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Developmental Disabilities (DD): Service Utilization

0 Shared Subjects

The Service Utilization form measures how often anyone living in the household has used a particular service / agency within their community in the last 6 months. This measure also includes specific services relevant to families of children with developmental disabilities (DD).
Clinical Assessments
Autism Spectrum Disorders
03/14/2022
su01
11/14/2022
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
service_pcp_01 Integer Recommended In the last 6 months: Has anyone been to the doctor or primary care physician? 0;1 0= No; 1= Yes
service_pcp_02 Integer Recommended In the last 6 months: Who has anyone been to the doctor or primary care physician? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_pcp_03 Integer Recommended In the last 6 months: How often has (who) been to the doctor or primary care physician? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_pcp_04 String 4,000 Recommended Doctor or Primary Care Physician: Notes
service_er_01 Integer Recommended In the last 6 months: Has anyone been to the emergency room? 0;1 0= No; 1= Yes
service_er_02 Integer Recommended In the last 6 months: Who has anyone been to the emergency room? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_er_03 Integer Recommended In the last 6 months: How often has (who) been to the emergency room? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_er_04 String 4,000 Recommended Emergency Room: Notes
service_med_01 Integer Recommended In the last 6 months: Has anyone in the home seen a medical specialist for a medical reason? 0;1 0= No; 1= Yes
service_med_02 Integer Recommended In the last 6 months: Who in the home has seen a medical specialist for a medical reason? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_med_03 Integer Recommended In the last 6 months: How often has (who) been to the medical specialist for medical reason? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_med_04 String 4,000 Recommended Medical Specialist: Notes (Such as: neurologists, developmental pediatricians, optometrist, occupational therapists, physical therapist)
service_mental_01 Integer Recommended In the last 6 months: Has anyone in the home received mental health services or counseling?
service_mental_02 Integer Recommended In the last 6 months: Who in the home has received mental health services or counseling? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_mental_03 Integer Recommended In the last 6 months: How often has (who) received mental health services or counseling? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_mental_04 Integer Recommended Mental Health: What types of service? 1 :: 5 1= Marriage/Couples; 2= Family; 3= Individual; 4= Drug/Alcohol; 5= Multiple Services
service_iep_01 Integer Recommended In the last 6 months: Has anyone in the home, other than TC, had an eligibility screening or meeting for education services? 0;1 0= No; 1= Yes
service_iep_02 Integer Recommended In the last 6 months: Who, other than TC, had an eligibility screening or meeting for education services? 1 :: 3 1= The Child (TC); 2= Sibling; 3= Other Family Member
service_iep_03 String 500 Recommended If so, by whom and when:
service_region_01 Integer Recommended In the last 6 months: Has anyone in your family received services contracted by the Regional Center? 0;1 0= No; 1= Yes
service_region_02 Integer Recommended In the last 6 months: Who in your family received services contracted by the Regional Center? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_region_03 Integer Recommended In the last 6 months: How often has (who) received services contracted by the Regional Center? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_region_04 String 4,000 Recommended Regional Center: Notes
service_parent_01 Integer Recommended In the last 6 months: Besides this project, has anyone in the home been to parenting classes or parenting programs? 0;1 0= No; 1= Yes
service_parent_02 Integer Recommended In the last 6 months: Who in the home has been to parenting classes or parenting programs? 1 :: 4 1= Primary Caregiver (PC); 2= Sibling; 3= Partner; 4= Other Family Member
service_parent_03 Integer Recommended In the last 6 months: How often has (who) been to parenting classes or parenting programs? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_parent_04 String 4,000 Recommended Parenting: Notes
service_sport_01 Integer Recommended In the last 6 months: Has anyone in the home participated in a sports program? 0;1 0= No; 1= Yes
service_sport_02 Integer Recommended In the last 6 months: Who in the home participated in a sports program? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_sport_03 Integer Recommended In the last 6 months: How often has (who) participated in a sports program? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_sport_04 String 4,000 Recommended Sports Programs: Notes
service_aftsc_01 Integer Recommended In the last 6 months: Has any child in the home participated in afterschool programs or activities? 0;1 0= No; 1= Yes
service_aftsc_02 Integer Recommended In the last 6 months: Who in the home has participated in afterschool programs or activities? 1 :: 4 1= Primary Caregiver (PC); 2= Sibling; 3= Partner; 4= Other Family Member
service_aftsc_03 Integer Recommended In the last 6 months: How often has (who) participated in afterschool programs or activities? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_aftsc_04 String 4,000 Recommended Afterschool Programs: Notes
service_presch_01 Integer Recommended In the last 6 months: Has any child in the home attended a preschool program, daycare, or headstart? 0;1 0= No; 1= Yes
service_presch_02 Integer Recommended In the last 6 months: Who in the home has attended a preschool program, daycare, or headstart? 1 :: 4 1= Primary Caregiver (PC); 2= Sibling; 3= Partner; 4= Other Family Member
service_presch_03 Integer Recommended In the last 6 months: How often has (who) attended a preschool program, daycare, or headstart? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_presch_04 String 4,000 Recommended Preschool Program: Notes
healthsurvey Integer Recommended On a scale from poor to excellent, how would you rate your physical and mental health? 1 :: 4 1= Poor; 2= Fair; 3= Good; 4= Excellent
service_dev_01 Integer Recommended In the last 6 months: Has anyone in the home, other than TC, received any other type of developmental services? 0;1 0= No; 1= Yes
service_dev_02 Integer Recommended In the last 6 months: Who in the home has received any other type of developmental services? 1 :: 4 1= Primary Caregiver (PC); 2= Sibling; 3= Partner; 4= Other Family Member
service_dev_03 Integer Recommended In the last 6 months: How often has (who) received any other type of developmental services? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_dev_04 String 4,000 Recommended Developmental Services: Notes
religioussurvey01 Integer Recommended Are you involved with a church, religion, or spiritual practice? 0;1 0= No; 1= Yes
religioussurvey02 Integer Recommended How would you rate your involvement or connection to church or religion on a scale of 1-10? 1 :: 10 (1 being not at all, 10 would be very much.)
religioussurvey03 String 50 Recommended What religion?
service_oth_01 Integer Recommended Are there any other programs or services you have received in the last 6 months I haven't already asked you about? 0;1 0= No; 1= Yes
service_oth_02 String 4,000 Recommended What are there other programs or services you have received in the last 6 months I haven't already asked you about?
service_oth_03 Integer Recommended Who in your family has received the other programs or services you have received in the last 6 months I haven't already asked you about? 1 :: 5 1= Primary Caregiver (PC); 2= The Child (TC); 3= Sibling; 4= Partner; 5= Other Family Member
service_oth_04 Integer Recommended How often has (who) received the other programs or services you have received in the last 6 months I haven't already asked you about? 1 :: 6 1= 1 to 2 times; 2= 3 to 4 times; 3= Monthly; 4= BiWeekly; 5= Weekly; 6= Multiple times a week
service_oth_05 String 4,000 Recommended Other Services: Notes
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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