Loading...

National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Enter the email address associated with your existing NDA Account and click Continue Linking Process.

If you do not have an existing NDA account, click Go Back.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Success! An email is on its way!

Please check your email to complete the linking process. The link you receive is only valid for 30 minutes.

Check your spam or junk folder if you do not receive the email in the next few minutes.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
Create or Link an Existing NDA Account

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

NIMH Data Archive (NDA) Sign In or Create An Account
Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Data Access Terms - Decline Terms

Are you sure you want to cancel? This will decline terms and you will not be authorized for access.

NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

COVID-19 Symptoms and Testing Experience

0 Shared Subjects

The COVID-19 Symptoms and Testing Experience (STE) is a module within the Johns Hopkins COVID-19 Community Response Survey which helps researchers understand how the novel coronavirus (COVID-19) pandemic affected people’s lives. The STE specifically examines the participants' own experiences with COVID-19 and the different symptoms and testing they went through during the pandemic.
Clinical Assessments
Symptom History
02/21/2023
ste01
11/24/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
ste1_covid_19_symp_home Integer Recommended Since February 1, 2020 have you or someone in your home experienced any symptoms of the novel coronavirus (COVID-19)? 0::6 0 = No; 1 = Yes, someone in home, not me; 2 = Yes, multiple in home, not me; 3 = Yes, I experienced symptoms; 4 = Yes, both I and someone in home; 5 = Not sure/ Don't know; 6 = Exposed to someone who tested positive
ste2_covid_19_home_2wks Integer Recommended In the past two weeks, have you or someone in your home experienced any symptoms of COVID-19? 0::5;8 0 = No; 1 = Yes, someone in home, not me; 2 = Yes, multiple in home, not me; 3 = Yes, I experienced symptoms; 4 = Yes, both I and someone in home; 5 = Not sure/ Don't know; 8 = NA
ste3a_high_fever_self_2wks Integer Recommended Did you experience a fever (>100.4F or 38C) in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3b_unk_fever_self_2wks Integer Recommended Did you experience a fever, do not know exact temperature, in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3c_cough_self_2wks Integer Recommended Did you experience a cough (new or worsening of chronic cough) in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3d_sore_throat_self_2wks Integer Recommended Did you experience a sore throat in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3e_runny_nose_self_2wks Integer Recommended Did you experience a runny nose in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3f_short_breath_self_2wks Integer Recommended Did you experience shortness of breath in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3g_chills_self_2wks Integer Recommended Did you experience chills in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3h_fatigue_self_2wks Integer Recommended Did you experience fatigue in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3i_lack_energy_self_2wks Integer Recommended Did you experience general lack of energy or malaise in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3j_loss_app_self_2wks Integer Recommended Did you experience loss of appetite in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3k_chest_dis_self_2wks Integer Recommended Did you experience discomfort, tightness, or pressure in chest in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3l_vomiting_self_2wks Integer Recommended Did you experience vomiting in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3m_nausea_self_2wks Integer Recommended Did you experience nausea in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3n_diarrhea_self_2wks Integer Recommended Did you experience diarrhea in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3o_muscle_ach_self_2wks Integer Recommended Did you experience muscle aches in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3p_joint_ach_self_2wks Integer Recommended Did you experience joint aches in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3q_headache_self_2wks Integer Recommended Did you experience a headache in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3r_seizure_self_2wks Integer Recommended Did you experience a seizure in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3s_dizziness_self_2wks Integer Recommended Did you experience dizziness in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3t_alter_consc_self_2wks Integer Recommended Did you experience altered consciousness, difficult to stay awake in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3u_loss_smell_self_2wks Integer Recommended Did you experience loss of smell in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3v_loss_taste_self_2wks Integer Recommended Did you experience loss of taste in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3w_ab_pain_self_2wks Integer Recommended Did you experience abdominal pain in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3x_oth_symp_self_2wks Integer Recommended Did you experience other symptoms in the past 2 weeks? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste3asp_name_oths_self_2wks String 500 Recommended If you did experience other symptoms in the past 2 weeks, please specify other symptom
