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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
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Scanner Debriefing Interview

1,424 Shared Subjects

N/A
Clinical Assessments
Questionnaire
12/06/2017
scan_debrief01
06/11/2020
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project hcpa_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY scan_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, sex
Query scan_debrief1 Integer Recommended How comfortable did you feel in the scanner? Did you have any bodily aches, pains, itches, tingling, or other uncomfortable feelings while in the scanner? Was your comfort affected at all by the noise in the scanner?Did you have any bodily aches, pains, itches, tingling, or other uncomfortable feelings while in the scanner? 1::6 1=Very comfortable. 2=Mostly comfortable. 3=Moderately comfortable. 4=Somewhat uncomfortable. 5=Very uncomfortable. 6=Extremely uncomfortable
Query scan_debrief2 Integer Recommended Was your comfort affected at all by the noise in the scanner? 0; 1 0= no; 1= yes
Query scan_debrief3 Integer Recommended How anxious or nervous did you feel in the scanner? 1::5 1=Absent. Pt denies anxiety. No physical symptoms. 2=Mild. Pt self-reports some anxiety, but does not appear anxious and no endorsement of physical symptoms. 3=Moderate. Pt self-reports some anxiety and endorses 1-2 physical symptoms. 4=Moderately severe. Pt self-reports high anxiety, endorses 3 or more physical symptoms, and appears anxious. 5=Severe. Answers that they were terrified or frightened. Endorses all physical symptoms. Still appears distressed. (But completed the scan.) Extreme. Unable to tolerate completion of scan due to anxiety.(Level of anxiety)
Query scan_debrief4 Integer Recommended Did you feel scared, frightened, or terrified while in the scanner? 0; 1 0= no; 1= yes
Query scan_debrief5 Integer Recommended Did you feel unable to relax? 0; 1 0= no; 1= yes
Query scan_debrief6 Integer Recommended Did you have difficulty breathing? Any fear of choking? Was your heart pounding or racing? Did you feel shaky or unsteady? Did you have any hot or cold sweats? Did you have stomach upset? 0; 1 0= no; 1= yes
Query scan_debrief7 Integer Recommended Did you fear the worst happening? 0; 1 0= no; 1= yes
Query scan_debrief8 Integer Recommended Did you fear losing control? 0; 1 0= no; 1= yes
Query scan_debrief9 Integer Recommended Other than the banging or beeping noises from the scanner, did you hear any sounds in the scanner that were unusual? Did you hear any voices while you were in the scanner? 0; 1 0= no; 1= yes
Query scan_debrief10 Integer Recommended If so, were the voices vague or clear? 0; 1 0= no; 1= yes
Query scan_debrief11 Integer Recommended Is it possible that the voices were imagined? 0; 1 0= no; 1= yes
Query scan_debrief12 Integer Recommended Did you hear the voices from inside or outside your head? 0; 1 0= no; 1= yes
Query scan_debrief13 Integer Recommended Did the voices tell you to do anything? 0; 1 0= no; 1= yes
Query scan_debrief14 Integer Recommended Did the voices cause you distress? 0; 1 0= no; 1= yes
scan_debrief15 String 50 Recommended How long did you hear the voices? < 25%, 25-75%, or >75% of the 10-minute resting state scan?
