Loading...

National Institute of Mental Health Data Archive (NDA) Sign In
National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Success! An email is on its way!

Please check your email to complete the linking process. The link you receive is only valid for 30 minutes.

Check your spam or junk folder if you do not receive the email in the next few minutes.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
Create or Link an Existing NDA Account
NIMH Data Archive (NDA) Sign In or Create An Account
Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Data Access Terms - Decline Terms

Are you sure you want to cancel? This will decline terms and you will not be authorized for access.

Filter Cart
No filters selected
Description
Value Range
Notes
Data Structures with shared data
No filters have been selected
helpcenter.filter-cart

NDA Help Center

Filter Cart

Viewable at the top right of NDA pages, the Filter Cart is a temporary holder for filters and data they select. Filters are added to the Workspace first, before being submitted to The Filter Cart. Data selected by filters in the Filter Cart can be added to a Data Package or an NDA Study from the Data Packaging Page, by clicking the 'Create Data Package / Add Data to Study' button.

The filter cart supports combining multiple filters together, and depending on filter type will use "AND" or "OR" when combining filters.

Multiple selections from the same filter type will result in those selections being applied with an ‘OR’ condition. For example, if you add an NDA Collection Filter with selections for both collections 2112 and 2563 to an empty Workspace, the subjects from NDA Collection 2112 ‘OR’ NDA Collection 2563 will be added to your Workspace even if a subject is in both NDA Collections. You can then add other NDA Collections to your Workspace which further extends the ‘OR’ condition.

If a different filter type is added to your Workspace, or a filter has already been submitted to the Filter Cart, the operation then performs a logical ‘AND’ operation. This means that given the subjects returned from the first filter, only those subjects that matched the first filter are returned by the second filter (i.e., subjects that satisfied both filters).

When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Note that only the subjects specific to your filter will be added to your Filter Cart and only on data shared with the research community. Other data for those same subjects may exist (i.e., within another NDA Collection, associated with a data structure that was not requested in the query, etc.). So, users should select ‘Find all Subjects Data’ to identify all data for those specific subjects.

Additional Tips:

  • You may query the data without an account, but to gain access you will need to create an NDA user account and apply for access. Most data access requires that you or your lab are sponsored by an NIH recognized institution with Federal Wide Assurance (FWA). Without access, you will not be able to obtain individual-level data.

Once you have selected data of interest you can:

  • Create a data package - This allows you to specify format for access/download
  • Assign to Study Cohort - Associate the data to an NDA Study allowing for a DOI to be generated and the data to be linked directly to a finding, publication, or data release.
  • Find All Subject Data - Depending on filter types being used, not all data associated with a subject will be selected. Data may be restricted by data structure, NDA Collection, or outcome variables (e.g., NDA Study). ‘Find All Data’ expands the filter criteria by replacing all filters in your Filter Cart with a single Query by GUID filter for all subjects selected by those filters.

Please Note:

  • When running a query, it may take a moment to populate the Filter Cart. Queries happen in the background so you can define other queries during this time.
  • When you add your first filter, all data associated with your query will be added to the Filter Cart (e.g., a Concept, an NDA Collection, a Data Structure/Element, etc.). As you add additional filters, they will also display in the Filter Cart. Only the name of filter will be shown in the Filter Cart, not the underlying structures.
  • Information about the contents of the Filter Cart can be seen by clicking "Edit”.
  • Once your results appear in the Filter Cart, you can create a data package or assign subjects to a study by selecting the 'Package/Assign to Study' option. You can also 'Edit' or 'Clear' filters.

Frequently Asked Questions

  • What is a Filter Cart?
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user, through querying or browsing, as being of some potential interest. The Filter Cart is where you send the data from your Workspace after it has been filtered.
  • What do I do after filters are added to the Filter Cart?
    After filters are added to the Filter Cart, users have options to ‘Create a Package’ for download, ‘Associate to Study Cohort’, or ‘Find All Subject Data’. Selecting ‘Find All Subject Data’ identifies and pulls all data for the subjects into the Filter Cart. Choosing ‘Create a Package’ allows users to package and name their query information for download. Choosing ‘Associate to Study Cohort’ gives users the opportunity to choose the Study Cohort they wish to associate this data.
  • Are there limitations on the amount of data a user can download?