ste4mo_covid_symp_month Integer Recommended Month of first symptom MM
ste4da_covid_symp_day Integer Recommended Day of first symptom DD
ste4yr_covid_symp_year Integer Recommended Year of first symptom YYYY
ste5a_high_fever_ms_symp Integer Recommended Was a fever (>100.4F or 38C) the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5b_unk_fever_ms_symp Integer Recommended Was a fever, do not know the exact temperature, the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5c_cough_ms_symp Integer Recommended Was a cough (new or worsening of chronic cough) the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5d_sore_throat_ms_symp Integer Recommended Was a sore throat the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5e_runny_nose_ms_symp Integer Recommended Was a runny nose the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5f_short_breath_ms_symp Integer Recommended Was shortness of breath the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5g_chills_ms_symp Integer Recommended Were chills the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5h_fatigue_ms_symp Integer Recommended Was fatigue the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5i_lack_energy_ms_symp Integer Recommended Was general lack of energy or malaise the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5j_loss_appetite_ms_symp Integer Recommended Was loss of appetite the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5k_chest_disc_ms_symp Integer Recommended Was discomfort, tightness, or pressure in chest the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5l_vomiting_ms_symp Integer Recommended Was vomiting the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5m_nausea_ms_symp Integer Recommended Was nausea the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5n_diarrhea_ms_symp Integer Recommended Was diarrhea the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5o_muscle_aches_ms_symp Integer Recommended Was muscle aches the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5p_joint_aches_ms_symp Integer Recommended Was joint aches the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5q_headache_ms_symp Integer Recommended Was a headache the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5r_seizure_ms_symp Integer Recommended Was a seizure the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5s_dizziness_ms_symp Integer Recommended Was dizziness the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5t_alter_consc_ms_symp Integer Recommended Was altered consciousness, difficult to stay awake the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5u_loss_smell_ms_symp Integer Recommended Was loss of smell the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5v_loss_taste_ms_symp Integer Recommended Was loss of taste the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5w_ab_pain_ms_symp Integer Recommended Was abdominal pain the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5x_oth_symp_ms_symp Integer Recommended Was some other symptom the most severe symptom to you? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste5asp_name_oth_symp_ms String 500 Recommended If some other symptom was the most severe symptom to you, please specify the other symptom
ste6_amt_symptom_bother Integer Recommended How bothersome or distressful was that symptom? 0::4;8;9 0 = Not at all; 1 = A little bit; 2 = Somewhat; 3 = Quite a bit; 4 = Very much; 8 = N/A; 9 = Missing
ste7_traveled_out_state Integer Recommended In the two weeks prior to developing symptoms, had you traveled outside of your state/country? 0::2;8;9 0 = No; 1 = Yes, outside state; 2 = Yes, outside country; 8 = N/A; 9 = Missing
ste8_contact_som_covid_19 Integer Recommended In the two weeks prior to developing symptoms, did you have contact with a known COVID-19 case? 0::2;8;9 0 = No; 1 = Yes, someone in home; 2 = Yes, someone outside home; 8 = N/A; 9 = Missing
ste9_contact_covid19_symp Integer Recommended In the two weeks prior to developing symptoms, did you have contact with someone who had symptoms of COVID-19, but who had not yet tested positive or had no yet had a test? 0::2;8;9 0 = No; 1 = Yes, someone in home; 2 = Yes, someone outside home; 8 = N/A; 9 = Missing
ste10_cons_healthcare_prov Integer Recommended Did you consult with a healthcare provider or try to get a coronavirus test because of your symptoms? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste11_sought_care_symp Integer Recommended At what point did you seek care? 1::4;8;9 1 = Immediately after first symptom; 2 = When developed a fever; 3 = When had trouble breathing; 4 = Some other time; 8 = N/A; 9 = Missing
ste12_tested_coronavirus Integer Recommended Have you ever bee tested for coronavirus? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste12a_ease_coronavirus_test Integer Recommended How easy or difficult was it for you to get a test for coronavirus? 1::4;8;9 1 = Very easy; 2 = Easy; 3 = Difficult; 4 = Very difficult; 8 = N/A; 9 = Missing
ste13_corona_test_num_times Integer Recommended How many times have you been tested for coronavirus?
