|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
CandidateGUID, GUID, ProbandGUID, SCQ_SubjectKey, guid_r03 |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
IBISID, NDAR_SUBJECT_NUMBER, Scq_lifetime_SRC_Subject_ID, SubjectID, individual, sid_r03 |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
DOE, Date_taken, Scq_lifetime_interview_date, lvdate_r03, scql_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
Age_proband_scq, Agem, Candidate_Age_in_Months, INTERVIEW_AGE_MONTHS, Proband_Age_in_Months, Scq_lifetime_interview_age, childage_r03 |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
Cohort, Scq_lifetime_comments_misc |
Query
|
header_1 |
String |
50
|
Recommended |
Relationship to Subject |
|
4= Biological mother; 5= Biological Father; 6= Non-biological female caregiver; 7= Non-biological male caregiver
|
Scq_lifetime_Header_1, header_Mother, oscr_respondent_relationship, respondent |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
ProbandGender, SEX, Scq_lifetime_gender, childgender_r03, gender |
Query
|
lifetime_shortphrases |
String |
50
|
Required |
Using short phrases |
|
|
SCQ001L_AN, SCQ_LIFE_PHRASES, SLEVELL, Scq_lifetime_lifetime_shortphrases, lifetime_shortphrase, q01_phrases, q1_talk_short_phrases, q1able_talk_using_short_phrases_o, scq01_r03, shortphrases |
Query
|
lifetime_turns |
String |
50
|
Recommended |
Take turns in conversation |
|
|
SCONVE, SCQ002L_AN, SCQ_LIFE_CONVERSATN, Scq_lifetime_lifetime_turns, q02_conversation, q2_to_and_fro, q2can_to_fro_conversation_him_inv, scq02_r03, turns |
Query
|
lifetime_oddphrases |
String |
50
|
Required |
Repetition of odd phrases |
|
|
SCQ003L_AN, SCQ_LIFE_ODD_PHRASE, SSTERE, Scq_lifetime_lifetime_oddphrases, oddphrases, q03_odd_phrase, q3_odd_phrases, q3ever_used_odd_phrases_or_said_, scq03_r03 |
Query
|
lifetime_askiappques |
String |
50
|
Required |
Socially inappropriate questions or statements |
|
|
SCQ004L_AN, SCQ_LIFE_INAPPROP_QUESTN, SINAPP, Scq_lifetime_lifetime_askiappques, askiappques, q04_inappropriate_question, q4_socially_inappropriate, q4ever_used_socially_inappropria_quest, scq04_r03 |
Query
|
lifetime_pronounsmix |
String |
50
|
Required |
Mixed up use of pronouns |
|
|
SCQ005L_AN, SCQ_LIFE_MIX_PRONOUN, SPRON, Scq_lifetime_lifetime_pronounsmix, pronounsmix, q05_pronouns_mixed, q5_pronouns_mixed, q5ever_got_pronouns_mixed_up_e_g, scq05_r03 |
Query
|
lifetime_madeup |
String |
50
|
Required |
Use of made up words or metaphors |
|
|
SCQ006L_AN, SCQ_LIFE_INVENT_WORD, SNEOID, Scq_lifetime_lifetime_madeup, madeup, q06_invented_words, q6_words_invented, q6ever_used_words_seemed_invented, scq06_r03 |
Query
|
lifetime_sayagain |
String |
50
|
Required |
Repetition of exactly the same phrases |
|
|
SCQ007L_AN, SCQ_LIFE_SAY_SAME_THING, SVERRI, Scq_lifetime_lifetime_sayagain, q07_same_over, q7_said_same_thing, q7ever_said_same_thing_over_over, sayagain, scq07_r03 |
Query
|
lifetime_things |
String |
50
|
Recommended |
Rituals |
|
|
SCQ008L_AN, SCQ_LIFE_PARTICULAR_ORDER, SCRIT, Scq_lifetime_lifetime_things, q08_particular_way, q8_particular_way, q8ever_had_things_seemed_ritual, scq08_r03, things |
Query
|
lifetime_facialex |
String |
50
|
Required |
Inappropriate facial expressions |
|
|