    NDA limits the rate at which individual users can transfer data out of Amazon Web Services (AWS) S3 Object storage to non-AWS internet addresses. All users have a download limit of 20 Terabytes. This limit applies to the volume of data an individual user can transfer within a 30-day window. Only downloads to non-AWS internet addresses will be counted against the limit.

  • How does Filter Cart Boolean logic work?

    The Filter Cart currently employs basic AND/OR Boolean logic. A single filter may contain multiple selections for that filter type, e.g., a single NDA Study filter might contain NDA Study 1 and NDA Study 2. A subject that is in EITHER 1 OR 2 will be returned. Adding multiple filters to the cart, regardless of type, will AND the result of each filter. If NDA Study 1 and NDA Study 2 are added as individual filters, data for a subject will only be selected if the subject is included in BOTH 1 AND 2.

    When combining other filters with the GUID filter, please note the GUID filter should be added last. Otherwise, preselected data may be lost. For example, a predefined filter from Featured Datasets may select a subset of data available for a subject. When combined with a GUID filter for the same subject, the filter cart will contain all data available from that subject, data structure, and dataset; this may be more data than was selected in the predefined filter for that subject. Again, you should add the GUID Filter as the last filter to your cart. This ensures 'AND' logic between filters and will limit results to the subjects, data structures, and datasets already included in your filter cart.

Glossary

  • Workspace
    The Workspace within the General Query Tool is a holding area where you can review your pending filters prior to adding them to Filter Cart. Therefore, the first step in accessing data is to select one or more items and move it into the Workspace.
  • Filter Cart
    Viewable at the top right of NDA pages, the Filter Cart is a temporary holder of data identified by the user through querying or browsing as being of some potential interest. The Filter Cart adds data using an AND condition. The opportunity to further refine data to determine what will be downloaded or sent to a miNDAR is available on the Data Packaging Page, the next step after the Filter Cart. Subsequent access to data is restricted by User Permission or Privilege; however Filter Cart use is not.
Switch User