ste13amo_first_corona_test_mo Integer Recommended Month you were first tested for coronavirus MM
ste13ada_first_corona_test_da Integer Recommended Day you were first tested for coronavirus DD
ste13ayr_first_corona_test_yr Integer Recommended Year you were first tested for coronavirus YYYY
ste13bmo_last_corona_test_mo Integer Recommended Month you were last tested for coronavirus MM
ste13bda_last_corona_test_da Integer Recommended Day you were last tested for coronavirus DD
ste13byr_last_corona_test_yr Integer Recommended Year you were last tested for coronavirus YYYY
ste14_pos_covid19 Integer Recommended Have you ever tested positive for coronavirus? 1::3;8;9 1 = No, tested negative; 2 = Yes, tested positive; 3 = Results pending; 8 = N/A; 9 = Missing
ste14amo_pos_covid19_mo Integer Recommended Month you first tested positive for coronavirus
ste14ada_pos_covid19_da Integer Recommended Day you first tested positive for coronavirus
ste14ayr_pos_covid19_yr Integer Recommended Year you first tested positive for coronavirus
ste15a_lopinavir_tr_covid19 Integer Recommended Did a healthcare provider give you Lopinavir/Ritonavir (Kaletra) to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15b_hydro_tr_covid19 Integer Recommended Did a healthcare provider give you Hydroxychloroquine (Plaquenil) to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15c_hydro_az_tr_covid19 Integer Recommended Did a healthcare provider give you Hydroxychloroquine and Azithromycin/Zpak to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15d_chloro_tr_covid19 Integer Recommended Did a healthcare provider give you Chloroquine to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15e_riba_tr_covid19 Integer Recommended Did a healthcare provider give you Ribavirin (Moderiba, Rebetol) to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15f_rem_tr_covid19 Integer Recommended Did a healthcare provider give you Remdesivir to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15g_azi_tr_covid19 Integer Recommended Did a healthcare provider give you Azithromycin (Zpak) to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15h_tami_tr_covid19 Integer Recommended Did a healthcare provider give you Oseltamivir (Tamiflu) to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15i_conva_tr_covid19 Integer Recommended Did a healthcare provider give you Blood from someone who was previously infected (convalescent plasma) to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15j_vitac_tr_covid19 Integer Recommended Did a healthcare provider give you Vitamin C to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15k_zinc_tr_covid19 Integer Recommended Did a healthcare provider give you Zinc to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15l_oth_tr_covid19 Integer Recommended Did a healthcare provider give you Other to treat COVID-19? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste15asp_name_oth_tr String 500 Recommended If a healthcare provider gave you Other to treat COVID-19, please specify that Other medication
ste16_hosp_covid19_breath Integer Recommended Since February 1, 2020, have you been hospitalized for COVID-19 or because you had difficulty breathing or a respiratory infection? 0;1;8;9 0 = No; 1 = Yes; 8 = N/A; 9 = Missing
ste17_covid_status Integer Recommended What is your current COVID-19 status? 1::3;8;9 1 = Recovered and symptom free; 2 = Feeling better, not recovered; 3 = Not feeling better; 8 = N/A; 9 = Missing
ste18_reason_not_tested Integer Recommended Why have you not been tested for coronavirus? 1::10;88;99 1 = Have not felt sick; 2 = Felt sick, but enough to test; 3 = Told to quarantine, not test; 4 = Told/believed testing unavailable; 5 = No transportation to testing location; 6 = Worried about being able to pay; 7 = Didn't know where to get tested; 8 = No childcare while testing; 9 = Could not take time off work; 10 = Other Reason; 88 = N/A; 99 = Missing
ste18a_reason_not_tested String 500 Recommended If you selected Other for why you have not been tested for coronavirus, please specify this Other reason