SCQ009L_AN, SCQ_LIFE_APPROPRIATE_EXPRESS, SINAPF, Scq_lifetime_lifetime_facialex, facialex, q09_expressions_appropriate, q9_facial_expressions, q9facial_expression_usually_seem_appropr, scq09_r03 |
Query
|
lifetime_handtool |
String |
50
|
Required |
Use of parent's hand like a tool |
|
|
SCQ010L_AN, SCQ_LIFE_USE_HAND, SUSEBO, Scq_lifetime_lifetime_handtool, handtool, q10_hand_like_tool, q10_hand_tool, q10ever_your_used_hand_like_tool, scq10_r03 |
Query
|
lifetime_oddinterest |
String |
50
|
Required |
Odd interests |
|
|
SCQ011L_AN, SCQ_LIFE_ODD_INTEREST, SUNPRO, Scq_lifetime_lifetime_oddinterest, oddinterest, q11_interest_preoccupy, q11_interests_that_preoccupy, q11ever_had_any_interests_that_preoccu, scq11_r03 |
Query
|
lifetime_interestobjpart |
String |
50
|
Required |
Interest in part of toy or object rather than in whole object |
|
|
SCQ012L_AN, SCQ_LIFE_TOY_INTEREST, SUSEOB, Scq_lifetime_lifetime_interestobjpart, interestobjpart, lifetime_interestobj, q12_interested_in_parts, q12_parts_object, q12seemed_more_interested_part_of_obj, scq12_r03 |
Query
|
lifetime_unusual |
String |
50
|
Required |
Unusually intense special interests |
|
|
SCIRIN, SCQ013L_AN, SCQ_LIFE_SPECIAL_INTEREST, Scq_lifetime_lifetime_unusual, q13_intense_interests, q13_interests_intensity, q13ever_had_special_interests_intensity, scq13_r03, unusual |
Query
|
lifetime_unusualint |
String |
50
|
Required |
Interest in sight, feel, sound, taste or smell of things or people |
|
|
SCQ014L_AN, SCQ_LIFE_SENSE_INTEREST, SUNSEN, Scq_lifetime_lifetime_unusualint, q14_senses, q14_sight_feel_sound, q14unusually_inter_sight_sound, scq14_r03, unusualint |
Query
|
lifetime_manner |
String |
50
|
Required |
Mannerisms |
|
|
SCQ015L_AN, SCQ_LIFE_ODD_MANNERISMS, SHFMAN, Scq_lifetime_lifetime_manner, manner, q15_mannerisms, q15_odd_ways, q15mannerisms_or_odd, scq15_r03 |
Query
|
lifetime_movement |
String |
50
|
Required |
Complicated movements of whole body |
|
|
SCQ016L_AN, SCQ_LIFE_COMPLICATE_MOVE, SOTHMA, Scq_lifetime_lifetime_movement, movement, q16_complicated_movements, q16_complicated_movements, q16any_complicated_movem_spinn, scq16_r03 |
Query
|
lifetime_injure |
String |
50
|
Required |
Deliberate self-injury |
|
|
SCQ017L_AN, SCQ_LIFE_INJURE_SELF, SSLFIN, Scq_lifetime_lifetime_injure, injure, q17_deliberate_injury, q17_injured_deliberately, q17injured_himself_deliberat, scq17_r03 |
Query
|
lifetime_objcarry |
String |
50
|
Required |
Need to carry around objects other than a soft toy or blanket |
|
|
SCQ018L_AN, SCQ_LIFE_OBJECT_CARRY, SUNATT, Scq_lifetime_lifetime_objcarry, objcarry, q18_carry_objects, q18_objects_carry, q18had_objects_other_carry_around, scq18_r03 |
Query
|
lifetime_bestfrnd |
String |
50
|
Required |
Having any particular friends or a best friend |
|
|
SCQ019L_AN, SCQ_LIFE_BEST_FRND, SFREND, Scq_lifetime_lifetime_bestfrnd, bestfrnd, q19_best_friend, q19_particular_friends, q19have_particular_friends_or_best, scq19_r03 |
Query
|
lifetime_talkfrndly |
String |
50
|
Required |
Talking with parent just to be friendly rather than to get something |
|
|
SCHAT, SCQ020L_AN, SCQ_LIFE_FRND_TALK, Scq_lifetime_lifetime_talkfrndly, q20_ever_talk_be_friendly_, q20_talk_friendly, q20_talk_friendly, scq20_r03, talkfrndly |
Query
|
lifetime_copyyou |
String |
50
|
Required |