Social Communication Questionnaire (SCQ) - Current Form

3,433 Shared Subjects

Social Communication Questionnaire (SCQ) - Current Form
Clinical Assessments
Cognitive
06/30/2011
scq_current04
12/06/2019
View Change History
04
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* CandidateGUID, GUID, ProbandGUID, SCQ_SubjectKey
src_subject_id String 20 Required Subject ID how it's defined in lab/project IBISID, NDAR_SUBJECT_NUMBER, Scq_current_SRC_Subject_ID, SubjectID
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY DOE, Date_taken, Scq_current_interview_date, scqc_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0 :: 1260 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. Age_proband_scq, Candidate_Age_in_Months, INTERVIEW_AGE_MONTHS, Proband_Age_in_Months, Scq_current_interview_age
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data Cohort, Scq_current_comments_misc, scq_diagnosis
Query header_1 String 50 Recommended Relationship to Subject 4= Biological mother; 5= Biological Father; 6= Non-biological female caregiver; 7= Non-biological male caregiver Scq_current_Header_1, asd_respnum, respondent
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported ProbandGender, SEX, Scq_current_gender, child_sex, gender
Query current_shortphrases String 50 Required Talk in short phrases
Yes;No; not_answered
SCQ001L_AN, SCQ001_AN, SCQ_CURR_PHRASES, Scq_current_current_shortphrases, p_scq_1, q1_talk_short_phrases, scq_1, shortphrases, slevell
Query current_turns String 50 Recommended Conversation
Yes;No; not_answered
SCQ002L_AN, SCQ002_AN, SCQ_CURR_CONVERSATN, Scq_current_current_turns, p_scq_2, q2_to_and_fro, sconve, scq_2, turns
Query current_oddphrases String 50 Required Odd phrases or repetitions
Yes;No; not_answered
SCQ003L_AN, SCQ003_AN, SCQ_CURR_ODD_PHRASE, Scq_current_current_oddphrases, oddphrases, p_scq_3, q3_odd_phrases, scq_3, sstere
Query current_askiappques String 50 Required Socially imappropriate questions or statements
Yes;No; not_answered
SCQ004L_AN, SCQ004_AN, SCQ_CURR_INAPPROP_QUESTN, Scq_current_current_askiappques, askiappques, p_scq_4, q4_socially_inappropriate, scq_4, sinapp
Query current_pronounsmix String 50 Required Mixing up pronouns
Yes;No; not_answered
SCQ005_AN, SCQ_CURR_MIX_PRONOUN, Scq_current_current_pronounsmix, p_scq_5, pronounsmix, q5_pronouns_mixed, scq_5, spron
Query current_madeup String 50 Required Made up words or odd metaphors
Yes;No; not_answered
SCQ006L_AN, SCQ006_AN, SCQ_CURR_INVENT_WORD, Scq_current_current_madeup, madeup, p_scq_6, q6_words_invented, scq_6, sneoid
Query current_sayagain String 50 Required Repeating or insisting on repeating things
Yes;No; not_answered
SCQ007_AN, SCQ_CURR_SAY_SAME_THING, Scq_current_current_sayagain, p_scq_7, q7_said_same_thing, sayagain, scq_7, sverri
Query current_things String 50 Recommended Insisting on very particular way or order or ritual
Yes;No; not_answered
SCQ008_AN, SCQ_CURR_PARTICULAR_ORDER, Scq_current_current_things, p_scq_8, q8_particular_way, scq_8, scrit, things
Query current_facialex String 50 Required Facial expression appropriate to particular situation
Yes;No; not_answered
SCQ009_AN, SCQ_CURR_APPROPRIATE_EXPRESS, Scq_current_current_facialex, facialex, p_scq_9, q9_facial_expressions, scq_9, sinapf
Query current_handtool String 50 Required Using parent's hand like tool or as if part of own body
Yes;No; not_answered
SCQ010_AN, SCQ_CURR_USE_HAND, Scq_current_current_handtool, handtool, p_scq_10, q10_hand_like_tool, scq_10, susebo
Query current_oddinterest String 50 Required Preoccupation with odd interests
Yes;No; not_answered
SCQ011_AN, SCQ_CURR_ODD_INTEREST, Scq_current_current_oddinterest, oddinterest, p_scq_11, q11_interests_that_preoccupy, scq_11, sunpro
Query current_interestobjpart String 50 Required Interested in part of toys or object rather than whole
Yes;No; not_answered
SCQ012_AN, SCQ_CURR_TOY_INTEREST, Scq_current_current_interestobjpart, interestobjpart, p_scq_12, q12_interested_in_parts, scq_12, suseob
Query current_unusual String 50 Required Unusually intense but otherwise normal interests
Yes;No; not_answered
SCQ013_AN, SCQ_CURR_SPECIAL_INTEREST, Scq_current_current_unusual, p_scq_13, q13_intense_interests, scirin, scq_13, unusual