covid_symptoms4 Integer Recommended How much do you agree or disagree with the following statements about the most recent time you were sick with COVID-19: I missed my friends 1 :: 5;9998 1= Strongly disagree; 2= Disagree; 3= Neither disagree nor agree; 4= Agree; 5= Strongly agree; 9998= Do not want to answer
covid_symptoms13_11 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Ear pain 0;1 0= No; 1= Yes
covid_symptoms13_12 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Skin rash or skin ulcers 0;1 0= No; 1= Yes
covid_symptoms13_13 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: I had other symptoms not asked here 0;1 0= No; 1= Yes
covid_symptoms13_14 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: I did not have any symptoms 0;1 0= No; 1= Yes
covid_symptoms13_15 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Do not want to answer 0;1 0= No; 1= Yes
covid_symptoms5 Integer Recommended The most recent time you had COVID, how much did it get in the way of Your school work or other responsibilities 1 :: 4;9998 1= Not at all; 2= Very little; 3= Somewhat; 4= A lot; 9998= Do not want to answer
covid_symptoms6 Integer Recommended The most recent time you had COVID, how much did it get in the way of your relationships with friends 1 :: 4;9998 1= Not at all; 2= Very little; 3= Somewhat; 4= A lot; 9998= Do not want to answer
covid_symptoms7 Integer Recommended The most recent time you had COVID, how much did it get in the way of your relationships with family 1 :: 4;9998 1= Not at all; 2= Very little; 3= Somewhat; 4= A lot; 9998= Do not want to answer
covid_symptoms8 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? 1;6 :: 11;9998 1= I stayed in bed all day; 6= I went to the doctor because of my symptoms; 7= I went to the emergency department/ER because of my symptoms; 8= I was hospitalized; 9= I was put on a ventilator; 10= I was given pills to treat COVID-19; 11= None of these things happened to me; 9998= Do not want to answer
covid_symptoms9 Integer Recommended How often did you drink alcohol the most recent time you had COVID? 1 :: 4;9998 1= Never; 2= Once or twice a week; 3= More than once or twice a week (but less than every day); 4= Every day/almost every day; 9998= Do not want to answer
covid_symptoms10 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? 1;2; 4 :: 8;17;9998 1= I had water in my lungs or pneumonia; 2= I did not have enough oxygen (sometimes called hypoxia); 4= I had a collapsed lung; 5= I had shortness of breath (sometimes called Acute Respiratory Distress Syndrome); 6= I had sepsis; 7= My heart was swollen (sometimes called inflamed); 8= I had heart problems; 17= None of these happened to me; 9998= Do not want to answer
covid_symptoms11 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? 1 :: 9;9998 1= My kidneys did not work well; 2= My liver stopped working; 3= I had bleeding in my stomach, poop, or other parts of my digestive tract; 4= My body stopped processing sugar correctly (sometimes called Hyperglycemia/ Hypoglycemia); 5= I had a stroke; 6= I had a seizure; 7= My brain was swollen or got infected; 8= I had anemia; 9= None of these happened to me; 9998= Do not want to answer
covid_symptoms12 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? 1 :: 12;22;9998 1= Fever higher than 100.4 F; 2= Chills or shaking ; 3 =Cough; 4= Shortness of breath/difficulty breathing; 5= Wheezing; 6=Chest pressure/chest pain; 7= Sore Throat; 8= Runny nose/sinus congestion; 9= Sneezing; 10= Diarrhea (loose, watery stools three or more times a day); 11= Muscle pain/body aches; 12= Headache; 22= I did not have any of these symptoms; 9998= Do not want to answer
covid_symptoms13 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: 11 :: 24;9998 11= Changes in eating (I ate more or less than usual); 12= Changes in sleeping (I slept more or less than usual); 13= I felt really tired or slow; 14= Loss of smell; 15= Loss of taste; 16= Nausea or vomiting; 17= Blush lips/face; 18= Feeling really confused; 19= Difficulty waking up; 20= Eye redness with or without discharge; 21= Ear pain; 22= Skin rash or skin ulcers; 23= I had other symptoms not asked here; 24= I did not have any symptoms; 9998= Do not want to answer
covid_symptoms14 String 100 Recommended What other symptoms not asked here did you have?