Spontaneously coping what other people are doing |
|
|
SCQ021L_AN, SCQ_LIFE_COPY, SIMIT, Scq_lifetime_lifetime_copyyou, copyyou, q21_copy_you, q21_ever_spontaneously_cop_you, q21_spontaneously_copy, scq21_r03 |
Query
|
lifetime_ptthings |
String |
50
|
Required |
Spontaneously pointing at things just to show them |
|
|
SCQ022L_AN, SCQ_LIFE_POINT, SPOINT, Scq_lifetime_lifetime_ptthings, ptthings, q22_ever_spontaneously_point, q22_point_things, q22_spontaneously_point, scq22_r03 |
Query
|
lifetime_gesture |
String |
50
|
Required |
Gestures to get things except pointing or pulling hand |
|
|
SCQ023L_AN, SCQ_LIFE_GESTURE, SINSGE, Scq_lifetime_lifetime_gesture, gesture, q23_ever_use_gestures_other_than_point, q23_gestures, q23_gestures_wanted, scq23_r03 |
Query
|
lifetime_nodheady |
String |
50
|
Required |
Noding head to indicate yes |
|
|
SCQ024L_AN, SCQ_LIFE_HEAD_YES, SNOD, Scq_lifetime_lifetime_nodheady, nodheady, q24_nod_head, q24_nod_head_mean_yes, q24_nod_yes, scq24_r03 |
Query
|
lifetime_nodheadn |
String |
50
|
Required |
Shaking head to indicate no |
|
|
SCQ025L_AN, SCQ_LIFE_HEAD_NO, SHSHAK, Scq_lifetime_lifetime_nodheadn, nodheadn, q25_shake_head, q25_shake_head_mean_no, q25_shake_no, scq25_r03 |
Query
|
lifetime_facelook |
String |
50
|
Required |
Looking directly in the face |
|
|
SCQ026L_AN, SCQ_LIFE_LOOK_DIRECT, SGAZE, Scq_lifetime_lifetime_facelook, facelook, q26_look_directly, q26_look_directly, q26_usually_look_at_direct_in_face, scq26_r03 |
Query
|
lifetime_smileback |
String |
50
|
Required |
Smiling back when smiled at |
|
|
SCQ027L_AN, SCQ_LIFE_SMILE_BACK, SSSMIL, Scq_lifetime_lifetime_smileback, q27_smile_back, q27_smile_back, q27_smile_back_if_someone_, scq27_r03, smileback |
Query
|
lifetime_attn |
String |
50
|
Required |
Showing things to get parent's attention |
|
|
SCQ028L_AN, SCQ_LIFE_SHOW_THING, SSHOW, Scq_lifetime_lifetime_attn, attn, q28_ever_show_things_intererested, q28_show_things, q28_things_interested, scq28_r03 |
Query
|
lifetime_share |
String |
50
|
Required |
Offering to share things other than food |
|
|
SCQ029L_AN, SCQ_LIFE_SHARE, SOSHAR, Scq_lifetime_lifetime_share, q29_ever_offer_share_thing, q29_offer_share, q29_share, scq29_r03, share |
Query
|
lifetime_joinenjoy |
String |
50
|
Required |
Wanting to be joined in something |
|
|
SCQ030L_AN, SCQ_LIFE_JOIN_ENJOY, SSHARE, Scq_lifetime_lifetime_joinenjoy, joinenjoy, q30_ever_seem_want_you_join_enjoyment, q30_join_enjoyment, q30_join_enjoyment, scq30_r03 |
Query
|
lifetime_comfort |
String |
50
|
Required |
Trying to comfort a hurt or sad parent |
|
|
SCQ031L_AN, SCQ_LIFE_COMFORT, SOCOMF, Scq_lifetime_lifetime_comfort, comfort, q31_comfort, q31_comfort, q31_ever_try_comfort_you_if_sad, scq31_r03 |
Query
|
lifetime_help |
String |
50
|
Recommended |
Asking for help to get something |
|
|
SCQ032L_AN, SCQ_LIFE_HELP_GESTURE, SQUALO, Scq_lifetime_lifetime_help, help, q32_help_attention, q32_wanted_something, q32_when_wanted_something_look_gesture, scq32_r03 |
Query
|
lifetime_normalfacialexp |
String |
50
|
Required |
Normal range of facial expressions |
|
|
SCQ033L_AN, SCQ_LIFE_RANGE_EXPRESS, SRFACE, Scq_lifetime_lifetime_normalfacialexp, lifetime_normfaceexp, normalfacialexp, q33_facial_expressions, q33_range_expressions, q33_show_normal_range_of_facial_exp, scq33_r03 |
