object usage 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_6
rbs_ecs_q_7 Integer Recommended Repetitive Motor Behavior: Mouthing objects 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_7
rbs_ecs_q_8 Integer Recommended Repetitive Motor Behavior: Locomotion 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_8
rbs_ecs_q_9 Integer Recommended Repetitive Motor Behavior: Vocalizations 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_9
rbs_ecs_q_10 Integer Recommended Self-Directed and Self-Injurious Behavior: Hits self with body part 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_10
rbs_ecs_q_11 Integer Recommended Self-Directed and Self-Injurious Behavior: Hits self with object 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_11
rbs_ecs_q_12 Integer Recommended Self-Directed and Self-Injurious Behavior: Hits self against surface/object 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_12
rbs_ecs_q_13 Integer Recommended Self-Directed and Self-Injurious Behavior: Bites self 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_13
rbs_ecs_q_14 Integer Recommended Self-Directed and Self-Injurious Behavior: Rubs, scratches, pokes, or pinches self 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_14
rbs_ecs_q_15 Integer Recommended Self-Directed and Self-Injurious Behavior: Pulls own hair 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_15
rbs_ecs_q_16 Integer Recommended Self-Directed and Self-Injurious Behavior: Skin picking 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_16
rbs_ecs_q_17 Integer Recommended Restricted Behavior: Limited and intense interests 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_17
rbs_ecs_q_18 Integer Recommended Restricted Behavior: Restricted use of media 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_18
rbs_ecs_q_19 Integer Recommended Restricted Behavior: Sensory interests 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_19
rbs_ecs_q_20 Integer Recommended Restricted Behavior: Strongly attached to specific object 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_20
rbs_ecs_q_21 Integer Recommended Restricted Behavior: Preoccupation with parts of objects 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_21
rbs_ecs_q_22 Integer Recommended Restricted Behavior: Stillness 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_22
rbs_ecs_q_23 Integer Recommended Restricted Behavior: Visual inspection 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_23
rbs_ecs_q_24 Integer Recommended Restricted Behavior: Fascination with movement 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_24
rbs_ecs_q_25 Integer Recommended Ritual and Routine Behavior: Arranging 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_25
rbs_ecs_q_26 Integer Recommended Ritual and Routine Behavior: Placement of objects 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_26
rbs_ecs_q_27 Integer Recommended Ritual and Routine Behavior: Upset visiting new places 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_27
rbs_ecs_q_28 Integer Recommended Ritual and Routine Behavior: Upset if interrupted 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_28
rbs_ecs_q_29 Integer Recommended Ritual and Routine Behavior: Appearance of others 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_29
rbs_ecs_q_30 Integer Recommended Ritual and Routine Behavior: Inflexible routine 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_30
rbs_ecs_q_31 Integer Recommended Ritual and Routine Behavior: Eating/mealtime 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_31
rbs_ecs_q_32 Integer Recommended Ritual and Routine Behavior: Sleeping/bedtime 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_32
rbs_ecs_q_33 Integer Recommended Ritual and Routine Behavior: Play 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_33
rbs_ecs_q_34 Integer Recommended Ritual and Routine Behavior: Social interaction 0::4 0 = Behavior does not occur; 1 = Behavior occurs about weekly or less; 2 = Behavior occurs several times a week; 3 = Behavior occurs about daily; 4 = Behavior occurs many times a day q_34
restricted_interference Integer Recommended Restricted Behavior: In total, how often do the above behaviors interfere with other activities or interactions? 0::4 0 = Never; 1 = Rarely; 2 = Sometimes; 3 = Often; 4 = Always
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported gender
repetitive_endorsed Integer Recommended Repetitive Motor: Number of items endorsed 0::9; -9 -9=NK
repetitive_raw_freq Integer Recommended Repetitive Motor: Raw frequency score 0::36; -9 -9=NK
injurious_endorsed Integer Recommended Self-Directed and Self-Injurious: Number of items endorsed 0::7; -9 -9=NK
injurious_raw_freq Integer Recommended Self-Directed and Self-Injurious: Raw frequency score 0::28; -9 -9=NK
restricted_endorsed Integer Recommended Restricted Behavior: Number of items endorsed 0::8; -9 -9=NK
restricted_raw_freq Integer Recommended Restricted Behavior: Raw frequency score 0::32; -9 -9=NK
ritual_endorsed Integer Recommended Ritual and Routine Behavior: Number of items endorsed 0::10; -9 -9=NK
ritual_raw_freq Integer Recommended Ritual and Routine Behavior: Raw frequency score 0::40; -9 -9=NK
sum_interference Integer Recommended Sum of interference ratings: Restricted, Repetitive, Injurious, and Ritual Interference 0 :: 16; -9 -9=NK
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.