covid_symptoms15 Integer Recommended For how many days did you have a fever higher than 100.4 F? Number of Days; 9998= Do not want to answer
covid_symptoms16 Integer Recommended For how many days did you have chills or shaking? Number of Days; 9998= Do not want to answer
covid_symptoms17 Integer Recommended For how many days did you have a cough? Number of Days; 9998= Do not want to answer
covid_symptoms18 Integer Recommended For how many days did you have shortness of breath/difficulty breathing? Number of Days; 9998= Do not want to answer
covid_symptoms19 Integer Recommended For how many days were you wheezing? Number of Days; 9998= Do not want to answer
covid_symptoms20 Integer Recommended For how many days did you have chest pressure/chest pain? Number of Days; 9998= Do not want to answer
covid_symptoms21 Integer Recommended For how many days did you have a sore throat? Number of Days; 9998= Do not want to answer
covid_symptoms22 Integer Recommended For how many days did you have a runny nose/sinus congestion? Number of Days; 9998= Do not want to answer
covid_symptoms23 Integer Recommended For how many days did you have sneezing? Number of Days; 9998= Do not want to answer
covid_recent_date1 String 10 Recommended When was the most recent time you had COVID-19? MM/YYYY; 9998= Do not want to answer
covid_symptoms24 Integer Recommended For how many days did you have diarrhea (loose, watery stools three or more times a day)? Number of Days; 9998= Do not want to answer
covid_symptoms25 Integer Recommended For how many days did you have muscle pain/body aches? Number of Days; 9998= Do not want to answer
covid_symptoms26 Integer Recommended For how many days did you have a headache? Number of Days; 9998= Do not want to answer
covid_symptoms27 Integer Recommended For how many days did you have changes in your eating? Number of Days; 9998= Do not want to answer
covid_symptoms28 Integer Recommended For how many days did you have changes in your sleeping? Number of Days; 9998= Do not want to answer
covid_symptoms29 Integer Recommended For how many days did you have loss of smell? Number of Days; 9998= Do not want to answer
covid_symptoms30 Integer Recommended For how many days did you have loss of taste? Number of Days; 9998= Do not want to answer
covid_symptoms31 Integer Recommended For how many days did you have nausea or vomiting? Number of Days; 9998= Do not want to answer
covid_symptoms32 Integer Recommended For how many days did you have bluish lips/face? Number of Days; 9998= Do not want to answer
covid_symptoms33 Integer Recommended For how many days did you feel really confused? Number of Days; 9998= Do not want to answer
covid_recent_date2 Integer Recommended On a scale of 1-10, with 1 being not at all, and 10 being extremely confident, how confident are you about your estimate of when you got covid, recently? 1 :: 10;9998 1= No at all confident; 10= Extremely confident; 9998= Do not want to answer
covid_symptoms34 Integer Recommended For how many days did you have difficulty waking up? Number of Days; 9998= Do not want to answer
covid_symptoms35 Integer Recommended For how many days did you feel unusually tired or slow? Number of Days; 9998= Do not want to answer
covid_symptoms36 Integer Recommended For how many days did you have eye redness with or without discharge? Number of Days; 9998= Do not want to answer
covid_symptoms37 Integer Recommended For how many days did you have ear pain? Number of Days; 9998= Do not want to answer
covid_symptoms38 Integer Recommended For how many days did you have a skin rash or skin ulcers? Number of Days; 9998= Do not want to answer
covid_symptoms39 Integer Recommended For how many days did you have another symptom not listed? Number of Days; 9998= Do not want to answer
covid_symptoms40 Integer Recommended How severe was your COVID illness the most recent time you had it? 1 :: 5;9998 1= Very mild; 2= Mild to moderate; 3= Moderate to severe; 4= Severe to extreme; 5= Life-threatening; 9998= Do not want to answer
covid_symptoms41 Integer Recommended The most recent time you had COVID-19, how often did you stay in a room away from your family and other people you lived with? 1 :: 5;9998 1= Never; 2= Rarely; 3= Sometimes; 4= Most of the time; 5= All of the time; 9998= Do not want to answer
covid_symptoms42 Integer Recommended When do you expect to be fully recovered from COVID-19 and back to full health? 1 :: 7;9998 1= I am fully recovered and healthy; 2= In the next 6 months; 3= In the next 12 months; 4= In the next 1-2 years; 5= I am not sure I will ever be fully healthy again, and long-term impact is likely to be mild; 6= I am not sure I will ever be fully healthy again. and long-term impact is likely to be moderate; 7= I am not sure I will ever be fully healthy again, and long-term impact is likely to be severe; 9998= Do not want to answer
