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Social Communication Questionnaire (SCQ) - Lifetime

12,699 Shared Subjects

Social Communication Questionnaire (SCQ) - Lifetime Form
Clinical Assessments
View Change History
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* CandidateGUID, GUID, ProbandGUID, SCQ_SubjectKey, guid_r03
src_subject_id String 20 Required Subject ID how it's defined in lab/project IBISID, NDAR_SUBJECT_NUMBER, Scq_lifetime_SRC_Subject_ID, SubjectID, individual, sid_r03
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY DOE, Date_taken, Scq_lifetime_interview_date, lvdate_r03, scql_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. Age_proband_scq, Agem, Candidate_Age_in_Months, INTERVIEW_AGE_MONTHS, Proband_Age_in_Months, Scq_lifetime_interview_age, childage_r03
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data Cohort, Scq_lifetime_comments_misc
Query header_1 String 50 Recommended Relationship to Subject 4= Biological mother; 5= Biological Father; 6= Non-biological female caregiver; 7= Non-biological male caregiver Scq_lifetime_Header_1, header_Mother, oscr_respondent_relationship, respondent
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported ProbandGender, SEX, Scq_lifetime_gender, childgender_r03, gender
Query lifetime_shortphrases String 50 Required Using short phrases - Is she/he now able to talk using short phrases or sentences? If no, skip to Question 8
Yes;No; not_answered
SCQ001L_AN, SCQ_LIFE_PHRASES, SLEVELL, Scq_lifetime_lifetime_shortphrases, lifetime_shortphrase, q01_phrases, q1_talk_short_phrases, q1able_talk_using_short_phrases_o, scq01_r03, shortphrases
Query lifetime_turns String 50 Recommended Take turns in conversation - Can you have a to-and-fro conversation with her/him that involves taking turns or building on what you have said?
Yes;No; not_answered
SCONVE, SCQ002L_AN, SCQ_LIFE_CONVERSATN, Scq_lifetime_lifetime_turns, q02_conversation, q2_to_and_fro, q2can_to_fro_conversation_him_inv, scq02_r03, turns
Query lifetime_oddphrases String 50 Required Repetition of odd phrases - Has she/he ever used odd phrases or say the same thing over and over in almost exactly the same way (either phrases that she/he hears other people use or ones that she/he makes up)?
Yes;No; not_answered
SCQ003L_AN, SCQ_LIFE_ODD_PHRASE, SSTERE, Scq_lifetime_lifetime_oddphrases, oddphrases, q03_odd_phrase, q3_odd_phrases, q3ever_used_odd_phrases_or_said_, scq03_r03
Query lifetime_askiappques String 50 Required Socially inappropriate questions or statements - Has she/he ever used socially inappropriate questions or statements? For example, has she/he regularly asked personal questions or make personal comments at awkward times?
Yes;No; not_answered
SCQ004L_AN, SCQ_LIFE_INAPPROP_QUESTN, SINAPP, Scq_lifetime_lifetime_askiappques, askiappques, q04_inappropriate_question, q4_socially_inappropriate, q4ever_used_socially_inappropria_quest, scq04_r03
Query lifetime_pronounsmix String 50 Required Mixed up use of pronouns - Has she/he ever got her/his pronouns mixed up (e.g. saying you or she/he for I)?
Yes;No; not_answered
SCQ005L_AN, SCQ_LIFE_MIX_PRONOUN, SPRON, Scq_lifetime_lifetime_pronounsmix, pronounsmix, q05_pronouns_mixed, q5_pronouns_mixed, q5ever_got_pronouns_mixed_up_e_g, scq05_r03
Query lifetime_madeup String 50 Required Use of made up words or metaphors - Has she/he ever used words that she/he seemed to have invented or made up herself/himself; put things in odd, indirect ways; or used metaphorical ways of saying things (e.g. saying hot rain for steam)?
Yes;No; not_answered
SCQ006L_AN, SCQ_LIFE_INVENT_WORD, SNEOID, Scq_lifetime_lifetime_madeup, madeup, q06_invented_words, q6_words_invented, q6ever_used_words_seemed_invented, scq06_r03
Query lifetime_sayagain String 50 Required Repetition of exactly the same phrases - Has she/he ever said the same thing over and over in exactly the same way or insist that you say the same thing over and over again?