Query current_unusualint String 50 Required Interested in sight, feel, sound, taste or smell of things or people
Yes;No; not_answered
SCQ014_AN, SCQ_CURR_SENSE_INTEREST, Scq_current_current_unusualint, p_scq_14, q14_sight_feel_sound, scq_14, sunsen, unusualint
Query current_manner String 50 Required Mannerisms or odd ways of moving hands or fingers
Yes;No; not_answered
SCQ015_AN, SCQ_CURR_ODD_MANNERISMS, Scq_current_current_manner, manner, p_scq_15, q15_mannerisms, scq_15, shfman
Query current_movement String 50 Required Complicated movements of the whole body
Yes;No; not_answered
SCQ016_AN, SCQ_CURR_COMPLICATE_MOVE, Scq_current_current_movement, movement, p_scq_16, q16_complicated_movements, scq_16, sothma
Query current_injure String 50 Required Delibarate self-injuring
Yes;No; not_answered
SCQ017_AN, SCQ_CURR_INJURE_SELF, Scq_current_current_injure, injure, p_scq_17, q17_deliberate_injury, scq_17, sslfin
Query current_objcarry String 50 Required Carrying around objects other than soft toy or blanket
Yes;No; not_answered
SCQ018_AN, SCQ_CURR_OBJECT_CARRY, Scq_current_current_objcarry, objcarry, p_scq_18, q18_carry_objects, scq_18, sunatt
Query current_bestfrnd String 50 Required Having any particular friends or best friend
Yes;No; not_answered
SCQ019_AN, SCQ_CURR_BEST_FRND, Scq_current_current_bestfrnd, bestfrnd, p_scq_19, q19_particular_friends, scq_19, sfrend
Query current_talkfrndly String 50 Required Talking to parent just to be friendly rather than to get something
Yes;No; not_answered
SCQ020_AN, SCQ_CURR_FRND_TALK, Scq_current_current_talkfrndly, p_scq_20, q20_talk_friendly, schat, scq_20, talkfrndly
Query current_copyyou String 50 Required Spontaneously copying what others are doing
Yes;No; not_answered
SCQ021_AN, SCQ_CURR_COPY, Scq_current_current_copyyou, copyyou, p_scq_21, q21_spontaneously_copy, scq_21, simit
Query current_ptthings String 50 Required Spontaneously pointing at things to show them
Yes;No; not_answered
SCQ022_AN, SCQ_CURR_POINT, Scq_current_current_ptthings, p_scq_22, ptthings, q22_spontaneously_point, scq_22, spoint
Query current_gesture String 50 Required Gestures other than pointing or puling hand
Yes;No; not_answered
SCQ023_AN, SCQ_CURR_GESTURE, Scq_current_current_gesture, gesture, p_scq_23, q23_gestures, scq_23, sinsge
Query current_nodheady String 50 Required Nodding head to indicate yes
Yes;No; not_answered
SCQ024_AN, SCQ_CURR_HEAD_YES, Scq_current_current_nodheady, nodheady, p_scq_24, q24_nod_yes, scq_24, snod
Query current_nodheadn String 50 Required Shaking head to indicate no
Yes;No; not_answered
SCQ025_AN, SCQ_CURR_HEAD_NO, Scq_current_current_nodheadn, nodheadn, p_scq_25, q25_shake_no, scq_25, shshak
Query current_facelook String 50 Required Looking directly in the face
Yes;No; not_answered
SCQ026_AN, SCQ_CURR_LOOK_DIRECT, Scq_current_current_facelook, facelook, p_scq_26, q26_look_directly, scq_26, sgaze
Query current_smileback String 50 Required Smiling back when smiled at
Yes;No; not_answered
SCQ027_AN, SCQ_CURR_SMILE_BACK, Scq_current_current_smileback, p_scq_27, q27_smile_back, scq_27, smileback, sssmil
Query current_attn String 50 Required Showing things to engage parent's attention
Yes;No; not_answered
SCQ028_AN, SCQ_CURR_SHOW_THING, Scq_current_current_attn, attn, p_scq_28, q28_show_things, scq_28, sshow
Query current_share String 50 Required Offering to share things other than food
Yes;No; not_answered
SCQ029_AN, SCQ_CURR_SHARE, Scq_current_current_share, p_scq_29, q29_offer_share, scq_29, share, soshar
Query current_joinenjoy String 50 Required Wanting parent to join in enjoyment of something
Yes;No; not_answered
SCQ030_AN, SCQ_CURR_JOIN_ENJOY, Scq_current_current_joinenjoy, joinenjoy, p_scq_30, q30_join_enjoyment, scq_30, sshare
Query current_comfort String 50 Required Trying to comfort sad or hurt parent
Yes;No; not_answered
SCQ031_AN, SCQ_CURR_COMFORT, Scq_current_current_comfort, comfort, p_scq_31, q31_comfort, scq_31, socomf
Query current_help String 50 Required Looking at or using words or gestures to get parent's attention
Yes;No; not_answered
SCQ032_AN, SCQ_CURR_HELP_GESTURE, Scq_current_current_help, help, p_scq_32, q32_wanted_something, scq_32, squalo
