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The Filter Cart provides a powerful way to query and access data for which you may be interested.  

A few points related to the filter cart are important to understand with the NDA Query/Filter implementation: 

First, the filter cart is populated asyncronously.  So, when you run a query, it may take a moment to populate but this will happen in the background so you can define other queries during this time.  

When you are adding your first filter, all data associated with your query will be added to the filter cart (whether it be a collection, a concept, a study, a data structure/elment or subjects). Not all data structures or collections will necessarily be displayed.  For example, if you select the NDA imaging structure image03, and further restrict that query to scan_type fMRI, only fMRI images will appear and only the image03 structure will be shown.  To see other data structures, select "Find All Subject Data" which will query all data for those subjects. When a secord or third filter is applied, an AND condition is used.  A subject must exist in all filters.  If the subject does not appear in any one filter, that subjects data will not be included in your filter cart. If that happens, clear your filter cart, and start over.  

It is best to package more data than you need and access those data using other tools, independent of the NDA (e.g. miNDAR snapshot), to limit the data selected.  If you have any questions on data access, are interested in using avaialble web services, or need help accessing data, please contact us for assistance.  

Frequently Asked Questions

Glossary

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NDA provides a single access to de-identified autism research data. For permission to download data, you will need an NDA account with approved access to NDA or a connected repository (AGRE, IAN, or the ATP). For NDA access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Medical Outcomes Survey SF-12