Yes;No; not_answered
SCQ007L_AN, SCQ_LIFE_SAY_SAME_THING, SVERRI, Scq_lifetime_lifetime_sayagain, q07_same_over, q7_said_same_thing, q7ever_said_same_thing_over_over, sayagain, scq07_r03
Query lifetime_things String 50 Recommended Rituals - Has she/he ever had things that she/he seemed to have to do in a very particular way or order or rituals that she/he insists that you go through?
Yes;No; not_answered
SCQ008L_AN, SCQ_LIFE_PARTICULAR_ORDER, SCRIT, Scq_lifetime_lifetime_things, q08_particular_way, q8_particular_way, q8ever_had_things_seemed_ritual, scq08_r03, things
Query lifetime_facialex String 50 Required Inappropriate facial expressions - Has her/his facial expression usually seemed appropriate to the particular situation, as far as you can tell?
Yes;No; not_answered
SCQ009L_AN, SCQ_LIFE_APPROPRIATE_EXPRESS, SINAPF, Scq_lifetime_lifetime_facialex, facialex, q09_expressions_appropriate, q9_facial_expressions, q9facial_expression_usually_seem_appropr, scq09_r03
Query lifetime_handtool String 50 Required Use of parents hand like a tool - Has she/he ever used your hand like a tool or as if it were part of her/his own body (e.g. pointing with your finger, putting your hand on a doorknob to get you to open the door)?
Yes;No; not_answered
SCQ010L_AN, SCQ_LIFE_USE_HAND, SUSEBO, Scq_lifetime_lifetime_handtool, handtool, q10_hand_like_tool, q10_hand_tool, q10ever_your_used_hand_like_tool, scq10_r03
Query lifetime_oddinterest String 50 Required Odd interests - Has she/he ever had any interests that preoccupy her/him and might seemed odd to other people (e.g. traffic lights, drainpipes, timetables)?
Yes;No; not_answered
SCQ011L_AN, SCQ_LIFE_ODD_INTEREST, SUNPRO, Scq_lifetime_lifetime_oddinterest, oddinterest, q11_interest_preoccupy, q11_interests_that_preoccupy, q11ever_had_any_interests_that_preoccu, scq11_r03
Query lifetime_interestobjpart String 50 Required Interest in part of toy or object rather than in whole object - Has she/he ever seemed to be more interested in parts of a toy or an object (e.g. spinning the wheels of a car), rather than in using the objects as it was intended?
Yes;No; not_answered
SCQ012L_AN, SCQ_LIFE_TOY_INTEREST, SUSEOB, Scq_lifetime_lifetime_interestobjpart, interestobjpart, lifetime_interestobj, q12_interested_in_parts, q12_parts_object, q12seemed_more_interested_part_of_obj, scq12_r03
Query lifetime_unusual String 50 Required Unusually intense special interests - Has she/he ever had any special interests that are unusual in their intensity but otherwise appropriate for her/his age and peer group (e.g. trains or dinosaurs)?
Yes;No; not_answered
SCIRIN, SCQ013L_AN, SCQ_LIFE_SPECIAL_INTEREST, Scq_lifetime_lifetime_unusual, q13_intense_interests, q13_interests_intensity, q13ever_had_special_interests_intensity, scq13_r03, unusual
Query lifetime_unusualint String 50 Required Interest in sight, feel, sound, taste or smell of things or people - Has she/he ever seemed to be unusually interested in the sight, feel, sound, taste, or smell of things or people?
Yes;No; not_answered
SCQ014L_AN, SCQ_LIFE_SENSE_INTEREST, SUNSEN, Scq_lifetime_lifetime_unusualint, q14_senses, q14_sight_feel_sound, q14unusually_inter_sight_sound, scq14_r03, unusualint
Query lifetime_manner String 50 Required Mannerisms - Has she/he ever had any mannerisms or odd ways of moving her/his hands or fingers, such as flapping or moving her/his fingers in front of her/his eyes?