Query scan_debrief16 Integer Recommended What was your mood like in the scanner? Depressed or sad? High or elated? Normal or even? 1::5 1=Severely depressed. Dominating and persistent feelings of misery, dejection, discouragement, hopelessness, helplessness, worthlessness, pessimism.2= Moderately depressed. Feelings of sadness, decreased sense of self-worth, and discouragement, but not hopeless or helpless. 3= Euthymic. Even mood. Feels neither elated nor sad/depressed. 4=Moderately elevated. Feels better than usual. High level of optimism. 5=Euphoric. Elated and expansive. Sense of special-ness or special powers.(Mood in the scanner)
Query scan_debrief17 Integer Recommended Did you feel that life wasn't worth living? 0; 1 0= no; 1= yes
Query scan_debrief18 Integer Recommended Did you have thoughts of harming or killing yourself? Or feel as though you'd be better off dead? 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief19 Integer Recommended Was there anything you felt guilty about in the scanner? 0; 1 0= no; 1= yes
Query scan_debrief20 Integer Recommended Were you thinking about past problems? 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief21 Integer Recommended Were you feeling irritable or grumpy? 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief22 Integer Recommended Did you feel cheerful and on top of the world without any reason? 0; 1 0= no; 1= yes
Query scan_debrief23 Integer Recommended Did it seem like more than just feeling good? How long did that last? 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief24 Integer Recommended Observable physical and motor manifestations of tension, `nervousness' and agitation. Self-reported experiences of tension should be rated under the item on anxiety. Do not rate if restlessness is solely akathisia, but do rate if akathisia is exacerbated by tension. 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief25 Integer Recommended UncooperativenessResistance and lack of willingness tocooperate with interview. The uncooperativeness might result from suspiciousness. Rate only uncooperativeness in relation to the interview, not behaviors involving peers or relatives. 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief26 Integer Recommended ExcitementHeightened emotional tone, or increased emotional reactivity to interviewer or topics being discussed, as evidenced by increased intensity of facial expressions, voice tone expressive gestures, or increase in speech quantity and speed. 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief27 Integer Recommended Degree to which observed sequences of speech and actions are interrupted by stimuli unrelated to the interview. Distractibility is rated when the individual shows a change in the focus of attention as characterized by a pause in speech or a marked shift in gaze. Individual's attention may be drawn to noise in adjoining room, books on a shelf, interviewer's clothing, etc. Do not rate circumstantiality, tangentially or flight of ideas. Also, do not rate rumination with delusional material. Rate even if the distracting stimulus cannot be identified. 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query scan_debrief28 Integer Recommended Increase in energy level evidenced inmore frequent movement and/or rapid speech. Do not rate if restlessness is due to akathisia. 1::6 1=Not Present; 2=Very Mild; 3=Mild; 4=Moderately Severe; 5=Severe; 6=Extremely Severe
Query acc1_1 Float Recommended How did you feel in the MRI scanner? How scared did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_2 Float Recommended How did you feel in the MRI scanner? How bored did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_3 Float Recommended How did you feel in the MRI scanner? How grumpy did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_4 Float Recommended How did you feel in the MRI scanner? How happy did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_5 Float Recommended How did you feel in the MRI scanner? How tired did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_6 Float Recommended How did you feel in the MRI scanner? How relaxed did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_7 Float Recommended How did you feel in the MRI scanner? How sad did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_8 Float Recommended How did you feel in the MRI scanner? How interested did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc1_9 Float Recommended How did you feel in the MRI scanner? How alert did you feel? 0 :: 10 0=not at all; 10=a lot
Query acc_discomfort Integer Recommended Did you experience any discomfort in the MRI scanner? 0:: 1 0=no; 1=yes
acc_discomfort1 String 500 Recommended If you felt discomfort in the MRI scanner, please describe what you felt?
Query acc_discomfort2_1 Integer Recommended How much discomfort did you experience in the MRI scanner? 0::100 0=not at all; 100=a lot
acc_when String 500 Recommended When did you feel these effects of discomfort in the MRI scanner? (During a particular task? Beginning, middle, end?)
acc_duration String 500 Recommended How long did these effects of discomfort in the MRI scanner last?
satisfaction1 Integer Recommended How comfortable were you in the scanner? 1::5 1 = I was very uncomfortable the whole scan ; 2 = I was pretty uncomfortable for most of the scan ; 3 = I was not comfortable but I was able to hold still ; 4 = I was fairly comfortable and I could relax after a while ; 5 = I was completely comfortable and found it easy to relax
satisfaction1more String 385 Recommended Was there any way we could have done more to make you comfortable?
satisfaction2 Integer Recommended How prepared were you (and your child) for your visit? 1::3 1 = I knew what I was supposed to be doing and I was not caught off guard by anything ; 2 = I knew the main parts what was going on = the details were a little unclear ; 3 = I really didn't know what was going to happen in the scan
satisfaction2more String 280 Recommended Was there any way we could have informed you better about the scan?
satisfaction3 Integer Recommended What do you think about the length of the scan? 1::5 1 = It was pretty long ; 2 = It was somewhat long ; 3 = It was an ok length ; 4 = I could have gone on a little longer ; 5 = I could have gone on a lot longer
satisfaction4 Integer Recommended What do you think about the people you worked with? 1::4 1 = Everyone was helpful and caring = I felt like I could trust them ; 2 = They were nice = but I felt uncomfortable answering some of the questions ; 3 = They didn't seem very helpful = or attentive to me ; 4 = I didn't like some of the people I worked with
satisfaction4more String 1,050 Recommended Do you have any ideas about how we could be better?
