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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

ABCD Social Development Follow Up Parent Feedback

0 Shared Subjects

Social Development Follow Up (Since last visit...) Parent Feedback Questionnaire
Clinical Assessments
Questionnaire
05/13/2021
soc_dev_fu_feedback_p01
05/14/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
eventname String 60 Required The event name for which the data was collected
socialdev_pfbi_10_l Integer Recommended I felt comfortable with the staff. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_01_l Integer Recommended My phone calls were returned in a timely manner. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_02_l Integer Recommended Staff members were friendly and courteous. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_03_l Integer Recommended The staff explained the study clearly 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_04_l Integer Recommended The consent form informed me clearly that this is a substudy to the ABCD study in which I am already participating=and that I do not need to participate in both. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_05_l Integer Recommended The staff responded in a clear manner to my questions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_06_l Integer Recommended The instructions given made it easy to find the research center. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_07_l Integer Recommended The waiting time was too long. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_08_l Integer Recommended I did not understand some of the questions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_09_l Integer Recommended When I did not understand a question=there was a staff member that I could ask for help. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_11_l Integer Recommended I felt uncomfortable with some of the questions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_12_l Integer Recommended I am ok with not knowing the responses that my child gave in this survey. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_13_l Integer Recommended My confidential information was treated in a professional manner. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_14_l Integer Recommended The level of compensation seemed appropriate. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_15_l Integer Recommended I would rather participate in both the studies at ONE visit than two different occasions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_16_l Integer Recommended I would rather schedule separate visits for the ABCD Study and the ABCD-SD Study=since I think it is too strenuous to participate in both in one day. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_17_l Integer Recommended I would participate in this type of research again. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '2'
socialdev_pfbi_18_l String 60 Recommended Please tell us about your suggestions to make the study even better. [socialdev_visit_01_l] = '2'
socialdev_pfbc_18_l String 60 Recommended Please tell us about your suggestions to make the study even better. [socialdev_visit_01_l] = '1'
socialdev_pfbc_01_l Integer Recommended The staff explained the study clearly 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_02_l Integer Recommended The consent form informed me clearly that this is a substudy to the ABCD study in which I am already participating=and that I do not need to participate in both. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_03_l Integer Recommended The staff responded in a clear manner to my questions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_04_l Integer Recommended The waiting time was too long. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_05_l Integer Recommended I did not understand some of the questions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_06_l Integer Recommended When I did not understand a question=there was a staff member that I could ask for help. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_07_l Integer Recommended I felt comfortable with the staff. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_08_l Integer Recommended I felt uncomfortable with some of the questions. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_09_l Integer Recommended I am ok with not knowing the responses that my child gave in this survey. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_10_l Integer Recommended My confidential information was treated in a professional manner. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_11_l Integer Recommended The level of compensation seemed appropriate. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_12_l Integer Recommended The adding of this survey to my assessment day was too strenuous. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_13_l Integer Recommended The adding of this survey to my assessment day makes me feel more negative about BOTH the studies I have participated in today. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_14_l Integer Recommended The adding of this survey to my assessment day was positive. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_15_l Integer Recommended I would have rather scheduled a separate visit for this survey. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_16_l Integer Recommended I would rather do both studies at the same time. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
socialdev_pfbc_17_l Integer Recommended I would participate in this type of research again. 1::5 5=Strongly agree ; 4=Agree ; 3=Neither agree nor disagree (neutral) ; 2=Disagree ; 1=Strongly disagree [socialdev_visit_01_l] = '1'
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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