Yes;No; not_answered
SCQ015L_AN, SCQ_LIFE_ODD_MANNERISMS, SHFMAN, Scq_lifetime_lifetime_manner, manner, q15_mannerisms, q15_odd_ways, q15mannerisms_or_odd, scq15_r03
Query lifetime_movement String 50 Required Complicated movements of whole body - Has she/he ever had any complicated movements of her/his whole body, such as spinning or repeatedly bouncing up and down?
Yes;No; not_answered
SCQ016L_AN, SCQ_LIFE_COMPLICATE_MOVE, SOTHMA, Scq_lifetime_lifetime_movement, movement, q16_complicated_movements, q16_complicated_movements, q16any_complicated_movem_spinn, scq16_r03
Query lifetime_injure String 50 Required Deliberate self-injury - Has she/he ever injured herself/himself deliberately, such as biting her/his arm or banging her/his head?
Yes;No; not_answered
SCQ017L_AN, SCQ_LIFE_INJURE_SELF, SSLFIN, Scq_lifetime_lifetime_injure, injure, q17_deliberate_injury, q17_injured_deliberately, q17injured_himself_deliberat, scq17_r03
Query lifetime_objcarry String 50 Required Need to carry around objects other than a soft toy or blanket - Has she/he ever had any objects (other than a soft toy or comfort blanket) that she/he had to carry around?
Yes;No; not_answered
SCQ018L_AN, SCQ_LIFE_OBJECT_CARRY, SUNATT, Scq_lifetime_lifetime_objcarry, objcarry, q18_carry_objects, q18_objects_carry, q18had_objects_other_carry_around, scq18_r03
Query lifetime_bestfrnd String 50 Required Having any particular friends or a best friend - Does she/he ever have any particular friends or a best friend?
Yes;No; not_answered
SCQ019L_AN, SCQ_LIFE_BEST_FRND, SFREND, Scq_lifetime_lifetime_bestfrnd, bestfrnd, q19_best_friend, q19_particular_friends, q19have_particular_friends_or_best, scq19_r03
Query lifetime_talkfrndly String 50 Required Talking with parent just to be friendly rather than to get something - Did she/he ever talk to you just to be friendly (rather than to get something)?
Yes;No; not_answered
SCHAT, SCQ020L_AN, SCQ_LIFE_FRND_TALK, Scq_lifetime_lifetime_talkfrndly, q20_ever_talk_be_friendly_, q20_talk_friendly, q20_talk_friendly, scq20_r03, talkfrndly
Query lifetime_copyyou String 50 Required Spontaneously coping what other people are doing - Did she/he ever spontaneously copy you (or other people) or what you are doing (such as vacuuming, gardening, or mending things)?
Yes;No; not_answered
SCQ021L_AN, SCQ_LIFE_COPY, SIMIT, Scq_lifetime_lifetime_copyyou, copyyou, q21_copy_you, q21_ever_spontaneously_cop_you, q21_spontaneously_copy, scq21_r03
Query lifetime_ptthings String 50 Required Spontaneously pointing at things just to show them - Did she/he ever spontaneously point at things around her/him just to show you things (not because she/he wants them)?
Yes;No; not_answered
SCQ022L_AN, SCQ_LIFE_POINT, SPOINT, Scq_lifetime_lifetime_ptthings, ptthings, q22_ever_spontaneously_point, q22_point_things, q22_spontaneously_point, scq22_r03
Query lifetime_gesture String 50 Required Gestures to get things except pointing or pulling hand - Did she/he ever use gestures, other than pointing or pulling your hand, to let you know what she/he wants?
Yes;No; not_answered
SCQ023L_AN, SCQ_LIFE_GESTURE, SINSGE, Scq_lifetime_lifetime_gesture, gesture, q23_ever_use_gestures_other_than_point, q23_gestures, q23_gestures_wanted, scq23_r03
Query lifetime_nodheady String 50 Required Nodding head to indicate yes - Did she/he nod her/his head to indicate yes?