covid_symptoms8_01 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? I stayed in bed all day 0;1 0= No; 1= Yes
covid_first1 String 10 Recommended When did you have COVID for the first time? MM/YYYY; 9998= Do not want to answer
covid_symptoms8_02 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? I went to the doctor because of my symptoms 0;1 0= No; 1= Yes
covid_symptoms8_03 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? I went to the emergency department/ER because of my symptoms 0;1 0= No; 1= Yes
covid_symptoms8_04 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? I was hospitalized 0;1 0= No; 1= Yes
covid_symptoms8_05 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? I was put on a ventilator 0;1 0= No; 1= Yes
covid_symptoms8_06 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? I was given pills to treat COVID-19 0;1 0= No; 1= Yes
covid_symptoms8_07 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? None of these things happened to me 0;1 0= No; 1= Yes
covid_symptoms8_08 Integer Recommended Did you experience or do any of the following the most recent time you had COVID-19? Do not want to answer 0;1 0= No; 1= Yes
covid_symptoms10_01 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? I had water in my lungs or pneumonia 0;1 0= No; 1= Yes
covid_symptoms10_02 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? I did not have enough oxygen (sometimes called hypoxia) 0;1 0= No; 1= Yes
covid_symptoms10_03 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? I had a collapsed lung 0;1 0= No; 1= Yes
covid_first2 Integer Recommended On a scale of 1-10, with 1 being not at all, and 10 being extremely confident, how confident are you about your estimate of when you got covid the first time? 1 :: 10;9998 1= No at all confident; 10= Extremely confident; 9998= Do not want to answer
covid_symptoms10_04 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? I had shortness of breath (sometimes called Acute Respiratory Distress Syndrome) 0;1 0= No; 1= Yes
covid_symptoms10_05 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? I had sepsis 0;1 0= No; 1= Yes
covid_symptoms10_06 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? My heart was swollen (sometimes called inflamed) 0;1 0= No; 1= Yes
covid_symptoms10_07 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? I had heart problems 0;1 0= No; 1= Yes
covid_symptoms10_08 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? None of these happened to me 0;1 0= No; 1= Yes
covid_symptoms10_09 Integer Recommended Which of the following happened to you the most recent time you had COVID-19? Do not want to answer 0;1 0= No; 1= Yes
covid_symptoms11_01 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? My kidneys did not work well 0;1 0= No; 1= Yes
covid_symptoms11_02 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? My liver stopped working 0;1 0= No; 1= Yes
covid_symptoms11_03 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? I had bleeding in my stomach, poop, or other parts of my digestive tract 0;1 0= No; 1= Yes
covid_symptoms11_04 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? My body stopped processing sugar correctly (sometimes called Hyperglycemia/ Hypoglycemia) 0;1 0= No; 1= Yes
covid_symptoms1 Integer Recommended How long were you sick with COVID-19 the most recent time? 1 :: 30;32;9998 30= 30 or more; 32= No Symptoms; 9998= Do not want to answer
covid_symptoms11_05 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? I had a stroke 0;1 0= No; 1= Yes
covid_symptoms11_06 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? I had a seizure 0;1 0= No; 1= Yes
covid_symptoms11_07 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? My brain was swollen or got infected 0;1 0= No; 1= Yes
covid_symptoms11_08 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? I had anemia 0;1 0= No; 1= Yes
covid_symptoms11_09 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? None of these happened to me 0;1 0= No; 1= Yes
covid_symptoms11_10 Integer Recommended Below are additional things that may have happened to you when you had COVID-19. Which happened to you? Do not want to answer 0;1 0= No; 1= Yes
covid_symptoms12_01 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Fever higher than 100.4 F 0;1 0= No; 1= Yes
covid_symptoms12_02 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Chills or shaking 0;1 0= No; 1= Yes
covid_symptoms12_03 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Cough 0;1 0= No; 1= Yes
covid_symptoms12_04 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Shortness of breath/difficulty breathing 0;1 0= No; 1= Yes
covid_symptoms2 Integer Recommended How much do you agree or disagree with the following statements about the most recent time you were sick with COVID-19: I was really worried that I would never recover from COVID-19. 1 :: 5;9998 1= Strongly disagree; 2= Disagree; 3= Neither disagree nor agree; 4= Agree; 5= Strongly agree; 9998= Do not want to answer