satisfaction5 String 445 Recommended What part of your visit did you enjoy most? What did you like about it?
satisfaction6 String 835 Recommended What part of your visit didn't you like? Could we do anything to make it better?
satisfaction7 Integer Recommended Do you think you would like to come back in two years to do everything again? 1::5 1 = I wouldn't want to do it again ; 2 = It would be alright ; 3 = I would probably like to come back ; 4 = I would like to come back ; 5 = I would be really excited to come back
satisfaction8 Integer Recommended Do you think the compensation was enough for what you were asked to do? 1;2 1 = I think it was enough ; 2 = I think it could have been more
satisfaction9 Integer Recommended Did you have enough breaks? 1::3 1 = I didn't really need breaks ; 2 = There was enough time for breaks ; 3 = I could have used more time for breaks
satisfaction10 Integer Recommended Did you feel like you were able to complete all of our measures? 1::3 1 = I felt like could do everything ; 2 = I could do most things = but some things were difficult ; 3 = I struggled with quite a few things
satisfaction11 Integer Recommended How reliable was communication with the lab? 1::4 1 = I could always get ahold of someone when I needed to ; 2 = I had to try once or twice = but I connected eventually ; 3 = It was hit or miss ; 4 = I couldn't reach anyone when I needed to
satisfaction57_7 Integer Recommended How excited would you be to come back and get your brain picture taken again? 1::5 1 = I wouldn't want to do it again ; 2 = It would be ok ; 3 = I would probably like it ; 4 = I would like to come back ; 5 = I would be really excited to come back!
satisfaction57_8 Integer Recommended How did you like the prizes you got? 1::5 1 = I didn't like them ; 2 = They were ok ; 3 = I liked some of them ; 4 = I liked them all ; 5 = I really liked all of my prizes
satisfaction4a Integer Recommended How did you feel about your surveys and questionnaires? 1::3 1 = They were too long ; 2 = They were pretty long, but it was ok ; 3 = They weren't too long or too short
satisfaction8a Integer Recommended Do you think you and your child would like to come back in a year to do everything again? 1::5 1 = We wouldn't want to do it again ; 2 = It would be alright ; 3 = We would probably like to come back ; 4 = We would like to come back ; 5 = We would be really excited to come back
satisfaction8b Integer Recommended Do you like the giftcards and/or prizes you got? 1::3 1 = They were great ; 2 = They were ok ; 3 = They could have been better
satisfaction5a Integer Recommended How taxing do you think these visits were for your child? 1::3 1 = My child probably found these visits to be very long and difficult ; 2 = My child was probably doing ok on these visits ; 3 = My child had no problems whatsoever on these visits
satisfaction10a Integer Recommended Do you think the compensation for your child was enough for what they were asked to do? 1;2 1 = I think it was enough ; 2 = I think it could have been more
version_form String 121 Recommended Form used/assessment name
satisfaction7a Integer Recommended Do you think you would like to come back in a year to do everything again? 1::5 1 = I wouldn't want to do it again ; 2 = It would be alright ; 3 = I would probably like to come back ; 4 = I would like to come back ; 5 = I would be really excited to come back
satisfaction57_1 Integer Recommended Was it fun getting your brain picture taken? 0::4 0 = Not at all fun ; 1 = Sort of fun ;2 = A little fun ; 3 = Very fun ; 4 = Super fun
satisfaction57_10 Integer Recommended Did you have enough time for breaks and snacks? 1::3 1 = I didn't really need breaks ; 2 = There was enough time for all the breaks and snacks ; 3 = I could have used more time for breaks and snacks
satisfaction57_2 Integer Recommended Was the brain camera scary? 0::4 0 = Not at all scared ; 1 = Sort of scared ;2 = A little scared ; 3 = Very scared ; 4 = Super scared
satisfaction57_3 Integer Recommended What do you think about how much time you spent in the brain camera? 1::5 1 = It took too long ; 2 = It was sort of long ; 3 = It wasn't long or short ; 4 = I could have done a little more ; 5 = I could have done a lot more
satisfaction57_4 Integer Recommended Did you have fun working with us while you were here? 0::4 0 = Not at all fun ; 1 = Sort of fun ;2 = A little fun ; 3 = Very fun ; 4 = Super fun
comqother String 255 Recommended Respondent - Other (text)
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.