Yes;No; not_answered
SCQ024L_AN, SCQ_LIFE_HEAD_YES, SNOD, Scq_lifetime_lifetime_nodheady, nodheady, q24_nod_head, q24_nod_head_mean_yes, q24_nod_yes, scq24_r03
Query lifetime_nodheadn String 50 Required Shaking head to indicate no - Did she/he shake her/his head to indicate no?
Yes;No; not_answered
SCQ025L_AN, SCQ_LIFE_HEAD_NO, SHSHAK, Scq_lifetime_lifetime_nodheadn, nodheadn, q25_shake_head, q25_shake_head_mean_no, q25_shake_no, scq25_r03
Query lifetime_facelook String 50 Required Looking directly in the face - Did she/he usually look at you directly in the face when doing things with you or talking with you?
Yes;No; not_answered
SCQ026L_AN, SCQ_LIFE_LOOK_DIRECT, SGAZE, Scq_lifetime_lifetime_facelook, facelook, q26_look_directly, q26_look_directly, q26_usually_look_at_direct_in_face, scq26_r03
Query lifetime_smileback String 50 Required Smiling back when smiled at - Did she/he smile back if someone smiles at her/him?
Yes;No; not_answered
SCQ027L_AN, SCQ_LIFE_SMILE_BACK, SSSMIL, Scq_lifetime_lifetime_smileback, q27_smile_back, q27_smile_back, q27_smile_back_if_someone_, scq27_r03, smileback
Query lifetime_attn String 50 Required Showing things to get parents attention - Did she/he ever show you things that interest her/him to engage your attention?
Yes;No; not_answered
SCQ028L_AN, SCQ_LIFE_SHOW_THING, SSHOW, Scq_lifetime_lifetime_attn, attn, q28_ever_show_things_intererested, q28_show_things, q28_things_interested, scq28_r03
Query lifetime_share String 50 Required Offering to share things other than food - Did she/he ever offer to share things other than food with you?
Yes;No; not_answered
SCQ029L_AN, SCQ_LIFE_SHARE, SOSHAR, Scq_lifetime_lifetime_share, q29_ever_offer_share_thing, q29_offer_share, q29_share, scq29_r03, share
Query lifetime_joinenjoy String 50 Required Wanting to be joined in something - Did she/he ever seemed to want you to join in her/his enjoyment of something?
Yes;No; not_answered
SCQ030L_AN, SCQ_LIFE_JOIN_ENJOY, SSHARE, Scq_lifetime_lifetime_joinenjoy, joinenjoy, q30_ever_seem_want_you_join_enjoyment, q30_join_enjoyment, q30_join_enjoyment, scq30_r03
Query lifetime_comfort String 50 Required Trying to comfort a hurt or sad parent - Did she/he ever try to comfort you if you are sad or hurt?
Yes;No; not_answered
SCQ031L_AN, SCQ_LIFE_COMFORT, SOCOMF, Scq_lifetime_lifetime_comfort, comfort, q31_comfort, q31_comfort, q31_ever_try_comfort_you_if_sad, scq31_r03
Query lifetime_help String 50 Recommended Asking for help to get something - If she/he wanted something or wants help, did she/he look at you and use gestures with sounds or words to get your attention?
Yes;No; not_answered
SCQ032L_AN, SCQ_LIFE_HELP_GESTURE, SQUALO, Scq_lifetime_lifetime_help, help, q32_help_attention, q32_wanted_something, q32_when_wanted_something_look_gesture, scq32_r03
Query lifetime_normalfacialexp String 50 Required Normal range of facial expressions - Did she/he show a normal range of facial expressions?
Yes;No; not_answered
SCQ033L_AN, SCQ_LIFE_RANGE_EXPRESS, SRFACE, Scq_lifetime_lifetime_normalfacialexp, lifetime_normfaceexp, normalfacialexp, q33_facial_expressions, q33_range_expressions, q33_show_normal_range_of_facial_exp, scq33_r03
Query lifetime_copyaction String 50 Required Spontaneously joining in social games - Did she/he ever spontaneously join in and try to copy the actions in social games, such as The Mulberry Bush or London Bridge is Falling Down?