covid_symptoms12_05 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Wheezing 0;1 0= No; 1= Yes
covid_symptoms12_06 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Chest pressure/chest pain 0;1 0= No; 1= Yes
covid_symptoms12_07 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Sore Throat 0;1 0= No; 1= Yes
covid_symptoms12_08 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Runny nose/sinus congestion 0;1 0= No; 1= Yes
covid_symptoms12_09 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Sneezing 0;1 0= No; 1= Yes
covid_symptoms12_10 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Diarrhea (loose, watery stools three or more times a day) 0;1 0= No; 1= Yes
covid_symptoms12_11 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Muscle pain/body aches 0;1 0= No; 1= Yes
covid_symptoms12_12 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Headache 0;1 0= No; 1= Yes
covid_symptoms12_13 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? I did not have any of these symptoms 0;1 0= No; 1= Yes
covid_symptoms12_14 Integer Recommended The most recent time you had COVID-19, what symptoms did you experience? Do not want to answer 0;1 0= No; 1= Yes
covid_symptoms3 Integer Recommended How much do you agree or disagree with the following statements about the most recent time you were sick with COVID-19: I missed going to school 1 :: 5;9998 1= Strongly disagree; 2= Disagree; 3= Neither disagree nor agree; 4= Agree; 5= Strongly agree; 9998= Do not want to answer
covid_symptoms13_01 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Changes in eating (I ate more or less than usual) 0;1 0= No; 1= Yes
covid_symptoms13_02 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Changes in sleeping (I slept more or less than usual) 0;1 0= No; 1= Yes
covid_symptoms13_03 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: I felt really tired or slow 0;1 0= No; 1= Yes
covid_symptoms13_04 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Loss of smell 0;1 0= No; 1= Yes
covid_symptoms13_05 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Loss of taste 0;1 0= No; 1= Yes
covid_symptoms13_06 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Nausea or vomiting 0;1 0= No; 1= Yes
covid_symptoms13_07 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Blush lips/face 0;1 0= No; 1= Yes
covid_symptoms13_08 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Feeling really confused 0;1 0= No; 1= Yes
covid_symptoms13_09 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Difficulty waking up 0;1 0= No; 1= Yes
covid_symptoms13_10 Integer Recommended People have experienced a lot of different types of COVID symptoms. Here are more symptoms that you might have experienced the most recent time you had COVID. Please indicate which one you have experienced: Eye redness with or without discharge 0;1 0= No; 1= Yes
covid1_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Temperature higher than 100.4 degrees (F) 0;1 0 = No; 1 = Yes covid1
covid2_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - New or worsening cough, or a persistent cough 0;1 0 = No; 1 = Yes covid2
covid3_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - New or worsening shortness of breath 0;1 0 = No; 1 = Yes covid3
covid4_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Fatigue 0;1 0 = No; 1 = Yes covid4
covid5_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Loss of appetite 0;1 0 = No; 1 = Yes covid5
covid6_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Muscle or body aches 0;1 0 = No; 1 = Yes covid6
covid7_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Headache 0;1 0 = No; 1 = Yes covid7
covid8_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Sore throat 0;1 0 = No; 1 = Yes covid8
covid9_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Congestion, or a runny nose 0;1 0 = No; 1 = Yes covid9
covid10_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Nausea, or vomiting 0;1 0 = No; 1 = Yes covid10
covid11_sx Integer Recommended Which of the following new symptoms have you been experiencing? Please select all that apply - Diarrhea 0;1 0 = No; 1 = Yes covid11
covid12_sx Integer Recommended Have you been exposed to anyone who has been diagnosed with COVID-19 in the last 2 weeks? 0;1 0 = No; 1 = Yes covid12
covid13_sx Integer Recommended Are you experiencing new loss of taste or sense of smell? 0;1 0 = No; 1 = Yes covid13
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Additional Information
Training Privacy Policy Disclaimer Contact Us
External Resources
Accessibility FOIA OIG HHS Vulnerability Disclosure
NIH Logo HHS Logo USA Gov Logo
c725efb98f608e6bc0136950f08b0c3af2bde994