Query current_normalfacialexp String 50 Required Normal range of facial expressions
Yes;No; not_answered
SCQ033_AN, SCQ_CURR_RANGE_EXPRESS, Scq_current_current_normalfacialexp, normalfacialexp, p_scq_33, q33_facial_expressions, scq_33, srface
Query current_copyaction String 50 Required Spontaneously joining in or trying to copy actions in social games
Yes;No; not_answered
SCQ034_AN, SCQ_CURR_SOCIAL_GAME, Scq_current_current_copyaction, copyaction, p_scq_34, q34_spontaneously_join, scq_34, ssopla
Query current_makebelievegame String 50 Required Playing pretend or make-believe games
Yes;No; not_answered
SCQ035_AN, SCQ_CURR_PLAY_PRETEND, Scq_current_current_makebelievegame, makebelievegame, p_scq_35, q35_play_pretend, scq_35, splay
Query current_childinterest String 50 Required Interested in other same-age children
Yes;No; not_answered
SCQ036_AN, SCQ_CURR_CHILD_INTEREST, Scq_current_current_childinterest, childinterest, p_scq_36, q36_seem_interested, scq_36, sintch
Query current_positiveapp String 50 Required Positively responding when approached by another child
Yes;No; not_answered
SCQ037_AN, SCQ_CURR_RESPOND_POSITIVE, Scq_current_current_positiveapp, p_scq_37, positiveapp, q37_respond_positively, scq_37, srespc
Query current_talknoname String 50 Required Attentive when talked to without being addressed by name
Yes;No; not_answered
SCQ038_AN, SCQ_CURR_PAY_ATTNTN, Scq_current_current_talknoname, current_talknoNome, p_scq_38, q38_came_into_room, savoic, scq_38, talknoname
Query current_imaginegame String 50 Required Imaginative pretend games with another child
Yes;No; not_answered
SCQ039_AN, SCQ_CURR_OTHR_PRETEND, Scq_current_current_imaginegame, imaginegame, p_scq_39, q39_play_imaginative, scq_39, speerp
Query current_playcoop String 50 Required Cooperative in group games
Yes;No; not_answered
SCQ040_AN, SCQ_CURR_COOPERATIVE_PLAY, Scq_current_current_playcoop, p_scq_40, playcoop, q40_play_cooperatively, scq_40, sgrply
Query scq_subtotal_1 Integer Recommended scq subtotal items 1-19 scq_current_subtotal_1
Query scq_subtotal_2 Integer Recommended Subtotal Items 1-19: Yes Responses scq_current_subtotal_2
Query scq_subtotal_3 Integer Recommended subtotals for scq 3 scq_current_subtotal_3
Query scq_subtotal_4 Integer Recommended scq subtotal 4
Query scq_total_score Integer Required SCQ total score ASQ_total, SCQ_CURR_SCORE, score, scq_current_total_score, total_score
Query test_type String 50 Recommended Type of event (Pre-Test or Post-Test) Pre-Test;Post-Test
Query validity_of_data Integer Recommended Validity of data
0::4; 999
0= raw; 1 = Valid or clean; 2 = Question validity; 3 = Invalid data; 4 = Not answered; 999= missing clean
Query visit String 60 Recommended Visit name scqc_apt
Query missing Integer Recommended Number of responses missing (left blank). Greater than 6 is considered unscorable by the publisher. If record was scored by SCANTRON, missing values were recoded and might be missing on the form. Non-SCANTRON records have a (-1) for missing values. cs_number_unanswered, nbr_missing
Query phenotype String 200 Recommended Phenotype/diagnosis for the subject diagnosis
Query cs_total_score Integer Recommended Total Score - Calculated in the following way: For Verbal children - Questions 2 - 40 are used For non-verbal children Questions 8 - 40 are used In those, a Yes = 0 and No = 1 for the following questions (2,9,19,20,21,22,23,24,25,26,27,28,29,30,31,32,33,34,35,36,37,38,39,40) and a Yes = 1 and a No = 0 for the following questions (3,4,5,6,7,8,10,11,12,13,14,15,16,17,18) Blank on Form should be scored -1. The total score is summed across items 2 - 40 for verbal and 8 - 40 for non-verbal. -1::40
Query cs_scqresult Integer Recommended SCQ Result - Using the total score.Negative (0) if CS_Total_Score < 11, Positive (1) if CS_Total_Score >= 11. -1 in this field indicates scoring has been invalidated because one or more responses were not completed or completed incorrectly. 0;1;-1 0=Negative Screen (SCQ Total < 11); 1=Positive Screen (SCQ Total >= 11); -1=Scoring not valid;
year_mta Integer Recommended Year in study visit_year
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.