Yes;No; not_answered
SCQ034L_AN, SCQ_LIFE_SOCIAL_GAME, SSOPLA, Scq_lifetime_lifetime_copyaction, copyaction, q34_copy_actions, q34_spontaneously_join, q34_spontaneously_join_social_games, scq34_r03
Query lifetime_makebelievegame String 50 Required Playing any pretend or make-believe games - Did she/he play any pretend or make-believe games?
Yes;No; not_answered
SCQ035L_AN, SCQ_LIFE_PLAY_PRETEND, SPLAY, Scq_lifetime_lifetime_makebelievegame, lifetime_makebelieve, makebelievegame, q35_make_believe, q35_play_any_pretend_games, q35_play_pretend, scq35_r03
Query lifetime_childinterest String 50 Required Interest in other children the same age - Did she/he seem interested in other children of approximately the same age whom she/he does not know?
Yes;No; not_answered
SCQ036L_AN, SCQ_LIFE_CHILD_INTEREST, SINTCH, Scq_lifetime_lifetime_childinterest, childinterest, lifetime_childinter, q36_same_age, q36_seem_interested, q36_seem_interested_other_children_same_age, scq36_r03
Query lifetime_positiveapp String 50 Required Positive response when approached by another child - Did she/he respond positively when another child approaches her/him?
Yes;No; not_answered
SCQ037L_AN, SCQ_LIFE_RESPOND_POSITIVE, SRESPC, Scq_lifetime_lifetime_positiveapp, positiveapp, postitiveapp, q37_respond_positively, q37_respond_positively, q37_respond_positively_another_child_approach, scq37_r03
Query lifetime_talknoname String 50 Required Attentive when talked to - If you come into a room and started talking to her/him without calling her/his name, did she/he usually look up and pay attention to you?
Yes;No; not_answered
SAVOIC, SCQ038L_AN, SCQ_LIFE_PAY_ATTNTN, Scq_lifetime_lifetime_talknoname, q38_came_into_room, q38_pay_attention, q38_you_came_into_room_talking_attention, scq38_r03, talknoname
Query lifetime_imaginegame String 50 Required Imaginative pretend games - Did she/he ever play imaginative games with another child in such a way that you can tell that each child understands what the other is pretending?
Yes;No; not_answered
SCQ039L_AN, SCQ_LIFE_OTHR_PRETEND, SPEERP, Scq_lifetime_lifetime_imaginegame, imaginegame, q39_imaginative_games, q39_play_imaginative, q39_play_imaginative_with_child_understand, scq39_r03
Query lifetime_playcoop String 50 Required Playing cooperatively - Did she/he play cooperatively in games that need some form of joining in with a group of other children, such as hide-and-seek or ball games?
Yes;No; not_answered
SCQ040L_AN, SCQ_LIFE_COOPERATIVE_PLAY, SGRPLY, Scq_lifetime_lifetime_playcoop, playcoop, q40_cooperatively_games, q40_play_cooperatively, q40_play_cooperatively_games_group, scq40_r03
Query scq_subtotal_1 Integer Recommended scq subtotal items 1-19 scq_lifetime_subtotal_1
Query scq_subtotal_2 Integer Recommended Subtotal Items 1-19: Yes Responses scq_lifetime_subtotal_2
Query scq_subtotal_3 Integer Recommended subtotals for scq 3 scq_lifetime_subtotal_3
Query scq_subtotal_4 Integer Recommended scq subtotal 4 scq_lifetime_subtotal_4
Query scq_total_score Integer Recommended SCQ total score ASQ_total, SCQ_LIFETIME_SCORE, SCQ_TOTAL, score, scq_lifetime_total_score, scq_total_score_l, summary_score, total
Query test_type String 50 Recommended Type of event (Pre-Test or Post-Test) Pre-Test;Post-Test
Query validity_of_data Integer Recommended Validity of data
0::4; 999
0= raw; 1 = Valid or clean; 2 = Question validity; 3 = Invalid data; 4 = Not answered; 999= missing
Query visit String 60 Recommended Visit name scql_apt
site String 101 Recommended Site Study Site
study String 100 Recommended Study; The code for each individual study
Query phenotype String 200 Recommended Phenotype/diagnosis for the subject asd_diagnosis
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