sf12

01

Medical Outcomes Survey Short Form 12 items

Download Definition as
Download Submission Template as
Element NameData TypeSizeRequiredDescriptionValue RangeNotesAliases
subjectkeyGUIDRequiredThe NDAR Global Unique Identifier (GUID) for research subjectNDAR*
src_subject_idString20RequiredSubject ID how it's defined in lab/projectCATIEID
interview_dateDateRequiredDate on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYYRequired field
interview_ageIntegerRequiredAge in months at the time of the interview/test/sampling/imaging.0 :: 1260Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sexString20RequiredSex of the subjectM;FM = Male; F = Femalegender
visitidIntegerRecommendedMetaTrial Visit IDSystem variable: unique code for each type of visit -use to merge files
visitString50RecommendedVisit name
truncvisIntegerRecommendedTruncated Visit NumberCreated variable: provides a numeric visit number for all visits, including unscheduled and end of phase
phase_ctString20RecommendedCurrent Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase.Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1
visdayIntegerRecommendedNumber of days from study baseline to date of visit
sf01IntegerRecommended1. In general, would you say your health is1::51 = Excellent; 2 = Very Good; 3 = Good; 4 = Fair; 5 = Poorsf1
sf02IntegerRecommended2. Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf1::31 = Yes - Limited A Lot 2 = Yes - Limited A Little; 3 = No - Not Limited At Allsf2
sf03IntegerRecommended3. Climbing several flights of stairs1::31 = Yes - Limited A Lot 2 = Yes - Limited A Little; 3 = No - Not Limited At Allsf3
sf04IntegerRecommendedDuring the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your physical health? Accomplished less than you would like.0;10 = No; 1 = Yes
sf05IntegerRecommendedDuring the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your physical health?. Were limited in the kind of work or other activities0;10 = No; 1 = Yes
sf06IntegerRecommendedDuring the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emotional problems. Accomplished less than you would like0;10 = No; 1 = Yes
sf07IntegerRecommendedDuring the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emotional problems. Didn't do work or other activities as carefully as usual0;10 = No; 1 = Yes
sf08IntegerRecommended8. During the past 4 weeks how much did pain interfere with your normal work (including both work outside the home and housework)?1::51 = Not at all; 2 = Slightly; 3 = Moderately; 4 = Quite a bit; 5 = Extremelysf8
sf09IntegerRecommended9. Have you felt calm and peaceful?1::61 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the timesf9
sf10IntegerRecommended10. Did you have a lot of energy?1::61 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the time
sf11IntegerRecommended11. Have you felt downhearted and blue?1::61 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the time
sf12IntegerRecommended12. During the past 4 weeks how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)?1::51 = All of the time; 2 = Most of the time; 3 = Some of the time; 4 = A little of the time; 5 = None of the time
physicalFloatRecommendedSF-12 Physical Health SummaryScore was created based on the published algorithm: Ware J.E., Kosinski, M., Keller, S. How to score the SF-12 physical and mental health summary scales. 2nd ed. Boston, MA: The Health Institute, New England Medical Center, 1995.hspss
mentalFloatRecommendedSF-12 Mental Health SummaryScore was created based on the published algorithm: Ware J.E., Kosinski, M., Keller, S. How to score the SF-12 physical and mental health summary scales. 2nd ed. Boston, MA: The Health Institute, New England Medical Center, 1995.hsmss
base1IntegerRecommendedFlag Baseline Phase 1/1A Visit1=Yes for all records meeting this criteria
last1IntegerRecommendedFlag Last Phase 1/1A Visit1=Yes for all records meeting this criteria
b1_sfphyFloatRecommendedPhase 1 Baseline SF-12 Physical Healthvalue for assessment at phase-specific baseline; retained across all records for that assessment.
b1_sfmtlFloatRecommendedPhase 1 Baseline SF-12 Mental Healthvalue for assessment at phase-specific baseline; retained across all records for that assessment.
c1_sfphyFloatRecommendedPhase 1 CFB SF-12 Physical HealthChange from Phase 1/1A baseline
c1_sfmtlFloatRecommendedPhase 1 CFB SF-12 Mental HealthChange from Phase 1/1A baseline
days_baselineIntegerRecommendedDays since baseline
monthsblFloatRecommendedActual number of months from Baseline
surm029IntegerRecommendedIn past 4 weeks - how much of the time did you have a lot of energy?1::51 = Not at all; 2 = Slightly; 3 = Moderately; 4 = Quite a bit; 5 = Extremely
surm030IntegerRecommendedIn past 4 weeks - how much of the time have you felt downhearted and blue?1::51 = Not at all; 2 = Slightly; 3 = Moderately; 4 = Quite a bit; 5 = Extremely
surm031IntegerRecommendedIn past 4 weeks - to what extent have physical health or emotional problems interfered with social activities?1::51 = Not at all; 2 = Slightly; 3 = Moderately; 4 = Quite a bit; 5 = Extremely
rawpcs12FloatRecommendedPhysical Health Composite Score
rawmcs12FloatRecommendedMental Health Composite Score
siteString101RecommendedSiteStudy Site
visnumFloatRecommendedNumeric Visit Number-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
me2IntegerRecommendedStatus0;10 = Past [Inactive]; 1 = Active
sf3605b_fIntegerRecommended5b. Emotional problems: Accomplished less than you would like. Frequency1::6; -91 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the time; -9 = Missing valuesf6
sf3604b_fIntegerRecommended4b. Physical health:Accomplished less than you would like. Frequency1::6; -91 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the time; -9 = Missing valuesf4
sf3604c_fIntegerRecommended4c. Physical health:Were limited in the kind of work or other activities. Frequency1::6; -91 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the time; -9 = Missing valuesf5
sf3605c_fIntegerRecommended5c. Emotional problems: Didn't do work or other activity as carefully as usual. Frequency1::6; -91 = All of the time; 2 = Most of the time; 3 = A good bit of the time; 4 = Some of the time; 5 = A little of the time; 6 = None of the time; -9 = Missing valuesf7
sf12bpIntegerRecommendedSF-12: bodily pain scale0::100
sf12ghIntegerRecommendedSF-12: general health scale0::100
sf12reFloatRecommendedSF-12: role emotional scale0::100
sf12rpFloatRecommendedSF-12: role physical scale0::100
sf12pfFloatRecommendedSF-12: physical functioning scale0::100
sf12vtFloatRecommendedSF-12: vitality scale0::100
sf12mhFloatRecommendedSF-12: mental health scale0::100
sf12sfFloatRecommendedSF-12: social functioning scale0::100
versionString20RecommendedVersion/code of assessment
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Distribution for DataStructure: sf1201 and Element:
Chart Help

Filters enable researchers to view the data shared in NDA before applying for access or for selecting specific data for download or NDA Study assignment. For those with access to NDA shared data, you may select specific values to be included by selecting an individual bar chart item or by selecting a range of values (e.g. interview_age) using the "Add Range" button. Note that not all elements have appropriately distinct values like comments and subjectkey and are not available for filtering. Additionally, item level detail is not always provided by the research community as indicated by the number of null values given.

Filters for multiple data elements within a structure are supported. Selections across multiple data structures will be supported in a future version of NDA.