Query
|
lifetime_copyaction |
String |
50
|
Required |
Spontaneously joining in social games |
|
|
SCQ034L_AN, SCQ_LIFE_SOCIAL_GAME, SSOPLA, Scq_lifetime_lifetime_copyaction, copyaction, q34_copy_actions, q34_spontaneously_join, q34_spontaneously_join_social_games, scq34_r03 |
Query
|
lifetime_makebelievegame |
String |
50
|
Required |
Playing any pretend or make-believe games |
|
|
SCQ035L_AN, SCQ_LIFE_PLAY_PRETEND, SPLAY, Scq_lifetime_lifetime_makebelievegame, lifetime_makebelieve, makebelievegame, q35_make_believe, q35_play_any_pretend_games, q35_play_pretend, scq35_r03 |
Query
|
lifetime_childinterest |
String |
50
|
Required |
Interest in other children the same age |
|
|
SCQ036L_AN, SCQ_LIFE_CHILD_INTEREST, SINTCH, Scq_lifetime_lifetime_childinterest, childinterest, lifetime_childinter, q36_same_age, q36_seem_interested, q36_seem_interested_other_children_same_age, scq36_r03 |
Query
|
lifetime_positiveapp |
String |
50
|
Required |
Positive response when approached by another child |
|
|
SCQ037L_AN, SCQ_LIFE_RESPOND_POSITIVE, SRESPC, Scq_lifetime_lifetime_positiveapp, positiveapp, postitiveapp, q37_respond_positively, q37_respond_positively, q37_respond_positively_another_child_approach, scq37_r03 |
Query
|
lifetime_talknoname |
String |
50
|
Required |
Attentive when talked to |
|
|
SAVOIC, SCQ038L_AN, SCQ_LIFE_PAY_ATTNTN, Scq_lifetime_lifetime_talknoname, q38_came_into_room, q38_pay_attention, q38_you_came_into_room_talking_attention, scq38_r03, talknoname |
Query
|
lifetime_imaginegame |
String |
50
|
Required |
Imaginative pretend games |
|
|
SCQ039L_AN, SCQ_LIFE_OTHR_PRETEND, SPEERP, Scq_lifetime_lifetime_imaginegame, imaginegame, q39_imaginative_games, q39_play_imaginative, q39_play_imaginative_with_child_understand, scq39_r03 |
Query
|
lifetime_playcoop |
String |
50
|
Required |
Playing cooperatively |
|
|
SCQ040L_AN, SCQ_LIFE_COOPERATIVE_PLAY, SGRPLY, Scq_lifetime_lifetime_playcoop, playcoop, q40_cooperatively_games, q40_play_cooperatively, q40_play_cooperatively_games_group, scq40_r03 |
Query
|
scq_subtotal_1 |
Integer |
|
Recommended |
scq subtotal items 1-19 |
|
|
scq_lifetime_subtotal_1 |
Query
|
scq_subtotal_2 |
Integer |
|
Recommended |
Subtotal Items 1-19: Yes Responses |
|
|
scq_lifetime_subtotal_2 |
Query
|
scq_subtotal_3 |
Integer |
|
Recommended |
subtotals for scq 3 |
|
|
scq_lifetime_subtotal_3 |
Query
|
scq_subtotal_4 |
Integer |
|
Recommended |
scq subtotal 4 |
|
|
scq_lifetime_subtotal_4 |
Query
|
scq_total_score |
Integer |
|
Recommended |
SCQ total score |
|
|
ASQ_total, SCQ_LIFETIME_SCORE, SCQ_TOTAL, score, scq_lifetime_total_score, scq_total_score_l, summary_score, total |
Query
|
test_type |
String |
50
|
Recommended |
Type of event (Pre-Test or Post-Test) |
Pre-Test;Post-Test
|
|
|
Query
|
validity_of_data |
Integer |
|
Recommended |
Validity of data |
|
0= raw; 1 = Valid or clean; 2 = Question validity; 3 = Invalid data; 4 = Not answered; 999= missing
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
scql_apt |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
|
study |
String |
100
|
Recommended |
Study; The code for each individual study |
|
|
|
Query
|
phenotype |
String |
200
|
Recommended |
Phenotype/diagnosis for the subject |
|
|
asd_diagnosis |